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As individuals increasingly seek ways of accessing, understanding and sharing data about their own bodies, this book offers a critique of the popular claim that 'more information' equates to 'better health'. In a study that redefines the public, academic and policy related debates around health, bodies, information and data, the authors consider the ways in which the phenomenon of self-diagnosis has created alternative worlds of knowledge and practises which are often at odds with professional medical advice. With a focus on data that concerns significant life changes, this book explores the potential challenges related to people's changing relationships with traditional health systems as access to, and control over, data shifts.
What is at stake socially, culturally, politically, and economically when we routinely use technology to gather information about our bodies and environments? Today anyone can purchase technology that can track, quantify, and measure the body and its environment. Wearable or portable sensors detect heart rates, glucose levels, steps taken, water quality, genomes, and microbiomes, and turn them into electronic data. Is this phenomenon empowering, or a new form of social control? Who volunteers to enumerate bodily experiences, and who is forced to do so? Who interprets the resulting data? How does all this affect the relationship between medical practice and self care, between scientific and lay knowledge? Quantified examines these and other issues that arise when biosensing technologies become part of everyday life. The book offers a range of perspectives, with views from the social sciences, cultural studies, journalism, industry, and the nonprofit world. The contributors consider data, personhood, and the urge to self-quantify; legal, commercial, and medical issues, including privacy, the outsourcing of medical advice, and self-tracking as a "paraclinical" practice; and technical concerns, including interoperability, sociotechnical calibration, alternative views of data, and new space for design. Contributors Marc Boehlen, Geoffrey C. Bowker, Sophie Day, Anna de Paula Hanika, Deborah Estrin, Brittany Fiore-Gartland, Dana Greenfield, Judith Gregory, Mette Kragh-Furbo, Celia Lury, Adrian Mackenzie, Rajiv Mehta, Maggie Mort, Dawn Nafus, Gina Neff, Helen Nissenbaum, Heather Patterson, Celia Roberts, Jamie Sherman, Alex Taylor, Gary Wolf
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