People with chronic illnesses often live in the community for many
years while the illness becomes progressively more debilitating.
Little is known about how they continue to live personally
meaningful lives. This book describes a study that employed
qualitative research methods and the Occupational Performance Model
(Australia) to investigate how people with Parkinsons disease and
their partners continue to actively participate as members of their
social community. Loss of control over choice and manner of
engagement in roles was a significant element of the findings.
Sense of self and sense of social fit were identified as major
elements that informed participants perceptions of control. The
findings support the notion that people with chronic illness are
active and knowledgeable participants in health care. Moreover,
they demonstrate that people with chronic illness work in tandem
with significant role partners to constantly maintain valued
partnerships through occupational role performance as the disease
progresses. This book is intended for health professionals, health
educators, researchers, and people with chronic disability.
General
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