Aimed at health care professionals and their colleagues, ministers of religion and funeral directors, this comprehensive work of reference describes the complex procedures required when someone dies. The information should be of value to all those who are concerned with the correct handling of situations as diverse as fatal mass disasters and the rites that are associated with those who hold unfamiliar religious beliefs. The guide is in three parts: legal and technical aspects; considerations for the living, care of the dying, and death with dignity; and religious, ethnic and cultural aspects of dying and death. The author combines medico-legal facts and practical, sensitive advice.

The grief reaction is often similar for many diverse circumstances and situations. This book focuses heavily on caring for children with disabilities, chronic or terminal illness, dealing with the loss, and the recovery process.

Experiencing a parent or guardian with cancer is extremely difficult for children and adolescents with healthcare professionals and cancer support centres often lacking the specialised knowledge needed to also support these individuals. This practical guide provides a comprehensive and current understanding of the impact of parental cancer on children, young people and families. It offers a longitudinal account of the impact of cancer through the different stages of the illness and explores the impact of culture and international contexts on how families experience parental cancer. The book also crucially focuses on how to support children, young people and families by examining existing interventions. Important chapters on death and bereavement, and on self-care for practitioners also supplement the book. A valuable handbook for healthcare practitioners from a range of specialities working with patients and families affected by cancer, including clinical psychology, counselling, nursing, oncology, palliative care and social work.

Many hospice social workers must address spiritual issues with their clients, but do not feel competent to do so effectively. This targeted volume draws upon multidisciplinary theory and research to advance a relational model of spiritually sensitive hospice care. The book will help readers elevate their spiritual competence and foster a relationship with their clients that will enrich the experience for all involved. Spirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client's spiritual needs and resources, as well as signs of spiritual suffering. It also discusses religious and spiritual practices that clients may use to enhance their spiritual coping. Spirituality and Hospice Social Work stresses the need for interdisciplinary collaboration with other members of the hospice team, along with the value of maintaining professional ethical standards when addressing spiritual issues. Throughout, the importance of spiritual sensitivity and its effect upon client well-being is emphasized.

The first study guide for the CHPN (R) certification exam! This must-have study guide for nurses seeking to obtain Certified Hospice and Palliative Nurse (CHPN (R)) status provides state-of-the-art information about all aspects of this specialty. It features 300 carefully selected Q&As that offer a detailed rationale for each question, along with tips and strategies to promote exam mastery and frequently asked questions about the exam. Additional questions are arranged in chapters mirroring the exam blueprint and the number of questions for each category correlates with the exam matrix. Case-based scenarios embodied within the questions facilitate the application of knowledge in a problem-solving format. A complete practice exam is included as well. Brief topical reviews address hospice and palliative care nursing practice in all of its dimensions, including physical, spiritual, and psychosocial. The resource highlights information that forms the basis of end-of-life care, such as communication and family-centered care. Additionally, high-level skills used by hospice and palliative care nurses, such as drug and dosage conversion and the use of infusion therapy, are covered as well. Key Features: Delivers the first study guide for hospice and palliative nurses seeking CHPN (R) certification Provides concise, up-to-date knowledge on all aspects of the specialty Includes information about the exam, answers to commonly asked questions, and tips and strategies for exam mastery Includes practice questions and answers following each chapter Provides a final comprehensive practice exam that offers 300 Q&As with detailed answer rationales that mirror the exam format Presents case-based scenarios within the questions that facilitate the application of knowledge

When Professionals Weep speaks to the humbling and often transformational moments that clinicians experience in their careers as caregivers and healers-moments when it is often hard to separate the influence of our own emotional responses and worldviews from the patient's or family's. When ProfessionalsWeep addresses these poignant moments-when the professional's personal experiences with trauma, illness, death, and loss can subtly, often stealthily, surface and affect the helping process. This edition, like the first, both validates clinicians' experiences and also helps them process and productively address compassion fatigue, burnout, and secondary traumatic stress. New material in the second edition includes increased emphasis on the burgeoning fields of hospice and palliative care, organizational countertransference, mindfulness, and compassionate practice. It includes thought-provoking cases, self-assessments, and exercises that can be used on an individual, dyadic, or group basis. This volume is an invaluable handbook for practitioners in the fields of medicine, mental health, social work, nursing, chaplaincy, the allied health sciences, psychology, and psychiatry.

Jennifer Worth's bestselling memoirs of her time as a midwife have inspired and moved readers of all ages. Now, in In the Midst of Life she documents her experiences as a nurse and ward sister, treating patients who were nearing the end of their lives. Interspersed with these stories from Jennifer's post-midwife career are the histories of her patients, from the family divided by a decision nobody could bear to make, to the mother who comes to her son's adopted country and joins his family without being able to speak a word of English. In the Midst of Life also gives moving insights not just into Jennifer's life and career, but also of a period of time which seems very different to today's, fast-paced world.

In this volume the personal journey of why a nurse chose to leave Acute Care nursing to be involved in Palliative Care nursing connect with a broader culture of Palliative Care nursing by interviewing those who chose palliative care nursing and examine the reasons for changes in careers from acute, curing based, nursing to Palliative Caring for those in end of life nursing. The longest section of the study travels the world of Palliative nursing with participant observers. It is about the actively working nurse and includes extensive analytical discussion of an attempt to understand the sense of professional change, and the significance of beliefs for the reasoning behind vocational transformation. The second section examines the interviews, the third addresses the heart of the research question and examines nursing moving from a curing model to a caring only approach when death of the patient is inevitable. The volume ends with a letter written by the author to her sons asking them to be there when her time comes at the end of life through a life limiting illness and requests her sons and the Palliative Care professionals observe her final wishes.

"Anne's contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer." From the foreword by Simon Davies, CEO Teenage Cancer Trust This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multi-disciplinary work, interagency co-operation and resource issues. This will be essential reading for community children's nurses, specialist palliative care teams, children's hospices, school nurses, social workers and student nurses as well as families. * A comprehensive resource on end of palliative are provision for children and young adults with cancer and other life limiting illnesses * Timely and topical, tying in with the latest Department of Health palliative care strategy Better Care: Better Lives' * Written in an accessible style that does not assume either detailed medical or theoretical knowledge * Explores palliative care provision in a range of different clinical settings including the home, hospice, and hospital * Provides valuable insights into the experiences of parents, children and young people

'Death is inevitable-none of us will escape it. Ending life with a terminal illness is a slow and rather lonely process. I am interested in the question of why some nurses choose to work in the field of palliative care. I am one who willingly stepped into the role of being with patients at their most vulnerable time -when death became inevitable. My nursing history has spanned fifty years, of which the last twenty were in palliative care of terminally ill and dying patients. What was it that influenced me to move from a curing model to comfort caring only? My work is an account of how I discovered palliative care nursing after thirty years in the acute-care setting. I migrated to Australia at the age of seventeen after the violence of World War II and the death of my father in a refugee camp. It seemed that taking on nursing was the best way to settle into a new life. I was happy with general nursing but had a feeling that there was more I could contribute to my patient care. My mother's unexpected death with cancer was responsible for showing the way. She died in the hospice unit of the hospital where I was employed. Sitting by her side showed me another aspect of nursing that attracted me to a career change. I transferred to the Hospice after mother died and remained there for twenty years. Naturally I wondered why this change of direction happened.' - Susan Bardy

Handbook of Supportive Oncology and Palliative Care is a practical guide to providing evidence-based and value-based care to adult and pediatric cancer patients experiencing severe symptoms and stressors due to cancer diagnosis, cancer treatment, and comorbid conditions. This accessible reference provides the art and science behind the whole-person and family approach to care by delivering the best practices to relieving a cancer patient's symptoms across physical, psychosocial, and spiritual dimensions. Unlike other resources, this book covers all dimensions of palliative care but with a special emphasis on primary palliative care. Part One of the handbook provides the essential background and principles of supportive oncology and palliative care, including chapters on understanding the adult and pediatric patient and family illness experience, the roles and responsibilities of the palliative care team, and the art of the palliative care assessment interview. Part Two covers symptom management and includes ten chapters considering the major physical and psychosocial symptoms a cancer patient may face-neurologic, cardiac, respiratory, gastrointestinal, genitourinary, psychiatric, sleep and fatigue, pain, and psychosocial and spiritual distress. Part Three addresses special considerations and issues that an oncologist, physician, nurse or other healthcare provider often face in these settings, including chapters on intimacy, sexuality, and fertility issues, grief and bereavement, running a family meeting, care for the caregiver, and survivorship.Written by expert clinicians, this state-of-the-art handbook is a necessary resource for any oncologist, nurse, primary care physician, psychosocial expert, or related practitioner who endeavors to improve quality of life and provide healing to those suffering from cancer and its treatment. Key Features: Provides the binding principles of palliative care for pediatrics, adults and families from diverse cultures and spiritual beliefs Easy-to-read format makes extracting content fast and convenient for both the clinical and educational setting Guides the clinician and practitioner through the palliative care assessment process, including the appropriate questions for the palliative care interview Interdisciplinary team approach to psychosocial and spiritual care Includes access to the fully searchable downloadable eBook

Rapid advances in modern medicine have revolutionized the way we think about death and the processes of dying. Once death was defined as the absence of respiration or heartbeat; today patients hooked up to a respirator and feeding tube can be kept alive for months or years. Ivan and Melrose carefully explain the various medical processes involved in death and dying. In doing so they also confront the many ethical, moral and legal dilemmas that face doctors today, as well as the decisions that must be taken by relatives.

The Clinical Pocket Guide to Advanced Practice Palliative Nursing is a companion guide to Advanced Practice Palliative Nursing, the first text devoted to advanced practice nursing care of the seriously ill and dying. Each chapter of this pocket guide presents point-of-care guidance on palliative care issues for quick reference in daily practice. Edited by leaders in the field, this handbook provides consistency in the nursing process from assessment to management and evaluation of symptoms and various clinical situations. The Clinical Pocket Guide to Advanced Practice Palliative Nursing contains clinical pearls developed from the textbook and practical tools on pain and symptom assessment, functional status, and communication, making it an ideal resource for practicing APNs.

Palliative care is an essential element of our health care system and is becoming increasingly significant amidst an aging society and organizations struggling to provide both compassionate and cost-effective care. Palliative care is also characterized by a string interdisciplinary approach. Nurses are at the center of the palliative care team across settings and populations. The seventh volume in the HPNA Palliative Nursing Manuals series, Care of the Imminently Dying provides an overview of symptom management when a patient is reaching the end of their life. This volume covers delirium and the advantages of early diagnosis, determining the presence of dyspnea, death rattle, or cough, urgent syndromes that may appear the end of life, palliative sedation, and the withdrawal of life-sustaining therapies. The content of the concise clinically focused volumes in the HPNA Palliative Nursing Manuals series provides a quick-reference in daily practice and is an ideal resource for nurses preparing for certification exams.

Oxford Case Histories in Oncology contains 30 well-structured cases from clinical practice, giving a comprehensive coverage of the diagnostic and management dilemmas in oncology. The cases cover a wide spectrum of oncology including rare presentations and clinical problems of common cancers. Each case comprises a brief clinical history with relevant clinical examination findings. Questions are based on clinical investigations and aspects of management. Detailed answers are based on the best available evidence from the latest research, systematic reviews, meta-analysis and guidelines from national and international academic bodies. The text is complimented by over 50 illustrations, including radiographic images and radiotherapy treatment plans. The format of this book is thought provoking, and it helps to improve critical thinking and interpretative skills. It is a perfect self-assessment tool for oncology and palliative medicine trainees and consultants, and will be useful for those preparing for exit examinations in oncology. It will also be of interest to non-specialist readers who wish to improve their skills in the diagnosis and management of a broad range of cancers.

The study and practice of end-of-life care has seen an increasing understanding of the need for care that integrates clinical, psychosocial, spiritual, cultural, and ethical expertise. Yet, no one existing volume pulls together perspectives from a diverse array of religions with ethical dilemmas and clinical problems in view. Safe Passage coaches clinicians and others on the front lines of care on understanding how to incorporate different traditions of thinking into the most difficult of moments around the end of life. The book is structured around five major moments of realization - when disease progresses, when emergencies happen, when dying will be a long process, the time of death, and when grieving begins. Each decision point is introduced with a research summary and an extensive case example that describes disease processes, health care delivery possibilities, and the end-of-life dilemmas involved so as to apply across the varying cultural, socio-economic, and spiritual contexts. The case example is followed by a clinical commentary written by a palliative care specialist, an ethical commentary written by an ethicist, and three short essays written by religious thinkers of different traditions. Each situation is concluded by remarks on potential approaches that respect religious and spiritual beliefs, values, and practices at the end of life across all contexts, and a bibliography. The five decision points are bookended by an introductory section that explores broad historical and cultural perspectives and a conclusion section that summarizes the book and provides guidance for further reading and study.

A focus on intentional communication, team building, and relational maintenance.This text is designed to help form and maintain palliative care teams that survive and thrive. Whether you are starting a new team or hoping to help an existing team, this text addresses aspects of team players, leadership, meetings, organizational culture, and self- and team-care through a combination of empirical data and real voices from health care professionals in palliative care practice. By focusing on the individual professional in relation to team health and success, this text shows how to develop high quality, high-performing palliative care teams. Perfect for both students and the working professional, this text is useful at any time in your career or your team's development. It explores the types of providers involved in palliative care, their roles, possible conflicts, and the opportunity to amplify their work as a team while overcoming the stigma that may be attached to palliative care. This book focuses on the foundational role of communication in leadership, team building, and the delivery of patient care. Designed to provide workable solutions to challenges such as poor team design, siloing, and faulty communication, it provides suggestions that can be implemented immediately by your palliative care team. This focus allows health care professionals who are passionate about palliative care to grow into high functioning teams with a focus on excellent patient care. Key Features: Satisfactory and Unsatisfactory Palliative Care Experiences Stories from nurses, social workers, chaplains, physicians, pharmacists, executives, patients, and families Pearls from the Field: Provider and team takeaways Best practices of team leaders Tips for individuals and teams to communicate with other providers, departments, and senior leadership Discusses how to improve short-term and long-term functionality Outlines the predictors of burnout for palliative care professionals and teams Self-care and team-care suggestions Combines up-to-date research and theory in an accessible writing style

How do people face life-limiting illness and death? This challenging question is discussed in-depth in Life to be Lived by looking at the feelings, hopes, fears and stresses associated with life-threatening illnesses, often experienced by patients and their carers. Drawn from research, clinical, and pastoral experiences, the authors examine the process of adjustment that patients and their families go through in major illnesses and when approaching the end of life. Life to be Lived is written in an accessible style using many stories shared by counsellors, chaplains, patients and relatives. Describing the messiness, uncertainties, and paradoxes that are part and parcel of living through an advanced illness, dying, and bereavement, but also what helps and heals, it reviews a range of responses to the challenges to patients and carers and the support, both personal and organisational. Life to be Lived is essential reading for professionals and trained volunteers who work as a part of multidisciplinary teams in palliative and end-of-life care to improve their understanding of the attitudes and behaviour of patients and carers. Families and friends will also benefit from this book as they try to come to terms with their own situations and how they can cope better with them.

Respiratory disease is the second most common cause of death worldwide. Patients with advanced non-malignant disease, such as chronic obstructive pulmonary disease, have similar or even greater health care needs than those with advanced lung cancer. Uncontrolled symptoms, distress, and social isolation contribute to the poor quality of life experienced by such patients.
This book provides practical guidance to professionals who care for patients with advanced respiratory disease. It gives evidence-based advice on a wide range of topics, including management of respiratory and non-respiratory symptoms, chronic respiratory failure, and respiratory emergencies. Recognition of when a patient may be approaching the end of life can be particularly challenging in patients with advanced respiratory disease. Ways to facilitate prognostication are covered, along with the significant communication and ethical challenges that this phase of life can present.
Written by a respiratory specialist and two palliative medicine physicians, this book will be of great value to doctors, nurses, and allied healthcare professionals working in respiratory medicine and in palliative care, both in relation to everyday clinical practice as well as meeting the requirements for postgraduate exams.

Effective palliative care that rests on a sound ethical foundation requires ongoing discussions about patient and family values and preferences. This is especially important when addressing care at end-of-life including artificial nutrition and hydration, withdrawal of life-sustaining therapies and palliative sedation as well as requests for assistance in hastening death. The eighth volume in the HPNA Palliative Nursing Manuals series, Legal and Ethical Aspects of Palliative Care, provides an overview of critical communication skills and formal organizational mechanisms, such as ethics committees and interdisciplinary rounds, required for decisions in ethical dilemmas which respect diversity in the views of colleagues, as well as patients. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice.

Despite the fact that most palliative care educators are involved in teaching, there is little literature devoted to education specifically within palliative care. This book bridges that gap, giving a wide-ranging, global view of palliative care education. It offers theoretical and practical insights, along with specific suggestions for developing knowledge and skills for teaching. It also contains extensive accounts of important contextual matters which influence the range and quality of palliative care education, including: interprofessional learning; continuing professional development; evaluation; and educational leadership. The development of palliative care as a clinical speciality is increasingly conducted at an international level, and a special feature of this book is the inclusion of chapters reviewing palliative care education in each continent. This enables practitioners and teachers to share knowledge across diverse healthcare systems and cultures. There is also an acknowledgement of the multi-professional team involved in palliative care, as education and training are looked at from the perspectives of doctors, nurses, and allied health professionals. The book is split into three distinct parts: Part 1 - sets the scene for existing palliative care education, both in the UK and internationally. Part 2 - focuses on the theory underpinning each aspect of teaching, learning and assessment, and then examines the practicalities of delivering these in the clinical setting. Part 3 - explores ways of building and nurturing a culture of learning in palliative care, whether as an individual or as an organization.

Teamwork is a complex but essential component of palliative care. The needs of people diagnosed with life threatening disease will vary greatly over time, and it is rarely possible for just one professional to be able to provide adequate care. In order to ensure an holistic approach, the whole multi-disciplinary team must be involved. Inevitable questions arise from such an approach, and this book seeks to address these. How does a team come into being? What different formats are there? How might the patient contribute to the effectiveness of their care and the way in which the team operates? What are the difficulties and frustrations encountered in developing and maintaining such teams? What models of working and styles of leadership have developed? How are power and authority handled within the team setting? The importance of team building, training, support, attention to group process, and stress management to protect the mental health of the team are explored. The ethical issues inherent in palliative care such as consent, autonomy, confidentiality, decision making within teams, and the legal implications of such are also discussed. The book concludes with one important question - do we know if teams are the most effective way of providing care? This book addresses key issues surrounding the role of the team in palliative care, and is an essential guide to reappraising the importance of collaborative teamwork, and enhancing understanding of existing team structures.

Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on pediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field--the first of its kind in over a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of the state-of-the art research and literature, with topics including:
-Neuropsychological effects of chemotherapy and radiation therapy
-Bone marrow transplantation
-Important issues about quality of life during and following treatment
-Collaborative research among child-focused psychologists
-Standards of psychological care for children and adolescents
-Stress and coping in the pediatric cancer experience
-The role of family and peer relationships
The Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service. With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, pediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery, and grieving processes.

This enlightening volume provides first-hand perspectives and ethnographic research on communication at the end of life, a topic that has gone largely understudied in communication literature. Author Elissa Foster' s own experiences as a volunteer hospice caregiver form the basis of the book. "Communicating at the End of Life" recounts the stories of Foster and six other volunteers and their communicative experiences with dying patients, using communication theory and research findings to identify insights on the relationships they form throughout the process. What unfolds is a scholarly examination of a subject that is significant to every individual at some point in the life process.
Organized chronologically to follow the course of Foster' s involvement with hospice and the phases of the study, the book opens with Part 1, providing background and contextual information to help readers understand subsequent stories about communication between volunteers and patients. Part 2 of the volume emphasizes the adjustments required by the volunteers as they entered the world of hospice and the worlds of the patients. Part 3 underscores the importance of improvisation and finding balance within the role of volunteer-- in particular how to be fully present for patients as well as their family members. The volume concludes with Part 4, which addresses how volunteers coped with the death of their patients and what they learned from the experience of volunteering.
"Communicating at the End of Life "is appropriate for scholars and advanced students studying personal relationships, health communication, gerontology, interpersonal communication, lifespancommunication, and communication & aging. Its unique content offers precious and meaningful insights on the communication processes at a critical point in the life process.

Cicely Saunders is universally acclaimed as a pioneer of modern hospice care. Trained initially in nursing and social work, she qualified in medicine in 1958 and subsequently dedicated the whole of her professional life to improving the care of the dying and bereaved people. Founding St. Christopher's Hospice in London in 1967, she encouraged a radical new approach to end of life care combining attention to physical, social, emotional and spiritual problems, brilliantly captured in her concept of "total pain." Her ideas about clinical care, education and research have been hugely influential, leading to numerous prizes and awards in recognition of her humanitarian achievements. This book includes a selection of Cicely Saunders' most important writings throughout a period of over forty years.
Full articles, chapters, editiorials, reviews, and commentaries include important clinical themes relating to the care of dying people such as pain and symptom management, issues of communication and truth telling, and the needs of particular patient groups, such as those with cancer and other diseases. The book includes pieces that reflect on the wider development of the palliative care field and on policy and organizational issues. Some of the papers take up the theme of spiritual care at the end of life, as well as the question of euthanasia, raising in turn issues of a wider theological and philosophical nature.
The articles are written for a multi-disciplinary audience and will be of enormous interest to many professionals now working in palliative care. The collection will become a key work of reference for those interested in the evolution of hospice and palliative care and will serveas an important sourcebook of many currently hard to obtain publications by the acknowledged founder of the modern hospice movement. This book will also stand as a remarkable testimony to the personal contribution of Cicely Saunders and the influence she has had upon the modern field of palliative and end of life care.