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The Data Protection and Medical Research in Europe: PRIVIREAL
series focuses on the 'Privacy in Research Ethics and Law'
EC-funded project examining the implementation of Directive
95/46/EC on data protection in relation to medical research and the
role of ethics committees in European countries. The series
consists of five separate volumes following the complete
development of the PRIVIREAL project. This volume relates to the
first stage of this project concerning the implementation of the
Data Protection Directive, in particular in the area of medical
research. It contains reports from 26 European countries on the
implementation of the Directive, or the data protection regime, all
with a specific focus on issues and questions relating to medical
research. Presenting a unique resource for all those involved in
data protection, medical research and their implications for each
other, this title provides a valuable insight into the actual
workings across Europe, including both the New Member States and
the Newly Associated Member States.
The Data Protection and Medical Research in Europe: PRIVIREAL
series represents the results of this EC-funded project examining
the implementation of Directive 95/46/EC on data protection in
relation to medical research and the role of ethics committees in
European countries. The series consists of five separate volumes
following the complete development of the PRIVIREAL project. This
volume relates to the second stage of this project and is concerned
with the setting up and role of research ethics committees. It
assesses their legal responsibilities, especially with regard to
data protection matters and contains reports from more than 20
European countries on these issues. Focusing on the theoretical
role and practical operation of research ethics committees and the
impact of relevant international and national instruments, this
volume will be an essential resource for all those concerned with
data protection issues in medical research.
The Data Protection and Medical Research in Europe: PRIVIREAL
series focuses on the 'Privacy in Research Ethics and Law'
EC-funded project examining the implementation of Directive
95/46/EC on data protection in relation to medical research and the
role of ethics committees in European countries. The series
consists of five separate volumes following the complete
development of the PRIVIREAL project. This volume relates to the
first stage of this project concerning the implementation of the
Data Protection Directive, in particular in the area of medical
research. It contains reports from 26 European countries on the
implementation of the Directive, or the data protection regime, all
with a specific focus on issues and questions relating to medical
research. Presenting a unique resource for all those involved in
data protection, medical research and their implications for each
other, this title provides a valuable insight into the actual
workings across Europe, including both the New Member States and
the Newly Associated Member States.
Recent advances in techniques and understanding in the fields of
genetics, embryology and reproductive biology have opened up new
ways to treat a wide range of medical problems. They range from new
options for infertility treatment and pre-implantation genetic
diagnosis to stem-cell-based therapies for debilitating diseases.
Since all these approaches involve the manipulation of human
gametes, embryos or embryonic cells, and could also permit more
contentious uses, they have stimulated a controversial debate as to
what aims are desirable and to what extent experiments on human
embryos are morally permissible, if permissible at all. The
situation is further complicated by the fact that scientific
projects are increasingly realized through international
co-operation and that patients are increasingly ready to seek
morally contentious medical treatment wherever it is available and
thus to bypass national legislation. In view of this situation the
Europaische Akademie assembled a temporary interdisciplinary
project group in which scientists from universities and
non-university research organizations in Europe working on the
relevant subjects were brought together and charged with
establishing a knowledge base and providing suggestions for
long-term solutions that would be acceptable for society. Presented
here are the results of this project, ranging from a discussion of
the theoretical and practical possibilities in human-embryo
experimentation and its alternatives in research on adult stem
cells, a comparison of the situations and prospects of regulation
of embryo research in Europe, a survey of European public
attitudes, and a philosophical analysis of the arguments and
argumentative strategies used in the debate."
Recent advances in techniques and understanding in the fields of
genetics, embryology and reproductive biology have opened up new
ways to treat a wide range of medical problems. They range from new
options for infertility treatment and pre-implantation genetic
diagnosis to stem-cell-based therapies for debilitating diseases.
Since all these approaches involve the manipulation of human
gametes, embryos or embryonic cells, and could also permit more
contentious uses, they have stimulated a controversial debate as to
what aims are desirable and to what extent experiments on human
embryos are morally permissible, if permissible at all. The
situation is further complicated by the fact that scientific
projects are increasingly realized through international
co-operation and that patients are increasingly ready to seek
morally contentious medical treatment wherever it is available and
thus to bypass national legislation. In view of this situation the
Europaische Akademie assembled a temporary interdisciplinary
project group in which scientists from universities and
non-university research organizations in Europe working on the
relevant subjects were brought together and charged with
establishing a knowledge base and providing suggestions for
long-term solutions that would be acceptable for society. Presented
here are the results of this project, ranging from a discussion of
the theoretical and practical possibilities in human-embryo
experimentation and its alternatives in research on adult stem
cells, a comparison of the situations and prospects of regulation
of embryo research in Europe, a survey of European public
attitudes, and a philosophical analysis of the arguments and
argumentative strategies used in the debate."
The Data Protection and Medical Research in Europe: PRIVIREAL
series focuses on the 'Privacy in Research Ethics and Law'
EC-funded project examining the implementation of Directive
95/46/EC on data protection in relation to medical research and the
role of ethics committees in European countries. The series
consists of five separate volumes following the complete
development of the PRIVIREAL project. This volume relates to the
first stage of the project regarding the implementation of the Data
Protection Directive, in particular in the area of medical
research. It contains an introduction and overview of this topic,
keynote papers addressing specific questions on the subject, and a
report on both the general implementation of the Directive and the
implementation in relation to medical research in 26 European
countries. The book will be invaluable for those people with an
interest in data protection, medical research and their
implications for each other. It lays open the actual situation
across Europe, including both New Member States and Newly
Associated Member States.
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