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Books > Health, Home & Family > Family & health > Home nursing & caring
Sometimes I think that carrying - other people, the continuity of history, generational identity, the emotional load of the everyday - is the main thing that women do. In Marina Benjamin's new set of interlinked essays, she turns her astute eye to the tasks once termed 'women's work'. From cooking and cleaning to caring for an ageing relative, A Little Give depicts domestic life anew: as a site of paradox and conflict, but also of solace and profound meaning. Here, productivity sits alongside self-erasure, resentment with tenderness, and the animal self is never far away, perpetually threatening to break through. Drawing on the work of figures such as Natalia Ginzburg, Paula Rego, and Virginia Woolf, Benjamin writes with fierce candour of the struggle to overwrite the gender conditioning that pulls her back into 'the mud-world of pre-feminism' even as she attempts to haul herself out. From her upbringing as the child of immigrants with fixed traditional values, to looking after her mother and seeing her teenager move out of home, she examines her relationships with family, community, her body, and even with language itself. Ultimately, she shows that a woman's true work may lie at the heart of her humanity, in the pursuit both of transformation and of deep acceptance.
The basic health care system in the United States is not working and must be fixed. The cost of a new, effective system of health care delivery would be instead of rather than in addition to what the US population is now paying for an inadequate, incomplete system. We must put the fiscal responsibility for health care delivery on the medical care sector that makes the decisions on what medications, what procedures and who gets treatment and when, that is, the providers of care, mostly the doctors. By doing this we can correct the more than fifty percent overpayment and misuse of funds currently in vogue. The book deals with the concept of the possibility of eventual coverage of everyone through the Medicare system as the current population ages. It explains the leverage that that single payer universal system such as Medicare, can generate to change the incentives for the providers of care resulting in a reduction of the overall cost. It also sets forth the concept of choice for the patient, the allocation of resources, and the restructuring of the medical education system as well as the recruitment and training of providers. Other problems such as organizational development, provider groups, malpractice, reinsurance through a universal system and other solutions are also dealt with. Today 45 million Americans have no health care coverage, while approximately 50 million are under insured due to high deductibles and co-payments. Many who are eligible for Medicare, federal health care insurance for the aged and Medicaid, federal health care for the poor, may be without coverage due to lack of access to services in the areas that they live. Practical solutions to these problems areaddressed. Robert Gumbiner, MD, with more than 40 years experience in the health care field as a practicing physician, a manager and a force in medical management education, derives much of his experience from successfully developing and managing one of the largest managed care companies in the United States for over 30 years. Drawing on this extensive management experience as well as years of studying health care systems around the world, Robert Gumbiner debunks the myths held by opponents to national universal health care and capitated prepayment. His development of the first capitated prepayment plan for Medical in the 60's in California and first contract for prepayment Medicare on the West Coast in the 80's gave credibility to his ideas that succeeded in reducing health care costs. He shows step-by-step how we arrived at our current dysfunctional system and argues persuasively how we have been misled by special interests in the medical/industrial complex into thinking a health care system funded through the government and managed for effective utilization will eliminate choice. In the final analysis the book's major theme is that the cost of a complete comprehensive system is "instead of and not in addition" to what we are currently paying and how to go about instituting such a system. It offers solutions that have been developed by the author throughout his long career in managing health care delivery systems. It is not a theoretical concept but based upon ideas, errors, successes and a logical, practical model.
When you are responsible for another person's physical needs, your own needs are often neglected. After caring for her spouse, who for ten years suffered from a rare, debilitating disease, Kay Marshall Strom is able to bring a voice of experience and compassion to this important topic. She shows you how to
***BUSINESS BOOK AWARDS 2022 SHORTLISTED TITLE*** "I cannot recommend this book highly enough." - Dr. Sarah Eagger, consultant psychiatrist Give yourself the kind of care you give others and create a personalized toolkit of simple and effective strategies to master stress and revitalise your life. Whether you are a health or care professional, informal caregiver, therapist, or simply a people-pleaser who ignores their own needs, Sarah Kuipers invites you to take a fresh approach to stress by helping you unearth the roots of poor self-care, and guiding you step by step to create a life that nurtures you, emotionally, physically and spiritually. Only when you thrive can you give of your best to the world each day. Discover 7 powerful principles that will help you: Create supportive beliefs around your own worth Gain a greater understanding of your risk factors Transform your thoughts and emotions Calm your anxiety Become more assertive Replenish your energy Nourish your spirit "This brilliant book... should be required reading for all caring professionals." - Dr. Jane Buckle, former nurse and lecturer for healthcare professionals SARAH KUIPERS ran a successful practice for over 20 years as a single mother, before burning out. Since completing a Masters in Research on stress and burnout she has facilitated numerous courses in personal development and stress management for medical students.
A meditation on the social political and philosophical questions of
ageing, from the internationally acclaimed author of Returning to Reims
The impact of finding out your child is disabled can be wide ranging. The author's experience as a psychologist and parent of a disabled child informs this book which focuses on what helps, and hinders, parent-carers' emotional wellbeing. Research shows that mental health, relationships, family life, access to work and leisure activities, as well as finances can all be affected. For many parents the focus of those around them is solely on the child and their own needs become neglected. The author re-focuses attention onto the wellbeing of the parent. This includes acknowledging emotions, connecting with positive others, empowering yourself, regularly engaging in self-care and finding your own sense of meaning and purpose in life. Identifying the myriad of different emotions parents may experience as an understandable reaction to an unexpected situation the book includes quotes from parent carers. Connecting to psychological theories, such as positive re-framing and post-traumatic growth, the book applies these in practical ways to the parent-carer experience. Acknowledging that the journey is neither linear nor simple and transitions such as secondary school, puberty and adulthood require further periods of adjustment. Parents rarely get the time or support to stop and reflect on how they are feeling as they are caught up in the day to day busyness of caring. The difficulty is exacerbated by limited resources and battling for services. Building on the author's Doctoral research and having supported parent carers in different roles over the last 13 years this book provides a compass to ensure parents know they are not alone.
A deeply felt account of the relationship between a mother and son, and an exploration of what care for the dying means in contemporary society. The book is emotionally complex – funny, sad and angry – but above all, heartfelt and honest. It speaks boldly of challenges faced by all of us, challenges which are often not spoken about and hidden, but which deserve urgent attention. This is first and foremost a work of the heart, a reflection on what relationships mean and should mean. There is much in the book about relationships of care and exploitation in southern Africa, and about white Jewish identity in an African context. But despite the specific and absorbing references to places and contexts, the book offers a broader, more universal view. All parents of adult children, and all adults who have parents alive, or have lost their parents, will find much in this book to make them laugh, cry, think and feel.
Eighty percent of persons with dementia live at home, and the family members caring for them are often overwhelmed by the enormous responsibility and the complexities of care. This book is designed to support the caregivers and help them understand the needs and feelings of the person for whom they are caring. A central focus is the goal of sustaining a loving family relationship between the caregiver and the patient. Developed from a training program for professionals and family caregivers, this book teaches the basics of dementia care while emphasizing communication, understanding and acceptance, and personal growth through the caregiving experience. The result is a guide that integrates the practicalities of caregiving with the human emotions that accompany it.
Rebalancing the Roles in Caregiving So All Involved Are Supported "When you care for someone who is dealing with the complexities of aging, illness, or disability, you share intense emotions and form deep bonds. You each have the opportunity to recognize what is most deeply human and most deeply Divine in the other. This sense of reciprocal sharing between the caregiver, care receiver, and with others around you is the essence of the dance in caresharing." from the Prelude The word caregiver typically suggests someone doing all the giving for a frail, physically or mentally challenged, or aging person who is doing all the receiving. Marty Richards proposes a rebalanced approach of caresharing. From this perspective, the cared for and the carer share a deep sense of connection. Each has strengths and resources. Each can teach the other. Each can share in grief, hope, love and wisdom. Richards shows you how to move from independent caregiving to interdependent caregiving by engaging the spiritual and emotional aspects of caring for a loved one. Whether you are a daughter or son, a husband or wife, a sibling, long-term partner or good friend, Caresharing offers a multilayered, reciprocal process that will help you keep your spirit and your loved one's spirit alive in challenging times.Sharing Wisdom: What the Frail Teach the WellSharing Roles: Reinventing Family Roles in Sharing CareSharing Soul to Soul: A Special Relationship with People with DementiaSharing Grief: Dealing with the Little Losses and the Big OnesSharing Forgiveness: A Key Spiritual JourneySharing Hope and Heart: An Active Process One Step at a Time"
'Inspiring' GUARDIAN 'Heartbreaking' INDEPENDENT 'I loved it' ADAM KAY 'Beautiful' MATT HAIG 'Luminous' NICCI GERRARD 'Essential reading' MADELEINE BUNTING 'A celebration' CHRISTIE WATSON ----- A Best Book for Summer in The Times, Guardian and The i Independent Book of the Month ----- Caring is an issue that affects us all - as bestselling novelist Kate Mosse knows all too well. Kate has cared in turn for her father and mother, and for Granny Rosie, her 90-year-old mother-in-law. Along the way she has experienced the joys, challenges and frustrations shared by an invisible army of carers. At the heart of this care lie everyday acts of love, and the realisation that, sooner or later, most of us will come to rely on an extra pair of hands. ----- 'Lifts the spirits without pulling punches' IAN RANKIN 'Irresistible' RACHEL JOYCE 'Questions how and why we fetishise independence when the reality of human experience is always interdependence' GUARDIAN, BOOK OF THE DAY 'Heartfelt, funny and at times heartbreaking. 10/10' INDEPENDENT 'Utterly beautiful' FRANCESCA SEGAL
Although Hendershott has spent many years teaching and writing about the sociological aspects of aging, she writes that "none of this could have prepared me for the overwhelming challenge of caring for my own mother-in-law in my home." She introduces baby boomers as the unexpected caregivers of the coming decades. The process of family denial about symptoms, work-family conflict, and the unique problems of children of caregivers are explored in an effort to find solutions to the caregiving challenge. Social science research is made accessible and is coupled with anecdotal information gleaned from interactions with other caregivers and personal experience. Throughout the book, Hendershott shows family caregivers that by gaining insight into their motivations for caregiving and by drawing from family support and help from the community, they can move beyond maladaptive caregiving coping styles, to a rewarding reality-based caregiving experience.
What are the realities of 'community care' - the unpaid care given by hundreds of thousands of women, often in their own homes - for children and adults who are handicapped or chronically sick, or for frail elderly people? Originally published in 1983, this book explores the experiences of such women and the dilemmas which 'caring' poses for them. At a time when most women needed to earn money from a paid job, how did 'carers' manage to juggle their caring and other domestic responsibilities, and what happened if they had to give up work? Against a background of government policies which favour care 'by' the community, the contributors to this book raise crucial issues for social and economic policy. Hilary Graham examines what caring really means and Clare Ungerson asks why women do it. Sally Baldwin and Caroline Glendinning focus on mothers with handicapped children and Fay Wright on single adults with elderly dependants. Alan Walker highlights the dependencies implicit in caring relationships with the elderly. Lesley Rimmer looks at the economic 'costs' of care, and Dulcie Groves and Janet Finch examine the invalid care allowance - a carers' benefit for which married women can never qualify. In exploring the domestic sector of welfare, A Labour of Love was a highly topical contribution to the debate both on welfare provision and on the division of labour between men and women at the time.
Your elderly father's memory is failing fast. Your increasingly frail mother just took another fall. Whatever the situation, The Eldercare Consultant can provide the knowledge, support, and encouragement you seek.Weaving together real-life stories with the essential information needed to make the best decisions, this compassionate and practical guide helps you: Spot warning signs of physical and mental declineRecognize when a loved one needs assistanceDetermine the level of care neededEvaluate the options - family caregiver, home health care, palliative care, senior housing, assisted livingfacilities - and select the right oneDiscuss the issue with your loved oneUnderstand and manage the costs of careMake the adjustment as smooth as possibleAvoid caregiver burnout Author and eldercare expert Becky Feola knows first-hand that caring for someone who is no longer in complete control is hard...and the decision to seek outside help is one fraught with emotion. Her book helps cut the confusion, and turn an undeniably difficult transition into a journey of hope and love.
Winner, 2016 Outstanding Publication in the Sociology of Disability, American Sociological Association, Section Disability and Society Examines the experiences of mothers coping with their children's "invisible disabilities" in the face of daunting social, economic, and political realities Recent years have seen an explosion in the number of children diagnosed with "invisible disabilities" such as ADHD, mood and conduct disorders, and high-functioning autism spectrum disorders. Whether they are viewed as biological problems in brain wiring or as results of the increasing medicalization of childhood, the burden of dealing with the day-to-day trials and complex medical and educational decisions falls almost entirely on mothers. Yet few ask how these mothers make sense of their children's troubles, and to what extent they feel responsibility or blame. Raising Generation Rx offers a groundbreaking study that situates mothers' experiences within an age of neuroscientific breakthrough, a high-stakes knowledge-based economy, cutbacks in public services and decent jobs, and increased global competition and racialized class and gender inequality. Through in-depth interviews, observations of parents' meetings, and analyses of popular advice, Linda Blum examines the experiences of diverse mothers coping with the challenges of their children's "invisible disabilities" in the face of daunting social, economic, and political realities. She reveals how mothers in widely varied households learn to advocate for their children in the dense bureaucracies of the educational and medical systems; wrestle with anguishing decisions about the use of psychoactive medications; and live with the inescapable blame and stigma in their communities.
Progressive, untreatable nerve and muscle diseases transformed the author's life from having been a college athlete to needing a wheelchair and special equipment for day-to-day activities. While dealing with his own conditions, he was faced with the unique challenge of being the sole caregiver for his wife who suffers from Alzheimer's disease. He has written this experience-based book to help people with life-altering medical conditions and those dealing with challenging caregiving responsibilities. Comprehensive in scope, it covers topics including grief, finances, safety and end-of-life planning. This is a resource book containing many references aimed at helping the reader overcome their challenges, maintain their independence and have happy, fulfilling lives.
Caregiving can be enormously challenging, terrifically rewarding, and potentially draining. Caregivers often wonder how they will navigate the tumultuous waters of caregiving and not lose themselves completely. The Mindful Caregiver highlights two major approaches to help transform the journey: adopting a practice of mindfulness, which helps caregivers become more self-aware and fully present with the person with whom they are caring, and honoring "the spirit-side" of caregiving which offers new ways of connecting to one another. These approaches take into account not just the needs of the care recipient, but also the needs of the caregiver and other people in his/her life. Remembering to care for oneself when someone else is in great need can be difficult, but with the suggestions and tips in this book, any caregiver can cultivate routines and practices that benefit everyone. Solutions that caregivers can use in their day to day routines are provided, so caregivers who use them can feel more empowered and hopeful. Using real stories throughout, Nancy Kriseman offers self-care exercises and addresses a wide variety of subjects such as setting realistic expectations, making the best possible decisions, advocating effectively, and evaluating available resources and services. The Mindful Caregiver provides inspiration, encouragement, and guidance for finding ease in the caregiving journey. By emphasizing both mindfulness and the spiritual dimension, caregivers can reap the gifts of caregiving, appreciate the special moments, and find strength during the challenging times.
Genuine, life-giving spirituality calls us to be our best selves and to bring out the best in others, each and every day. It calls us to care_for God, others, and ourselves. In Practicing Presence, popular spiritual writer Kerry Walters shows us how to integrate care into our daily lives on the road to happiness and holiness. As Walters reveals, we do not need to be professional caregivers to nurture a creative, intimate, and meaningful openness to our deepest selves, to others, and to God. We simply need to be OpresentO to who God is and who we are as images of God.
Experienced family doctor Ray Strand writes his patients prescriptions every week, but he also believes that prescribing drugs should be a last resort in most medical cases-not a first choice. In Death by Prescription he provides simple guidelines to help readers protect themselves and their families from suffering adverse reactions to prescription medication.
'The vital guide to old-age care NO family can afford to ignore' Mail on Sunday 'Designed to lead carers through the emotional minefield of attempting to look after family and loved ones, primarily at home but also in care homes' The Sunday Times Scotland Whether due to old age, illness or disability, more and more of us are becoming carers to loved ones. Carers and Caring is a complete handbook for anyone in a caring role, guiding you through the everyday administrative and emotional challenges of supporting a loved one. Dementia specialist Professor June Andrews offers accessible advice on: - Managing your time, finances and family dynamics - Accessing resources from the NHS and social care services - Daily care such as physical assistance and meal preparation - Considering the transition from at-home to nursing home care. Practical, comprehensive and compassionate, Carers and Caring will be both a resource and a comfort as you navigate your role as a carer, supporting you as you support your loved one.
FDA's approval of aducanumab has radically changed the world of Alzheimer's disease and you're going to need guidance regarding whether they should take it or not. This book conveys all the insight. As you age, you may find yourself worrying about your memory. Where did I put those car keys? What time was my appointment? What was her name again? With more than 41 million Americans over the age of 65 in the United States, the question becomes how much (or, perhaps, what type) of memory loss is to be expected as one gets older and what should trigger a visit to the doctor. Seven Steps to Managing Your Aging Memory addresses these key concerns and more, such as: * What are the signs that suggest your memory problems are more than just part of normal aging? * Is it normal to have concerns about your memory? * What are the markers of mild cognitive impairment, dementia, Alzheimer's, and other brain diseases? * How should you talk about your memory concerns to your doctor? * What should your doctor do to evaluate your memory? * Which healthcare professional(s) should you see? * What medicines, alternative therapies, diets, and exercises actually work to improve your memory? * Can crossword puzzles, computer brain-training games, memory aids, and strategies help strengthen your memory? * What other resources are available when dealing with memory loss? Seven Steps to Managing Your Aging Memory is written in an easy-to-read yet comprehensive style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage memory loss.
When catastrophic illness strikes, someone close to the patient—a
spouse, child, grandchild, or close friend—inevitably joins that
patient on the arduous journey through treatment and recovery.
Surprisingly, health-care professionals largely acknowledge that
personal caregivers have more influence over the patient’s experience
in the short and long term than any medical professional. That means
that if you find yourself in the role of caregiver, you are—or can
be—one of the greatest weapons in your loved one’s fight against cancer.
With a foreword by Judy Woodruff, The Unexpected Journey of Caring is a practical guide to finding personal meaning in the 21st century care experience. Personal transformation is usually an experience we actively seek out-not one that hunts us down. Becoming a caregiver is one transformation that comes at us, requiring us to rethink everything we once knew. Everything changes-responsibilities, beliefs, hopes, expectations, and relationships. Caregiving is not just a role reserved for "saints"-eventually, everyone is drafted into the caregiver role. It's not a role people medically train for; it's a new type of relationship initiated by a loved one's need for care. And it's a role that cannot be quarantined to home because it infuses all aspects of our lives. Caregivers today find themselves in need of a crash course in new and unfamiliar skills. They must not only care for a loved one, but also access hidden community resources, collaborate with medical professionals, craft new narratives consistent with the changing nature of their care role, coordinate care with family, seek information and peer support using a variety of digital platforms, and negotiate social support-all while attempting to manage conflicts between work, life, and relationship roles. The moments that mark us in the transition from loved one to caregiver matter because if we don't make sense of how we are being transformed, we risk undervaluing our care experiences, denying our evolving beliefs, becoming trapped by other's misunderstandings, and feeling underappreciated, burned out, and overwhelmed. Informed by original caregiver research and proven advocacy strategies, this book speaks to caregiving as it unfolds, in all of its confusion, chaos, and messiness. Readers won't find well-intentioned cliches or care stereotypes in this book. There are no promises to help caregivers return to a life they knew before caregiving. No, this book greets caregivers where they are in their journey-new or chronic-not where others expect (or want) them to be.
Caregivers have one of the hardest jobs in the world. Beyond all their usual personal and family demands, they must take on the special responsibility of caring for family memers or others with long-term health problems. All the stresses that come with the territory can be overwhelming and make a caregiver feel hopeless at times. With 366 days' worth of wisdom and affirmations, Daily Comforts addresses one caregiving issue per day. An index of topics allows caregivers to find the readings most pertinent to their immediate concerns. Written in the first person, each page of Daily Comforts acts as a caregiver's monologue--as if what is on the page is coming directly from his or her mind. Few meditation books offer this approach. The idea is for the reader to transition from "venting" to thinking about the issue from a different perspective, to finding a solution. Daily Comforts works like a support system in a pocket by helping both family and professional caregivers cope with isolation, guilt, exhaustion, and frustration. Each reading concludes with an inspiring, practical affirmation designed to help caregivers better care for themselves. |
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