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End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice (Hardcover, 1st ed. 2022)
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End of Life and People with Intellectual and Developmental Disability - Contemporary Issues, Challenges, Experiences and Practice (Hardcover, 1st ed. 2022)
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This book on end of life examines how to include people with
intellectual and developmental disability in the inevitability of
dying and death. Comprising 17 chapters, it addresses challenging
and under-researched topics including suicide, do-not-resuscitate,
advance care planning, death doulas and accessible funerals. Topics
reflect everyday community, palliative care, hospice and disability
services. The book proposes that the rights of people with
disabilities should be supported up to and after their death. Going
beyond problem identification, the chapters offer positive,
evidence-supported responses that translate research to practice,
together with practice examples and resources grounded in lived
experience. The book is applicable to readers from the disability
field, and mainstream health professionals who assist people with
disability in emergency care, palliative care or end-of-life
planning
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