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Books > Health, Home & Family > Family & health > Home nursing & caring
***BUSINESS BOOK AWARDS 2022 SHORTLISTED TITLE*** "I cannot recommend this book highly enough." - Dr. Sarah Eagger, consultant psychiatrist Give yourself the kind of care you give others and create a personalized toolkit of simple and effective strategies to master stress and revitalise your life. Whether you are a health or care professional, informal caregiver, therapist, or simply a people-pleaser who ignores their own needs, Sarah Kuipers invites you to take a fresh approach to stress by helping you unearth the roots of poor self-care, and guiding you step by step to create a life that nurtures you, emotionally, physically and spiritually. Only when you thrive can you give of your best to the world each day. Discover 7 powerful principles that will help you: Create supportive beliefs around your own worth Gain a greater understanding of your risk factors Transform your thoughts and emotions Calm your anxiety Become more assertive Replenish your energy Nourish your spirit "This brilliant book... should be required reading for all caring professionals." - Dr. Jane Buckle, former nurse and lecturer for healthcare professionals SARAH KUIPERS ran a successful practice for over 20 years as a single mother, before burning out. Since completing a Masters in Research on stress and burnout she has facilitated numerous courses in personal development and stress management for medical students.
Rebalancing the Roles in Caregiving So All Involved Are Supported "When you care for someone who is dealing with the complexities of aging, illness, or disability, you share intense emotions and form deep bonds. You each have the opportunity to recognize what is most deeply human and most deeply Divine in the other. This sense of reciprocal sharing between the caregiver, care receiver, and with others around you is the essence of the dance in caresharing." from the Prelude The word caregiver typically suggests someone doing all the giving for a frail, physically or mentally challenged, or aging person who is doing all the receiving. Marty Richards proposes a rebalanced approach of caresharing. From this perspective, the cared for and the carer share a deep sense of connection. Each has strengths and resources. Each can teach the other. Each can share in grief, hope, love and wisdom. Richards shows you how to move from independent caregiving to interdependent caregiving by engaging the spiritual and emotional aspects of caring for a loved one. Whether you are a daughter or son, a husband or wife, a sibling, long-term partner or good friend, Caresharing offers a multilayered, reciprocal process that will help you keep your spirit and your loved one's spirit alive in challenging times.Sharing Wisdom: What the Frail Teach the WellSharing Roles: Reinventing Family Roles in Sharing CareSharing Soul to Soul: A Special Relationship with People with DementiaSharing Grief: Dealing with the Little Losses and the Big OnesSharing Forgiveness: A Key Spiritual JourneySharing Hope and Heart: An Active Process One Step at a Time"
When catastrophic illness strikes, someone close to the patient—a
spouse, child, grandchild, or close friend—inevitably joins that
patient on the arduous journey through treatment and recovery.
Surprisingly, health-care professionals largely acknowledge that
personal caregivers have more influence over the patient’s experience
in the short and long term than any medical professional. That means
that if you find yourself in the role of caregiver, you are—or can
be—one of the greatest weapons in your loved one’s fight against cancer.
The impact of finding out your child is disabled can be wide ranging. The author's experience as a psychologist and parent of a disabled child informs this book which focuses on what helps, and hinders, parent-carers' emotional wellbeing. Research shows that mental health, relationships, family life, access to work and leisure activities, as well as finances can all be affected. For many parents the focus of those around them is solely on the child and their own needs become neglected. The author re-focuses attention onto the wellbeing of the parent. This includes acknowledging emotions, connecting with positive others, empowering yourself, regularly engaging in self-care and finding your own sense of meaning and purpose in life. Identifying the myriad of different emotions parents may experience as an understandable reaction to an unexpected situation the book includes quotes from parent carers. Connecting to psychological theories, such as positive re-framing and post-traumatic growth, the book applies these in practical ways to the parent-carer experience. Acknowledging that the journey is neither linear nor simple and transitions such as secondary school, puberty and adulthood require further periods of adjustment. Parents rarely get the time or support to stop and reflect on how they are feeling as they are caught up in the day to day busyness of caring. The difficulty is exacerbated by limited resources and battling for services. Building on the author's Doctoral research and having supported parent carers in different roles over the last 13 years this book provides a compass to ensure parents know they are not alone.
Working Daughter is a revelatory look at who's caring for our aging population and how these unpaid family caregivers are trying to manage caring for their parents, raising their children, maintaining relationships, and pursuing their careers. It follows the author, who was enjoying a fast-paced career in marketing and raising two children when both of her parents were diagnosed with terminal illnesses on the same day. In the challenges she faced and the choices she made, readers will learn how they can navigate their own caregiving experiences and prepare for when they are inevitably called on to care for their parents.
Eighty percent of persons with dementia live at home, and the family members caring for them are often overwhelmed by the enormous responsibility and the complexities of care. This book is designed to support the caregivers and help them understand the needs and feelings of the person for whom they are caring. A central focus is the goal of sustaining a loving family relationship between the caregiver and the patient. Developed from a training program for professionals and family caregivers, this book teaches the basics of dementia care while emphasizing communication, understanding and acceptance, and personal growth through the caregiving experience. The result is a guide that integrates the practicalities of caregiving with the human emotions that accompany it.
Rebalancing the Roles in Caregiving So All Involved Are Supported "When you care for someone who is dealing with the complexities of aging, illness, or disability, you share intense emotions and form deep bonds. You each have the opportunity to recognize what is most deeply human and most deeply Divine in the other. This sense of reciprocal sharing between the caregiver, care receiver, and with others around you is the essence of the dance in caresharing." from the Prelude The word caregiver typically suggests someone doing all the giving for a frail, physically or mentally challenged, or aging person who is doing all the receiving. Marty Richards proposes a rebalanced approach of caresharing. From this perspective, the cared for and the carer share a deep sense of connection. Each has strengths and resources. Each can teach the other. Each can share in grief, hope, love and wisdom. Richards shows you how to move from independent caregiving to interdependent caregiving by engaging the spiritual and emotional aspects of caring for a loved one. Whether you are a daughter or son, a husband or wife, a sibling, long-term partner or good friend, Caresharing offers a multilayered, reciprocal process that will help you keep your spirit and your loved one's spirit alive in challenging times.Sharing Wisdom: What the Frail Teach the WellSharing Roles: Reinventing Family Roles in Sharing CareSharing Soul to Soul: A Special Relationship with People with DementiaSharing Grief: Dealing with the Little Losses and the Big OnesSharing Forgiveness: A Key Spiritual JourneySharing Hope and Heart: An Active Process One Step at a Time"
'The vital guide to old-age care NO family can afford to ignore' Mail on Sunday 'Designed to lead carers through the emotional minefield of attempting to look after family and loved ones, primarily at home but also in care homes' The Sunday Times Scotland Whether due to old age, illness or disability, more and more of us are becoming carers to loved ones. Carers and Caring is a complete handbook for anyone in a caring role, guiding you through the everyday administrative and emotional challenges of supporting a loved one. Dementia specialist Professor June Andrews offers accessible advice on: - Managing your time, finances and family dynamics - Accessing resources from the NHS and social care services - Daily care such as physical assistance and meal preparation - Considering the transition from at-home to nursing home care. Practical, comprehensive and compassionate, Carers and Caring will be both a resource and a comfort as you navigate your role as a carer, supporting you as you support your loved one.
Although Hendershott has spent many years teaching and writing about the sociological aspects of aging, she writes that "none of this could have prepared me for the overwhelming challenge of caring for my own mother-in-law in my home." She introduces baby boomers as the unexpected caregivers of the coming decades. The process of family denial about symptoms, work-family conflict, and the unique problems of children of caregivers are explored in an effort to find solutions to the caregiving challenge. Social science research is made accessible and is coupled with anecdotal information gleaned from interactions with other caregivers and personal experience. Throughout the book, Hendershott shows family caregivers that by gaining insight into their motivations for caregiving and by drawing from family support and help from the community, they can move beyond maladaptive caregiving coping styles, to a rewarding reality-based caregiving experience.
What are the realities of 'community care' - the unpaid care given by hundreds of thousands of women, often in their own homes - for children and adults who are handicapped or chronically sick, or for frail elderly people? Originally published in 1983, this book explores the experiences of such women and the dilemmas which 'caring' poses for them. At a time when most women needed to earn money from a paid job, how did 'carers' manage to juggle their caring and other domestic responsibilities, and what happened if they had to give up work? Against a background of government policies which favour care 'by' the community, the contributors to this book raise crucial issues for social and economic policy. Hilary Graham examines what caring really means and Clare Ungerson asks why women do it. Sally Baldwin and Caroline Glendinning focus on mothers with handicapped children and Fay Wright on single adults with elderly dependants. Alan Walker highlights the dependencies implicit in caring relationships with the elderly. Lesley Rimmer looks at the economic 'costs' of care, and Dulcie Groves and Janet Finch examine the invalid care allowance - a carers' benefit for which married women can never qualify. In exploring the domestic sector of welfare, A Labour of Love was a highly topical contribution to the debate both on welfare provision and on the division of labour between men and women at the time.
Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future. This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment. A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care.
Winner, 2016 Outstanding Publication in the Sociology of Disability, American Sociological Association, Section Disability and Society Examines the experiences of mothers coping with their children's "invisible disabilities" in the face of daunting social, economic, and political realities Recent years have seen an explosion in the number of children diagnosed with "invisible disabilities" such as ADHD, mood and conduct disorders, and high-functioning autism spectrum disorders. Whether they are viewed as biological problems in brain wiring or as results of the increasing medicalization of childhood, the burden of dealing with the day-to-day trials and complex medical and educational decisions falls almost entirely on mothers. Yet few ask how these mothers make sense of their children's troubles, and to what extent they feel responsibility or blame. Raising Generation Rx offers a groundbreaking study that situates mothers' experiences within an age of neuroscientific breakthrough, a high-stakes knowledge-based economy, cutbacks in public services and decent jobs, and increased global competition and racialized class and gender inequality. Through in-depth interviews, observations of parents' meetings, and analyses of popular advice, Linda Blum examines the experiences of diverse mothers coping with the challenges of their children's "invisible disabilities" in the face of daunting social, economic, and political realities. She reveals how mothers in widely varied households learn to advocate for their children in the dense bureaucracies of the educational and medical systems; wrestle with anguishing decisions about the use of psychoactive medications; and live with the inescapable blame and stigma in their communities.
Progressive, untreatable nerve and muscle diseases transformed the author's life from having been a college athlete to needing a wheelchair and special equipment for day-to-day activities. While dealing with his own conditions, he was faced with the unique challenge of being the sole caregiver for his wife who suffers from Alzheimer's disease. He has written this experience-based book to help people with life-altering medical conditions and those dealing with challenging caregiving responsibilities. Comprehensive in scope, it covers topics including grief, finances, safety and end-of-life planning. This is a resource book containing many references aimed at helping the reader overcome their challenges, maintain their independence and have happy, fulfilling lives.
Genuine, life-giving spirituality calls us to be our best selves and to bring out the best in others, each and every day. It calls us to care_for God, others, and ourselves. In Practicing Presence, popular spiritual writer Kerry Walters shows us how to integrate care into our daily lives on the road to happiness and holiness. As Walters reveals, we do not need to be professional caregivers to nurture a creative, intimate, and meaningful openness to our deepest selves, to others, and to God. We simply need to be OpresentO to who God is and who we are as images of God.
Caregiving can be enormously challenging, terrifically rewarding, and potentially draining. Caregivers often wonder how they will navigate the tumultuous waters of caregiving and not lose themselves completely. The Mindful Caregiver highlights two major approaches to help transform the journey: adopting a practice of mindfulness, which helps caregivers become more self-aware and fully present with the person with whom they are caring, and honoring "the spirit-side" of caregiving which offers new ways of connecting to one another. These approaches take into account not just the needs of the care recipient, but also the needs of the caregiver and other people in his/her life. Remembering to care for oneself when someone else is in great need can be difficult, but with the suggestions and tips in this book, any caregiver can cultivate routines and practices that benefit everyone. Solutions that caregivers can use in their day to day routines are provided, so caregivers who use them can feel more empowered and hopeful. Using real stories throughout, Nancy Kriseman offers self-care exercises and addresses a wide variety of subjects such as setting realistic expectations, making the best possible decisions, advocating effectively, and evaluating available resources and services. The Mindful Caregiver provides inspiration, encouragement, and guidance for finding ease in the caregiving journey. By emphasizing both mindfulness and the spiritual dimension, caregivers can reap the gifts of caregiving, appreciate the special moments, and find strength during the challenging times.
More than 400,000 people in the United States undergo kidney
dialysis. For many, the prospect of a regular appointment with a
dialysis machine seems like the end of life itself. But that
reaction couldn't be more wrong.
Caregivers have one of the hardest jobs in the world. Beyond all their usual personal and family demands, they must take on the special responsibility of caring for family memers or others with long-term health problems. All the stresses that come with the territory can be overwhelming and make a caregiver feel hopeless at times. With 366 days' worth of wisdom and affirmations, Daily Comforts addresses one caregiving issue per day. An index of topics allows caregivers to find the readings most pertinent to their immediate concerns. Written in the first person, each page of Daily Comforts acts as a caregiver's monologue--as if what is on the page is coming directly from his or her mind. Few meditation books offer this approach. The idea is for the reader to transition from "venting" to thinking about the issue from a different perspective, to finding a solution. Daily Comforts works like a support system in a pocket by helping both family and professional caregivers cope with isolation, guilt, exhaustion, and frustration. Each reading concludes with an inspiring, practical affirmation designed to help caregivers better care for themselves.
With a foreword by Judy Woodruff, The Unexpected Journey of Caring is a practical guide to finding personal meaning in the 21st century care experience. Personal transformation is usually an experience we actively seek out-not one that hunts us down. Becoming a caregiver is one transformation that comes at us, requiring us to rethink everything we once knew. Everything changes-responsibilities, beliefs, hopes, expectations, and relationships. Caregiving is not just a role reserved for "saints"-eventually, everyone is drafted into the caregiver role. It's not a role people medically train for; it's a new type of relationship initiated by a loved one's need for care. And it's a role that cannot be quarantined to home because it infuses all aspects of our lives. Caregivers today find themselves in need of a crash course in new and unfamiliar skills. They must not only care for a loved one, but also access hidden community resources, collaborate with medical professionals, craft new narratives consistent with the changing nature of their care role, coordinate care with family, seek information and peer support using a variety of digital platforms, and negotiate social support-all while attempting to manage conflicts between work, life, and relationship roles. The moments that mark us in the transition from loved one to caregiver matter because if we don't make sense of how we are being transformed, we risk undervaluing our care experiences, denying our evolving beliefs, becoming trapped by other's misunderstandings, and feeling underappreciated, burned out, and overwhelmed. Informed by original caregiver research and proven advocacy strategies, this book speaks to caregiving as it unfolds, in all of its confusion, chaos, and messiness. Readers won't find well-intentioned cliches or care stereotypes in this book. There are no promises to help caregivers return to a life they knew before caregiving. No, this book greets caregivers where they are in their journey-new or chronic-not where others expect (or want) them to be.
Little is known about the experiences of children living in families affected by severe and enduring mental illness. This is the first in-depth study of children and young people caring for parents affected in this way. Drawing on primary research data collected from 40 families, the book presents the perspectives of children (young carers), their parents and the key professionals in contact with them. Children caring for parents with mental illness makes an invaluable contribution to the growing evidence base on parental mental illness and outcomes for children. It: * is the first research-based text to examine the experiences and needs of children caring for parents with severe mental illness; * provides the perspectives of children, parents and key professionals in contact with these families; * reviews existing medical, social, child protection and young carers literatures on parental mental illness and consequences for children; * provides a chronology and guide to relevant law and policy affecting young carers and parents with severe mental illness; * makes concrete recommendations and suggestions for improving policy and professional practice; * contributes to the growing evidence base on parental mental illness and outcomes for children and families.
Surviving Family Care Giving: Co-ordinating effective care through collaborative communication is a practical book for family and other home carers in a variety of situations. Grainne Smith shows how to provide the most effective coordinated care possible through constructive communication and collaborative care, to support individuals who have long term physical and mental health problems, including conditions from Alzheimers to alchoholism, autism to anorexia, schizophrenia to multiple sclerosis. Written from personal experience as a family carer, Grainne Smith includes interviews with other carers and service users; and draws on years of working with children and their families in tough times. Chapters such as Challenging Behaviour, Confidentiality, and Motivation illustrate some of the many problems facing carers who support vulnerable individuals. Problems include isolation, feelings of helplessness and uncertainty about what best to do, what to try to avoid and the lack of much needed relevant information and resources to support care-giving. "Surviving Family Care Giving" vividly illustrates the daily difficulties experienced by care givers who offer long term care and support and shows how to work through them. It provides suggestions on ways to build both constructive collaborative care and good family teamwork through effective communication, and how to ensure continuing care and support for the person at the centre of all the efforts. This book will be essential reading for family and other carers, including professionals trying to create ongoing continuity of care for their patients outside of treatment and education centres."
Surviving Family Care Giving: Co-ordinating effective care through collaborative communication is a practical book for family and other home carers in a variety of situations. Grainne Smith shows how to provide the most effective coordinated care possible through constructive communication and collaborative care, to support individuals who have long term physical and mental health problems, including conditions from Alzheimers to alchoholism, autism to anorexia, schizophrenia to multiple sclerosis. Written from personal experience as a family carer, Grainne Smith includes interviews with other carers and service users; and draws on years of working with children and their families in tough times. Chapters such as Challenging Behaviour, Confidentiality, and Motivation illustrate some of the many problems facing carers who support vulnerable individuals. Problems include isolation, feelings of helplessness and uncertainty about what best to do, what to try to avoid and the lack of much needed relevant information and resources to support care-giving. "Surviving Family Care Giving" vividly illustrates the daily difficulties experienced by care givers who offer long term care and support and shows how to work through them. It provides suggestions on ways to build both constructive collaborative care and good family teamwork through effective communication, and how to ensure continuing care and support for the person at the centre of all the efforts. This book will be essential reading for family and other carers, including professionals trying to create ongoing continuity of care for their patients outside of treatment and education centres."
FDA's approval of aducanumab has radically changed the world of Alzheimer's disease and you're going to need guidance regarding whether they should take it or not. This book conveys all the insight. As you age, you may find yourself worrying about your memory. Where did I put those car keys? What time was my appointment? What was her name again? With more than 41 million Americans over the age of 65 in the United States, the question becomes how much (or, perhaps, what type) of memory loss is to be expected as one gets older and what should trigger a visit to the doctor. Seven Steps to Managing Your Aging Memory addresses these key concerns and more, such as: * What are the signs that suggest your memory problems are more than just part of normal aging? * Is it normal to have concerns about your memory? * What are the markers of mild cognitive impairment, dementia, Alzheimer's, and other brain diseases? * How should you talk about your memory concerns to your doctor? * What should your doctor do to evaluate your memory? * Which healthcare professional(s) should you see? * What medicines, alternative therapies, diets, and exercises actually work to improve your memory? * Can crossword puzzles, computer brain-training games, memory aids, and strategies help strengthen your memory? * What other resources are available when dealing with memory loss? Seven Steps to Managing Your Aging Memory is written in an easy-to-read yet comprehensive style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage memory loss. |
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