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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Anne's sister Becky was born in 1958, long before most people had even heard of autism. Diagnosed with "emotional disturbance," Becky was subjected for much of her childhood to well-meaning but futile efforts at "rehabilitation" or "cure," as well as prolonged spells in institutions away from her family. Painting a vivid picture of growing up in small-town America during the Sixties, Anne describes her sister's and her own painful childhood experiences with compassion and honesty. Struggling with the separation from her sister and the emotional and financial hardships the family experienced as a result of Becky's condition, Anne nevertheless found that her sister had something that "normal" people were unable to offer. Today she is accepting of her sister's autism and the impact, both painful and positive, it has had on both their lives. This bittersweet memoir will resonate with families affected by autism and other developmental disorders and will appeal to everyone interested in the condition.
Fathers of disabled children can feel overlooked when the focus of much parenting support is aimed at mothers. Different Dads is a collection of inspiring personal testimonies written by fathers of children with a disability who reflect on their own experiences and offer advice to other fathers and families on the challenges of raising a child with a disability. The fathers featured represent a broad spectrum of experience. Their contributions reflect a wide range of cultures; some are single fathers, others are married adoptive fathers. What they all have in common are the challenges that face them and their families in raising a child with a disability. Issues explored include the reactions of family, friends and colleagues, how to deal with the organisations and professionals that support families with a disabled child, and the difficulty of being open about feelings in a culture that doesn't always expect men to have a sensitive or nurturing role. Offering direct and thoughtful perspectives on being a father of a child with a disability, this book will be a valuable source of support and information for families with disabled children, and also for health and social care professionals who work with these families.
All parents want the best for their child, and for parents of children with special needs, this can mean that their own well-being is neglected. Drawing from their own experiences of parenting children with special needs, interviews and workshops with parents, and research findings, Nancy J. Whiteman and Linda Roan-Yager explore practical ways in which parents can develop a resilient and positive attitude towards caring for their child with special needs. This book considers the challenges of caring for children with physical, developmental and mental health disorders and proposes methods such as learning to see events through your child's own eyes, celebrating their strengths and achievements and recognising how others can help your child. Chapters deal with key topics such as coping with a diagnosis, discussing support needs with a child's teachers and explaining a child's differences to their peers, and the authors stress the importance of parents building support systems for themselves and their children. Real stories from parents and example scenarios illustrate the common difficulties faced by parents of children with special needs, and the authors explain how painful thoughts may be identified and reframed through techniques grounded in cognitive behaviour therapy. Crucially, Building a Joyful Life warns against parents neglecting their own needs, and a range of exercises to be completed by parents will help them to find ways of regaining balance in their lives.
People with autism spectrum conditions may often behave in ways that cause difficulties for themselves and those who care for them. People with Autism Behaving Badly offers effective, long-term strategies to help resolve common problem behaviors such as physical aggression, self-injury, verbal abuse, rudeness and property damage.;The book is organized around the common messages conveyed by behaviors and some of the underlying issues that drive these messages. Practical ideas for intervention are provided and illustrated by case examples. A range of exercises help to build understanding of the issues and detail appropriate plans. A log book helps to track what has been tried and what has been learned. In addition the author explores the role of relationship 'styles' that can help reduce challenging behaviors and encourage positive ones. Realistic information about working together with individuals, families and outside agencies, and about the pros and cons of medication, is also included.;This hands-on, practical manual is indispensable for families, carers and anyone involved with autistic people who need help with behavioral or emotional challenges.
Communicating Partners, the result of over thirty years of clinical practice and research work with pre-verbal and verbal children with language delays, offers an innovative approach to working with late talking children that focuses on developing relationships through mutual understanding. Providing detailed maps of what children and their life partners need to do to ensure effective social relationships, the program focuses on five key stages of communication development - interactive play, nonverbal communication, social language, conversation, and civil behavior - and five life-long responsive strategies to use every day to build relationships within the child's own world. Communicating Partners addresses issues such as: * What does a child need to do before language? * What are effective ways to help a child socialize and communicate from early play through civil conversations? * How have parents successfully helped children learn to communicate at home? * How can a child develop socially effective language and conversation skills? * How can a child with an autistic spectrum disorder, Down Syndrome or other significant delays develop rich social relationships? * What have families done to build warm social relationships with their children? * What is developmentally effective therapy and education when social and communicative delays are of major concern? Illustrated with personal stories and research findings, and containing a wealth of practical suggestions to help parents, teachers, and professionals understand their child's world, Communicating Partners is an invaluable resource for all those interacting and working with late talking children.
For parents of children with Asperger Syndrome ordinary parenting just doesn't always do it - AS kids need a different approach. Brenda is mother to thirteen-year-old Kenneth, author of Asperger Syndrome, the Universe and Everything, and since his diagnosis at the age of eight she has gathered together the parenting ideas and tips that have had a positive effect on Kenneth's life. Brenda discusses parents' reaction to their child's AS and gives advice on how better to understand 'Planet Asperger'. This book helps parents to respond positively to the challenge of AS and find the 'treasure' in their child's way of being.
Chris and Gisela have been partners for twelve years. Four years ago Chris was diagnosed with Asperger syndrome. For Chris, this was an explanation of why he had always regarded himself as 'socially handicapped'. For Gisela, it meant coming to terms with a marriage in which there would never be an intuitive understanding despite Chris's good intentions. For the couple it was the beginning of a long and still unfinished process of learning to live with a disability regarded by some as incompatible with marriage.
This little book does exactly what it sets out to do. It spells out all you need to know about different methods and strategies for treating dyslexia. So, if you want to know more about the many approaches to helping someone with dyslexia, then read this book. At the end of the day, you will be better informed to choose a way to suit your child. It is encouraging to read her list of famous people with dyslexia. It includes Hans Christian Anderson, Albert Einstein, Winston Churchill, Agatha Christie, Jeremy Irons, Jackie Stewart and Richard Branson. They haven't done too badly, have they?' - www.family2000.org.uk 'This readable and useful little book has been written by a mother of two dyslexic sons. She writes about the hard road she travelled to find help and support for them. The book covers most of the questions that the parents of a dyslexic child would want answered, but it is just as useful to professionals who have a dyslexic child in their classroom or setting. The importance of early identification is stressed and the author provides useful information about tests which can be administered to children as young as four years old. There are informative chapters about the various successful techniques and strategies for working with dyslexic children, ranging from the well-publicised rose-coloured spectacles to the part played by a special diet.' - Nursery World Over the years, many quick fix approaches to cure dyslexia have been developed and used. These 'miracle cures' have offered hope to many parents who are left disillusioned by the school system and health service. With no other way to turn, many parents spend more and more money on special glasses, vitamins, exercises and specialist advice, but do they actually work? Written by a parent of two dyslexic sons, who herself searched for anything that would 'cure' them, this new book is a practical guide to dyslexia's many 'miracle cures'. Practical Strategies for Living with Dyslexia suggests that early identification of this condition may be the key. Dyslexia is often not diagnosed until children have started school, yet testing is now available from the age of four-and-a-half. On top of this many dyslexics also have eye and ear problems that go undetected, which further exacerbates the problem. Looking at the possible remedies available, such as tinted glasses, nutritional supplements and exercising, and considering the benefits of early identification of dyslexia, this book will be an essential practical resource for both the parents of, and the professionals who work, with people with dyslexia.
Given the daily challenges of raising a child with autism, it's easy for parents to lose sight of themselves, for their marriages to weaken or fall apart, and for their overall quality of life to plummet. Studies indicate high rates of depression among autism mums and that their depression does not usually subside with the passage of time. Susan Senator interweaves her own experiences raising an autistic child with the voices of parents, researchers, and professionals in the field to offer guidance and encouragement: Parents can take care of themselves while taking care of their children. Parents and families can have good lives even if their children aren't 'cured'. "The Autism Mom's Survival Guide" is unique among books about autism in that it is not primarily about how to parent an autistic child. Instead, it is written for the challenged parents themselves, understanding them to be individuals who need to find fun, happiness, validation, and fulfillment now - in the midst of struggle and hardship - in order to be healthy and whole. Topics include strategies for: handling feelings of despair and hopelessness, caring for your marriage, finding a good balance between accepting your child and seeking new treatments, understanding the challenges of autistic adolescence, and looking toward your child's adulthood.
Providing expert yet accessible guidance to parents of young autistic people who are going to college, this book helps parents support their child from application through to graduation. Covering social issues, independent living, academic challenges, student services and emotional wellbeing, this is the one-stop shop for advice on the transition from school to college or university. The book examines the skills that students need to live and function at college, and the skills parents need to let their teens navigate college without a parent as intermediary. It offers ways to combat common problems that affect the mental health of people on the spectrum, such as keeping up with homework, fast-paced classes, and complex social expectations. This book is for any parent considering college as an option for their child, disability service providers in colleges and for autistic students themselves.
Having a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings. The book covers key symptoms including OCD, tics, anxiety, sensory issues and personality changes, with practical advice on medical management, nutrition, lifestyle, and addressing social and behavioural needs. Each chapter also includes handy sidebars with key information to remember, and action steps for overcoming challenges, managing relapse, family self-care and providing children with the best possible support.
No alternative to glasses or contact lenses? Improve your vision by looking at the psychology behind the process of seeing! We do not only see through our eyes but with our whole being: What appears in our vision is translated through the knowledge of our brain into what and how clearly we actually see it. This knowledge of our world and how we stand in it is the reality we create ourselvesa reality we are able to change if we choose to.
Why do I have to go to school before the show that I am watching is over? Why do I have to wear shoes and a jacket when I go outside? Rules like these can be really frustrating - but they don't have to be! Why do I have to? looks at a set of everyday situations that provide challenges for children at home, with their friends, and at school. Laurie Leventhal-Belfer empathizes with children's wish to do things their way, explains clearly why their way does not work, and provides a list of practical suggestions for how to cope with these challenges and avoid feelings of frustration. This is the ideal book for children who have difficulty coping with the expectations of daily living, as well as for their parents and the professionals who work with them.
A harrowing but ultimately inspiring memoir of how one girl's beautiful face and spirit was destroyed after a vicious acid attack "I heard a horrible screaming sound, like an animal being slaughtered . . . then I realised it was me." When Katie Piper was 24, her life was near perfect. Young and beautiful, she was well on her way to fulfilling her dream of becoming a model. But then she met Daniel Lynch on Facebook and her world quickly turned into a nightmare. After being held captive and brutally raped by her new boyfriend, Katie was subjected to a vicious acid attack. Within seconds, this bright and bubbly girl could feel her looks and the life she loved melting away. This""is the moving true story of how one young woman had her mind, body, and spirit cruelly snatched from her and how she inspired millions with her fight to get them back.
As an educational advocate, Rebecca Moyes knows that many parents struggle with designing an individualized education program (IEP) that addresses the special needs of their child. This book demystifies special education laws so parents can understand their legal rights and the rights of their children, including the development of 504 Service Agreements, getting the most out of IEPs, and more. Written especially for those dealing with autism and Asperger's Syndrome, this book also tackles important issues that will come up during your child's early school experience, such as developing social skills, addressing challenging behaviors, encouraging self-esteem, and dealing with teasing and bullying. Make school a positive experience for your child!
Nicole is 2 years old, and her family, after months of worrying, has just learned she has mental retardation. In a fast-paced, engaging story, mother Sandra Kaufman frankly reveals the feelings of denial, guilt, frustration, and eventual acceptance that result in a determination to help her child live an independent life. This edition, revised on the 10th anniversary of the book's original publication, adds a "progress report" that updates readers on Nicole's adult years and reflects on the revolutionary changes in society's attitudes toward people with disabilities since Nicole's birth. "Retarded Isn't Stupid, Mom " remains a celebration of all that a child can grow to be.
Yoga therapy is gaining rapid recognition as a form of treatment that can improve the physical and mental wellbeing of children with a variety of complex needs. This book contains a specially-designed yoga program for use with children of all abilities, and provides both parents and professionals with the knowledge they need to carry out the therapy themselves. The program consists of a series of postures, each of which is explained and accompanied by an illustration. The postures are designed to help children understand and use their bodies, and work towards positive changes such as realigning the spine, encouraging eye-contact, and promoting calm and steady breathing. Consideration is given to creating the right setting for carrying out the therapy, assessing an individual child's particular needs, and making the sessions fun using games and props. Sections on yoga therapy for specific conditions such as autistic spectrum disorder, Down syndrome, and cerebral palsy are included, and the book concludes with child and parent reports on how the program has worked for them, and a list of useful contacts and resources. This practical book is a must for parents, teachers, therapists and other professionals, and anybody else who wants to help a child to develop through enjoyable and therapeutic yoga sessions.
Written for busy foster carers and adoptive parents, this book provides a concise introduction to Autism Spectrum Disorder (ASD), and how to support a child with a diagnosis. It emphasises the common strengths children with ASD have, as well as offering strategies for any behavioural issues that are likely to arise, highlighting how these can be exacerbated by the care system and adoption process. The first part of the book looks at the different aspects of autism and the challenges it can pose for children and parents, providing strategies for managing difficulties at home and at school, using social stories, and reducing sensory input in a child's environment. The second part looks at issues that arise for fostered or adopted children, including placement transitions, contact, and explaining the past. It concludes with helping parents to think about self-care.
Adults with Autism Spectrum Conditions (ASC) or a suspected diagnosis often have hidden needs that go unmet by public services. This book describes and analyses the Kent ASC enablement approach, a short-term intervention led by occupational therapy to promote people with ASC becoming more self-aware and self-sufficient outside of public services. Designed to teach adults with ASC strategies for controlling their sensory, motor-processing and social-communication needs and preferences, this person-centred approach gives them greater self-management over their lives. The book also provides an overview of a range of both professional and self-help tools and technologies which can be used by adults with ASC to increase independence and wellbeing. Case-studies demonstrate the transformative effects of enablement on daily life for adults with ASC. The book also provides recommendation for building on the enablement approach.
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