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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with disability
A harrowing but ultimately inspiring memoir of how one girl's beautiful face and spirit was destroyed after a vicious acid attack "I heard a horrible screaming sound, like an animal being slaughtered . . . then I realised it was me." When Katie Piper was 24, her life was near perfect. Young and beautiful, she was well on her way to fulfilling her dream of becoming a model. But then she met Daniel Lynch on Facebook and her world quickly turned into a nightmare. After being held captive and brutally raped by her new boyfriend, Katie was subjected to a vicious acid attack. Within seconds, this bright and bubbly girl could feel her looks and the life she loved melting away. This""is the moving true story of how one young woman had her mind, body, and spirit cruelly snatched from her and how she inspired millions with her fight to get them back.
The number of adults with Asperger Syndrome (AS) retaining full-time employment is extremely low in comparison to those who may be considered to have more limiting conditions and disabilities. This book identifies why this is the case by asking the individuals concerned what they find difficult about working. Looking at expectations, motivations, working conditions and other factors, Sarah Hendrickx explores the reasons why work just doesn't work for many people with Asperger Syndrome and how to resolve these issues. Featuring personal stories from those with AS, the book highlights successful scenarios and provides suggestions for both employers and those in search of work on how to improve employment for the benefit of everyone. Asperger Syndrome and Employment provides essential information for those making the decisions and acknowledges what people with AS really want from a job so they can make employment work for them.
This resource provides practical strategies for helping teenagers and adults with Asperger Syndrome to navigate social skills, friendships and relationships at home and in the community. The author offers advice and useful strategies for tackling day-to-day problems such as visits to the dentist or the doctor, searching for a job, sorting out personal finances, going on vacation, and dealing with public transport, as well as more intimate topics such as dating and acquiring and maintaining friendships. The chapters are structured around real-life scenarios and the challenges they present, followed by step-by-step solutions and suggestions. A final section provides a set of practical self-help tools, which encourage the reader to note down answers to the questions posed and record personal reflections. This accessible guide will be essential reading for teenagers and adults with Asperger Syndrome and their families, teachers, therapists, counsellors, carers, social and health work professionals.
Drawing extensively on personal experiences, this important volume looks at sexuality and relationships in the lives of people with intellectual disabilities, painting a genuine picture of the range of sexualities and relationships people want. Honest and reflective, it shows how sexuality has been managed and controlled in different countries. It explores a range of issues such as rights, resilience, protection, sexual oppression and the lack of privacy for those living in care institutions. Co-edited and with contributions by people with intellectual disabilities and allies, this unique book offers an authentic account of the challenges people face and what society needs to do to respect people's rights. Providing insight into a morally, ethically and legally complex area, this book will be essential reading for people with intellectual disabilities, their advocates, families and supporters; social care managers, social workers, and other professionals working in the field as well as academic researchers and students.
Meet Harry - a young boy who stutters. Harry invites readers to learn about what it is like to stutter from his perspective and how it affects his daily life and makes him feel. He talks about techniques that can help reduce stuttering and describes how friends, family and others can help him to feel at ease and reduce his stutter further. This illustrated book is full of useful information and will be an ideal introduction for young people, aged 7 upwards, as well as parents, friends, teachers and speech therapists working with children who stutter. It is also an excellent starting point for group discussions at home or school.
This bestselling book is the trusted guide to parenting children with Down syndrome. Crossing the life span, this thorough volume highlights developmental stages and offers practical strategies for improving a child's quality of life. Topics covered include prenatal genetic testing methods; innovative services, programs, and support groups; and the association of Down syndrome with other disorders like ADHD. Written by leading experts, many of whom are parents of children with Down syndrome themselves, this is a reference you'll want to keep handy for quick information and insight.
Over 500,000 people of all ages in the UK have disorders in the autistic spectrum. About one-third also have varying degrees of learning difficulty. All of them have impairment of social interaction, communication and imagination - to them the world appears a bewildering and sometimes frightening place. This guide explains how people with autism experience the world and why they need an organized, structured environment. Ways of improving communication, developing abilities and enlarging social interaction are described, and advice is given on coping with stresses within the family.
Award-winning writer Heather Lanier's memoir about raising a child with a rare syndrome, defying the tyranny of normal, and embracing parenthood as a spiritual practice that breaks us open in the best of ways. Like many women of her generation, writer Heather Lanier did everything by the book when she was expecting her first child. She ate organic foods, recited affirmations and drew up a birth plan for an unmedicated labour in the hopes that she could create a SuperBaby, an ultra-healthy human destined for a high-achieving future. But her daughter Fiona challenged all of Lanier's preconceptions. Born with an ultra-rare syndrome known as Wolf-Hirschhorn, Fiona received a daunting prognosis: she would experience significant developmental delays and might not reach her second birthday. Not only had Lanier failed to produce a SuperBaby, she now fiercely loved a child that the world would sometimes reject. The diagnosis obliterated Lanier's perfectionist tendencies, along with her most closely held beliefs about certainty, vulnerability and love. With tiny bits of mozzarella cheese, a walker rolled to library story time, a talking iPad app and a whole lot of rock and reggae, mother and daughter spend their days doing whatever it takes to give Fiona nourishment, movement, and language. They also confront society's attitudes toward disability and the often cruel assumptions made about Fiona's worth. Lanier realises the biggest question is not, Will my daughter walk or talk? but, How can I best love my girl, just as she is? Loving Fiona opens Lanier up to new understandings of what it means to be human, what it takes to be a mother, and above all, the aching joy and wonder that come from embracing the unique life of her rare girl.
'Uplifting and honest, [Tender is] about resilience and learning to look after oneself so as to be better able to care for others.' KATE MOSSE 'A beautiful and important book that is both deeply engaging and usefully practical. I loved it.' CATHY RENTZENBRINK 'An insightful and well-timed book ... forces us to confront the stereotypes - and prejudices - we hold.' SUNDAY TIMES 'profoundly important...full of wisdom and bright insights on what it really means to love someone, by a fearless and generous writer. ' CLOVER STROUD 'A beautiful and timely reminder that each and every one of us has the ability to care, the capacity for empathy, and the potential to grow.' ANDY PUDDICOMBE, FOUNDER OF HEADSPACE 'A wonderful book: compassionate, honest, carefully-reasoned and genuinely helpful... This will benefit many people.' KATHERINE MAY, author of WINTERING 'An invaluable tool for any invisible carers or anyone who wants to learn how to better support their loved ones... we ALL have many, many things to learn from Penny's beautiful, wise, charming, thoughtful words' - SCARLETT CURTIS, Sunday Times bestselling author 'Moving and beautifully written, nuanced and wise, alert to every paradox at the heart of love. A hugely important book not only for current or future carers, but anyone learning to accept that life tends to resist our control.' - OLIVIA SUDJIC, author of EXPOSURE 'Tender captures the powerful capacity of people to care for others, and all the heartbreaking and heartwarming complexity that this involves. Penny brings the crucial, yet often overlooked, role of caring into our collective consciousness and, in doing so, demonstrates what it means to be human.' -DR EMMA HEPBURN, author of A TOOLKIT FOR MODERN LIFE 'Penny Wincer's TENDER manages to combine both unromanticised honesty about the realities of care with a genuine uplifting hopefulness... is a must-read.'- RUTH WHIPPMAN, author of THE PURSUIT OF HAPPINESS We are all likely - at some point in our lives - to face the prospect of caring for another, whether it's a parent, child or partner. It is estimated that there are 7 million people in the UK caring for loved ones. And yet these are the unpaid, unsung people whose number is rising all the time. In Tender: the imperfect art of caring, Penny Wincer combines her own experiences as a carer with the experiences of others to offer real and transformative tools and insights for navigating a situation that many of us are either facing or will face at some time. Penny Wincer has twice been a carer: first to her mother, and now as a single parent to her autistic son. Tender shows how looking after oneself is a fundamental part of caring for another, and describes the qualities that we can look to cultivate in ourselves through what may otherwise feel to be an exhausting task. Weaving her lived experience with research into resilience, perfectionism and self-compassion, Penny combines the stories of other carers alongside those who receive support - offering an often surprising and hopeful perspective. Penny hosts a podcast Not Too Busy To Write.
Combining ethnology and memoir, this fascinating book describes the issues surrounding childbirth and motherhood for disabled women. The author, a paraplegic, tells about her own hunt for medical advice before getting pregnant--and then about the normal births of her two children--before widening the conversation to other disabled women and sympathetic members of the medical community.
While paediatric healthcare professionals view play as the treatment tool of choice for children under school age, the theory and practice underpinning play-based therapeutic approaches often remain less clear to individual practitioners. Paediatric intervention approaches are increasingly being questioned, and individual practitioners constantly asked to provide evidence-based practice. In response, a more coherent understanding and fresh discussion on children's play and utilisation of play for therapeutic purposes is needed, especially as societal expectations and lifestyles change. Play as Therapy provides background theory and practical applications of original research on play assessment and interventions used in therapy. The book offers a solid foundation for identifying and assessing play dysfunction, understanding play in different cultural contexts and considerations when intervening with play. The practical approach is underpinned by theory, research and case vignettes to explain how to utilise play as therapy with challenging children.
Chris and Gisela have been partners for twelve years. Four years ago Chris was diagnosed with Asperger syndrome. For Chris, this was an explanation of why he had always regarded himself as 'socially handicapped'. For Gisela, it meant coming to terms with a marriage in which there would never be an intuitive understanding despite Chris's good intentions. For the couple it was the beginning of a long and still unfinished process of learning to live with a disability regarded by some as incompatible with marriage.
After suffering a massive stroke, Jean-Dominique Bauby, editor-in-chief of French Elle and the father of two young children, found himself completely paralysed, speechless and only able to move one eyelid. With this eyelid he 'dictated' this remarkable book. "A staggering piece of work. It represents an almost inconceivable act of generosity, the gift of the mind and spirit for which writing was designed." "This is a memoir where the man speaks for the moment, and it is one of the great books of the century." "Read this book and fall back in love with life."
Written for 14+ year olds, this accessible book empowers young people with dyslexia to make a smooth transition to college, university or the workplace. An engaging and informative guide, it will help you plan and make decisions about the next stage of your education or employment. Ann-Marie McNicholas, who has worked with young people with dyslexia for many years, answers the questions that you will have as you plan for life at university or college. She covers the differences between school and college and university, lists the different types of dyslexia assessment available and gives you simple, tried-and-tested tips to help you to manage your time, your workload and your revision. Beyond information about further and higher education, the book is full of advice on preparing for the next stage in your life, such as moving into the workplace. A must-read pocket guide for teenagers with dyslexia and an essential resource for parents, teachers, SENCOs, career advisers, and anyone else involved in supporting learners with dyslexia to make a successful transition to further education and the world of work.
Deaf at age six, Blatchford was educated with speech lessons, speech reading, and hearing aids. At the age of 62 she underwent a cochlear implantation. In this memoir she describes living with a cochlear implant, including her realization that amplification and comprehension are not the same. Gradually the soup of sound she heard at first gave way to a selective hearing of sentences. When asked by other deaf people if they should receive an implant, she cautions that it is an individual decision.
Having a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings. The book covers key symptoms including OCD, tics, anxiety, sensory issues and personality changes, with practical advice on medical management, nutrition, lifestyle, and addressing social and behavioural needs. Each chapter also includes handy sidebars with key information to remember, and action steps for overcoming challenges, managing relapse, family self-care and providing children with the best possible support.
How can I help my child that has got dyslexia or dyspraxia? Perhaps you've just found out your child is dyslexic, or suspect your child may be dyspraxic. This can be a confusing time for any parent, full of worry and uncertainty. Author Sally McKeown gets right to the heart of the matter in How to Help your Child with Dyslexia and Dyspraxia. She brings you expert knowledge of exactly what dyslexia and dyspraxia are and how they can affect your child's life. Through the experiences of other parents, Sally dispels common myths and helps you to better understand dyslexia and dyspraxia so you can support your child. Whether you want to help your child with everyday challenges caused by dyslexia or dyspraxia or specific tasks such as literacy and reading, this is a comprehensive parents guide to helping your dyslexic or dyspraxic child. From getting a diagnosis to making sure you get enough support from your school this guide is packed with advice to make your life easier. It's packed with practical ways to help your child, including: * how to build your child's confidence if it has been knocked * how you can help with homework, without doing it * games, activities and hobbies to improve co-ordination and motor skills * different ways of learning that your child will respond to Written in a friendly style with other parents' experiences littered throughout, you will find it easy to put this advice into action and help your child.
A four-stage programme for parents and families looking to introduce a dog into their home for the therapeutic and practical benefits that can be brought to a child with autism, including development of communication skills and toilet training. Based on first-hand knowledge, the programme was created through the successful experience the author had bringing up two children at opposite ends of the autism spectrum. This guide is comprehensive and highly practical, with case examples, tips and advice throughout. It covers all aspects of responsible ownership and training of the dog as a companion dog, and it provides tips throughout the dog's entire life cycle. Accessible for families and professionals alike, this innovative programme can have a huge impact on the life of children with disabilities.
Glenn Doman pioneer in the treatment of the brain-injured children
and founder of The Institutes for the Achievement of Human
Potential brings hope to thousands of children who have been
sentenced to a life of institutional confinement. In "What To Do About Your Brain-Injured Child, "Doman recounts the story of The Institutes tireless effort to refine treatment of the brain injured. He shares the staff s lifesaving techniques and the tools used to measure and ultimately improve visual, auditory, tactile, mobile, and manual development. Doman explains the unique methods of treatment, and then describes the program with which parents can work with their own children at home in a familiar and loving environment. Included throughout are case histories, drawings, and helpful charts and diagrams. "
Combining medical knowledge with sympathetic common sense, this handbook offers help and advice to all parents and carers of children with Down's Syndrome, and shows them how to help their children flourish and reach their full potential The text addresses the questions, practical or otherwise, that parents will often find themselves asking, and also offers information on a wide variety of related issues. These include current medical knowledge about the condition, advice on the special care of babies and young children, education and training and emotional and sexual development.
When Rod Michalko's sight finally became so limited that he no longer felt safe on busy city streets or traveling alone, he began a search for a guide. The Two-in-One is his account of how his search ended with Smokie, a guide dog, and a dramatically different sense of blindness. Few people who regularly encountered Michalko in his neighborhood shops and cafes realized that he was technically blind; like many people with physical disabilities, he had found ways of compensating for his impairment. Those who knew about his condition thought of him as a fully realized person who just happened to be blind. He thought so himself. Until Smokie changed all that. In this often moving, always compelling meditations on his relationship with Smokie, Michalko probes into what it means to be at home with blindness. Smokie makes no judgment about Michalko's lack of sight; it simply is the condition within which they work together. Their partnership thus allows Michalko to step outside of the conventional -- and even \u0022enlightened\u0022 -- understanding of blindness; he becomes not simply resigned to it but able to embrace it as an essential part of his being in the world. Drawing on his training as a sociologist and his experience as a disabled person, Michalko joins a still small circle of scholars who examine disability from the inside. More rare still -- and what will resonate with most readers -- is Michalko's remarkable portrayal of Smokie; avoiding sentimentality and pathos, it is a deeply affectionate yet restrained and nuanced appreciation of his behavior and personality. From their first meeting at the dog guide training school, Smokie springs to life in these pages as a highly competent, sure-footed, take-charge, full-speed-ahead, indispensable partner. \u0022Sighties\u0022 are always in awe watching them work; Michalko has even persuaded some of them that the Smokester can locate street addresses -- but has a little difficulty with the odd numbers! Readers of The Two-in-One can easily imagine Rod and Smokie sharing the joke as they continue on their way.
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