An indispensable, comprehensive reference for family caregivers. Caregivers hold the key to the health, well-being, and happiness of their aging relatives, partners, or friends. The Caregiver's Encyclopedia provides you with all of the information you need to take the best care of your loved one-from making major medical decisions to making sure you don't burn out. Written by Muriel R. Gillick, MD, a geriatrician with more than 30 years' experience caring for older people, this book highlights the importance of understanding your friend's or family member's overall health. With compassion and expertise, this book will help you "think like a doctor." The content * helps you navigate the health-care system * shares important information about treating basic geriatric syndromes, including delirium, dementia, and falls * teaches you about preventive care options * enables you to manage medical decisions related to both acute and chronic conditions * discusses what Medicare covers-and what it doesn't * guides you through different approaches to care * weighs the risks and benefits of hospital vs. home, nursing home, or hospice care * provides a detailed list of medical supplies that you might want to keep on hand * offers you additional resources and emotional support Throughout, Gillick provides helpful information and concrete concepts that caregivers can put into practice today. Authoritative, comprehensive, holistic, and highly illustrated, The Caregiver's Encyclopedia will help you figure out how to be the best caregiver you can be.

Sometimes I think that carrying - other people, the continuity of history, generational identity, the emotional load of the everyday - is the main thing that women do. In Marina Benjamin's new set of interlinked essays, she turns her astute eye to the tasks once termed 'women's work'. From cooking and cleaning to caring for an ageing relative, A Little Give depicts domestic life anew: as a site of paradox and conflict, but also of solace and profound meaning. Here, productivity sits alongside self-erasure, resentment with tenderness, and the animal self is never far away, perpetually threatening to break through. Drawing on the work of figures such as Natalia Ginzburg, Paula Rego, and Virginia Woolf, Benjamin writes with fierce candour of the struggle to overwrite the gender conditioning that pulls her back into 'the mud-world of pre-feminism' even as she attempts to haul herself out. From her upbringing as the child of immigrants with fixed traditional values, to looking after her mother and seeing her teenager move out of home, she examines her relationships with family, community, her body, and even with language itself. Ultimately, she shows that a woman's true work may lie at the heart of her humanity, in the pursuit both of transformation and of deep acceptance.

Five years after the publication of Eldercare 101, it's time to update and revise this important toolbox of critical resources and guidance that assists families and eldercare professionals with the navigation of the advanced aging of loved ones and/or clients based on the Six Pillars of Aging WellbeingTM. In this second edition, Mary Jo Saavedra adds salient new content that reflects the ever-changing landscape of aging in today's culturally-shifting, technological, and pandemic world. The book's online resources have been updated and supplemented with many new tech products on the market that support elders, including Saavedra's forthcoming holistic digital platform. Eldercare 101, Updated Edition will include input from six returning collabroators and twenty new contributors, ensuring that this essential content is up-to-date and accurate.

Take care of yourself as you care for others with this accessible, easy-to-follow self-care guide to relax and rejuvenate. It's been said that there are only four kinds of people in the world: those who have been caregivers, those who are currently caregivers, those who will become caregivers, and those who will need caregivers. Chances are you or someone you know is taking care of a loved one at home. If you do, you also know that caregiving--however fulfilling--is also hard on the caregiver's mental and physical health. Self-care is vital to caregivers maintaining stamina and a positive outlook for both themselves and the people they care for. But being so busy caring for others can make it hard to find time for yourself. In Self-Care for Caregivers, you'll find short, easy-to-read--and often easy-to-do--ways to replenish your mind, body, and spirit, including: -Practicing mindfulness by focusing in on your five senses -Remembering to HALT to check if you're hungry, angry, lonely, or tired -Making a gratitude list of at least three things you're grateful for -And much more! Full of practical advice and reminders to have a quick snack, call a friend, create a sanctuary, write in a journal, and more ways to take care yourself--plus resources for caregiving--this book will go a long way towards making your caregiving experience a happier and more healthful one for you and the people you care for.

Drawing on the writings and wisdom of Henri J. M. Nouwen's themes of caregiving, Marjorie J. Thompson offers a vulnerable exploration of caregiving intertwined with both her own many years of intimate caregiving of family members and collected stories of caregivers in varied settings and stages of life. While not shying away from the demanding physical, emotional, and spiritual challenges of caregiving, Courage for Caregivers also celebrates the gifts of caregiving grounded in the belovedness both caregiver and care receiver share in God's eyes. Practical leader guides and resources make Courage for Caregivers a tool that moves smoothly from individual encouragement to group and congregational ministry to develop support for the universal experience of caregiving.

A compelling true tale of love and devotion as a husband cares for his ill wife. He shares the story of their struggles and the remarkable lessons they have learned together about God's love.

Home parenteral nutrition (HPN) is the intravenous administration of nutrients carried out in the patient's home. This book analyses current practices in HPN, with a view to inform best practice, covering epidemiology of HPN in regions including the UK and Europe, USA and Australia, its role in the treatment of clinical conditions including gastrointestinal disorders and cancer, ethical and legal aspects and patient quality of life.

Research-based advice for people who care for someone with dementia

Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. "Loving Someone Who Has Dementia" is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals--anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"--having a loved one both here and not here, physically present but psychologically absent.Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving

Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.

Soul-searing, life-testing situations have what some call "fall-out blessings." The book is about understanding some of the deeper lessons we are exposed to through caring for individuals with Alzheimer's and other types of dementia. We all want a cure. But in the meantime, while this illness is still with us, how can we create a quality of life for each person in each stage of the disease? How can we look deeper into situations that, at first glance, look hopeless and destructive in order to find opportunities for insight, inspiration, and great understanding of ourselves and those we love? How can we allow the full measure of the experience to unfold and be felt with as much of ourselves as we can bring to bear? This book will help people caring for those going through the difficult dementia journey find a way, through the tumultuous waves, to remain awake and open to the blessing of a journey that opens the heart, nurtures compassion, and ultimately enables each of us to be better human beings. It is also for those brave individuals living with memory loss illnesses, so that they be supported and allowed to live their experience fully in their own unique way, to express themselves, to love and be loved, and to be sheltered from harm-that with each stage of the progression, those around the person with dementia find ways to emphasize the loved one's remaining strengths rather than spotlight their weaknesses. A person with dementia has a whole and well spirit and, in the broadest sense, their brain is a vehicle of self-expression; it does not define their essence. Finally, this book addresses head on the final stage of the disease, when the brain has exhausted all its compensatory ability and the individual is no longer able to take part in regular day-to-day life. At this advanced stage of the disease process, people with dementia are in a deep, internal state that caregivers generally cannot access and share. It can be a very disheartening time. This internal state separates the person with dementia from those around them; however, rather than thinking of it as a prison wall separating the person with dementia from the caregiver, it may be more helpful to think of the person having retreated into a cloistered existence for a while, affording them the time needed by the soul to attend to deeper aspect of the self on a spiritual level. This phase also allows those around the person to honor the vessel, or body, that has housed the loved in in this life and prepare to let them go. When ready the individual will know the time to leave, and if allowed, will let go. Coming from a rich professional background in caring, Megan Carnarius clearly outlines the different stages of dementia and highlights many practical aspects of dementia care, suggesting accessible tools for family and professionals alike. She also addresses the more subtle, spiritual dimensions of this illness with much compassion and understanding, offering new insights into areas that have not been explored in other books on the disease.

Rebalancing the Roles in Caregiving So All Involved Are Supported

"When you care for someone who is dealing with the complexities of aging, illness, or disability, you share intense emotions and form deep bonds. You each have the opportunity to recognize what is most deeply human and most deeply Divine in the other. This sense of reciprocal sharing between the caregiver, care receiver, and with others around you is the essence of the dance in caresharing." from the Prelude

The word caregiver typically suggests someone doing all the giving for a frail, physically or mentally challenged, or aging person who is doing all the receiving. Marty Richards proposes a rebalanced approach of caresharing. From this perspective, the cared for and the carer share a deep sense of connection. Each has strengths and resources. Each can teach the other. Each can share in grief, hope, love and wisdom.

Richards shows you how to move from independent caregiving to interdependent caregiving by engaging the spiritual and emotional aspects of caring for a loved one. Whether you are a daughter or son, a husband or wife, a sibling, long-term partner or good friend, Caresharing offers a multilayered, reciprocal process that will help you keep your spirit and your loved one's spirit alive in challenging times.Sharing Wisdom: What the Frail Teach the WellSharing Roles: Reinventing Family Roles in Sharing CareSharing Soul to Soul: A Special Relationship with People with DementiaSharing Grief: Dealing with the Little Losses and the Big OnesSharing Forgiveness: A Key Spiritual JourneySharing Hope and Heart: An Active Process One Step at a Time"

Caring for a sick child or relative at home can be a daunting task, especially if longer-term care is involved. Advice on the best remedies and how to structure your care can be invaluable. This book covers all aspects of general home nursing, including the arrangement of the patient's room, meals, taking a temperature, and washing the patient. It also details numerous holistic treatments including herbal and plant remedies, baths, foot-baths, compresses and poultices. There are specific sections on pregnancy, birth, sleep, nursing the terminally ill and death. This is a comprehensive guide to holistic home care for those nursing children and adults through an illness.

Dementia is increasingly being recognised as a public health priority and poses one of the largest challenges we face as a society. At the same time, there is a growing awareness that the quest for a cure for Alzheimer's disease and other causes of dementia needs to be complemented by efforts to improve the lives of people with dementia. To gain a better understanding of dementia and of how to organize dementia care, there is a need to bring together insights from many different disciplines. Filling this knowledge gap, this book provides an integrated view on dementia resulting from extensive discussions between world experts from different fields, including medicine, social psychology, nursing, economics and literary studies. Working towards a development of integrative policies focused on social inclusion and quality of life, Dementia and Society reminds the reader that a better future for persons with dementia is a collective responsibility.

Working Daughter is a revelatory look at who's caring for our aging population and how these unpaid family caregivers are trying to manage caring for their parents, raising their children, and pursuing their careers. It tells the story of one woman who was enjoying a fast-paced career in marketing and raising two children, until both of her parents were diagnosed with terminal illnesses on the same day. In the challenges she faced and the choices she made, readers will learn how they can navigate their own caregiving experience and/or prepare for when they are inevitably called on to care for their parents. Working Daughter sparks the conversation we so desperately need to have about women and the workplace. With 10,000 people turning 65 every day and a shortage of caregivers predicted in the next few years, it's time we talk about how family caregivers and their employers will face the impact of a rapidly aging society. This book fills the gap in the literature on women and work; there are volumes of books about managing career and children, but little advice on how to balance career and parents. Working Daughter provides a blueprint for women and a call to action for business leaders and policy makers. This is book is for women who want straight talk and real advice about the challenges of eldercare, the choices they will need to make, the aspects of caregiving they can control, and that which they cannot. And finally, Working Daughter shows family caregivers how they can achieve, the underreported but well-documented upside to caring for an aging parent, the caregiver's gain.

An indispensable guide offering insight and support to carers of people with depression Looking after a person with depression can often leave carers emotionally and physically exhausted. This short, straightforward and easily understandable guide offers valuable advice on how carers can: - better understand the nature of depression and how it affects both patient and carer - have a clearer understanding of the treatment options for the patient, including medication and therapy - lessen the impact of the illness on the carer's life - find the help and support they need - maintain their own well-being whilst supporting the patient through to recovery and beyond Although aimed at the carer, this is a guide that is equally valuable to the patient themselves and to their wider family and friends in promoting a better understanding of the experience of depression.

Mixing personal history, interviewee voices, and academic theory from the fields of care work, the sociology of work, medical sociology, and nursing, Taking Care of Our Own introduces us to the hidden world of family caregivers. Using a multidimensional approach, Sherry N. Mong seeks to understand and analyze the types of skilled work that family caregivers do, the processes through which they learn and negotiate new skills, and the meanings that both caregivers and nurses attach to their care work. Taking Care of Our Own is based on sixty-two in-depth interviews with family caregivers, home and community health care nurses, and other expert observers to provide a lens through which in-home care processes are analyzed, while also exploring how caregivers learn necessary procedures. Further, Mong examines the emotional labor of caregiving, as well as the identities of caregivers and nurses who are key players in the labor process, and gives attention to the ways in which the labor is transferred from medical professionals to family caregivers.

Those who care for the ailing, whether helping someone recover, grapple with a long-term disability, or face a terminal illness, often feel alone, overwhelmed, exhausted. William and Nancy Martin have worked as counselors, hospice trainers, and Zen guides -- and as caregivers themselves. With empathy and insight, they offer readers solace drawn from the eternal wisdom of the "Tao Te Ching."
Like the original Chinese text, this book contains eighty-one chapters. Each chapter includes a poem for caregivers, evocative of the verses of the "Tao Te Ching," followed by a reflection that presents practical guidance for navigating the emotional and physical hardships of caregiving. The resulting resource gently awakens readers to the grace, growth, and even joy possible at each step along their path.

Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. Contrary to the common belief that caregiving is nothing more than a stressful situation to be endured, memoirs describe a life transforming experience-self-discovery, a reordering of one's priorities, and a changed view of the world. "The Caregiver's Tale" offers insight and comfort to individuals caring for a loved one and is a valuable resource for all health care professionals.

Identifying common themes, Burack-Weiss describes how the illness career and social meaning of cancer, dementia, HIV/AIDS, mental illness, and chemical dependence affect the caregiving experience. She applies the same method to an examination of family roles: parents caring for ailing children, couples and siblings caring for one another, and adult children caring for aging parents.

Jamaica Kincaid, Sue Miller, Paul Monette, Kenzaburo O?, and Philip Roth are among the many authors who share their caregiving stories. Burack-Weiss provides an annotated bibliography of the more than one hundred memoirs and an accompanying chart to help readers locate those of greatest interest to them.

Mary Ellen Geist decided to leave her job as a CBS Radio anchor to return home to Michigan when her father's Alzheimer's got to be too much for her mother to shoulder alone. She chose to live her life by a different set of priorities: to be guided by her heart, not by outside accomplishment and recognition.
The New York Times wrote a front page story about Mary Ellen on Thanksgiving 2005. It was one of the most e-mailed stories for the month. Mary Ellen also kept a blog of her experiences, which received an enormous response from readers on WCBS880.com. Through her own story and through interviews with doctors and other women who've followed the "Daughter Track"--leaving a job to care for an aging parent--Geist offers eye-opening advice. She shares emotional insights on how to encourage interaction with the loved one you're caring for; how to determine daily tasks that are achievable and rewarding; how the personality of the patient affects the caregiving and the progression of the disease; as well as invaluable advice about how the reader can take care of themselves while accomplishing the Herculean task of constant caregiving to others.
Geist's years in journalism allow her to report on Boomers' caretaking dilemmas with professional objectivity, and her warm voice brings compassion and insight to one of the most difficult stituations a son or daughter may face during his or her life.

Crossing Over provides a unique view of patients, families, and their caregivers in the face of incurable illness. Twenty richly-detailed narratives bring vividly to life the experiences of dying and bereavement, weaving together emotions, physical symptoms, spiritual concerns, and the stresses of family life, as well as the professional and personal challenges of providing hospice and palliative care. Drawing on a variety of qualitative research methods, including participant-observation, interviews, and journal keeping, the narratives depict the sights, sounds, tastes, and smells of daily life in patients' homes and in the palliative care unit. Crossing Over moves far beyond conventional case reports in medicine, which typically concentrate narrowly on symptoms and treatments, and beyond cliches about "dying with dignity." It provides intimate views of the anger and fear, tenderness and reconciliation, jealousy and love, unexpected courage and unshakable faith, social support and "falling through the cracks," which are all part of facing death in North American society. It provides an extraordinary portrait of the processes of giving and receiving hospice and palliative care in the real world, as opposed to idealized versions in many textbooks. This edition of Crossing Over has been thoroughly revised and updated to reflect changes in hospice and palliative care and in North American society since the first edition in 2000. Chief among these are the expansion of hospice and palliative care as a field, the ravages of the COVID-19 pandemic, the wider availability of medical aid in dying, and a heightened awareness of how structural racism, classism, and other forms of discrimination shape individuals' and families' experiences right up to the close of life.

"Our AARP members tell us that one of the most difficult challenges they face is caring for a spouse or loved one who has become disabled or terminally ill. In The Caregiving Wife's Handbook, Dr. Denholm provides the tools and practical advice caregivers need to navigate these rough waters and to emerge at peace with themselves and their loved ones."
A. Barry Rand
CEO, AARP

Enjoy the benefits and reduced stress that come from reconnecting people with dementia to lifelong activities they love. Using a strength-based approach, this guide shows step by step how to design meaningful, individualized activities that can be performed by a person with memory loss as independently as possible. Helpful assessment and implementation tools guide your efforts to identify a personaEURO (TM)s optimal leisure activities and then tailor them to current skill levels. The resulting activity plans will effectively promote the well-being and self-identity of each person with memory loss. Downloadable resources include: Communication strategies and conversations starters Assessment forms Step-by-step implementation guides Sample activities adapted for early, middle, and late stages of dementia.

More than 400,000 people in the United States undergo kidney dialysis. If you or a member of your family are one of them, then the prospect of a regular appointment with a dialysis machine may seem like the end of life itself. But that reaction couldn't be more wrong.
In Dialysis Without Fear, psychiatrist and dialysis patient Dr. Daniel Offer joins with his wife, Marjorie Kaiz Offer, and daughter, Susan Offer Szafir, to reveal how life can be lived--and lived well--on dialysis. Drawing on his long medical career and more than seven years of personal experience with dialysis, Dr. Offer dispels many misconceptions surrounding this treatment, explaining how you can adapt to the new diet, travel, work and continue to partake in life's joys and celebrations. But the fears and hardships can be quite real, and Dr. Offer brings his years as a psychiatrist to bear as he provides practical advice on how patients can overcome them. Walking through each step of dialysis, he explains different types of treatment, examines the pros and cons of a transplant, and discusses side effects. Since dialysis affects the entire family, Dr. Offer and his coauthors also provide realistic insights into how relatives can cope and thrive together, sharing the humor, courage, and triumphs of real families who have successfully faced the challenges of dialysis. The result is an inspiring, practical guide that will help you and your family learn to overcome the difficulties of dialysis, live without fear, and enjoy every day.