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Books > Health, Home & Family > Family & health > Home nursing & caring
Hospice nurse and TikTok star Hadley Vlahos shares moving stories, life lessons and wisdom from her patients in this heart-warming memoir about how end-of-life care can teach us just as much about how to live as it does about how we die. We don't often talk about dying, even in the medical field, but death is a universal part of life. An ardent advocate for compassionate end-of-life care, Hadley Vlahos, shows us that the end of our lives can be rich, beautiful and transformative by sharing moving stories about how her patients' final days have changed her life. Full of insights from real people, from the woman who never once questioned her faith until she was close to death, to the older man seeing visions of his late daughter, to the young patient who laments that she spent too much of her short life worrying about what others thought of her - each story raises vital questions about living, dying and the afterlife, inspiring us to live our lives to the fullest.
Thirty million people today care for ailing family members in their own homes--a number that will increase dramatically over the next decade as baby boomers enter old age, as soldiers return home from war mentally and physically wounded, as medical advances extend lives and health insurance fails to cover them. Offering both companionship and guidance to the people who find themselves caring for their intimates, "An Uncertain Inheritance" is a collection of essays from some of the country's most accomplished writers. Poignant, honest, sometimes heartbreaking, often wry, and funny, here is a book that examines caregiving from every angle, revealing the pain, intimacy, and grace inherent in this meaningful relationship.
Experienced family doctor Ray Strand writes his patients prescriptions every week, but he also believes that prescribing drugs should be a last resort in most medical cases-not a first choice. In Death by Prescription he provides simple guidelines to help readers protect themselves and their families from suffering adverse reactions to prescription medication.
Becoming a carer can be a physically and emotionally exhausting task and although there is help available many carers do not have the time to look for it or know who to contact. This indispensable guide aims to be a one-stop-shop for the huge percentage of the population who, now or later, find themselves in a caring role, whether that involves shopping for a housebound neighbour, or giving up work to care full-time for a disabled child or confused parent. This book will also help carers care for themselves. It looks at the difficult feelings that go hand in hand with caring, including how relationships are affected. There's guidance on what to do when a carer stops coping, and how to prepare emotionally and practically for the time when caring comes to an end. There is also an extensive resource section that arms carers with all the phone numbers, addresses and websites they need. Contents: Foreword; Introduction; 1. Becoming a carer; 2. Finding your way through the care maze; 3. The carer assessment; 4. Working with the professionals; 5. Money matters; 6. More on money; 7. Working careers; 8. Caring at home; 9. Healthy minds and healthy bodies; 10. How relationships are affected; 11. So, how are you feeling?; 12. Sharing the caring role; 13. Getting support for you; 14. Reviewing where you are; 15. Residential care; 16. Beyond caring; Resources; Acknowledgements; Index.
You Don't Have to Do It Alone Whether you're prepared for it or not, chances are you'll take on the role of caregiver when a family member or friend is affected by a serious illness or injury, or when you find your elderly parent needs help. As you'll soon discover, the range of tasks and responsibilities involved are overwhelming. "Share The Care" offers a sensible and loving solution: a unique group approach that can turn a circle of ordinary people into a powerful caregiving team. "Share The Care" shows you how to:
Included here are valuable guidelines, compassionate suggestions, and a simple-to-use workbook section that together offer support to free the patient from worry and the caregivers from burnout. "Share The Care" offers friends and family the best answer ever to the frequently asked question "What can I do?"
Drawing on the writings and wisdom of Henri J. M. Nouwen's themes of caregiving, Marjorie J. Thompson offers a vulnerable exploration of caregiving intertwined with both her own many years of intimate caregiving of family members and collected stories of caregivers in varied settings and stages of life. While not shying away from the demanding physical, emotional, and spiritual challenges of caregiving, Courage for Caregivers also celebrates the gifts of caregiving grounded in the belovedness both caregiver and care receiver share in God's eyes. Practical leader guides and resources make Courage for Caregivers a tool that moves smoothly from individual encouragement to group and congregational ministry to develop support for the universal experience of caregiving.
There's a type of person out there who is better at helping others than they are at looking after themselves. Maybe you're one of them. Maybe you know someone who is. They are the backbone of the caring professions, giving strength to our schools, clinics, care homes and hospitals. But you will also find them in offices, gyms, community groups and charities - everywhere you look. There's usually one in every family. But these people, who do so much to help others, are struggling. In their efforts to help wherever they can they typically overstretch themselves. Some face traumatic and distressing situations. Those in long-term caring relationships have no time to care for themselves. Those who are professional carers work prolonged hours with inadequate resources. Deeper down, beneath all of this, there is something else that causes helpers to suffer. It lurks unnoticed. It dwells in the psychology of the helper. Where people feel compelled to help others and don't look after their own needs, that's the Super-Helper Syndrome. Until recently this phenomenon has gone unnoticed and unnamed, but it has now been highlighted by chartered psychologists Jess Baker and Rod Vincent. The Super-Helper Syndrome offers a new perspective on the psychology of helping. It sets out how helping works and why it sometimes goes wrong. It brings to life psychological and neuroscientific research to explain the roots of compassion and empathy. It goes deep into the belief system of helpers and reveals what really motivates them. It illustrates all this with excerpts from a broad spectrum of interviews with paid and unpaid helpers, from ICU nurses to lawyers, volunteers to live-in carers. The book provides activities for the reader to profile and analyse their own helping relationships. It offers support for people who want to adopt a Healthy Helper Mindset, including meeting their own needs, building assertiveness and setting helping boundaries. It guides the reader towards countering the inner critic with mindful self-compassion. It's only by doing these things that compassionate people can be most effective at helping others. This book is for anyone who helps to the detriment of their own wellbeing. It's for anyone who wants to support the helpers in their life: colleagues, employees, family members or friends. And it's for anyone who wants to understand how helping works and to be better at it. It has been written because it's vital to improve the lives of those who improve the lives of others.
The impact of finding out your child is disabled can be wide ranging. The author's experience as a psychologist and parent of a disabled child informs this book which focuses on what helps, and hinders, parent-carers' emotional wellbeing. Research shows that mental health, relationships, family life, access to work and leisure activities, as well as finances can all be affected. For many parents the focus of those around them is solely on the child and their own needs become neglected. The author re-focuses attention onto the wellbeing of the parent. This includes acknowledging emotions, connecting with positive others, empowering yourself, regularly engaging in self-care and finding your own sense of meaning and purpose in life. Identifying the myriad of different emotions parents may experience as an understandable reaction to an unexpected situation the book includes quotes from parent carers. Connecting to psychological theories, such as positive re-framing and post-traumatic growth, the book applies these in practical ways to the parent-carer experience. Acknowledging that the journey is neither linear nor simple and transitions such as secondary school, puberty and adulthood require further periods of adjustment. Parents rarely get the time or support to stop and reflect on how they are feeling as they are caught up in the day to day busyness of caring. The difficulty is exacerbated by limited resources and battling for services. Building on the author's Doctoral research and having supported parent carers in different roles over the last 13 years this book provides a compass to ensure parents know they are not alone.
'The vital guide to old-age care NO family can afford to ignore' Mail on Sunday 'Designed to lead carers through the emotional minefield of attempting to look after family and loved ones, primarily at home but also in care homes' The Sunday Times Scotland Whether due to old age, illness or disability, more and more of us are becoming carers to loved ones. Carers and Caring is a complete handbook for anyone in a caring role, guiding you through the everyday administrative and emotional challenges of supporting a loved one. Dementia specialist Professor June Andrews offers accessible advice on: - Managing your time, finances and family dynamics - Accessing resources from the NHS and social care services - Daily care such as physical assistance and meal preparation - Considering the transition from at-home to nursing home care. Practical, comprehensive and compassionate, Carers and Caring will be both a resource and a comfort as you navigate your role as a carer, supporting you as you support your loved one.
What are the realities of 'community care' - the unpaid care given by hundreds of thousands of women, often in their own homes - for children and adults who are handicapped or chronically sick, or for frail elderly people? Originally published in 1983, this book explores the experiences of such women and the dilemmas which 'caring' poses for them. At a time when most women needed to earn money from a paid job, how did 'carers' manage to juggle their caring and other domestic responsibilities, and what happened if they had to give up work? Against a background of government policies which favour care 'by' the community, the contributors to this book raise crucial issues for social and economic policy. Hilary Graham examines what caring really means and Clare Ungerson asks why women do it. Sally Baldwin and Caroline Glendinning focus on mothers with handicapped children and Fay Wright on single adults with elderly dependants. Alan Walker highlights the dependencies implicit in caring relationships with the elderly. Lesley Rimmer looks at the economic 'costs' of care, and Dulcie Groves and Janet Finch examine the invalid care allowance - a carers' benefit for which married women can never qualify. In exploring the domestic sector of welfare, A Labour of Love was a highly topical contribution to the debate both on welfare provision and on the division of labour between men and women at the time.
'Inspiring' GUARDIAN 'Heartbreaking' INDEPENDENT 'I loved it' ADAM KAY 'Beautiful' MATT HAIG 'Luminous' NICCI GERRARD 'Essential reading' MADELEINE BUNTING 'A celebration' CHRISTIE WATSON ----- A Best Book for Summer in The Times, Guardian and The i Independent Book of the Month ----- Caring is an issue that affects us all - as bestselling novelist Kate Mosse knows all too well. Kate has cared in turn for her father and mother, and for Granny Rosie, her 90-year-old mother-in-law. Along the way she has experienced the joys, challenges and frustrations shared by an invisible army of carers. At the heart of this care lie everyday acts of love, and the realisation that, sooner or later, most of us will come to rely on an extra pair of hands. ----- 'Lifts the spirits without pulling punches' IAN RANKIN 'Irresistible' RACHEL JOYCE 'Questions how and why we fetishise independence when the reality of human experience is always interdependence' GUARDIAN, BOOK OF THE DAY 'Heartfelt, funny and at times heartbreaking. 10/10' INDEPENDENT 'Utterly beautiful' FRANCESCA SEGAL
Surviving Family Care Giving: Co-ordinating effective care through collaborative communication is a practical book for family and other home carers in a variety of situations. Grainne Smith shows how to provide the most effective coordinated care possible through constructive communication and collaborative care, to support individuals who have long term physical and mental health problems, including conditions from Alzheimers to alchoholism, autism to anorexia, schizophrenia to multiple sclerosis. Written from personal experience as a family carer, Grainne Smith includes interviews with other carers and service users; and draws on years of working with children and their families in tough times. Chapters such as Challenging Behaviour, Confidentiality, and Motivation illustrate some of the many problems facing carers who support vulnerable individuals. Problems include isolation, feelings of helplessness and uncertainty about what best to do, what to try to avoid and the lack of much needed relevant information and resources to support care-giving. "Surviving Family Care Giving" vividly illustrates the daily difficulties experienced by care givers who offer long term care and support and shows how to work through them. It provides suggestions on ways to build both constructive collaborative care and good family teamwork through effective communication, and how to ensure continuing care and support for the person at the centre of all the efforts. This book will be essential reading for family and other carers, including professionals trying to create ongoing continuity of care for their patients outside of treatment and education centres."
Surviving Family Care Giving: Co-ordinating effective care through collaborative communication is a practical book for family and other home carers in a variety of situations. Grainne Smith shows how to provide the most effective coordinated care possible through constructive communication and collaborative care, to support individuals who have long term physical and mental health problems, including conditions from Alzheimers to alchoholism, autism to anorexia, schizophrenia to multiple sclerosis. Written from personal experience as a family carer, Grainne Smith includes interviews with other carers and service users; and draws on years of working with children and their families in tough times. Chapters such as Challenging Behaviour, Confidentiality, and Motivation illustrate some of the many problems facing carers who support vulnerable individuals. Problems include isolation, feelings of helplessness and uncertainty about what best to do, what to try to avoid and the lack of much needed relevant information and resources to support care-giving. "Surviving Family Care Giving" vividly illustrates the daily difficulties experienced by care givers who offer long term care and support and shows how to work through them. It provides suggestions on ways to build both constructive collaborative care and good family teamwork through effective communication, and how to ensure continuing care and support for the person at the centre of all the efforts. This book will be essential reading for family and other carers, including professionals trying to create ongoing continuity of care for their patients outside of treatment and education centres."
Top 10 bestseller . In 2004 Stephanie Nimmo was a career-focused, suburban mother of three, happily married to the love of her life, Andy. In December that year their fourth child was born and life as Steph knew it changed dramatically. From having to give up a successful career to care for her fragile, life-limited daughter, to learning how to cope with the challenges of her sons' autism diagnoses and the cruel blow of Andy's terminal cancer, Steph learned very early on that it's not the cards you are dealt in life but how you play them. Far from being a misery memoir, Was This In The Plan?, is a frank, open and no-holds-barred account of how a family was determined not just to survive but to thrive when the odds were against them. It will make you question your own attitude to life and how you choose to respond when unexpected events throw you off course. From a family of six to four in just over a year, losing her husband to cancer and then 14 months later, her 12-year-old daughter Daisy, following life-long illness, Stephanie writes with such powerful, raw honesty that it is impossible to not be moved and inspired by her story. Resilience is a hot topic right now and Steph is the epitome of inner strength. A regular in the press opening up the conversation about death and grief.
With over 3.5 million copies sold, the bestselling guide to understanding and caring for people with dementia is now completely revised and updated! For 40 years, The 36-Hour Day has been the leading work in the field for caregivers of those with dementia. Written by experts with decades of experience caring for individuals with memory loss, Alzheimer's, and other dementias, the book is widely known for its authoritativeness and compassionate approach to care. Featuring everything from the causes of dementia to managing its early stages to advice on caring for those in the later stages of the disease, it is widely considered to be the most detailed and trusted book available. Highlighting useful takeaway messages and informed by recent research into the causes of dementia, this new edition has been completely updated. It features * brand-new content on everything from home care aides to useful apps to promising preventative techniques and therapies * practical advice for avoiding caregiver burnout-plus tips for when and how to get additional help * a completely new two-column design that allows readers to quickly access what they need The central idea underlying this indispensable book-that much can be done to improve the lives of people with dementia and of those caring for them-remains the same. The 36-Hour Day is the definitive dementia care guide.
FDA's approval of aducanumab has radically changed the world of Alzheimer's disease and you're going to need guidance regarding whether they should take it or not. This book conveys all the insight. As you age, you may find yourself worrying about your memory. Where did I put those car keys? What time was my appointment? What was her name again? With more than 41 million Americans over the age of 65 in the United States, the question becomes how much (or, perhaps, what type) of memory loss is to be expected as one gets older and what should trigger a visit to the doctor. Seven Steps to Managing Your Aging Memory addresses these key concerns and more, such as: * What are the signs that suggest your memory problems are more than just part of normal aging? * Is it normal to have concerns about your memory? * What are the markers of mild cognitive impairment, dementia, Alzheimer's, and other brain diseases? * How should you talk about your memory concerns to your doctor? * What should your doctor do to evaluate your memory? * Which healthcare professional(s) should you see? * What medicines, alternative therapies, diets, and exercises actually work to improve your memory? * Can crossword puzzles, computer brain-training games, memory aids, and strategies help strengthen your memory? * What other resources are available when dealing with memory loss? Seven Steps to Managing Your Aging Memory is written in an easy-to-read yet comprehensive style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage memory loss.
Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. "Loving Someone Who Has Dementia" is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals--anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"--having a loved one both here and not here, physically present but psychologically absent.Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.
THE SUNDAY TIMES BESTSELLER 'A heart-breaking story of courage and compassion from the front line of the toughest battle our nurses have had to fight. Anthea Allen's writing is raw, honest and full of love for those she cares for.' Susanna Reid An extraordinarily powerful memoir based on the diaries of intensive care nurse Anthea Allen, who worked on the front line of one of the largest hospitals in Europe during the Covid crisis. A nurse for 25 years, Anthea thought she had seen it all. But with Covid came the greatest trial, personally and professionally, of her life. Thrust into hourly challenges - many a matter of life and death - while on the Critical Care units of St George's in south London, Anthea processed her shocking experiences through writing. It started with an email to request biscuits. But her appeal to help boost the morale of her fellow nurses soon turned into a series of astonishingly moving stories detailing the realities of being a front line worker. It wasn't long before Anthea's accounts were circulating far and wide, capturing the attention of the nation and being feted by the likes of Richard Branson and Good Morning Britain's Susanna Reid. In Life, Death and Biscuits, Anthea reveals the human story behind Covid, sharing tales of hope, fear and laughter from both her 'family' of nurses and the patients she encountered. Forged in a crisis, this deeply affecting memoir offers a unique and inspiring perspective on the pandemic that simultaneously tore the world apart and brought us together. Both heart-wrenching and uplifting, it serves as a testimony to love, resilience and the human spirit.
Clarify your thinking on an issue that can tear families apart!Caring for a Loved One with Alzheimer's Disease: A Christian Perspective is the touching story of a woman's daily struggles as a caregiver to her mother who suffers from Alzheimer's disease. You'll learn how God's presence in her life has helped her. You will also find practical day-to-day tips for living with a loved one suffering from senile dementia and how your spirituality can make the journey easier for both of you. This important guide provides an honest description of the emotions you may be forced to come to terms with while dealing with a loved one or parishioner with Alzheimer's disease and how God's presence in your life can help lift that burden.Caring for a Loved One with Alzheimer's Disease gives you firsthand accounts of the stages of pain, despair, acceptance, and victory that you may experience while caring for someone with Alzheimer's to let you know that what you are feeling is normal and that God will help you overcome these challenges. Alzheimer's disease often goes undetected until its later stages. This informative book renders a clear description of the disease, alerting you to the known warning signs of dementia, and preparing you for the possibility of such a diagnosis.Caring for a Loved One with Alzheimer's Disease is filled with tips and suggestions to make caring for your loved one easier for both of you, such as: learning to separate the person from the disease researching the disease and keeping informed about every aspect of this progressive and irreversible neurological disorder realizing that you need emotional support and should seek help from your pastor, church care group, or best friend discovering how having power of attorney and creating a living will can prevent many problems in the future understanding that to care for your loved one at home is challenging and that taking simple steps, such as "baby-proofing" your house, will prevent traumatic disasters turning your anger and guilt to positive energy and avoiding emotional drain and strainThis unique book offers you solace amidst the turbulence of caring for someone stricken with this difficult condition. Caring for a Loved One with Alzheimer's Disease provides an open and honest description of how faith can comfort and support you and your family while you care for someone with dementia.
Being a caregiver is a difficult role. It requires pateince, tenderness, selflessness, and hard work. Providing care for another human being, whether a parent, loved one, or as a professional requires a level of self love and self care as well that can not be ignored. While it may be a rewarding experience to care for a loved one, it can also be a stressful, both emotionally and mentally. It is easy to get caught up in taking care of someone else that you forget to take care of yourself and your own physical and emotional well being as well. How do you navigate your role as caregiver without losing yourself? Conscious Caregiver can help readers navigate caring for their loved one, whether that means full-time in house caregiving or hiring support from outside services. With information on talking to their loved ones about their situation, how to handle the emotional stress, practical information on medical needs and finances, and how to take time away to care for themselves, Conscious Caregiver can help them care for their loved one and themselves at the same time.
Learn how to make elder housing more homelike Taking an incisive look at assisted living for the elderly, Assisted Living: Sobering Realities is an important book for the professionals who work with aging Americans and their families. This vital book provides a multidisciplinary overview of the world of assisted living for older Americans. With unique insight and a keen clinical perspective, Assisted Living examines a variety of topics: the dilemma of aging in place, the realities of end-of-life care, and the ins and outs of residential care supply. Easy-to-read graphs and charts make the data user-friendly.This book delivers current information on: the housing needs of elderly renters, with case studies of 109 residents in two facilities the need for improved housing and services for low-income elderly, providing an overview of how successful facilities take a comprehensive approach in linking low-income elders with community-based services the advantages and disadvantages of residential care facilities research about aging in place from providers and residents' perspectives the unmet needs of the elderly who qualify for housing assistance how visitation patterns affect the overall satisfaction and quality of life of assisted living residents
Clarify your thinking on an issue that can tear families apart Caring for a Loved One with Alzheimer s Disease: A Christian Perspective is the touching story of a woman s daily struggles as a caregiver to her mother who suffers from Alzheimer s disease. You ll learn how God s presence in her life has helped her. You will also find practical day-to-day tips for living with a loved one suffering from senile dementia and how your spirituality can make the journey easier for both of you. This important guide provides an honest description of the emotions you may be forced to come to terms with while dealing with a loved one or parishioner with Alzheimer s disease and how God s presence in your life can help lift that burden.Caring for a Loved One with Alzheimer s Disease gives you firsthand accounts of the stages of pain, despair, acceptance, and victory that you may experience while caring for someone with Alzheimer s to let you know that what you are feeling is normal and that God will help you overcome these challenges. Alzheimer s disease often goes undetected until its later stages. This informative book renders a clear description of the disease, alerting you to the known warning signs of dementia, and preparing you for the possibility of such a diagnosis.Caring for a Loved One with Alzheimer s Disease is filled with tips and suggestions to make caring for your loved one easier for both of you, such as: learning to separate the person from the disease researching the disease and keeping informed about every aspect of this progressive and irreversible neurological disorder realizing that you need emotional support and should seek help from your pastor, church care group, or best friend discovering how having power of attorney and creating a living will can prevent many problems in the future understanding that to care for your loved one at home is challenging and that taking simple steps, such as "baby-proofing" your house, will prevent traumatic disasters turning your anger and guilt to positive energy and avoiding emotional drain and strainThis unique book offers you solace amidst the turbulence of caring for someone stricken with this difficult condition. Caring for a Loved One with Alzheimer s Disease provides an open and honest description of how faith can comfort and support you and your family while you care for someone with dementia. |
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