"Living in the Land of Limbo" is the first anthology of short
stories and poems about family caregivers. These men and women find
themselves in "limbo," as they struggle to take care of a family
member or friend in the uncertain world of chronic illness. The
authors explore caregivers' experiences as they deal with family
conflicts, the complexities of the health care system, and the
impact of their choices on their lives and the lives of others. The
book includes selections devoted to caregivers of aging parents;
husbands and wives; ill children; and relatives, lovers, and
friends. A final section is devoted to paid caregivers and their
clients. Among the conditions that form the background of the
selections are dementia, HIV/AIDS, mental illness, multiple
sclerosis, and pediatric cancer.
Many of the authors are well-known poets and writers, but others
have not been published in mainstream media. They represent a range
of cultural backgrounds. Although their works approach caregiving
in very different ways, the authors share a commitment to emotional
truth, unvarnished by societal ideals of what caregivers should
feel and do. These stories and poems paint profoundly moving and
revealing portraits of family caregivers.
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