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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Winner of the Christopher Award: This bestseller tells the inspirational true story of a girl with cerebral palsy and the mother who wouldn’t give up on her.
In 1940, when Karen Killilea was born three months premature and developed cerebral palsy, doctors encouraged her parents to put her in an institution and forget about her. At the time, her condition was considered untreatable, and institutionalization was the only recourse. But in a revolutionary act of faith and love, the Killileas never gave up hope that Karen could lead a successful life.
Written by Karen’s mother, Marie, this memoir is a profound and heartwarming personal account of a young mother’s efforts to refute the medical establishment’s dispiriting advice, and her daughter’s extraordinary triumph over seemingly insurmountable odds. Marie’s activism spread awareness of the mistreatment of disabled people in America and led to the formation of multiple foundations, including United Cerebral Palsy.
A larger-than-life story, Karen tells of a family’s courage, patience, and struggle in the face of extreme difficulty. The New York Times wrote, “You’ll want to read it most for Karen’s own words: ‘I can walk, I can talk. I can read. I can write. I can do anything.'
Children enter the school doors today with many diverse needs:
mental health problems, ADHD, anxiety, victims of physical or
sexual abuse, homelessness, or facing some other type of trauma.
Teachers in today's classrooms are struggling to understand the
needs of their students and to provide a supportive and nurturing
environment, while maintaining structure and routine. In whatever
setting students are, teachers must understand the challenges that
students come to school facing, know how to assess the needs of the
children, build positive relationships with them, collaborate with
others, and take care of themselves. This first book in a two book
volume explores the needed components in setting the stage for
meeting the needs of the students. The teachers who serve these
children need a comprehensive set of tools to meet their needs.
This volume, along with the second one that provides the specific
interventions that teachers will need to implement, is that
comprehensive resource for educators.
Come, Let Me Guide You explores the intimate communication between
author Susan Krieger and her guide dog Teela over the ten-year span
of their working life together. This is a book about being led by a
dog to new places in the world and new places in the self, a book
about facing life's challenges outwardly and within, and about
reading those clues-those deeply felt signals-that can help guide
the way. It is also, more broadly, about the importance of intimate
connection in human-animal relationships, academic work, and
personal life. In her previous book, Traveling Blind: Adventures in
Vision with a Guide Dog by My Side, Krieger focused on her first
two years with Teela, her lively Golden Retriever-Yellow Labrador.
Come, Let Me Guide You continues the narrative, beginning at the
moment the author must confront Teela's retirement and then
reflecting on the entire span of their relationship. These
emotionally moving stories offer the reader personal entree into a
life of increasing pleasure and insight as Krieger describes how
her relationship with her guide dog has had far-reaching effects,
not only on her abilities to navigate the world while blind, but
also on her writing and teaching, her ability to face loss, and her
sense of self. Come, Let Me Guide You is an invaluable contribution
to the literature on human-animal communication and on the
guide-dog-human experience, as well as to disability and feminist
ethnographic studies. It shows how a relationship with a guide dog
is unique among bonds, for it rests upon highly regulated
connections yet touches deep emotional chords. For Krieger, those
chords have resulted in these memorable stories, often humorous and
playful, always instructive, and generative of broader insight.
En el siglo 21 la cirugia ocular LASIK se ha convertido en un
nombre familiar. Es como la teoria de la relatividad propuesta por
Einstein. Cuando propuso por primera vez que solo unos pocos podian
comprender. Ahora, ochenta anos mas tarde, que se ensena en las
universidades y en las escuelas secundarias. Del mismo modo hoy,
todos sabemos acerca de Lasik y la mayoria de nosotros ni siquiera
conoce a alguien que ha pasado por la cirugia Lasik. Similar a la
teoria de la evolucion de la relatividad, Cirugia Lasik tambien ha
evolucionado. Sorprendentemente, se ha fusionado con la cirugia de
cataratas para dar a luz a un nuevo procedimiento llamado Prelex.
La pieza central de este procedimiento es Implante presbicia o Pi.
En estos momentos estamos en el advenimiento de una gran ola de Pi
en el ojo. En los ultimos anos, se hizo popular Lasik y luego cayo
en desgracia debido a la desinformacion, anuncios falsos, y las
guerras de precios afectaron la calidad de la cirugia. El Internet
proporciona una gran cantidad de informacion, pero es un reto para
tamizar a las tacticas de mercadeo de la verdadera ciencia. Este
libro se basa en la premisa de que, si somos capaces de
proporcionar y entender, herramienta cientifica y educativa,
entonces la gente puede tomar una decision racional sobre sus ojos.
El autor trae dos decadas de experiencia de interactuar con los
pacientes, la realizacion de cirugias, y lo mas importante escuchar
las preocupaciones de los pacientes, sus deseos y su
retroalimentacion. Comun a la mayoria de nosotros, es el miedo a
procedimientos quirurgicos. De hecho, nadie quiere tener que
soportar la cirugia en absoluto. Pero, si el procedimiento es
ampliamente explicado de una manera tranquila, podemos disipar una
gran cantidad de miedos y preocupaciones. Un cirujano experto, con
una buena manera, que utiliza la ultima tecnologia, y es apoyado
por un personal calido y atento, puede hacer que el proceso sea
bastante tolerable. Para obtener una vision de las dolencias que
sufren, hay una variedad de opciones dadas el uso de tecnologias
modernas de hoy. Este libro sobre Pi en el ojo, esta dirigido a
aquellas personas mayores de 45 anos de edad que quieren ver mejor
en todas las distancias sin necesidad de contactos o anteojos. Pi
en el ojo tambien es util para las personas que estan sufriendo de
cataratas. Ademas, sera una guia util incluso si anteriormente tuvo
Lasik, queratotomia radial (RK), o cualquier otra cirugia del ojo.
Si usted esta contemplando Lasik, o ha sido rechazado para Lasik,
este libro sera un recurso valioso para elegir el mejor
procedimiento. Este libro le guiara a traves del proceso de
seleccion de un buen Pi en el ojo o el cirujano. Se le explicara
las opciones de Pi, y cirugia de cataratas laser. Tambien se
profundizara en los riesgos y beneficios de los procedimientos y la
forma de prevenir las complicaciones. Este libro tambien le
proporcionara informacion sobre la forma de obtener lo mejor de su
procedimiento, asi como introducir el concepto de neuroadaptacion.
Un poco de educacion e investigacion que recorren un largo camino
en la creacion de una base solida. Este libro es una de las
fuentes. Por supuesto que puede usar el Internet para aprender y
educarse a si mismo. Si usted esta interesado usted puede incluso
ver videos del procedimiento actual. Este libro puede servir como
una fuente imparcial, objetiva y buena reputacion de la informacion
provechosa perteneciente a los ojos y el procedimiento Pi. Es
nuestra esperanza que podamos facilitar la propagacion de la
calidad de su vision con de la ayuda de este libro.
Attention-deficit hyperactivity disorder (ADHD) is conceptualized
as a neurobehavioural condition that is characterised by
developmentally inappropriate levels of inattention, impulsivity
and motor over activity. It is estimated to be present in 37% of
school-aged populations and can result in significant impairment in
academic, social and family functioning. In this book, the authors
present current research in the study of the cognitive symptoms,
genetics and treatment outcomes of ADHD. Topics discussed include
the disadvantages and benefits of stimulant treatment; a discussion
on whether professions differ in their beliefs about the causes and
treatments of ADHD; motor coordination dysfunction in ADHD;
nutrition optimisation in the multi-modal treatment of ADHD; and
the relation between sluggish cognitive tempo and ADHD.
A controversial drug-free method of treatment for learning
disabilities, the Dore program has been hotly debated in the
medical community. In this account, the man who began it all shares
how dyslexia impacted his life and why the program he created
works, complete with success stories. One man's quest to help his
daughter led to the start of a whole new way of treating learning
and attention difficulties, and this is his astounding story. When
she was only nine years old, Susie Dore was diagnosed as dyslexic
and told that nothing could be done to help her. Her increasing
depression eventually led to three suicide attempts. Wynford set
about finding a way to help her, selling his multimillion-dollar
business and pouring his fortune into researching dyslexia and
learning difficulties. His team of researchers showed that, almost
invariably, these problems are caused by an incomplete
physiological development and that an answer to them might be found
in a specialized exercise program. This revolutionary book captures
the findings that Dore proponents believe will change the way
dyslexia and ADHD are approached forever. It explains the theory
behind the ideas and, through a series of case studies,
demonstrates the success stories and how these ideas have changed
the lives of so many for good. It is invaluable reading for anyone
involved with or affected by dyslexia or any other learning
difficulty.
*Strong potential: early intervention is critical for kids with
autism. *Provides easy-to-learn, playful ways for parents to help
their toddlers and preschoolers. *Based on the authors' Early Start
program, shown by research to improve communication, behavior, and
IQ. *Early Start is one of the few validated programs for young
children with ASD-and the only one for toddlers. *Doable strategies
fit easily into family routines and are compatible with any type of
treatment.
Taking Care, based on twenty-six interviews and other
autobiographical narratives, challenges the negative stereotypes
about mothers with disabilities. These women's stories tell of
their successes despite the barriers they encounter from the
society in which they live. Covering issues in the mothering cycle
from pregnancy and birth to raising a child through adulthood, the
mothers' experiences and strategies provide valuable information
for other women with disabilities as well as for doctors and health
and social service professionals. This book will provide a
significant model for all parents.
This book offers unique and flexible guidelines that can be used by
practitioners to ease the process of breaking bad news to people
with intellectual disabilities. The guidelines, which are adaptable
to individual communication ability and level of understanding,
address the many complex needs of people with intellectual
disabilities who can find understanding and accepting news that has
a negative impact on their life a very difficult task. In the book,
Irene Tuffrey-Wijne covers a range of different types of bad news,
from bereavement and illness to more minor issues such as a change
of accommodation, and offers highly practical and effective tips
that will help carers and practitioners ensure that bad news is
relayed as sensitively and successfully as possible. An easy-to-use
and comprehensive guide, this book will be an invaluable resource
of information for carers, health professionals such as doctors and
nurses as well as families of people with intellectual
disabilities.
In the next five years, hundreds of thousands of children with
autism spectrum disorder will reach adulthood. And while diagnosis
and treatment for children has improved dramatically in recent
years, parents want to know: What happens to my child when I am no
longer able to care for or assist him? In this ground-breaking
book, autism expert Chantal Sicile-Kira and her son Jeremy offer
real solutions to a host of difficult questions, including how
young adults across the autism spectrum can: negotiate adult life
in this new economy where adult service resources are scarce cope
with the difficulties of living apart from the nuclear family find
and keep a job that provides meaning, stability and an income
discover the joys of fulfilling relationships
How can I help my child that has got dyslexia or dyspraxia? Perhaps
you've just found out your child is dyslexic, or suspect your child
may be dyspraxic. This can be a confusing time for any parent, full
of worry and uncertainty. Author Sally McKeown gets right to the
heart of the matter in How to Help your Child with Dyslexia and
Dyspraxia. She brings you expert knowledge of exactly what dyslexia
and dyspraxia are and how they can affect your child's life.
Through the experiences of other parents, Sally dispels common
myths and helps you to better understand dyslexia and dyspraxia so
you can support your child. Whether you want to help your child
with everyday challenges caused by dyslexia or dyspraxia or
specific tasks such as literacy and reading, this is a
comprehensive parents guide to helping your dyslexic or dyspraxic
child. From getting a diagnosis to making sure you get enough
support from your school this guide is packed with advice to make
your life easier. It's packed with practical ways to help your
child, including: * how to build your child's confidence if it has
been knocked * how you can help with homework, without doing it *
games, activities and hobbies to improve co-ordination and motor
skills * different ways of learning that your child will respond to
Written in a friendly style with other parents' experiences
littered throughout, you will find it easy to put this advice into
action and help your child.
Intensive Interaction is a highly effective approach for
communicating and developing social interaction and engagement with
difficult-to-reach individuals. This easy-to-use guide steers
readers through the practical application of the approach, showing
how positive results can best be achieved. The authors explain
clearly how to prepare for, carry out and reflect on the use of
Intensive Interaction with a client or family member. A multitude
of key questions are addressed, including finding the right
setting, evaluating progress and disengaging effectively at the end
of a session. In the final section they consider some of the wider
implications of the approach, such as developing confidence as a
practitioner and incorporating Intensive Interaction into long-term
care or educational planning. This practical and accessible book is
a useful resource for speech and language therapists, occupational
therapists, special school or further education teachers, social
care professionals and anyone else caring for or working with
people with social or communicative impairments. It will also be
useful to practitioners already using the approach.
Getting the educational provision you need for your special needs
child can feel like an uphill struggle. This book offers clear
guidance on how authorities such as Local Education Authorities,
schools, the National Health Service and the Government function,
what the law entitles your child to, and how you can fight most
effectively for the education they need. Basing the book on her own
experience of bringing up two sons with special educational needs,
Ellen Power describes how she worked with - and in some cases
challenged - the authorities to get the right education for her
children. Outlining what she did, how she did it, and how you can
do the same, she explains clearly the implications of the Special
Educational Needs code of practice and the Disability
Discrimination Act, as well as giving advice on diagnosis,
assessment, and dealing with the authorities. Further sections look
at how to address issues such as transition between schools, and
bullying. Interweaving real-life experience with practical advice,
Guerrilla Mum is essential reading for parents of children with
special educational needs and disabilities.
Mention the words 'Seeing Eye', and most people will associate them
with guide dogs for the blind and partially-sighted. Mention the
name 'Dorothy Harrison Eustis', and most people will not recognize
it, even though she is the woman responsible for founding The
Seeing Eye, the first guide dog school in the United States. Since
its inception eighty years ago, The Seeing Eye has trained
thousands of people who are visually impaired to use guide dogs.
The success of the program has spawned guide dog schools across the
country and around the world, and the concept has been further
expanded to include service dogs for people with other kinds of
disabilities. Drawing on correspondence, private papers, and
newspaper accounts of the day, Miriam Ascarelli chronicles the life
of Dorothy Harrison Eustis from her upper class childhood in
Victorian Philadelphia to her years as a young mother in the
upstate New York boomtown of Hoosick Falls, her widowhood, her
failed second marriage to a man thirteen years her junior, and the
confluence of events that led to her launching The Seeing Eye. In
doing so, Ascarelli reveals both a driven woman and a very private
person who shunned media coverage of herself but actively courted
it for her organization.
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