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What is the value of medical research? With contributions from
anthropologists, sociologists and activists, this approach brings
into focus the forms of value - social, epistemic, and economic -
that are involved in medical research practices and how these
values intersect with everyday living. Though their work covers
wide empirical ground -from HIV trials in Kenya and drug donation
programs in Tanzania to industry-academic collaborations in the
British National Health Service - the authors share a commitment to
understanding the practices of medical research as embedded in both
local social worlds and global markets. Their collective concern is
to rethink the conventional ethical demarcations betwweenpaid and
unpaid research services in light of the social and material
organisation of medical research practices. . Rather than warn
against economic incursions into medical knowledge and health
practice, or, alternatively, the reduction of local experience to
the standards of bioethics, we hope to illuminate the array of
practices, knowledges, and techniques through which the value of
medical research is brought into being. This book was originally
published as a special issue of Journal of Cultural Economy.
What is the value of medical research? With contributions from
anthropologists, sociologists and activists, this approach brings
into focus the forms of value - social, epistemic, and economic -
that are involved in medical research practices and how these
values intersect with everyday living. Though their work covers
wide empirical ground -from HIV trials in Kenya and drug donation
programs in Tanzania to industry-academic collaborations in the
British National Health Service - the authors share a commitment to
understanding the practices of medical research as embedded in both
local social worlds and global markets. Their collective concern is
to rethink the conventional ethical demarcations betwweenpaid and
unpaid research services in light of the social and material
organisation of medical research practices. . Rather than warn
against economic incursions into medical knowledge and health
practice, or, alternatively, the reduction of local experience to
the standards of bioethics, we hope to illuminate the array of
practices, knowledges, and techniques through which the value of
medical research is brought into being. This book was originally
published as a special issue of Journal of Cultural Economy.
Conducting good, ethical global health research is more important
than ever. Increased global mobility and connectivity mean that in
today's world there is no such thing as 'local health'. How we
experience the effects of disease may be shaped by our social and
economic differences, but the sick in one part of the world and the
healthy in another are connected through economics, politics,
media, and imagination, as well as by the infectiousness of
disease. Global health research carried out through transnational
collaboration is one crucial way in which people from far-flung
geographic regions relate to each other. Good global health
research and the relationships it creates, therefore, concerns us
all. This book is a collection of fictionalised case studies of
everyday ethical dilemmas and challenges, encountered in the
process of conducting global health research in places where the
effects of global, political and economic inequality are
particularly evident. Our aim is to create a training tool which
can begin to fill the gap between research ethics guidelines, and
their implementation 'on the ground'.The case studies, therefore,
focus on 'relational' ethics: ethical actions and ideas that emerge
through relations with others, rather than in regulations. The case
studies are based on stories and experiences collected by a group
of anthropologists who have worked with leading transnational
medical research organisations across Africa in the past decade.
The stories have been anonymised, combined with each other, and
substantially altered in order to provide 'stumbling stones' to
start discussion, without naming real places or situations. As a
collection, these stories offer a flexible resource for training
across a variety of contexts, such as medical research
organisations, universities, collaborative sites, and NGOs. We hope
they will encourage global health researchers to think - and talk -
about their everyday experiences and practices, and about ethics,
in a new light.
Medical research has been central to biomedicine in Africa for over
a century, and Africa, along with other tropical areas, has been
crucial to the development of medical science. At present, study
populations in Africa participate in an increasing number of
medical research projects and clinical trials, run by both public
institutions and private companies. Global debates about the
politics and ethics of this research are growing and local concerns
are prompting calls for social studies of the "trial communities"
produced by this scientific work. Drawing on rich, ethnographic and
historiographic material, this volume represents the emergent field
of anthropological inquiry that links Africanist ethnography to
recent concerns with science, the state, and the culture of late
capitalism in Africa.
Medical research has been central to biomedicine in Africa for over
a century, and Africa, along with other tropical areas, has been
crucial to the development of medical science. At present, study
populations in Africa participate in an increasing number of
medical research projects and clinical trials, run by both public
institutions and private companies. Global debates about the
politics and ethics of this research are growing and local concerns
are prompting calls for social studies of the "trial communities"
produced by this scientific work. Drawing on rich, ethnographic and
historiographic material, this volume represents the emergent field
of anthropological inquiry that links Africanist ethnography to
recent concerns with science, the state, and the culture of late
capitalism in Africa.
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