This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning

This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning

The CAMDEX-DS-II is a standardised structured schedule comprising the assessments necessary for facilitating the diagnosis of dementia in people with Down's syndrome (a group known to be at particular risk of dementia), as well as others with intellectual disabilities. In order to differentiate decline due to dementia or other mental disorders from pre-existing impairment, particular emphasis has been placed on establishing change from the individual's best level of functioning. Updated from the original CAMDEX-DS-II, the assessments comprise a structured informant interview to facilitate the systematic collection of information about presenting symptoms and clinical history in order to arrive at a differential diagnosis, and a direct assessment of the patient/participant covering cognitive assessment (CAMCOG-DS-II, providing a reliable way to identify dementia (and to differentiate it from other common disorders). The pack comprises a guidance manual, pictorial booklet, informant interview and CAMCOG-DS neuropsychological test battery. It may be used in community settings by mental health professionals as part of the diagnostic process, or to formalise diagnosis in the context of research.