'A powerful memoir of love and loss, which are two sides of the same coin' - Julia Samuel, bestselling author of Grief Works and This Too Shall Pass 'A lyrical, deep, funny, eyes-wide-open, ultimately comforting book. I adored it, and - if you are searching for how to live in a broken world - so will you' - Lucy Kalanithi 'A book of rare power and grace... Reading this extraordinarily thoughtful writer and her luminous prose was, for me, sanctuary' - Will Schwalbe, New York Times bestselling author of The End of Your Life Book Club *NYT EDITORS' CHOICE* A searing memoir of a mother's love, the meaning of resilience and the possibilities of life after grief from the New York Times bestselling author of The Still Point of the Turning World. 'Congratulations on the resurrection of your life,' a colleague wrote to Emily Rapp Black when she announced the birth of her second child. The line made Emily pause. Her first child, Ronan, had died before he turned three years old from Tay-Sachs disease, an experience she wrote about in her first book, The Still Point of the Turning World. Since that time her life had changed utterly: she had left the marriage that fractured under the terrible weight of her son's illness, remarried the love of her life, had a flourishing career, and given birth to a healthy baby girl. But she rejected the idea that she was leaving her old life behind - that she had, in the manner of the mythical phoenix, risen from the ashes and been reborn into a new story, when she carried so much of her old story with her. More to the point, she wanted to carry it with her. Everyone she met told her she was resilient, strong, courageous in ways they didn't think they could be. But what did these words mean, really? Sanctuary is an attempt to unpack the various notions of resilience that we carry as a culture. Drawing on contemporary psychology, neurology, etymology, literature, art and self-help, Emily Rapp Black shows how we need a more complex understanding of this concept when applied to stories of loss and healing. Interwoven with lyrical, unforgettable personal vignettes from her life as a mother, wife, daughter, friend and teacher, Rapp Black creates a stunning tapestry that is full of wisdom and insight. 'Every once in a while, a book comes along that ushers us to the very center of a profound truth that we don't so much learn, as recognize. Emily Rapp takes us there in SANCTUARY' - Dani Shapiro, New York Times bestselling author of Inheritance 'An absolute marvel. As a writer, a mother, and woman, Black is a profound inspiration-not because she's fearless but because she's courageous. To understand the distinction, read this beautiful book.' -Bret Anthony Johnston, New York Times bestselling author of Remember Me Like This 'Not since When Breath Becomes Air has a memoir conveyed such profound loss, alongside such luminous and life-affirming love.' Adrienne Brodeur, author of Wild Game

THE NEW YORK TIMES BESTSELLER With a new chapter detailing the events that have taken place since Ronan's passing in February 2013. Like all mothers, Emily Rapp had ambitious plans for her son, Ronan. He would be smart, loyal, physically fearless, level-headed but fun. He would be good at crossword puzzles like his father. He would be an avid skier like his mother. Rapp would speak to him in foreign languages and give him the best education. But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about raising a family. They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future. The Still Point of the Turning World is the story of a mother's journey through grief and beyond it. Rapp's response to her son's diagnosis was a belief that she needed to 'make my world big' - to make sense of her family's situation through art, literature, philosophy, theology and myth. Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley's Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child. In luminous, exquisitely moving prose, she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life. Emily Rapp Black's follow up memoir, Sanctuary, will publish in January 2021.

A New York Times-bestselling author's personal examination of how the experiences, art, and disabilities of Frida Kahlo shaped her life as an amputee. Frida Kahlo was an amputee in the last part of her life, but long before that her right leg had been compromised by a childhood bout with polio. Since adolescence, Emily Rapp, herself an amputee since the age of four, felt that there were many things she had in common with Frida Kahlo. From the first sight of Kahlo's painting of the devastating bus crash that almost killed her, Rapp felt a sense of kinship with the artist. They both endured numerous operations; both alternately hid and revealed their altered bodies; and both found a way to live and create despite physical and emotional pain. In this riveting read, Rapp gets to the essence of Kahlo through her art, her letters, and her diaries. Rapp tells her own story of losing a child to Tay-Sachs; finding love, and becoming pregnant with her daughter; and of how Kahlo's life and work helped her to find a way forward when all seemed lost. Containing several full-color images of Kahlo's art and clothing, Frida Kahlo and My Left Leg offers a unique perspective on the artist and the challenges she faced. I want to know and remember what it was like to walk as Frida once walked: before polio at six years old shrunk her right leg; before the infamous bus crash on September 17, 1925 when the pole pierced her pelvis; then the casts, the saws, the stitches woven into the skin and then carefully twisted out, the scars gone white and silent and sealed. I am one-legged, like Frida, but I am also unlike her, and there in our essential difference is where my fascination lies, and there lies also my devotion, my despair, my revulsion, my resentment, my desire.

The stunning, critically-acclaimed memoir of living with disability.

Emily Rapp was born with a congenital defect that required, at the age of four, that her left foot be amputated. By the time she was eight she'd had dozens of operations, had lost most of her leg, from just above the knee, and had become the smiling, indefatigable "poster child" for the March of Dimes. For years she made appearances at church suppers and rodeos, giving pep talks about how normal and happy she was. All the while she was learning to live with what she later described as "my grievous, irrevocable flaw," and the paradox that being extraordinary was the only way to be ordinary.

"A brilliant study of the wages of mortal love." --"The New York Times Book Review"

What does it mean to be a success? To be a good parent? To live a meaningful life? Emily Rapp thought she knew the answers when she was pregnant with her first child. But everything changed when nine-month-old Ronan was diagnosed with Tay-Sachs disease, a rare and always-fatal degenerative disorder. He was not expected to live beyond the age of three. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting and to learn to parent without a future.

Even before the book's publication, Rapp set the Internet ablaze with her "New York Times" op-ed piece about parenting a terminally ill child. An immediate bestseller, "The Still Point of the Turning World" is Rapp's memorial to her lost son and an inspiring and exquisitely moving reminder to love and live in the moment.