Individuals and families face challenges at the end of life that can vary significantly depending on social and cultural contexts, yet more than ever is now known about the needs that cut across the great diversity of experiences in the face of dying and death. A number of behavioural interventions and clinical approaches to addressing these needs have been developed and are available to help providers care for clients and assist them in achieving their goals. Perspectives on Palliative and End-of-Life Care: Disease, Social and Cultural Contexts explores how these interventions can be used to address a range of issues across social and cultural contexts for those in need of end of life care. With perspectives from experienced clinicians, providers, and caregivers from around the world, the book offers a strong foundation in contemporary evidence-based practice alongside seasoned practice insights from the field and explores interventions for people as diverse as HIV caregivers in Africa and individuals dying with dementia. In addition, readers will learn about the process of caring for individuals with chronic illnesses including severe mental illness; weigh the impact of policy regulations on the availability of and access to palliative care and interventions; and be able to compare the different issues experienced by family caregivers and formal caregivers. As the companion volume to Perspectives on Behavioural Interventions in Palliative and End-of-Life Care, this book will be of interest to a wide variety of individuals, such as academics, researchers and postgraduates in the fields of mental health, medicine, psychology and social work. It will also be essential reading for healthcare providers and trainees from psychosocial and palliative medicine, social work and nursing.

Monitoring the Critically Ill Patient is an invaluable, accessible guide to caring for critically ill patients on the general ward. Now fully updated and improved throughout, this well-established and handy reference guide text assumes no prior knowledge and equips students and newly-qualified staff with the clinical skills and knowledge they need to confidently monitor patients at risk, identify key priorities, and provide prompt and effective care. This new edition includes the following five new chapters: * Monitoring the critically ill child * Monitoring the critically ill pregnant patient * Monitoring the patient with infection and related systemic inflammatory response * Monitoring a patient receiving a blood transfusion * Monitoring pain

This is the only handbook for hospice and palliative care professionals looking to enhance their care delivery or their programs with LGBTQ-inclusive care. Anchored in the evidence, extensively referenced, and written in clear, easy-to-understand language, LGBTQ-Inclusive Hospice and Palliative Care provides clear, actionable strategies for hospice and palliative physicians, nurses, social workers, counselors, and chaplains.

This book provides an up-to-date description of cross-cultural aspects of end-of-life decision-making. The work places this discussion in the context of developments in the United States such as the emphasis on patient informed consent, "right to die" legal cases, and the federal Patient Self-Determination Act. With the globalization of health care and increased immigration from developing to developed countries, health care professionals are experiencing unique challenges in communicating with seriously ill patients and their families about treatment options as well as counselling all patients about advance medical care planning. While many Western countries emphasize individual autonomy and patient-centered decision-making, cultures with a greater collectivist orientation have, historically, often protected patients from negative health information and emphasized family-centered decision-making. In order to place these issues in context, the history of informed consent in medicine is reviewed. Additionally, cross-cultural issues in health care decision-making are analysed from the perspective of multiple philosophical theories including deontology, utilitarianism, virtues, principlism, and communitarian ethics. This book is a valuable addition to courses on end-of-life care, death and dying, cross-cultural health, medical anthropology, and medical ethics and an indispensable guide for healthcare workers dealing with patients coming from various cultural backgrounds.

During a pandemic lockdown full of pyjama dance parties, life talks, and final goodbyes, a family helps a father die with dignity. In April 2020, journalist Mitchell Consky received bad news: his father was diagnosed with a rare and terminal cancer, with less than two months to live. Suddenly, he and his extended family -- many of them healthcare workers -- were tasked with reconciling the social distancing required by the Covid-19 pandemic with a family-based approach to end-of-life care. The result was a home hospice during the first lockdown. Suspended within the chaos of medication and treatments were dance parties, episodes of Tiger King, and his father's many deadpan jokes. Leaning into his journalistic intuitions, Mitchell interviewed his father daily, making audio recordings of final talks, emotional goodbyes, and the unexpected laughter that filled his father's final days. Serving as a catalyst for fatherly affection, these interviews became an opportunity for emotional confession during the slowed-down time of a shuttered world, and reflect how far a family went in making a dying loved one feel safe at home.

This updated edition carries on the tradition of providing sound and practical guidance for new and experienced practitioners on all aspects of food and nourishment for ageing adults. Whether residing at home, in assisted living or in a nursing facility, older adults have unique nutrition needs. Like the previous edition, this hands-on reference encompasses the total perspective on person-driven nutrition care of older adults, from nutrition and disease states to regulatory compliance in health care settings. Among the many timely updates addressed in this edition are: Strategies for implementing the updated Nutrition Care Process. Understanding and developing systems to implement quality assurance and performance improvement. Changes in Medicare and health-care reform resulting from the Affordable Care Act are addressed. A new section on emergency preparedness - and an important addition that reinforces the need for practitioners to develop a plan for maintaining care during an emergency or disaster.

Lisa Ohlen Harris shared a household with her mother-in-law, Jeanne, for seven years. When Jeanne's health deteriorated due to COPD, Harris became one of 65 million American family caregivers. The two women grew so intertwined that Harris began to feel she herself was the one fading away. Harris helped Jeanne file an advance directive specifying that no extraordinary measures were to be taken to preserve life. As they navigated the healthcare system in Jeanne's final months, Harris and her mother-in-law realized that an advance directive is not as clear and controlled as it seems. End of life issues involve a series of small decisions-sneaky ones, with no big drama-and life support is already established before any one big decision is made. In The Fifth Season, Harris's recounting of those years bestows illuminating immediacy on the difficulties of caring for an elderly parent while raising four young children in an extended family household. Chronicling that last season of love and struggle as she grappled with ethical convictions and personality clashes, Harris finds her way through conflicted emotions to a place of compassion and peace.

A focus on intentional communication, team building, and relational maintenance.This text is designed to help form and maintain palliative care teams that survive and thrive. Whether you are starting a new team or hoping to help an existing team, this text addresses aspects of team players, leadership, meetings, organizational culture, and self- and team-care through a combination of empirical data and real voices from health care professionals in palliative care practice. By focusing on the individual professional in relation to team health and success, this text shows how to develop high quality, high-performing palliative care teams. Perfect for both students and the working professional, this text is useful at any time in your career or your team's development. It explores the types of providers involved in palliative care, their roles, possible conflicts, and the opportunity to amplify their work as a team while overcoming the stigma that may be attached to palliative care. This book focuses on the foundational role of communication in leadership, team building, and the delivery of patient care. Designed to provide workable solutions to challenges such as poor team design, siloing, and faulty communication, it provides suggestions that can be implemented immediately by your palliative care team. This focus allows health care professionals who are passionate about palliative care to grow into high functioning teams with a focus on excellent patient care. Key Features: Satisfactory and Unsatisfactory Palliative Care Experiences Stories from nurses, social workers, chaplains, physicians, pharmacists, executives, patients, and families Pearls from the Field: Provider and team takeaways Best practices of team leaders Tips for individuals and teams to communicate with other providers, departments, and senior leadership Discusses how to improve short-term and long-term functionality Outlines the predictors of burnout for palliative care professionals and teams Self-care and team-care suggestions Combines up-to-date research and theory in an accessible writing style

Palliative and end of life care are an essential component of nursing practice. This book provides students with the key information they need to deliver effective and safe end of life care for patients and their families. Crucially, it also creates opportunities for them to reflect on their own perspectives on death and dying and explore the impact of this on their practice. Key features Fully mapped to the NMC standards of proficiency for registered nurses (2018) Helps you to develop a holistic understanding of the fundamental principles and practice of palliative and end of life care Activities encourage you reflect on your own perspectives of death and dying and to consider the impact this has on your practice Case studies bring the theory to life and illustrate the real world applicability

Individuals and families face challenges at the end of life that can vary significantly depending on social and cultural contexts, yet more than ever is now known about the needs that cut across the great diversity of experiences in the face of dying and death. A number of behavioural interventions and clinical approaches to addressing these needs have been developed and are available to help providers care for clients and assist them in achieving their goals. Perspectives on Palliative and End-of-Life Care: Disease, Social and Cultural Contexts explores how these interventions can be used to address a range of issues across social and cultural contexts for those in need of end of life care. With perspectives from experienced clinicians, providers, and caregivers from around the world, the book offers a strong foundation in contemporary evidence-based practice alongside seasoned practice insights from the field and explores interventions for people as diverse as HIV caregivers in Africa and individuals dying with dementia. In addition, readers will learn about the process of caring for individuals with chronic illnesses including severe mental illness; weigh the impact of policy regulations on the availability of and access to palliative care and interventions; and be able to compare the different issues experienced by family caregivers and formal caregivers. As the companion volume to Perspectives on Behavioural Interventions in Palliative and End-of-Life Care, this book will be of interest to a wide variety of individuals, such as academics, researchers and postgraduates in the fields of mental health, medicine, psychology and social work. It will also be essential reading for healthcare providers and trainees from psychosocial and palliative medicine, social work and nursing.

This book describes the current state of the art in the field of palliative care in children and adults. Special emphasis is placed on addressing the efficacy and effectiveness of palliative care models, pain and symptom management, and on measuring quality of life. In addition the book evaluates current research methods in palliative care and suggests suitable alternatives. Finally the book bridges the gap between science and practice by providing the reader with the current evidence and how it can be applied in the practice setting.

Practical, emotional, and spiritual guidance
The time may come when you or a loved one has to face a life-threatening illness; when you realize that you or your loved one may be dying. It's never easy to think about the last years of life, but being prepared can help you have your hopes and wishes realized. By taking the time now to plan for the future, you can maintain control of your life even at the very end.
Staying in Charge is a supportive guide to opening up the lines of communication and making life more fulfilling from the first day of diagnosis of a serious illness. This reassuring handbook helps you to focus on important matters such as:
* Handling a living will or a do-not-resuscitate order
* Deciding upon medical power of attorney
* Gathering support from friends and family
* And, most significantly, learning to live in the midst of dying

Based on the wisdom of many experts and caregivers in the field, Staying in Charge offers everything you need to know to make the last years of life more fruitful, less isolating, and more comfortable and peaceful-whenever and wherever the journey occurs.
""Few of us think of our own death with an open heart or a clear mind. Kaplan and Lukas courageously and compassionately demystify this unknown part of life with practical and spiritual guidance. With Staying in Charge, the secret is out: You can plan for death and, in so doing, learn how to live more fully.""
-Beth Witrogen McLeod, author of Caregiving: The Spiritual Journey of Love, Loss, and Renewal
""Staying in Charge: Practical Plans for the End of Your Life means what it says. When it comes time to manage a serious illness, we all want to be in control. There isn't a person alive who shouldn't read and absorb the counsel of this valorous-and unexpectedly cheering-work.""
-Stefan Kanfer, former editor, Time magazine author of Ball of Fire and A Summer World

Rarely heard about in our society are caregivers' thoughts and feelings about life, death, and dying and how they act on those feelings. "For the Living: Coping, Caring and Communicating with the Terminally Ill" provides an in-depth, qualitative look at the experiences of oncology healthcare professionals as they work with terminally ill patients. Through a series of recorded and edited interviews, the author explores the social and cultural dynamics that affect physicians, nurses, and social workers routinely encountering mortality and loss. What death and the prospect of dying mean to these individuals should not be taken lightly.

Helping your family and loved ones when they need you most

""""Caregiving"" has a big heart-on a much-needed topic. A rare book of spiritual and practical wisdom.""
--Sue Bender, author of ""Plain and Simple"" and ""Everyday Sacred""

""A poignant, wise, and in-the-trenches view of caregiving that is both practical and spiritual, especially of value to midlife adults.""
--Jean Shinoda Bolen, M.D., author of ""Goddesses in Everywoman"" and ""Close to the Bone""

""Lovely. . . . Beth McLeod's experience and wisdom shine through as she shares her heartfelt journey of loss, surrender, hope, and healing.""
--David Simon, M.D. medical director, the Chopra Center for Well Being, author of ""Vital Energy"" and ""Return to Wholeness""

Sooner or later it will touch us all: A family member or loved one becomes ill or disabled, and we step in to help. This is caregiving, and in this powerful, unique book, prizewinning writer and advocate Beth Witrogen McLeod leads us through the caregiving journey with unflinching authority and compassion. Framed by the author's personal odyssey as a caregiver and richly informed by the inspiring and poignant tales of others, ""Caregiving"" explores medical and financial problems, all aspects of spirituality, and such issues as depression, stress, housing, home care, and end-of-life concerns. A rare blend of powerful storytelling and practical information, ""Caregiving"" is a revelation.

Intractable illnesses such as advanced cancer, AIDS, and chronic progressive neurological diseases present health-care professionals with an array of symptoms and ethical issues that demand extensive exploration and consideration. As the quest for advances in symptomatology continues, it is imperative to disseminate and integrate the knowledge currently available in palliative medicine. The International Symposium on Current Perspectives and Future Directions in Palliative Medicine was held in Tokyo in October 1997 to provide health-care professionals with a multidisciplinary approach for improving comprehensive palliative care. With invited speakers from North America, Europe, and Japan, the symposium focused on standard management and clinical trials of control of symptoms such as pain and cachexia, ethics in palliative medicine, the economics of health care, quality-of-life research, management of depression, and patient education.

Cancer: Palliative Care examines the nature of the care and support that can be provided to those in need of palliative care and their families. This covers not only the physical treatment, such as pain management, but also the psychological well-being of patients. Health workers, clinicians, specialist nurses and medical students will find a balanced and thoughtful overview of the subject which will be of value in managing patients and helping them to come to terms with their condition.

Handbook of Supportive Oncology and Palliative Care is a practical guide to providing evidence-based and value-based care to adult and pediatric cancer patients experiencing severe symptoms and stressors due to cancer diagnosis, cancer treatment, and comorbid conditions. This accessible reference provides the art and science behind the whole-person and family approach to care by delivering the best practices to relieving a cancer patient's symptoms across physical, psychosocial, and spiritual dimensions. Unlike other resources, this book covers all dimensions of palliative care but with a special emphasis on primary palliative care. Part One of the handbook provides the essential background and principles of supportive oncology and palliative care, including chapters on understanding the adult and pediatric patient and family illness experience, the roles and responsibilities of the palliative care team, and the art of the palliative care assessment interview. Part Two covers symptom management and includes ten chapters considering the major physical and psychosocial symptoms a cancer patient may face-neurologic, cardiac, respiratory, gastrointestinal, genitourinary, psychiatric, sleep and fatigue, pain, and psychosocial and spiritual distress. Part Three addresses special considerations and issues that an oncologist, physician, nurse or other healthcare provider often face in these settings, including chapters on intimacy, sexuality, and fertility issues, grief and bereavement, running a family meeting, care for the caregiver, and survivorship.Written by expert clinicians, this state-of-the-art handbook is a necessary resource for any oncologist, nurse, primary care physician, psychosocial expert, or related practitioner who endeavors to improve quality of life and provide healing to those suffering from cancer and its treatment. Key Features: Provides the binding principles of palliative care for pediatrics, adults and families from diverse cultures and spiritual beliefs Easy-to-read format makes extracting content fast and convenient for both the clinical and educational setting Guides the clinician and practitioner through the palliative care assessment process, including the appropriate questions for the palliative care interview Interdisciplinary team approach to psychosocial and spiritual care Includes access to the fully searchable downloadable eBook

Many hospice social workers must address spiritual issues with their clients, but do not feel competent to do so effectively. This targeted volume draws upon multidisciplinary theory and research to advance a relational model of spiritually sensitive hospice care. The book will help readers elevate their spiritual competence and foster a relationship with their clients that will enrich the experience for all involved. Spirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client's spiritual needs and resources, as well as signs of spiritual suffering. It also discusses religious and spiritual practices that clients may use to enhance their spiritual coping. Spirituality and Hospice Social Work stresses the need for interdisciplinary collaboration with other members of the hospice team, along with the value of maintaining professional ethical standards when addressing spiritual issues. Throughout, the importance of spiritual sensitivity and its effect upon client well-being is emphasized.

The grief reaction is often similar for many diverse circumstances and situations. This book focuses heavily on caring for children with disabilities, chronic or terminal illness, dealing with the loss, and the recovery process.

Aimed at health care professionals and their colleagues, ministers of religion and funeral directors, this comprehensive work of reference describes the complex procedures required when someone dies. The information should be of value to all those who are concerned with the correct handling of situations as diverse as fatal mass disasters and the rites that are associated with those who hold unfamiliar religious beliefs. The guide is in three parts: legal and technical aspects; considerations for the living, care of the dying, and death with dignity; and religious, ethnic and cultural aspects of dying and death. The author combines medico-legal facts and practical, sensitive advice.

When Professionals Weep speaks to the humbling and often transformational moments that clinicians experience in their careers as caregivers and healers-moments when it is often hard to separate the influence of our own emotional responses and worldviews from the patient's or family's. When ProfessionalsWeep addresses these poignant moments-when the professional's personal experiences with trauma, illness, death, and loss can subtly, often stealthily, surface and affect the helping process. This edition, like the first, both validates clinicians' experiences and also helps them process and productively address compassion fatigue, burnout, and secondary traumatic stress. New material in the second edition includes increased emphasis on the burgeoning fields of hospice and palliative care, organizational countertransference, mindfulness, and compassionate practice. It includes thought-provoking cases, self-assessments, and exercises that can be used on an individual, dyadic, or group basis. This volume is an invaluable handbook for practitioners in the fields of medicine, mental health, social work, nursing, chaplaincy, the allied health sciences, psychology, and psychiatry.

In this volume the personal journey of why a nurse chose to leave Acute Care nursing to be involved in Palliative Care nursing connect with a broader culture of Palliative Care nursing by interviewing those who chose palliative care nursing and examine the reasons for changes in careers from acute, curing based, nursing to Palliative Caring for those in end of life nursing. The longest section of the study travels the world of Palliative nursing with participant observers. It is about the actively working nurse and includes extensive analytical discussion of an attempt to understand the sense of professional change, and the significance of beliefs for the reasoning behind vocational transformation. The second section examines the interviews, the third addresses the heart of the research question and examines nursing moving from a curing model to a caring only approach when death of the patient is inevitable. The volume ends with a letter written by the author to her sons asking them to be there when her time comes at the end of life through a life limiting illness and requests her sons and the Palliative Care professionals observe her final wishes.

"Anne's contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer." From the foreword by Simon Davies, CEO Teenage Cancer Trust This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multi-disciplinary work, interagency co-operation and resource issues. This will be essential reading for community children's nurses, specialist palliative care teams, children's hospices, school nurses, social workers and student nurses as well as families. * A comprehensive resource on end of palliative are provision for children and young adults with cancer and other life limiting illnesses * Timely and topical, tying in with the latest Department of Health palliative care strategy Better Care: Better Lives' * Written in an accessible style that does not assume either detailed medical or theoretical knowledge * Explores palliative care provision in a range of different clinical settings including the home, hospice, and hospital * Provides valuable insights into the experiences of parents, children and young people

'Death is inevitable-none of us will escape it. Ending life with a terminal illness is a slow and rather lonely process. I am interested in the question of why some nurses choose to work in the field of palliative care. I am one who willingly stepped into the role of being with patients at their most vulnerable time -when death became inevitable. My nursing history has spanned fifty years, of which the last twenty were in palliative care of terminally ill and dying patients. What was it that influenced me to move from a curing model to comfort caring only? My work is an account of how I discovered palliative care nursing after thirty years in the acute-care setting. I migrated to Australia at the age of seventeen after the violence of World War II and the death of my father in a refugee camp. It seemed that taking on nursing was the best way to settle into a new life. I was happy with general nursing but had a feeling that there was more I could contribute to my patient care. My mother's unexpected death with cancer was responsible for showing the way. She died in the hospice unit of the hospital where I was employed. Sitting by her side showed me another aspect of nursing that attracted me to a career change. I transferred to the Hospice after mother died and remained there for twenty years. Naturally I wondered why this change of direction happened.' - Susan Bardy

The first study guide for the CHPN (R) certification exam! This must-have study guide for nurses seeking to obtain Certified Hospice and Palliative Nurse (CHPN (R)) status provides state-of-the-art information about all aspects of this specialty. It features 300 carefully selected Q&As that offer a detailed rationale for each question, along with tips and strategies to promote exam mastery and frequently asked questions about the exam. Additional questions are arranged in chapters mirroring the exam blueprint and the number of questions for each category correlates with the exam matrix. Case-based scenarios embodied within the questions facilitate the application of knowledge in a problem-solving format. A complete practice exam is included as well. Brief topical reviews address hospice and palliative care nursing practice in all of its dimensions, including physical, spiritual, and psychosocial. The resource highlights information that forms the basis of end-of-life care, such as communication and family-centered care. Additionally, high-level skills used by hospice and palliative care nurses, such as drug and dosage conversion and the use of infusion therapy, are covered as well. Key Features: Delivers the first study guide for hospice and palliative nurses seeking CHPN (R) certification Provides concise, up-to-date knowledge on all aspects of the specialty Includes information about the exam, answers to commonly asked questions, and tips and strategies for exam mastery Includes practice questions and answers following each chapter Provides a final comprehensive practice exam that offers 300 Q&As with detailed answer rationales that mirror the exam format Presents case-based scenarios within the questions that facilitate the application of knowledge