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Books > Medicine > Nursing & ancillary services > Nursing > Terminal care nursing
Rachel Clark died after living with cancer for three years and this
is her moving account of her treatment and experiences with health
professionals in Britain and Australia. She was brave to write her
story, and to share it so that others may learn from her
experiences. Her account is a valuable legacy, espcially in helping
health professionals learn lessons in communication and care. It
includes an epilogue by her twin sister Naomi Jefferies, and
learning points to provide insights of practical benefit for health
professionals by John Hasler and David Pendleton.
One of 17 titles in the 'Living Therapy' series, Counselling For Progressive Disdability addresses issues that arise when coming to terms with a progressive disability.
The first part focuses specifically on the emotional and psychological impact of being diagnosed with a disabling condition. The second part deals specifically with coming to terms with a worsening condition, the nature of pain and the prospect of having to accept the use of a wheelchair.
Like all other titles in this series it includes a helpful overview of the person-centred approach to counselling and psychotherapy.
Hospices have played a critical role in transforming ideas about
death and dying. Viewing death as a natural event, hospices seek to
enable people approaching mortality to live as fully and painlessly
as possible. Award-winning medical historian Emily K. Abel provides
insight into several important issues surrounding the growth of
hospice care. Using a unique set of records, Prelude to Hospice
expands our understanding of the history of U.S. hospices. Compiled
largely by Florence Wald, the founder of the first U.S. hospice,
the records provide a detailed account of her experiences studying
and caring for dying people and their families in the late 1960s
and early 1970s. Although Wald never published a report of her
findings, she often presented her material informally. Like many
others seeking to found new institutions, she believed she could
garner support only by demonstrating that her facility would be
superior in every respect to what currently existed. As a result,
she generated inflated expectations about what a hospice could
accomplish. Wald's records enable us to glimpse the complexities of
the work of tending to dying people.
Supporting the Child and the Family in Paediatric Palliative Care
provides a comprehensive overview of good practice in caring for
terminally-ill children, young people and their families. Drawing
from extensive personal experiences of working in paediatric
palliative care, the author provides guidance on issues including
symptom management and pain relief; cultural, religious and
spiritual aspects of care; and the role of education for
life-limited children. Addressing the importance of individual
needs, the book looks at emotional, social and cognitive support at
different stages of the illness, how parents and professionals can
respond to children's own questions about death, and the impact of
life-limiting illness on the whole family - including grandparents
and siblings. The material offers helpful suggestions on how to
support families in making informed choices during distressing
periods, such as where their child will die and how to prepare for
the funeral. This book is a practical and invaluable tool for
nurses, paediatricians, hospice care staff, bereavement counsellors
and all those caring for life-limited children.
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