An understudied aspect of the HIV/AIDS epidemic is the creation
of hundreds of thousands of grandparent-headed households that have
become home to children bereft of one or both of their parents.
Such "skip-generation parenting" presents a host of challenges to
the families involved and the social programs designed to assist
them. Despite this unprecedented caregiving responsibility, older
surrogate parents remain relatively invisible, hidden in the
shadows of HIV care and the demands of raising a child. The primary
goal of Invisible Caregivers is to generate, support, and guide
program and policy initiatives designed to meet the needs of elder
surrogates and their families.
Most social service programs are not able to identify the needs
of older surrogates, often because these surrogate parents in
HIV-infected families are reluctant to make their needs known for
fear of social stigma or possible reductions of benefits. Multiple
systemic barriers to case management and other services also
frustrate attempts to bring available resources to elder
caregivers. These barriers include professional ignorance or denial
that HIV affects surrogates, eligibility restrictions through CARE,
limited funding and age restriction on OAA, and a fragmented health
and human service system. Because the issues facing elder
caregivers are many and varied, this collection covers a host of
issues: community health, aging, HIV services, child welfare,
education, public policy, and mental health.
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