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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
God's Immeasurable Grace. It's the most important ingredient for the perfect love story. Tragic circumstances often stretch relationships to their breaking point. But God's grace is always more than enough. For Ken and Joni Eareckson Tada, enduring quadriplegia, chronic pain, cancer, and depression only made their love more vibrant through thirty years of marriage. Discover a bond that has seen the worst and claimed the best. With sixteen pages of photos, peek into Joni and Ken's challenges firsthand. Discover God's immeasurable grace along the way, as their story inspires and enriches your own relationships. A love untold. Until now. Ken underestimated the challenges of marrying a woman with quadriplegia. Even the honeymoon wasn't easy. Through their years together, Ken becomes increasingly overwhelmed by the unceasing demands of caring for a woman with chronic, extreme, nightmarish pain. He sinks into depression. Though living under the same roof, they drift apart. In the midst of their deepest struggles with depression and pain, Ken and Joni return to the one true answer to their struggles. One that is far from a denial of Joni's diagnosis or thoughts of how wonderful a quick exit to heaven would be. In their darkest hour, Ken and Joni encounter a heavenly visitation that changes their lives--and maybe yours too--forever.
Raising an autistic child comes with its own unique set of challenges, not least of which is dealing with the constant scrutiny of your parenting. This collection of stories from all corners of the globe celebrates the love, commitment and heroism of mothers of autistic people. These intimate accounts reveal both the differences in cultural attitudes, and the universality of the autism experience. Mothers from different cultural and socio-economic backgrounds speak out about the highs and lows of raising autistic children, and the shift in attitudes to autism as they watch their children enter adult life. Putting to bed the belief that autism is a result of poor parenting, this book not only lets parents know they are part of a supportive global community, it also highlights the positive aspects of autism and champions neurodiversity.
Containing 64 songs designed to promote language, social and musical development, this book accompanies the Tuning In Cards so you can perform the songs and integrate the activities into your own practice. When paired with the Tuning In Cards, it will offer an innovative way of developing communication in children with profound disabilities, visual impairment, and autism. These songs have been developed in line with the Sounds of Intent framework and in collaboration with The Amber Trust. A helpful introduction by the composer describes how to adapt the songs and activities to the appropriate developmental level.
This insightful book investigates the experiences of seven women with autism as they transition from childhood to adulthood, and how they make sense of that journey. Taken from the autobiographies of women including Liane Holliday-Willey and Temple Grandin, these accounts shine a light on issues unique to women with autism. Heather Stone Wodis provides a detailed and thoughtful exploration of their common experiences, and each story offers a new perspective that illuminates the diagnosis from a different angle. This is a fascinating look at how generational differences, such as access to the internet, can provide more avenues toward self-expression, political mobilization, and advocacy. It also explores the idea that, no matter the era, the unyielding support of family and a diagnosis in childhood can help girls with autism transition toward adulthood.
Will Attwood was finishing a three-year sentence in prison when he was formally diagnosed with Asperger's syndrome for the first time. After his diagnosis he recognised just how much it had been affecting his life behind bars. This book is a practical advice guide for people with autism who have been sentenced to time in prison. Will shares his first-hand knowledge of what to expect and how to behave within the penal system. He sheds light on topics that are important for people with autism, answering questions such as: How should you act with inmates and guards? How do you avoid trouble? What about a prison's environmental stimuli may cause you anxiety? His thoughtful, measured writing debunks rumours about daily life in prison, and the useful tips and observations he offers will help anyone with autism prepare for the realities of spending time incarcerated, and be enormously helpful to those working with offenders on the autism spectrum.
Does toxic pollution cause attention-deficit/hyperactivity disorder (ADHD)? What about screen use? Are alternative treatments worth exploring? Can dietary changes help? From leading ADHD researcher Joel T. Nigg, this book presents exciting treatment advances grounded in the new science of epigenetics--how genes and the environment interact. Distinguishing unsupported, even dangerous, approaches from bona fide breakthroughs, Dr. Nigg describes specific lifestyle changes that have been proven to support the developing brain. Vivid stories illustrate ways to maximize the positive effects of healthy nutrition, exercise, and sleep, and minimize the damage from stress and other known risk factors. The book helps you figure out which options hold the most promise for improving your child's symptoms and overall well-being--and gives you step-by-step suggestions for integrating them into daily life.
People with Chronic Fatigue Syndrome (CFS)/ME experience extreme tiredness and a range of other symptoms, including pain, headaches, impaired concentration and memory, anxiety, sleep problems, and palpitations. The condition can affect all areas of a sufferer's life and, in turn, the lives of those who are close to them. This book provides the families and friends of people with CFS/ME with an accessible introduction to the condition, and explains what can be done to support those who have it. It offers useful advice on how to help a loved one cope with the illness, and suggests ways to help them with everyday issues such as personal hygeine, nutrition, finances, and relationships. Recognising that coping with the impact of CFS/ME can be just as difficult for the relatives and friends of those with the condition, it addresses the emotional, social, and practical aspects of having a loved one with CFS/ME, explains how to understand the changes in their relationship with the sufferer, how to manage stress, and where to go for further help and support. The book also includes detailed case studies and practical advice from a wide range of people with mild, moderate, and severe CFS/ME, and their loved ones. This book offers much-needed information and support to the friends, families, and carers of people with CFS/ME. It will also be a useful resource for health professionals who wish to deepen their understanding of CFS/ME, including home helps, care staff, counsellors, therapists, doctors, and nurses.
In the United States alone, there are roughly three million individuals living with a developmental disability, but less than a third are active in the labor market. This book provides a comprehensive approach to developing a successful jobs program for persons with developmental disabilities, drawn from the author's extensive experience and real success. The majority of persons with developmental disabilities are unemployed, underemployed, or still work in sheltered programs where it is almost impossible to reach their full potential. Job success is possible, but it requires a system based on a business model based on proven economics, rather than the traditional social services model. By employing a step-by-step procedure for gaining insight into the client, analyzing market opportunities, matching the client to a job, and supporting the client after placement, service providers can help individuals make a successful transition into good community-based employment. Job Success for Persons with Developmental Disabilities will be essential reading for profit and non-profit rehabilitation service organizations, private job development businesses, government funding agencies, special education job placement programs, transition specialists, and families of persons with developmental disabilities.
Parenting a child with autism can be isolating, draining, and stressful. Parenting a neurotypical child alongside them is even more complicated and confusing. Coach Yourself through the Autism Spectrum offers an opportunity to access your inner creativity, resourcefulness, strengths, and abilities in order to create positive change in your family. Short sections on common problems such as visits to the doctor, community outings, bullying and child care make this book easy to read from start to finish, or dip into as needed. There are tips for taking care of your own physical and emotional health, and each section features relevant examples from other families in the same situation, and practical and thought-provoking coaching exercises to help you decide on an action plan that's right for you. This book offers hope and support for anyone parenting or caring for a child on the autism spectrum.
In his groundbreaking book, Talmer Shockley (himself a love-shy individual) presents a thoroughly accessible and motivating read for those suffering from love-shyness... Pay attention to his words of wisdom. They will help you find the partner that you so richly deserve' - Nick Dubin, author of Asperger's Syndrome and Bullying For many people, romantic and sexual relationships are complex and cause feelings of anxiety. For people who are love-shy, this anxiety is so overwhelming that it can make finding a partner feel like an impossible dream. Although relatively unrecognised, and therefore often undiagnosed, love-shyness is a condition which causes an intense phobia of romantic and sexual situations. This book is designed to help Love-Shys overcome this fear and allow themselves to meet, date, and eventually maintain romantic relationships with members of the opposite sex. A self-confessed Love-Shy, Talmer Shockley explores the condition, its links with Asperger's Syndrome and how it differs from normal shyness. He gives candid advice on how to deal with being love-shy, make dating an enjoyable experience, and survive the "relationship jungle". While love-shyness is predominately a male problem, it can also affect women, and the book offers tips on relationship success for both sexes. Refreshingly honest and insightful, The Love-Shy Survival Guide provides essential advice for love-shy people wanting to overcome their anxiety and form successful romantic relationships.
While paediatric healthcare professionals view play as the treatment tool of choice for children under school age, the theory and practice underpinning play-based therapeutic approaches often remain less clear to individual practitioners. Paediatric intervention approaches are increasingly being questioned, and individual practitioners constantly asked to provide evidence-based practice. In response, a more coherent understanding and fresh discussion on children's play and utilisation of play for therapeutic purposes is needed, especially as societal expectations and lifestyles change. Play as Therapy provides background theory and practical applications of original research on play assessment and interventions used in therapy. The book offers a solid foundation for identifying and assessing play dysfunction, understanding play in different cultural contexts and considerations when intervening with play. The practical approach is underpinned by theory, research and case vignettes to explain how to utilise play as therapy with challenging children.
Every child's education relies on a partnership between parents, professionals and, of course, the child. This book gives parents of children with Asperger syndrome (AS) practical advice on how to make the most of this important partnership and work with schools to ensure their child's needs are being met. The book explores how parents can prepare their child for school life and how they can work with teachers to improve the classroom environment, as well as the school environment as a whole, for their child and consequently for the benefit of all pupils. Strategies include peer education, the use of visual cues and rules and effective communication between parents, teachers and teaching assistants. This clear, accessible book will be an invaluable guide for parents of children with AS and will also be of interest to the teachers and educational professionals who work with them.
A harrowing but ultimately inspiring memoir of how one girl's beautiful face and spirit was destroyed after a vicious acid attack "I heard a horrible screaming sound, like an animal being slaughtered . . . then I realised it was me." When Katie Piper was 24, her life was near perfect. Young and beautiful, she was well on her way to fulfilling her dream of becoming a model. But then she met Daniel Lynch on Facebook and her world quickly turned into a nightmare. After being held captive and brutally raped by her new boyfriend, Katie was subjected to a vicious acid attack. Within seconds, this bright and bubbly girl could feel her looks and the life she loved melting away. This""is the moving true story of how one young woman had her mind, body, and spirit cruelly snatched from her and how she inspired millions with her fight to get them back.
People with severe autism experience the sensory information they receive from the world completely differently to those not on the spectrum. They feel cut off and overwhelmed, and their behaviour can become very distressed. This handbook shows how we can engage with people who are non-verbal or semi-verbal and sometimes even those who have speech but lose the power to process it when they are in crisis. We can help them to make sense of the world. Intensive Interaction uses a person's own body language to make contact with them and Sensory Integration develops the capacity of an individual to receive, process and apply meaning to information provided by the senses through targeted physical activities. These techniques can be used to develop an environment tailored to the particular sensory needs of the person with severe autism, reducing factors that cause distress. With illustrations, case examples and a wide range of tried-and-tested techniques, this practical guide provides indispensable tools for parents, carers and other professionals supporting people with severe autism and other learning disabilities.
Dyslogical children are commonly labelled as having one or more of a mix of conditions that include Attention Deficit/Hyperactivity Disorder, Conduct Disorder, Bipolar Disorder and Oppositional Defiant Disorder. The number of children who could be described as dyslogical continues to rise sharply, and society has a tendency to lay the blame for this trend on poor parenting or bad schooling. In this ground-breaking book, Bernard Rimland argues that such 'conventional wisdom' is not just mistaken but dangerous. Drawing on the latest research, Rimland outlines the impact of biological factors on today's children and exposes the influences of toxins and dietary deficiencies. Dyslogic Syndrome is full of valuable advice on the safe, effective treatments that are available to children, and offers positive strategies for helping parents and professionals to do the best for their dyslogical child.
Anne's sister Becky was born in 1958, long before most people had even heard of autism. Diagnosed with "emotional disturbance," Becky was subjected for much of her childhood to well-meaning but futile efforts at "rehabilitation" or "cure," as well as prolonged spells in institutions away from her family. Painting a vivid picture of growing up in small-town America during the Sixties, Anne describes her sister's and her own painful childhood experiences with compassion and honesty. Struggling with the separation from her sister and the emotional and financial hardships the family experienced as a result of Becky's condition, Anne nevertheless found that her sister had something that "normal" people were unable to offer. Today she is accepting of her sister's autism and the impact, both painful and positive, it has had on both their lives. This bittersweet memoir will resonate with families affected by autism and other developmental disorders and will appeal to everyone interested in the condition.
Fathers of disabled children can feel overlooked when the focus of much parenting support is aimed at mothers. Different Dads is a collection of inspiring personal testimonies written by fathers of children with a disability who reflect on their own experiences and offer advice to other fathers and families on the challenges of raising a child with a disability. The fathers featured represent a broad spectrum of experience. Their contributions reflect a wide range of cultures; some are single fathers, others are married adoptive fathers. What they all have in common are the challenges that face them and their families in raising a child with a disability. Issues explored include the reactions of family, friends and colleagues, how to deal with the organisations and professionals that support families with a disabled child, and the difficulty of being open about feelings in a culture that doesn't always expect men to have a sensitive or nurturing role. Offering direct and thoughtful perspectives on being a father of a child with a disability, this book will be a valuable source of support and information for families with disabled children, and also for health and social care professionals who work with these families.
All parents want the best for their child, and for parents of children with special needs, this can mean that their own well-being is neglected. Drawing from their own experiences of parenting children with special needs, interviews and workshops with parents, and research findings, Nancy J. Whiteman and Linda Roan-Yager explore practical ways in which parents can develop a resilient and positive attitude towards caring for their child with special needs. This book considers the challenges of caring for children with physical, developmental and mental health disorders and proposes methods such as learning to see events through your child's own eyes, celebrating their strengths and achievements and recognising how others can help your child. Chapters deal with key topics such as coping with a diagnosis, discussing support needs with a child's teachers and explaining a child's differences to their peers, and the authors stress the importance of parents building support systems for themselves and their children. Real stories from parents and example scenarios illustrate the common difficulties faced by parents of children with special needs, and the authors explain how painful thoughts may be identified and reframed through techniques grounded in cognitive behaviour therapy. Crucially, Building a Joyful Life warns against parents neglecting their own needs, and a range of exercises to be completed by parents will help them to find ways of regaining balance in their lives.
Jeanette Purkis spent her early life reacting violently against her feelings of embarrassment, anger and confusion about her 'difference' from other people. She was unaware until well into adulthood that everything she found difficult, including her lack of success in forming relationships, could be a result of having Asperger Syndrome. Used to being a misfit from a very young age, Jeanette found that being a member of a group in which she had a label - Jeanette the Communist; Jeanette, Enemy of the State; Jeanette the convict; Jeanette the drug addict - gave her a sense of order she could depend on, particularly in prison, where each day had a set routine and the inmates accepted her because of her rebel attitude. Finally diagnosed with Asperger Syndrome at the age of 20, the author only began to accept her diagnosis some years later when she felt for the first time that she might learn to cope with being herself. Jeanette's remarkable life and her journey towards finding a different kind of normal is compelling and inspiring reading for people with autism spectrum disorders, and those living or working with them.
Meet Harry - a young boy who stammers. Harry invites readers to learn about what it is like to stammer from his perspective and how it affects his daily life and makes him feel. He talks about techniques that can help reduce stammering and describes how friends, family and others can help him to feel at ease and reduce his stammer further. This illustrated book is full of useful information and will be an ideal introduction for young people, aged 7 upwards, as well as parents, friends, teachers and speech therapists working with children who stammer. It is also an excellent starting point for group discussions at home or school.
People with autism spectrum conditions may often behave in ways that cause difficulties for themselves and those who care for them. People with Autism Behaving Badly offers effective, long-term strategies to help resolve common problem behaviors such as physical aggression, self-injury, verbal abuse, rudeness and property damage.;The book is organized around the common messages conveyed by behaviors and some of the underlying issues that drive these messages. Practical ideas for intervention are provided and illustrated by case examples. A range of exercises help to build understanding of the issues and detail appropriate plans. A log book helps to track what has been tried and what has been learned. In addition the author explores the role of relationship 'styles' that can help reduce challenging behaviors and encourage positive ones. Realistic information about working together with individuals, families and outside agencies, and about the pros and cons of medication, is also included.;This hands-on, practical manual is indispensable for families, carers and anyone involved with autistic people who need help with behavioral or emotional challenges.
Communicating Partners, the result of over thirty years of clinical practice and research work with pre-verbal and verbal children with language delays, offers an innovative approach to working with late talking children that focuses on developing relationships through mutual understanding. Providing detailed maps of what children and their life partners need to do to ensure effective social relationships, the program focuses on five key stages of communication development - interactive play, nonverbal communication, social language, conversation, and civil behavior - and five life-long responsive strategies to use every day to build relationships within the child's own world. Communicating Partners addresses issues such as: * What does a child need to do before language? * What are effective ways to help a child socialize and communicate from early play through civil conversations? * How have parents successfully helped children learn to communicate at home? * How can a child develop socially effective language and conversation skills? * How can a child with an autistic spectrum disorder, Down Syndrome or other significant delays develop rich social relationships? * What have families done to build warm social relationships with their children? * What is developmentally effective therapy and education when social and communicative delays are of major concern? Illustrated with personal stories and research findings, and containing a wealth of practical suggestions to help parents, teachers, and professionals understand their child's world, Communicating Partners is an invaluable resource for all those interacting and working with late talking children.
For parents of children with Asperger Syndrome ordinary parenting just doesn't always do it - AS kids need a different approach. Brenda is mother to thirteen-year-old Kenneth, author of Asperger Syndrome, the Universe and Everything, and since his diagnosis at the age of eight she has gathered together the parenting ideas and tips that have had a positive effect on Kenneth's life. Brenda discusses parents' reaction to their child's AS and gives advice on how better to understand 'Planet Asperger'. This book helps parents to respond positively to the challenge of AS and find the 'treasure' in their child's way of being.
Chris and Gisela have been partners for twelve years. Four years ago Chris was diagnosed with Asperger syndrome. For Chris, this was an explanation of why he had always regarded himself as 'socially handicapped'. For Gisela, it meant coming to terms with a marriage in which there would never be an intuitive understanding despite Chris's good intentions. For the couple it was the beginning of a long and still unfinished process of learning to live with a disability regarded by some as incompatible with marriage.
This little book does exactly what it sets out to do. It spells out all you need to know about different methods and strategies for treating dyslexia. So, if you want to know more about the many approaches to helping someone with dyslexia, then read this book. At the end of the day, you will be better informed to choose a way to suit your child. It is encouraging to read her list of famous people with dyslexia. It includes Hans Christian Anderson, Albert Einstein, Winston Churchill, Agatha Christie, Jeremy Irons, Jackie Stewart and Richard Branson. They haven't done too badly, have they?' - www.family2000.org.uk 'This readable and useful little book has been written by a mother of two dyslexic sons. She writes about the hard road she travelled to find help and support for them. The book covers most of the questions that the parents of a dyslexic child would want answered, but it is just as useful to professionals who have a dyslexic child in their classroom or setting. The importance of early identification is stressed and the author provides useful information about tests which can be administered to children as young as four years old. There are informative chapters about the various successful techniques and strategies for working with dyslexic children, ranging from the well-publicised rose-coloured spectacles to the part played by a special diet.' - Nursery World Over the years, many quick fix approaches to cure dyslexia have been developed and used. These 'miracle cures' have offered hope to many parents who are left disillusioned by the school system and health service. With no other way to turn, many parents spend more and more money on special glasses, vitamins, exercises and specialist advice, but do they actually work? Written by a parent of two dyslexic sons, who herself searched for anything that would 'cure' them, this new book is a practical guide to dyslexia's many 'miracle cures'. Practical Strategies for Living with Dyslexia suggests that early identification of this condition may be the key. Dyslexia is often not diagnosed until children have started school, yet testing is now available from the age of four-and-a-half. On top of this many dyslexics also have eye and ear problems that go undetected, which further exacerbates the problem. Looking at the possible remedies available, such as tinted glasses, nutritional supplements and exercising, and considering the benefits of early identification of dyslexia, this book will be an essential practical resource for both the parents of, and the professionals who work, with people with dyslexia. |
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