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A diagnosis of dementia changes the ways people engage with each
other - for those living with dementia, as well their families,
caregivers, friends, health professionals, neighbours, shopkeepers
and the community. Medical understandings, necessary as they are,
provide no insights into how we may all live good lives with
dementia. This innovative volume brings together an
interdisciplinary group of researchers and practitioners to focus
on dementia as lived experience. It foregrounds dementia's social,
moral, political and economic dimensions, investigating the
challenges of reframing the dementia experience for all involved.
Part I critiques the stigmas, the negativity, language and fears
often associated with a dementia diagnosis, challenging
debilitating representations and examining ways to tackle these.
Part II examines proactive practices that can support better
long-term outcomes for those living with dementia. Part III looks
at the relational aspects of dementia care, acknowledging and going
beyond the notion of person-centred care. Collectively, these
contributions highlight the social and relational change required
to enhance life for those with dementia and those who care for
them. Engaging in a critical conversation around personhood and
social value, this book examines the wider social contexts within
which dementia care takes place. It calls for social change, and
looks for inspiration to the growing movement for relational care
and the caring society. Dementia as Social Experience is important
reading for all those people who, in various ways, are living with
dementia, as well as for those working in this area as clinicians,
researcher and carers.
A diagnosis of dementia changes the ways people engage with each
other - for those living with dementia, as well their families,
caregivers, friends, health professionals, neighbours, shopkeepers
and the community. Medical understandings, necessary as they are,
provide no insights into how we may all live good lives with
dementia. This innovative volume brings together an
interdisciplinary group of researchers and practitioners to focus
on dementia as lived experience. It foregrounds dementia's social,
moral, political and economic dimensions, investigating the
challenges of reframing the dementia experience for all involved.
Part I critiques the stigmas, the negativity, language and fears
often associated with a dementia diagnosis, challenging
debilitating representations and examining ways to tackle these.
Part II examines proactive practices that can support better
long-term outcomes for those living with dementia. Part III looks
at the relational aspects of dementia care, acknowledging and going
beyond the notion of person-centred care. Collectively, these
contributions highlight the social and relational change required
to enhance life for those with dementia and those who care for
them. Engaging in a critical conversation around personhood and
social value, this book examines the wider social contexts within
which dementia care takes place. It calls for social change, and
looks for inspiration to the growing movement for relational care
and the caring society. Dementia as Social Experience is important
reading for all those people who, in various ways, are living with
dementia, as well as for those working in this area as clinicians,
researcher and carers.
First published in 1999, this book is based on social policy
research, taking a particular view of the nature of social policy,
one that focuses on the direct impact of all public policies on the
welfare of citizens and which defines policy as inclusive of all
areas of policy development and implementation. The view of policy
which clients and customers provide is thus a significant dimension
of social policy. The research is one of the few studies which
focuses specifically on carers who are also in the paid work force
and want to remain in paid work and to fulfil their caring
responsibilities. An overriding concern of the research is how
workplaces, government policy and community attitudes can be
changed to foster a better and more supportive environment for
workers who are caring. The research points to the need to change
workplace policies and organisational cultures to confer legitimacy
on the felt obligation and responsibility to care for older
relatives. The responsibility of employers are explored and the
knowledge, competencies and time management skills demonstrated in
unpaid caring work are found to match the 'skill get' generally
required of a modern manager, thereby offering important lessons
for employer and employee alike.
First published in 1999, this book is based on social policy
research, taking a particular view of the nature of social policy,
one that focuses on the direct impact of all public policies on the
welfare of citizens and which defines policy as inclusive of all
areas of policy development and implementation. The view of policy
which clients and customers provide is thus a significant dimension
of social policy. The research is one of the few studies which
focuses specifically on carers who are also in the paid work force
and want to remain in paid work and to fulfil their caring
responsibilities. An overriding concern of the research is how
workplaces, government policy and community attitudes can be
changed to foster a better and more supportive environment for
workers who are caring. The research points to the need to change
workplace policies and organisational cultures to confer legitimacy
on the felt obligation and responsibility to care for older
relatives. The responsibility of employers are explored and the
knowledge, competencies and time management skills demonstrated in
unpaid caring work are found to match the 'skill get' generally
required of a modern manager, thereby offering important lessons
for employer and employee alike.
In 1997 Nancy de Vries accepted the Apology from the Parliament of
New South Wales on behalf of all the Indigenous children who had
been taken from their families and communities throughout the
state's history. It was an honour that recognised she had the
courage to speak about a life of pain and loneliness. Nancy tells
her story in an unusual and challenging collaboration with Dr
Gaynor Macdonald (Anthropology) of the University of Sydney,
Associate Professor Jane Mears (Social Policy) of the University of
Western Sydney and Dr Anna Nettheim (Anthropology) of the
University of Sydney.
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