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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
Drawing extensively on personal experiences, this important volume
looks at sexuality and relationships in the lives of people with
intellectual disabilities, painting a genuine picture of the range
of sexualities and relationships people want. Honest and
reflective, it shows how sexuality has been managed and controlled
in different countries. It explores a range of issues such as
rights, resilience, protection, sexual oppression and the lack of
privacy for those living in care institutions. Co-edited and with
contributions by people with intellectual disabilities and allies,
this unique book offers an authentic account of the challenges
people face and what society needs to do to respect people's
rights. Providing insight into a morally, ethically and legally
complex area, this book will be essential reading for people with
intellectual disabilities, their advocates, families and
supporters; social care managers, social workers, and other
professionals working in the field as well as academic researchers
and students.
More than 180 million Americans have a problem with their vision.
Most believe there's not much they can do on their own to change
how much (or how little) they see. Now there is hope. In the past
decade, an overwhelming number of clinical studies have shown that
eating specific nutrients can help maintain vision well into old
age, alleviate eye conditions, and even reverse the progress of
diseases. In this book, top ophthalmologist Dr. Neal Adams uses
clear, accessible language to translate research from hundreds of
clinical studies in ophthalmology and nutrition to show how we can
restore and maintain eyesight by changing our diet. The solution is
simple: just naturally grown foods, with nutrients clinically
proven to target the components of the eye affected by disease
and/or age. The book explains how the eye functions and what
nutrients influence these physiological processes, and includes
tailored, easy-to-understand instruction on which foods and
nutrients will target the reader's specific concerns. Particularly
helpful for the 150 million Americans who visit their eye doctors
annually as well as the 95 percent of Americans over 40 at risk for
future vision loss.
Surely my way is not always wrong, just because it's different from
other people's ways? I mean everyone's way is weird to someone...
In her 24 years Emma has experienced a lot, and much of this has
been coloured by her autism and social anxiety. Funny and
self-aware, this collection of Emma's diary entries capture her
hidden thoughts and insightful explanations as to why the world can
be such a puzzling place. Wry observations on social rules,
friendships, relationships, and facing changes give compelling
insight into how Emma confronts challenges, and her determination
to live life to the fullest. Helpful advice at the end of each
entry also give practical strategies for coping with common issues.
The 8th Deaf History International Conference featured 27
presentations from members of Deaf communities hailing from 12
different countries around the world who related their own
autobiographies as well as the biographies of historical Deaf
individuals. Thus, they created a transnational phenomenon of
widespread interest in the collection, documentation, and
dissemination of Deaf History by and for members of the deaf
community. Telling Deaf Lives brings together the best of these
stories.
Presenting the untold story of thousands of Australian families who
welcomed back disabled soldiers after World War I, this poignant
account reveals the true impact of physical injury and shell shock
on these men and their families well into the 1930s. Drawing the
reader into the emotional interior of family life, the discussion
brings to light the daily struggles of Australia's 90,000 "changed
men" and reveals the significant burdens carried by their family
members.
Lennard J. Davis grew up as the hearing child of deaf parents. In
this candid, affecting, and often funny memoir, he recalls the joys
and confusions of this special world, especially his complex and
sometimes difficult relationships with his working-class Jewish
immigrant parents. Gracefully slipping through memory, regret,
longing, and redemption, "My Sense of Silence" is an eloquent
remembrance of human ties and human failings.
" This book is an extremely easy read - no jargon or ambiguous
clinical terms. It serves as an informative tool, by creating
awareness through first hand accounts, which could be used by both
sufferers and professionals." - Anxious Times `It is a highly
readable book based largely on the experiences of the author...I
would highly recommend it to all emetophobes. Equally, I would
recommend it to friends and family of sufferers because it will
help non-sufferers understand why emets act in the way we do and,
via fascinating insights into how our minds work, why we find
certain situations very difficult to cope with.'
-www.gut-reaction.freeserve.co.uk, June 2007 Emetophobia, the
extreme fear of vomiting, can affect just about every aspect of
sufferer's life, from everyday considerations (`what food will be
"safe" for me to eat?') to matters that involve making huge,
potentially devastating decisions (`I can't have this baby, I can't
face morning sickness'). Nicolette Heaton-Harris has first-hand
experience of the phobia and its effects. She suggests strategies
for coping with the high levels of anxiety that are intrinsic to
the phobia, as well as pre-empting and avoiding anxiety attacks.
The experiences of fellow sufferers of all ages, male and female,
are shared throughout the book and a list of useful organisations
providing further information and support services is also
included. Living with Emetophobia is a must-have for anyone
suffering from emetophobia, anyone living with an emetophobic as
well as professionals treating or supporting people with
emetophobia.
The author of Diagnosing Jefferson introduces twelve more
high-achieving role models - including Einstein, Mozart, and Darwin
- who have made significant contributions to our world. All
exhibited traits common to people with Asperger's Syndrome. Today's
young people and adults with AS can also make a difference if they
are given support, opportunities, and the freedom to explore their
abilities. Many accomplished people have been loners, self-taught,
obsessed by an idea, and known for their lack of social skills. How
many of them would be diagnosed with Asperger's today? Norm Ledgin
makes convincing arguments for an Asperger's role in each of their
extraordinary lives.
In The Golden Bridge, Patty Dobbs Gross provides both personal and
professional advice on how specially bred and trained dogs help to
facilitate communication for children with autism and other
developmental disabilities. This important information compendium
is a guide for parents dealing with the social, emotional, and
educational issues related to raising children with challenges.
Myths and labels concerning autism are explored, examined, and
redefined. While focused on children, the advice that Gross shares
will be immensely helpful for anyone involved in breeding, raising,
and training dogs to mitigate any type of disability at any age.
The Golden Bridge provides advice about living with autism,
animal-assisted therapy and autism, training an assistance dog to
work with a child with autism or a developmental disability, and
using an assistance dog to deal with a child's grief. This
impressive volume also contains a vast list of resources, including
Web sites, for follow-up information, a section on books about
autism, and a directory of assistance dog providers.
We mourn the death of the child we had assumed I had given birth
to, yet dearly love the baby we have. We want our child, but don't
want her to have Down Syndrome...' Since their initial shock at
their daughter's disability, Karina's parents have experienced the
challenges and joys of raising a child with special needs. Gun
Dolva and Rodney Potter have taken advantage of available services
and programmes, and their own imaginations, to devise stimulating
activities to assist her to develop to her full potential. They aim
to provide her with every opportunity to fully participate in the
community. This is the account of Karina's first six years, as told
to Cheryl Rogers. Karina Has Down Syndrome is a valuable resource
for the families of Down Syndrome children, teachers and disability
service workers.
This book provides a diverse range of basic information and
practical advice for adults with dyspraxia. Colley is able to
describe in detail the impact that coordination and motor learning
difficulties can have on many everyday activities, including
cooking, shopping, sewing, gardening and swallowing medicines. This
book provides a very readable, comprehensive and useful resource
for adults with dyspraxia and their carers. It might also be useful
for clinicians who are new to the field and have limited practical
experience.' - British Journal of Occupational Therapy 'This
concise and interestingly written handbook is aimed at helping
dyspraxic adults to understand their condition and its impact on
work, study, social relationships and leisure activities. It
contains practical tips on everyday living, including voice
control, body language, cooking, study skills, driving and
self-care. Especially fascinating are the accounts by four
dyspraxic adults of their own experiences. I would recommend the
book to teachers and parents, student therapists and clinicians
(especially those working in a multidisciplinary setting) who need
an insight into developmental dyspraxia as experienced by
adolescent and adult clients and an overview of the help
available.' - Speech and Language Therapy in Practice For people
with Developmental Dyspraxia, everyday life can pose a multitude of
problems. Tasks the majority of people would find simple can often
be taxing and fraught with difficulty. Living with Dyspraxia was
written to help all adults with Dyspraxia tackle the everyday
situations that many people take for granted. It is full of
practical advice on everything from getting a diagnosis to learning
how to manage household chores. Important topics are addressed,
such as self-esteem, whether to disclose your condition within the
workplace, how to communicate more effectively and also how
Dyspraxia often interacts with other conditions, such as Dyslexia,
ADHD and Asperger's Syndrome. This practical resource will be of
use to adults with Dyspraxia, the professionals and families
members who come into contact with them as well as those who simply
wish to learn more about Dyspraxia.
When Richard Medugno and his wife Brenda learned in 1993 that
their17-month-old daughter Miranda was deaf, they grieved, as many
hearing parents do. Soon, however, Medugno seized hold of the need
to take positive action for Miranda. "Deaf Daughter, Hearing
Father" recounts the remarkable story of their journey during the
past fourteen years.
Medugno first researched the best communication mode for Miranda.
Quickly dismissing the speech pathology model, he and his wife
chose ASL alone as the best, natural language for Miranda. He
surrounded his daughter with opportunities to learn ASL, by
arranging to meet deaf individuals and families, and also by hiring
deaf babysitters. He also determined to learn ASL himself, to
ensure communication with his daughter. As Miranda neared school
age, Medugno spearheaded a transcontinental search for exactly the
right school for her education. So that Miranda could attend the
California School for the Deaf (CSD), the Medugno family moved from
Toronto, Canada to Fremont, CA.
In "Deaf Daughter, Hearing Father," Medugno shares practical
information on many of the common challenges faced by hearing
parents. He provides a list of games that hearing and deaf children
can play together, an important consideration for many families.
His enthusiasm for all possibilities, from exploring the potential
of video phones to helping stage CSD musicals, reveals his abiding
devotion to Miranda. Such a foundation has enabled her to feel
proud, confident, and happy in her pursuits. At the same time,
Medugno recognizes that the rewards of having a deaf daughter are
far greater than he could have hoped for or imagined.
In this heartfelt memoir, Maria Wallisfurth recounts the lives of
her deaf parents in Germany from the turn of the twentieth century
through World War II. Her mother, Maria Giefer, was born in 1897
and her father, Wilhelm Sistermann, was born in 1896. The author
captures the seasonal rhythms and family life of her mother's youth
in rural Germany, a time filled as much with hardship as it is with
love. When she is old enough, she moves to the nearby city of
Aachen to attend a school for deaf children, where she learns to
lipread and speak. After her schooling is complete, she returns
home to work on the family farm and experiences the privations and
fear that accompany World War I. She later goes back to Aachen,
where she joins a deaf club and falls in love with Wilhelm, a
painter and photographer who was raised in the city. Amidst high
unemployment, food shortages, and rapid inflation, the two are
married in 1925 and two years later the author is born. Under the
Nazi regime, Maria and Wilhelm are ordered to undergo forced
sterilization. Although their deafness is not hereditary and they
submit applications of protest, they are compelled to comply with
the law. Despite their dissimilar backgrounds and the political
circumstances that roiled their lives, the author's parents showed
great love for each other and their only daughter. The Stories They
Told Me is a richly detailed document of time and place and a rare
account of deaf lives during this era.
At age two, in 1960, Jessy Park was remote, withdrawn, unable to walk or talk, yet oddly content within the invisible walls that surrounded her. Doctors were baffled. The study of autism was still in its infancy. Jessy's family stepped in. "Confronted with a tiny child's refusal of life, all existential hesitations evaporate. We had no choice. We would use every stratagem we could invent to assail her fortress, to beguile, entice, seduce her into the human condition." This powerfully moving book, now widely regarded as a classic work, charts a surprising journey of discovery as it records the challenges and rewards of the first eight years of Jessy's life. Visit www.jessicapark.com to view the Paintings of Jessica Park.
Ann Burack-Weiss explores a rich variety of published memoirs by
authors who cared for ill or disabled family members. Contrary to
the common belief that caregiving is nothing more than a stressful
situation to be endured, memoirs describe a life transforming
experience-self-discovery, a reordering of one's priorities, and a
changed view of the world. "The Caregiver's Tale" offers insight
and comfort to individuals caring for a loved one and is a valuable
resource for all health care professionals.
Identifying common themes, Burack-Weiss describes how the
illness career and social meaning of cancer, dementia, HIV/AIDS,
mental illness, and chemical dependence affect the caregiving
experience. She applies the same method to an examination of family
roles: parents caring for ailing children, couples and siblings
caring for one another, and adult children caring for aging
parents.
Jamaica Kincaid, Sue Miller, Paul Monette, Kenzaburo O?, and
Philip Roth are among the many authors who share their caregiving
stories. Burack-Weiss provides an annotated bibliography of the
more than one hundred memoirs and an accompanying chart to help
readers locate those of greatest interest to them.
The Politics of Deafness embarks upon a post-modern examination of
the search for identity in deafness and its relationship to the
prevalent hearing culture that has marginalized Deaf people. Author
Owen Wrigley plainly states his intention to disrupt "normal"
thought about the popularly considered condition of deafness as a
physical deficiency. From his decade of experience working and
living in the Deaf community in Thailand, he uses wide-ranging
examples to go beyond disputing conventional theorists for their
interpretation of deafness as the lack of a sensory function. By
calling attention to the different lingual potential created by the
instant visual expression of cyberspace he explodes orthodox
conceptualization of the nature of language as serially ordered and
dependent upon sound. In bold style, this provocative work poses
the relationship of the bodies physical and mental of Deaf people
as subject to a form of "colonialism" by the dominant Hearing
culture. It proceeds to expose and attack presumptions and
practices that derive from and descend upon deaf bodies. Related
analysis also addresses tensions little noted in the current
literature on deafness and on the popular move to reconstitute
Deafness as a global culture. Through displacement of logistical
anchors, ironic stances, and disconcerting perspectives, The
Politics of Deafness practices a form of de-naturalization to
demand space within and between the normalizing frames of daily
lives. By doing so, it offers an insightful and intriguing
perspective on the meanings of Deafness, the politics of Deaf
identity, and what it costs to be "unusual".
If you grow up in a world where wrinkles are practically illegal,
going bald is cause for a mental breakdown, and women over size
zero are encouraged to shoot themselves (immediately), what the
hell do you do if you're, gasp ... DISABLED? Whatever body you're
born into, the pressure to be normal is everywhere. But have you
ever met a normal person? What do they look like? Where do they
live? What do they eat for breakfast? And what the **** does normal
mean anyway? This is the award-winning wobbly comedian Francesca
Martinez's funny, personal, and universal story of how she learned
to stick two shaky fingers up to the crazy expectations of a world
obsessed with being 'normal'.
The first book showing how, in easily followed steps, you can treat your own back. Unlike the author's previous book BACK IN ACTION, which gives information on the range of treatments available for different back problems, THE BACK SUFFERER'S HANDBOOK places emphasis on the contribution the sufferer can make putting the problem right. In language that every back sufferer will find completely understandable, it describes each spinal disorder and what causes the pain. It gives helpful exercises with information about what they will achieve and how frequently they should be done. There is also advice on back pain management, the role of medication, the use of bed rest and how to return to work. This book is essential reading both for the patient confined to bed with acute back pain, and for someone with less severe back problems, but still having to cope with back pain or discomfort on an everyday basis.
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