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Books > Health, Home & Family > Family & health > Home nursing & caring
Little is known about the experiences of children living in
families affected by severe and enduring mental illness. This is
the first in-depth study of children and young people caring for
parents affected in this way. Drawing on primary research data
collected from 40 families, the book presents the perspectives of
children (young carers), their parents and the key professionals in
contact with them. Children caring for parents with mental illness
makes an invaluable contribution to the growing evidence base on
parental mental illness and outcomes for children. It: * is the
first research-based text to examine the experiences and needs of
children caring for parents with severe mental illness; * provides
the perspectives of children, parents and key professionals in
contact with these families; * reviews existing medical, social,
child protection and young carers literatures on parental mental
illness and consequences for children; * provides a chronology and
guide to relevant law and policy affecting young carers and parents
with severe mental illness; * makes concrete recommendations and
suggestions for improving policy and professional practice; *
contributes to the growing evidence base on parental mental illness
and outcomes for children and families.
Genuine, life-giving spirituality calls us to be our best selves
and to bring out the best in others, each and every day. It calls
us to care_for God, others, and ourselves. In Practicing Presence,
popular spiritual writer Kerry Walters shows us how to integrate
care into our daily lives on the road to happiness and holiness. As
Walters reveals, we do not need to be professional caregivers to
nurture a creative, intimate, and meaningful openness to our
deepest selves, to others, and to God. We simply need to be
OpresentO to who God is and who we are as images of God.
Crossing Over provides a unique view of patients, families, and
their caregivers in the face of incurable illness. Twenty
richly-detailed narratives bring vividly to life the experiences of
dying and bereavement, weaving together emotions, physical
symptoms, spiritual concerns, and the stresses of family life, as
well as the professional and personal challenges of providing
hospice and palliative care. Drawing on a variety of qualitative
research methods, including participant-observation, interviews,
and journal keeping, the narratives depict the sights, sounds,
tastes, and smells of daily life in patients' homes and in the
palliative care unit. Crossing Over moves far beyond conventional
case reports in medicine, which typically concentrate narrowly on
symptoms and treatments, and beyond cliches about "dying with
dignity." It provides intimate views of the anger and fear,
tenderness and reconciliation, jealousy and love, unexpected
courage and unshakable faith, social support and "falling through
the cracks," which are all part of facing death in North American
society. It provides an extraordinary portrait of the processes of
giving and receiving hospice and palliative care in the real world,
as opposed to idealized versions in many textbooks. This edition of
Crossing Over has been thoroughly revised and updated to reflect
changes in hospice and palliative care and in North American
society since the first edition in 2000. Chief among these are the
expansion of hospice and palliative care as a field, the ravages of
the COVID-19 pandemic, the wider availability of medical aid in
dying, and a heightened awareness of how structural racism,
classism, and other forms of discrimination shape individuals' and
families' experiences right up to the close of life.
Mary Ellen Geist decided to leave her job as a CBS Radio anchor to
return home to Michigan when her father's Alzheimer's got to be too
much for her mother to shoulder alone. She chose to live her life
by a different set of priorities: to be guided by her heart, not by
outside accomplishment and recognition.
The New York Times wrote a front page story about Mary Ellen on
Thanksgiving 2005. It was one of the most e-mailed stories for the
month. Mary Ellen also kept a blog of her experiences, which
received an enormous response from readers on WCBS880.com. Through
her own story and through interviews with doctors and other women
who've followed the "Daughter Track"--leaving a job to care for an
aging parent--Geist offers eye-opening advice. She shares emotional
insights on how to encourage interaction with the loved one you're
caring for; how to determine daily tasks that are achievable and
rewarding; how the personality of the patient affects the
caregiving and the progression of the disease; as well as
invaluable advice about how the reader can take care of themselves
while accomplishing the Herculean task of constant caregiving to
others.
Geist's years in journalism allow her to report on Boomers'
caretaking dilemmas with professional objectivity, and her warm
voice brings compassion and insight to one of the most difficult
stituations a son or daughter may face during his or her life.
"Our AARP members tell us that one of the most difficult challenges
they face is caring for a spouse or loved one who has become
disabled or terminally ill. In The Caregiving Wife's Handbook, Dr.
Denholm provides the tools and practical advice caregivers need to
navigate these rough waters and to emerge at peace with themselves
and their loved ones."
A. Barry Rand
CEO, AARP
Take care of yourself as you care for others with this accessible,
easy-to-follow self-care guide to relax and rejuvenate. It's been
said that there are only four kinds of people in the world: those
who have been caregivers, those who are currently caregivers, those
who will become caregivers, and those who will need caregivers.
Chances are you or someone you know is taking care of a loved one
at home. If you do, you also know that caregiving--however
fulfilling--is also hard on the caregiver's mental and physical
health. Self-care is vital to caregivers maintaining stamina and a
positive outlook for both themselves and the people they care for.
But being so busy caring for others can make it hard to find time
for yourself. In Self-Care for Caregivers, you'll find short,
easy-to-read--and often easy-to-do--ways to replenish your mind,
body, and spirit, including: -Practicing mindfulness by focusing in
on your five senses -Remembering to HALT to check if you're hungry,
angry, lonely, or tired -Making a gratitude list of at least three
things you're grateful for -And much more! Full of practical advice
and reminders to have a quick snack, call a friend, create a
sanctuary, write in a journal, and more ways to take care
yourself--plus resources for caregiving--this book will go a long
way towards making your caregiving experience a happier and more
healthful one for you and the people you care for.
'A beautiful and important book that is both deeply engaging and
usefully practical. I loved it.' CATHY RENTZENBRINK 'An insightful
and well-timed book ... forces us to confront the stereotypes - and
prejudices - we hold.' SUNDAY TIMES 'profoundly important...full of
wisdom and bright insights on what it really means to love someone,
by a fearless and generous writer. ' CLOVER STROUD 'A beautiful and
timely reminder that each and every one of us has the ability to
care, the capacity for empathy, and the potential to grow.' ANDY
PUDDICOMBE, FOUNDER OF HEADSPACE 'A wonderful book: compassionate,
honest, carefully-reasoned and genuinely helpful... This will
benefit many people.' KATHERINE MAY, author of WINTERING 'An
invaluable tool for any invisible carers or anyone who wants to
learn how to better support their loved ones... we ALL have many,
many things to learn from Penny's beautiful, wise, charming,
thoughtful words' SCARLETT CURTIS, Sunday Times bestselling author
'Moving and beautifully written, nuanced and wise, alert to every
paradox at the heart of love. A hugely important book not only for
current or future carers, but anyone learning to accept that life
tends to resist our control.' OLIVIA SUDJIC, author of EXPOSURE
'Tender captures the powerful capacity of people to care for
others, and all the heartbreaking and heartwarming complexity that
this involves. Penny brings the crucial, yet often overlooked, role
of caring into our collective consciousness and, in doing so,
demonstrates what it means to be human.' -DR EMMA HEPBURN, author
of A TOOLKIT FOR MODERN LIFE 'Penny Wincer's TENDER manages to
combine both unromanticised honesty about the realities of care
with a genuine uplifting hopefulness... is a must-read.' RUTH
WHIPPMAN, author of THE PURSUIT OF HAPPINESS We are all likely - at
some point in our lives - to face the prospect of caring for
another, whether it's a parent, child or partner. It is estimated
that there are 7 million people in the UK caring for loved ones.
And yet these are the unpaid, unsung people whose number is rising
all the time. In Tender: the imperfect art of caring, Penny Wincer
combines her own experiences as a carer with the experiences of
others to offer real and transformative tools and insights for
navigating a situation that many of us are either facing or will
face at some time. Penny Wincer has twice been a carer: first to
her mother, and now as a single parent to her autistic son. Tender
shows how looking after oneself is a fundamental part of caring for
another, and describes the qualities that we can look to cultivate
in ourselves through what may otherwise feel to be an exhausting
task. Weaving her lived experience with research into resilience,
perfectionism and self-compassion, Penny combines the stories of
other carers alongside those who receive support - offering an
often surprising and hopeful perspective. Penny hosts a podcast Not
Too Busy To Write.
The Man who Lost His Language is a unique exploration of aphasia -
losing the ability to use or comprehend words - as well as of the
resilience of love. When Sir John Hale suffered a stroke that left
him unable to walk, write or speak, his wife, Shelia, followed
every available medical trail seeking knowledge of his condition
and how he might be restored to health. This revised edition of a
classic book includes an additional chapter detailing the latest
developments in science and medicine since the first edition was
published. This personal account of one couple's experience will be
of interest to all those who want to know more about aphasia and
related conditions.
The 4th edition of Finnie's Handling the Young Child with Cerebral
Palsy at Home has been updated to reflect the current practices of
today. It aims to help parents assist their child with cerebral
palsy (CP) towards achieving the most comfortable independence in
all activities. It is hoped to show how, by using typical parenting
skills, which involve guiding and exposing a child to develop
through challenging experiences, the child with CP will also
develop. The book is also intended to help professionals and other
carers new to this field understand, support and encourage young
children with CP and their families.Over the years since the first
edition of this book was written ideas on appropriate therapies
have changed and developed. Similarly opinion on early intervention
has changed and the method of delivery of service has in some
places moved from centralisation to home-based or community
provision. The emphasis of this new edition however remains on a
holistic approach to the child's needs seeing the difficulties in
relation to the overall development of the child as a unique person
from childhood to adulthood. Assessment procedures and prediction
of future abilities Management of problems (including medication if
appropriate) such as epilepsy, constipation, eneurisis,
nourishment, difficulty with sleeping, crying, temper tantrums,
sensory deficits and deformityStimulation, fitness, problem
solving, compensatory strategies and ease of management New
chapters include Neuroimaging, Epilepsy, Emotional health,
Orthotics, Spasticity management, and Complementary and alternative
medicineOver 460 revised illustrations showing different pieces of
equipment which may be helpful and ways of holding and moving a
child with cerebral palsyChapters on Sleeping, Feeding, Lifting and
Carrying, Toileting, Communication and Fine motor movement have
been completely re-written by a professional specialising in the
particular field
More than 400,000 people in the United States undergo kidney
dialysis. If you or a member of your family are one of them, then
the prospect of a regular appointment with a dialysis machine may
seem like the end of life itself. But that reaction couldn't be
more wrong.
In Dialysis Without Fear, psychiatrist and dialysis patient Dr.
Daniel Offer joins with his wife, Marjorie Kaiz Offer, and
daughter, Susan Offer Szafir, to reveal how life can be lived--and
lived well--on dialysis. Drawing on his long medical career and
more than seven years of personal experience with dialysis, Dr.
Offer dispels many misconceptions surrounding this treatment,
explaining how you can adapt to the new diet, travel, work and
continue to partake in life's joys and celebrations. But the fears
and hardships can be quite real, and Dr. Offer brings his years as
a psychiatrist to bear as he provides practical advice on how
patients can overcome them. Walking through each step of dialysis,
he explains different types of treatment, examines the pros and
cons of a transplant, and discusses side effects. Since dialysis
affects the entire family, Dr. Offer and his coauthors also provide
realistic insights into how relatives can cope and thrive together,
sharing the humor, courage, and triumphs of real families who have
successfully faced the challenges of dialysis. The result is an
inspiring, practical guide that will help you and your family learn
to overcome the difficulties of dialysis, live without fear, and
enjoy every day.
A surprise inheritance and a failing care home might hold the
unlikely makings for true love...Kate's husband has not only left
her, he's also left her tons of debt and she now risks losing her
career as a lawyer if she can't find a way to pay it back.
Overnight, Calvin's life changed when he signed for a major
football team, and then again when injury forced him into early
retirement. His life is once more about to be shaken up after he
inherits his great-uncle's estate. Kate needs a job and Calvin
needs someone to manage the care home he now owns - if it doesn't
turn a profit in the next three months, it will be shut down and
the residents forced out. Can the two work together to save Rose
Court, and each other? A fun, festive and joyful romance for fans
of Sophie Ranald and Holly Martin. Praise for Someone for Everyone
'A perfect slow-burn romance! I was mesmerised and brought into a
Christmas feel-good world.' Reader Review 'I loved the eccentricity
of the care home residents from the very outset... a great
cosy-night-in kind of a book.' Reader Review 'An engaging read set
in a care home. It was lovely to read a slow developing romance
with lots of funny moments. Excellent.' Reader Review 'You can
always rely on a festive Tracy Corbett book to get you in that
warming, cosy, joyful mood. She has quickly become a member of my
go-to author list for quality, uplifting fiction.' Reader Review 'I
loved the setting... an absolutely cracking story.' Reader Review
'Such a great story! This slow burn romance... has a fun cast of
characters. A great holiday read!' Reader Review
Navigating Life with Chronic Pain provides accessible,
comprehensive, and up-to-date information about the challenges
patients, family, and caregivers face when confronted by chronic
pain. No two pain experiences are the same, so your chronic pain
depends on where you have pain, how long you have experienced pain,
and how the pain symptoms developed. Everyone needs a customized
approach because pain symptoms, other medical conditions, past pain
experiences, beliefs about pain, environment, ability to cope with
the pain, and financial and social support (like family, friends,
and caregivers) are different for every person. This book aims to
provide clear and reliable information about chronic pain,
including "what" (definition), "how" (pathophysiology), and "why"
(etiology). The authors expertly guide the reader through current
approaches to diagnoses, including a review of diagnostic tests, as
well as a comprehensive, integrated approach to chronic pain
treatment. They demystify the pain evaluation and explain why pain
professionals might ask you for detailed and seemingly personal
information. Through the use of patient stories, you get real-world
experiences and advice on navigating the day-to-day challenges of
chronic pain. You will learn how to take control of your chronic
pain using a variety of tools, like behavioral, exercise and
nutritional approaches, medications, alternative treatments (yoga
and tai chi), and injections or surgery.
Working with older people in care can be challenging and
frustrating, especially when they behave in ways that seem
irrational, aggressive, or unreasonably repetitive, and nothing you
can do seems to help. The authors of this useful and practical book
explain how to understand the difficult and annoying ways in which
older people in care can behave, (especially people with dementia),
how to stay calm and kind, and how to solve the problems they can
create. With many examples of everyday challenges and how to deal
with them, this book has the potential to change your working life.
Massage techniques are widely and effectively used in treatment of
autism spectrum disorders (ASDs) to address sensory issues, motor
problems and touch receptivity. However, the variety of different
styles of massage available often leaves parents baffled and unsure
about which touch therapy treatment is best for their child. This
practical guide explains how massage works, how the body senses
touch, and how touch therapy can benefit children with ASDs. The
book goes on to describe exactly what each type of massage entails
and covers anatomy-oriented massages, energy-based massages and
therapeutic bodywork, helping readers to tell Reiki from
reflexology, a Swedish from a sports massage, or tuina from a Thai
massage. With recommendations for selecting the right style of
massage, advice on locating a practitioner, and tips on preparing a
child with an ASD for massage, this book is the perfect resource to
find a therapy - or combination of therapies - to suit the
individual needs of each child. This book will be essential reading
for all parents and caregivers interested in the benefits of
therapeutic massage and bodywork for children and adolescents with
ASDs, and practitioners looking at alternatives for therapeutic
intervention.
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