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Books > Health, Home & Family > Family & health > Home nursing & caring
In this practical manual, family carers expert David Levy sets
forth how to evaluate priorities, understand options and face
fundamental issues (legal, financial, emotional, social), so carers
can make wise and informed decisions for their loved ones, while
gaining peace of mind from knowing they did they best they could
under the circumstances. Drawn from over twenty-five years of
experience, author and expert, David Levy, provides family carers
with a model for effective planning and decision-making, focusing
on the nonclinical aspects of caring, which are often neglected by
medical professionals: * Caring for young and old victims with
disabilities, illness and chronic conditions. * Finding ways to
make a struggling care system work * Preparing a plan for practical
problem-solving * Developing a realistic view of how much care a
loved one needs today and may need tomorrow and understanding that
continuum of care * Assembling core information about a loved one's
life * Locating resources that can make a difference in making sure
a loved one's care needs are met * Deciding how to use information
and resources effectively across time * Finding a good family carer
support group * Overcoming the obstacles that the carer's feelings
of distress and failure can create * Taking a practical approach to
that overused phrase "Take care of yourself" * And much more . . .
Nobody expects their parent to get dementia. Nobody is prepared for
it. But for Merideth, her mother did get dementia and for the next
three years she became her full time carer. Caring for Somebody
with Dementia describes the experiences of life with dementia over
those three years. For all that time Dementia sat himself between
Merideth and her mother - or at least he tried to. Dementia was a
spiteful fellow and had brought with it the more obvious symptoms -
delusions, anxiety, depression, memory loss. Caring for Somebody
with Dementia details the causes of dementia, mechanisms for
dealing with symptoms and offers advice on personal care, frailty
and the practicalities of caring. It also gives insight into the
vital issue of how to maintain communication with somebody with
dementia. Caring for Somebody with Dementia is written with
compassion, humour and love. As well as offering a wealth of
practical information to others living or working with people with
dementia the book puts a human face on the illness. It shows that
while dealing with delusions, personal care and other day-to-day
challenges it is possible for the carer to maintain a genuine unity
with the person they are looking after and that caring can be a
rewarding even inspiring experience. Merideth Sindel was born and
raised in country New South Wales and now lives in Sydney. After
school she studied Communications, specialising in Journalism.
Later she studied Honours in Ancient History at University of New
England, Armidale. She has written one novel, Erika, about a friend
who was killed in a car accident.
Theirs had been a love story, a story of friendship, courtship and
marriage, beginning when she was seventeen and he was a dashing
Navy officer. It was a fairytale that never ceased-even Alzheimer's
couldn't come between them. Phyllis Brown relives this
one-of-a-kind love she shared with her husband, Bert, in HELP ME
I'm Slipping. According to the Alzheimer's Association, there are
many signs of the disease. The author noticed some of these signs
in her husband, but she completely ignored them at first. A highly
successful businessman, a gentle yet hardworking person who never
stopped until he accomplished his goals, Bert was adept at hiding
his memory loss. But as soon as it was confirmed that he had
Alzheimer's disease, his wife went into action. Phyllis may not
have been well-equipped with medical information and guidelines,
but she was determined to give all her love and support to make the
last years of Bert's life as happy as they could possibly be. HELP
ME I'm Slipping follows the author's difficult yet rewarding
experience as she helps her husband through the uncharted waters of
Alzheimer's. From her journey, she shares lessons that she learned
with her readers. In each day, she found something they could enjoy
together: moments of love, and even fun and laughter. From
strategies for helping her husband maintain his dignity to tips on
activities that can be enjoyed daily, this book provides a truly
inspiring testament to a love that endures.
Parental support is a well-accepted determinate of children's
physical activities. Effective health education strategies may also
include facilitating parental involvement in community and school
advocacy related to their perceived need for changes. In this book,
the authors present current research in the study of health
education using parental and educators' perspectives, current
practices and needs assessment. Topics discussed in this
compilation include moving beyond the hierarchical knowledge/power
nexus in anti-FGC campaigns in Africa; consensus, strategies, and
potential health promoting schools; community as a setting for
future-oriented health promotion in Austria; parental attitudes and
perceptions related to their children's physical activity and
eating patterns; influence on academic performance on perception
and health habits against noise by Spanish secondary-school
students; and the importance of parents and teachers as
stakeholders in school-based healthy eating programs.
Most families have "skeletons" in the closet. For my wife's family,
there was a Monster, a type of dementia that robs loving,
intelligent individuals of everything-their dignity, their
personality, their memory, their finances, and their minds. The
"skeletons" are the remains of loved ones after the Monster has
finished with them. The family members who are not devoured by this
beast are, even so, crippled and maimed by its effects on their
loved ones. Little did I know when Evelyn and I married in 1970
that this "Jabberwock" would come a'calling on us. My wife at age
60 is now vastly gone, with no memory of her children, or me, or
our life together. To our horror, one of our children has tested
positive for the autosomal dominant (inherited) gene that is the
pathway for the dementia Monster's entrance. We pray for a cure.
Dementia: The Monster Within is not an extensive explanation of
dementia, although we show some of the science involved to help
give understanding. It is first and foremost the story of our
family, along with the stories of a few others who have met the
Monster. Our experiences may be helpful in recognizing the initial
assault. This book also provides a framework of essential steps
necessary to prepare both caregiver and loved one for their
futures. Most importantly, if you have been affected by this
Monster, you should understand that you are not alone in your
struggle. There is an enormous responsibility in giving balance
when sharing hope of curing these diseases. It would be
unconscionable to offer false hope. Yet, there is every reason to
have hope. As we write, clinical trials are being conducted for
treatments, but each individual needs to be realistic-not every
disease will be "cured" before causing harm to some of our loved
ones. Tens of thousands of scientists in hundreds of research
facilities around the world are making discoveries about dementia
almost daily. Some of these discoveries will lead to treatments,
and some will lead to cures of some of the dementias. This enormous
investment in research will pay off with dynamic discoveries. We
cannot give up hope that the future holds a way to ... SLAY THE
MONSTER
More people than ever are having to fund their own care without
professional help to navigate what has become a very complex care
system. This book sets out all your options in an easy to digest
format so that you will feel coni-- dent about planning for your
loved one's care and avoid the mistakes and massive disruption that
comes from supporting an elderly relative without a professional to
support you. When you read this book you will be able to: 1. Better
navigate the complex British care system for older people 2. Choose
a homecare agency or care home with coni-- dence 3. Be aware of the
essential care standards you can expect from a registered care
service 4. Understand the accommodation, care and support options
available for older people 5. Find out whether your elderly loved
one may be entitled to NHS or social care funding 6. Look out for
signs of abuse and know what to do if you suspect abuse of a
vulnerable person 7. And much more...
From the Prologue: Diagnosed with dementia in 1997, my husband,
Jim, lived at home during his illness and died there in January
2006. I wish this story were fiction, but it is not. Dignifying
Dementia is both a love story and an attempt to reach out to others
who are living through or who will live through a similar tragedy.
It is written in the hope that others might benefit from what I
learned as the caregiver of a dementia victim. Only then will Jim's
cruel affliction serve some purpose, because it might help others
feel less lonely, bewildered, angry or frustrated than I did,
shorten the dreadful learning curve, or encourage others to ask
more questions and make fewer assumptions. And because it might
remind members of the health care industry - from physicians to
orderlies, from agency administrators to certified nursing
assistants - that dementia victims and their loved ones are human
beings who deserve respect, kindness, empathy and patience, so
often lost in our fast-paced society. The diagnostic process I
describe was painful and disappointing; perhaps someone else's
caregiving experience might be easier. Caring for Jim was
exhausting; perhaps someone else's might be less draining. Watching
someone lose his or her mind and body is not polite. It is rude and
mean-spirited. Dementia brutalized Jim and stole the love of my
life from me. It altered him, us and me. This is not a medical
text; it is the story of our experience with dementia and the
lessons I learned as I tried to be Jim's voice, to maintain his
dignity and to care for him and for me.
"IF I HAD UNDERSTOOD THE RIPPLE ON EFFECT OF MENIERE'S DISEASE, WE
WOULD NOT HAVE LOST THE FAMILY HOME," says the Author. In this
candid, honest and thought provoking book, he shares his personal
experiences. What can go wrong and more importantly, how you can
avoid the negative affects that can happen when you suffer from a
long term chronic condition like Meniere's. Meniere's disease can
affect not only your general sense of well being but your income,
savings, future plans, friends, business partnerships and at the
heart of it all, your closest personal relationships. A book every
Meniere sufferer, their family, friends and partners should read to
fully understand how having a long-term chronic condition, like
Meniere's disease, can and will affect all your lives. And how you
can help prevent this. Keeping life positive in a time of
Meniere's. This self-help book may help you keep chaos out of other
parts of your personal life. When you can do this, the negative
effect of suffering from a long-term condition, shifts to a
positive one as you have less stress and anxiety in your everyday
life and more personal energy to deal and cope with the disease
itself.
This Collection Of 18 Case Studies Covers A Broad Range Of Subjects
Related To Health Care Quality Improvement Efforts. Ideal As
Complement To The New Fourth Edition Of Continuous Quality
Improvement In Health Care, These Case Studies Explore Themes Such
As CQI In Ghana Malaria Control, CQI To Reduce Central Line
Infections In Pediatric Hospital, A Mother'S Advocacy Group Against
Medical Errors, WHO Safe Surgery Saves Lives Campaign, The Malcolm
Baldrige Award Process In Health Care, Comparison Of NICE And
Similar Agencies For Comparative Effectiveness Research, And Much
More.
One day it happens: the dreaded event that will change your life
forever. For Alix Kates Shulman, it happened in a remote seaside
cabin on a coastal Maine island--where the very isolation that
makes for a perfect artist's retreat can also put life at risk.
Shulman woke to find that her beloved husband had fallen the nine
feet from their sleeping loft and was lying on the floor below,
deathly still. Though Scott would survive, he suffered an injury
that left him seriously brain impaired. He was the same--but not
the same.
In this elegant memoir, Shulman describes the ongoing anxieties and
risks--and surprising rewards--she experiences as she reorganizes
her world to care for her husband and discovers that what might
have seemed a life sentence to some has evolved into something
unexpectedly rich.
Thirty million people today care for ailing family members in
their own homes--a number that will increase dramatically over the
next decade as baby boomers enter old age, as soldiers return home
from war mentally and physically wounded, as medical advances
extend lives and health insurance fails to cover them.
Offering both companionship and guidance to the people who find
themselves caring for their intimates, "An Uncertain Inheritance"
is a collection of essays from some of the country's most
accomplished writers. Poignant, honest, sometimes heartbreaking,
often wry, and funny, here is a book that examines caregiving from
every angle, revealing the pain, intimacy, and grace inherent in
this meaningful relationship.
""Taking Care of Barbara" is an inspirational resource book for
anyone living in the world of Alzheimer's. There are clear and
concise caregiver tips and references in dealing with the everyday
struggles that come with the progression of the disease. What a
gift to know and be able to anticipate the needs of our loved one
when they may not be able to communicate them. Most importantly,
this book is a celebration of family and the relationship between
the caregiver and the patient. It lifts the caregiver above the
everyday struggles and reminds us of where to find the strength and
joy in the frequent frustrations of the day. It inspires us to love
beyond the external happenings and shows us there lies a deeper and
greater gain that will enrich our spirit. The world of Alzheimer's
may feel overwhelming, but this book encourages caregivers to get
out of bed, put their feet on the floor and face the day with
renewed strength and purpose."
-Kelly Cason Hunter, Hospice Volunteer, Pediatric Nurse
The basic health care system in the United States is not working
and must be fixed. The cost of a new, effective system of health
care delivery would be instead of rather than in addition to what
the US population is now paying for an inadequate, incomplete
system. We must put the fiscal responsibility for health care
delivery on the medical care sector that makes the decisions on
what medications, what procedures and who gets treatment and when,
that is, the providers of care, mostly the doctors. By doing this
we can correct the more than fifty percent overpayment and misuse
of funds currently in vogue. The book deals with the concept of the
possibility of eventual coverage of everyone through the Medicare
system as the current population ages. It explains the leverage
that that single payer universal system such as Medicare, can
generate to change the incentives for the providers of care
resulting in a reduction of the overall cost. It also sets forth
the concept of choice for the patient, the allocation of resources,
and the restructuring of the medical education system as well as
the recruitment and training of providers. Other problems such as
organizational development, provider groups, malpractice,
reinsurance through a universal system and other solutions are also
dealt with. Today 45 million Americans have no health care
coverage, while approximately 50 million are under insured due to
high deductibles and co-payments. Many who are eligible for
Medicare, federal health care insurance for the aged and Medicaid,
federal health care for the poor, may be without coverage due to
lack of access to services in the areas that they live. Practical
solutions to these problems areaddressed. Robert Gumbiner, MD, with
more than 40 years experience in the health care field as a
practicing physician, a manager and a force in medical management
education, derives much of his experience from successfully
developing and managing one of the largest managed care companies
in the United States for over 30 years. Drawing on this extensive
management experience as well as years of studying health care
systems around the world, Robert Gumbiner debunks the myths held by
opponents to national universal health care and capitated
prepayment. His development of the first capitated prepayment plan
for Medical in the 60's in California and first contract for
prepayment Medicare on the West Coast in the 80's gave credibility
to his ideas that succeeded in reducing health care costs. He shows
step-by-step how we arrived at our current dysfunctional system and
argues persuasively how we have been misled by special interests in
the medical/industrial complex into thinking a health care system
funded through the government and managed for effective utilization
will eliminate choice. In the final analysis the book's major theme
is that the cost of a complete comprehensive system is "instead of
and not in addition" to what we are currently paying and how to go
about instituting such a system. It offers solutions that have been
developed by the author throughout his long career in managing
health care delivery systems. It is not a theoretical concept but
based upon ideas, errors, successes and a logical, practical model.
Named a Best Book of 2008 by "Library Journal"
In a series of moving vignettes, the author begins by describing
a particular representation of Water-Moon Kuan Yin, a Buddhist
teacher and goddess associated with compassion, who often sits on a
precarious overhang or floats on a flimsy petal. Then Kuan Yin
steps out of the frame to join the author in the mundane challenges
of caring for her father-transferring his health insurance,
struggling with a wheelchair van, managing adult diapers, or
playing in the fictions of dementia. From perplexed to poignant to
funny, the vignettes record the working-class English of a fading
but still wise dad, and they find other human versions of Kuan Yin
in a doctor who will still make house calls or kind strangers in
the street.
The book includes ten illustrations: both classical
representations of Kuan Yin and also the author's own drawings,
which adapt Kuan Yin in an act of practical spirituality, reading
art through life and life through art. Each vignette invites the
harried caregiver to take a deep breath and meditate on the trials
and joys of caring for an aging parent.
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