In recent years hospice care has gone from a little-known medical alternative to a major movement in health care. By emphasizing palliative care and pain management rather than curative treatment, hospices allow the terminally ill to spend the last days, week, or months of their lives in their own homes, cared for by their families under the supervision of a team of specially trained hospice workers that includes doctors, nurses, social workers, and volunteers. The Hospice Handbook assures us that the terminally ill do have options, and the quality of their lives can still be within their control.

The first of two very popular and unique anthologies of short stories that were written specifically be read out-loud to older adults, A Loving Voice offers an imaginative and creative way for family members, friends and professionals to reach out to, communicate with, and entertain the older people in their care, particularly those who are bed-ridden, confined to a nursing home or hospital and those with dementia or those beginning to slip into it. In a moment of inspiration that has been much-welcomed ever since by caregivers the world over, the idea for A Loving Voice came to it's editors, Carolyn Banks and Janis Rizzo, when they recognized the desperate need for, and the serious lack of, reading material for this large and ever-growing segment of the population. In response, they invited hundreds of writers to submit stories and poems for their anthology. The 52 never-before-published selections they ended up including (43 stories and nine poems, one for each week of the year), are those that they and the eldercare experts they consulted felt would be most valuable and entertaining for their elderly audience: stories that evoke nostalgic memories and warm feelings of the past, interesting stories that stimulate conversation, provide a bridge between the past and present and a bond between reader and listener. All of the selections can be read in one sitting (no longer than 10 minutes), are clear with easy-to-follow plots and simple dialogue that lends itself to reading aloud. Moreover, as Banks and Rizzo discovered, reading aloud is an intimate, warm and friendly activity that encourages physical closeness, something that is sorely needed as we age. As Carolyn Banks reports inpreface to the book, "The pieces we have chosen are not insultingly simple. Even those who are able to read these selections on their own will find them engaging and entertaining. These are stories and poems with purpose, stories and poems with heart, stories and poems we are proud to present. Each we hope will help you find your own loving voice." Includes short stories and poems written by an impressive array of American authors including Louise Erdrich, Shelby Hearon, Carolyn Osborn and Paul Estaver. This book, and it's accompanying second volume, A Loving Voice II: A Caregiver's Book of More Read-Aloud Stories for the Elderly, has received critical acclaim from professional caregivers and grateful family members alike and has been enthusiastically reviewed in hundreds of papers, magazines and journals alike for its inventive method of communicating with, and bringing some moments of pleasure to, the older adult.

The Oxford Textbook of Palliative Social Work is a comprehensive, evidence-informed text that provides clinicians, researchers, policy-makers, and academics with a broad range of content to inform and enhance palliative social work practice. This definitive resource brings together an array of more than 150 international authors and is edited by three leading palliative social work pioneers to address the needs of professionals providing interprofessional, culturally sensitive, biopsychosocial-spiritual care for patients and families living with serious illness. Social workers from diverse settings will benefit from the historical perspective and international scope as well as the wealth of patient and family narratives. In keeping with the dynamic growth of the field over the last decade, this second edition offers a substantially deeper dive both conceptually and contextually into the more nuanced delivery of palliative social work. This edition includes additional chapters that reflect the increased integration of palliative social work across populations, diagnoses, and settings. Each chapter has been extensively updated integrating current evidence, with a section specifically devoted to interventions for the purpose of affirming the scope of social work palliative practice. A new preface highlights aspects of social-political inequity and injustice that informed the development, process, and ultimate content of this Text. International palliative social work practice is reflected by regional voices and highlighted by an exploration of the unique response to the COVID-19 pandemic as it evolved in their respective countries. Professional issues explore topics of mentoring, supervision, advocacy, leadership, certification, legacy, and resilience.

Publishing on the 50th anniversary of the opening of St Christopher's Hospice - widely thought of to be the first modern hospice, combining pain and symptom management with education and training - this edited collection discusses what motivates professionals and volunteers to provide spiritual care. This book shows how the world of hospice care is moving on from Cicely Saunder's, founder of St Christopher's Hospice, legacy to providing spiritual care in a more integrated manner. With entries from doctors, nurses and CEOs among others, this book informs good practice for professionals and volunteers providing spiritual care for patients and their families. It looks at how, for many of these professionals, spirituality does not have to be grounded in organised religion, but stems from understanding and providing for our human needs.

"Case Studies in Palliative and End-of-Life Care" uses a case-based approach to provide students and practitioners with an important learning tool to improve critical thinking skills and encourage discussion toward improving experiences for patients and their families.

The book is organized into three sections covering subjects related to communication, symptom management, and family care. Each case is presented in a consistent, logical format for ease of use, highlighting key evidence-based concepts including the case history, care setting, diagnosis and prognosis, assessment, treatment considerations, and family support.A key reference, "Case Studies in Palliative and End-of-Life Care "is an invaluable resource for clinicians who provide palliative care to patients with life-limiting illnesses and those at the end of life along with their families.

The Oxford American Handbook of Hospice and Palliative Medicine and Supportive Care is an easily-navigable source of information about the day-to-day management of patients requiring palliative and hospice care. The table of contents follows the core curriculum of the American Board of Hospice and Palliative Medicine, thus meeting the educational and clinical information needs of students, residents, fellows, and nurse practitioners. Succinct, evidence-based, topically-focused content is supplemented by extensive tables, algorithms, and clinical pearls. This edition includes new sections on grief and bereavement, medical marijuana, and physician assisted suicide, and has been updated throughout to incorporate National Consensus Project for Quality Palliative Care Clinical Practice Guidelines.

'A hymn to the art and science of nursing itself' Guardian The hand of a stranger offered in solace. A flower placed on a dead body as a mark of respect. It is these moments of empathy that define us as people. Nobody knows this better than a nurse. In How to Treat People, Molly Case documents these extraordinary moments of human connection and compassion. In rich, lyrical prose, she introduces us to patients going through the most extreme experiences. And when her father is admitted to the high dependency unit on which she works, Molly confronts care in a whole new way, when two worlds - the professional and the personal - suddenly collide. 'It will buoy your faith in humanity' Stylist 'Outstanding. Case's power of observation can slay you' The Times 'Fascinating, poignant and searing' Jo Brand 'Beautifully written' Stephen Westaby, author of Fragile Lives 'Her empathy and compassion are everywhere' Sunday Times

The Oxford Textbook of Palliative Nursing remains the most comprehensive treatise on the art and science of palliative care nursing available. Dr. Betty Rolling Ferrell and Dr. Judith A. Paice have invited 162 nursing experts to contribute 76 chapters addressing the physical, psychological, social, and spiritual needs pertinent to the successful palliative care team. Organized within 7 Sections, this new edition covers the gamut of principles of care: from the time of initial diagnosis of a serious illness to the end of a patient's life and beyond. This fifth edition features several new chapters, including chapters on advance care planning, organ donation, self-care, global palliative care, and the ethos of palliative nursing. Each chapter is rich with tables and figures, case examples for improved learning, and a strong evidence-based practice to support the highest quality of care. The book offers a valuable and practical resource for students and clinicians across all settings of care. The content is relevant for specialty hospice agencies and palliative care programs, as well as generalist knowledge for schools of nursing, oncology, critical care, and pediatric. Developed with the intention of emphasizing the need to extend palliative care beyond the specialty to be integrated in all settings and by all clinicians caring for the seriously ill, this new edition will continue to serve as the cornerstone of palliative care education.

Volunteers have a long been involved in supporting the delivery of palliative care. Indeed in some countries, the range and quality of hospice and palliative care services depends on the involvement of volunteers. Hospice and palliative care services and volunteering are changing. As society develops, so too does volunteering. Volunteers have growing expectations of organizations, and increasingly seek roles that meet their needs and aspirations, rather than fitting in with organizational approaches. As hospice and palliative care services experience increasing and changing demands for their services due to aging populations with complex healthcare needs, we need to recognize that volunteers have a vital role to play in supporting the delivery of services of the future. The Changing Face of Volunteering in Hospice and Palliative Care explores the complex phenomenon that is volunteering in hospice and palliative care in different countries. It considers how and why volunteering is changing, through the contributions of authors from Western and Eastern Europe, North America, Australia, Africa, and India. It reflects on the influence of culture and organisational contexts, in addition to management approaches, legislative, and political influences, highlighting factors that contribute to the success of volunteering. Contributing to knowledge and understanding in the field of volunteering in hospice and palliative care internationally, this book highlights the factors that contribute to the success of volunteering models, allowing readers to see possibilities for change and find new ideas for innovative practice in their own setting.

What do you need to know in order to provide the best possible care for sick children of different faiths? What, in the context of the young person's faith, might it be helpful to know to support the child and the family, improve care, communicate sensitively and avoid causing offence? Drawing on extensive, evidence-based research and practice, this practical resource addresses the multi-faith needs of sick and dying children and young people in hospitals and the wider community. Covering Islam, Christianity, Hinduism, Sikhism, Judaism and Buddhism, it provides the key information needed to help multi-disciplinary healthcare staff offer the best, culturally-appropriate care to sick children and their families. The book discusses daily, palliative, end of life and bereavement care in a range of settings, including hospitals, hospices, schools and home. The information provided covers those aspects of the religions discussed that are essential for healthcare staff to understand, including modesty and hygiene, taboos, food and prohibited products, age-related issues, sacred objects, visitors, and the expectations of the family. It includes important information on the issues of disability and mental health in each faith as well as addressing the significance within different faith traditions of the transitions from childhood to adolescence to adulthood. A comprehensive resource that uniquely focuses on the care needs of sick children from different faiths, this book will be of immeasurable value to multi-disciplinary healthcare professionals including doctors, nurses, bereavement support and palliative care workers, carers, counsellors, chaplains and arts therapists.

In this far-ranging textbook on palliative and end of life care, John Costello and a team of palliative care specialists take a patient-centred approach. Discussing palliative and end of life care across a range of diseases and illnesses, each chapter includes real-life case studies that focus on both the patient experience and the experiences of the family members of service users. Original in its approach to palliative and end of life care, Adult Palliative Care focuses on a range of non-cancer conditions. Thoughtfully balancing theory with practice, and interprofessional in its scope, Adult Palliative Care would benefit any health professional dealing with or working in the field of palliative and end of life care.

Advance Care Planning (ACP) is an essential part of end of life care in the UK and most developed countries. It enables more people to live well and die as they would choose, and has significant implications for the individual person, their family and carers, and our wider society. In the context of an ageing population and increasing possibilities for medical interventions, ACP is a particularly important aspect of quality care. Expanded and fully updated throughout, this new edition gives a comprehensive overview of ACP and explores a wide range of issues and practicalities in providing end of life care. Written by experts from around the world, the book takes a comprehensive look at the subject by exploring the wide range of issues and practicalities in providing ACP; framing the purpose, process, and outcomes of these plans; and providing an important update on national and international research, policy and practice. Chapters also discuss values, goals and priorities, and include detailed case examples to aid best practice. This book is an invaluable resource for all clinicians involved in the caring for people in their final stages of life. It is of particular value to GPs, palliative care specialists, geriatricians, social care teams, researchers and policy leads interested in improving end of life care.

Wir wollen moeglichst alt werden, verdrangen aber das Alter gleichzeitig aus unserem oeffentlichen und persoenlichen Bewusstsein. Und genau mit dieser Vision einer Reintegration des Alters in der Mitte unserer Gesellschaft beschaftigt sich dieses Buch. Die Autoren, die sich seit vielen Jahren in ihrer beruflichen Praxis in der Medizin, Krankenpflege, Wissenschaft, Politik, Philosophie oder Management mit dem Thema des Alterns beschaftigen, nahern sich aus ihrer jeweils eigenen Perspektive dem Thema Altern in Wurde. Dabei werden die Ursachen der aktuellen Entwicklungen, die alte Menschen so oft an den Rand der Gesellschaft treiben, analysiert und notwendige Veranderungen und Loesungsmodelle vorgestellt. Das Buch weckt Hoffnung auf Selbstbestimmung und zeigt Wege auf, wie Teilhabe am gesellschaftlichen Leben gelingen kann. Angesprochen werden alle Menschen, die an gesundem und aktivem Altern interessiert sind und die wissen wollen, was wir heute tun mussen, damit Alter nicht langer mit Einsamkeit, Isolation und Leben im Pflegeheim gleichgesetzt wird.

Hospice care is available to patients and families dealing with terminal illness. People often do not avail themselves of hospice care because they don't understand what it entails. Many wait until their last few days to request this extraordinary comfort care instead of using the full six months available to them through Medicare and other insurance options. Demystifying Hospice describes through stories good news about end-of-life issues. Written from the perspective of a licensed social worker with experience in public and private hospitals, hospice, and the American Cancer Society, these first-hand accounts of patients, family members, hospice workers and others will lift spirits, touch hearts, and illustrate the advantages of hospice care. These are real-life examples of personalized comfort care, offered by an interdisciplinary team, where ever the patient lives. Each story addresses some aspect of helping families through the caregiving and grieving process, which are part-and-parcel of a serious illness, and offers comfort and understanding to readers who may be going through similar experiences. This book describes hope, healing, and support through difficult times.

Many hospice social workers must address spiritual issues with their clients, but do not feel competent to do so effectively. This targeted volume draws upon multidisciplinary theory and research to advance a relational model of spiritually sensitive hospice care. The book will help readers elevate their spiritual competence and foster a relationship with their clients that will enrich the experience for all involved. Spirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client's spiritual needs and resources, as well as signs of spiritual suffering. It also discusses religious and spiritual practices that clients may use to enhance their spiritual coping. Spirituality and Hospice Social Work stresses the need for interdisciplinary collaboration with other members of the hospice team, along with the value of maintaining professional ethical standards when addressing spiritual issues. Throughout, the importance of spiritual sensitivity and its effect upon client well-being is emphasized.

The syringe driver is a simple and cost-effective method of delivering a continuous subcutaneous infusion (CSCI). A CSCI provides a safe and effective way of drug administration and can be used to maintain symptom control in patients who are no longer able to take oral medication. There have been several developments in this field since the third edition of this highly successful book. The text in this edition has been completely revised, incorporating new treatment options and an extensive list of new compatibility data. This book serves as a valuable reference source, providing comprehensive review of syringe driver use and administration of drugs by CSCI. The first chapter provides an overview of syringe drivers and CSCIs, including a useful array of frequently asked questions. The second chapter provides information about the chemistry of drug incompatibility and degradation. The third chapter comprises revised and referenced information relating to most drugs likely to be administered by CSCI using a syringe driver. The fourth chapter discusses the control of specific symptoms that are often encountered when CSCIs are required. The fifth and final chapter contains an extensive, referenced list of compatibility and stability data relating to drug combinations administered by CSCI.

The Textbook of Palliative Care Communication is the authoritative text on communication in palliative care, providing a compilation of international and interdisciplinary perspectives. This volume was uniquely developed by an interdisciplinary editorial team to address an array of providers including physicians, nurses, social workers, and chaplains, and it unites clinicians with academic researchers interested in the study of communication. By featuring practical conversation and curriculum tools stemming from research, this text integrates scholarship and inquiry into translatable content that others can use to improve their practice, teach skills to others, and engage in patient-centered communication. The volume begins by defining communication, explicating debatable issues in research, and highlighting specific approaches to studying communication in a palliative care context. Chapters focus on health literacy and cultural communication, patient and family communication, barriers and approaches to discussing palliative care with specific patient populations, pain, life support, advance care planning, and quality of life topics such as sexuality, spirituality, hope, and grief. Team communication in various care settings is outlined, and current research and education for healthcare professionals are summarized. Unique to this volume are chapters on conducting communication research, both qualitatively and quantitatively, to promote further research in palliative care.

Palliative Care is the first book to provide a comprehensive understanding of the new field that is transforming the way Americans deal with serious illness.

Diane E. Meier, M.D., one of the field's leaders and a recipient of a MacArthur Foundation "genius award" in 2009, opens the volume with a sweeping overview of the field. In her essay, Dr. Meier examines the roots of palliative care, explores the key legal and ethical issues, discusses the development of palliative care, and presents ideas on policies that can improve access to palliative care.

Dr. Meier's essay is followed by reprints of twenty-five of the most important articles in the field. They range from classic pieces by some of the field's pioneers, such as Eric Cassel, Balfour Mount, and Elizabeth Kubler-Ross, to influential newer articles on topics such as caregiving and cost savings of palliative care. The reprints cover a wide range of topics including:

Why the care of the seriously ill is so important

Efforts to cope with advanced illness

Legal and ethical issues

Pain management

Cross-cultural issues

Philosophical perspective

The demand for palliative care has been nothing short of stunning--largely because of palliative care's positive impact on both the quality and the cost of care provided to seriously ill individuals. By providing a wide-ranging perspective on this growing field, this book will serve as a guide for developing meaningful approaches that will lead to better health care for all Americans.

The first volume in the HPNA Palliative Nursing Series, Structure and Processes of Care provides an overview of palliative nursing care, reviews National Consensus Project guidelines, and offers tools for initiating and maintaining palliative care programs. The content of the concise, clinically-focused volumes in the HPNA series prepares nurses for certification exams as well as quick-reference in daily practice. Plentiful tables, figures, and practical tools such as assessment instruments, pharmacology tables, and patient teaching points make these volumes useful resources for nurses.

Even for the most experienced healthcare professional, managing the last few days of life can be difficult. This unique book provides guidelines for the care of the dying based on the Liverpool Integrated Care Pathway for the Dying Patient (LCP). Developed at a hospice, the information can be disseminated and adapted to fit different settings such as hospitals and nursing homes.
The LCP is a multiprofessional document that incorporates evidence-based practice and appropriate guidelines related to care of the dying. It provides a template which describes the process of care which is generally delivered in a clinical situation and incorporates the expected outcome of care delivery. The LCP replaces all other documentation in this phase of care. Care pathways can provide a potentially powerful aid to professionals involved in palliative care. Basic principles of treatment are translated into daily practice, including bedside documentation systems, policies and procedures, standards of practice, continuing education and quality improvement programmes. This book also includes chapters on symptom control, ethical issues, communication skills, and spiritual care written by experts in the field which underpin the use of the LCP.
Care of the Dying Second Edition will prove invaluable to all healthcare professionals involved in the care of the dying patient, organisations and Trusts who want to develop demonstrable measures and outcomes of care.

This is a unique resource to improve this difficult and highly sensitive area of communication, ideal for both individual use and by groups or in teaching. It offers a visual, interactive training experience, linking with supportive care frameworks. It is accompanied bya DVD which contains filmed scenes illustrating a range of challenging dialogues between health workers and a patient and his family through the journey of his terminal illness. Accompanying booklet highlights communication issues with suggested exercises, reflection points and advice. It is available as individual-use-only product for self-reflective learning, or institutional-use product for tutored learning, both priced to give excellent value.

...members of the caring professions need all the counselling skills that we can muster. Readers of this book will end up feeling less helpless in the face of death but we should not expect to find communication easy. "What can we say?" Once we think we know what to say we are wrong. Rather this book will help us to learn when to speak of dying and when not to, what not to say and when to keep silent and wait patiently for what gliding instructors call an 'up-draught'. We must start from wherever the other person may be and we must take the time and trouble to discover the language with which this person speaks about death and dying, the assumptions they make and their needs and wishes to speak or not to speak. - From the Foreword by Dr Colin Murray Parkes, Life President of Cruse Bereavement Care Good counselling skills are often not taught to the professionals who need them most. Compassionate and tactful communication skills can make the difference between an awkward encounter with a dying patient, and an engaging, empathic bond between two people. Louis Heyse-Moore draws on his wealth of experience as a trained counsellor and palliative medicine specialist. Covering difficult subjects such as breaking the news of terminal illness to a patient, euthanasia and the effect of working with patients on carers, Speaking of Dying is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home. Complete with a clear explanation of both counselling and medical terminology, this hands-on guide will be an invaluable companion to anyone working in palliative care.

This text introduces the reader to the key issues surrounding care of the dying patient, as well as highlighting the importance of context in the social management of dying. Written in a pragmatic style, it provides a foundation from which to consider the theoretical and practical concerns that are central to terminal care in institutional as well as community-based settings. Illustrated with case studies that demonstrate how the themes of the book can be applied in practice, this text encourages readers to reflect on research findings so that they are stimulated to formulate their own ideas about caring for dying patients.