Born in Qqeberha in the 1990s, popular Aids activist Nozibele Mayaba’s upbringing was one of struggle and strife. She was raised by the tough hand of her mother in the confines of a strict Christian household. Nozibele strove to be the “good girl” that everyone adores to win her mother’s approval and the affection of her absent father.

She lived by the book and was steered by her faith. Hers becomes a life of firsts. She is the first person in her family to travel overseas. The first to graduate from university. It is also her first love, with his infectious smile that infected her with HIV.

This diagnosis throws her life into disarray. Fearing stigma and feeling the need to maintain her “good girl” image, she kept her status a secret. However, she soon succumbed to depression. It is in the aftermath, when she picks up the broken pieces of her life that she finds purpose in all the pain she has endured.

She went public with her story in a video that when viral and launched her onto a new path. Nozibele, who has since gotten married and recently became a mother, has made it her mission to hold open conversations about her journey living with HIV.

Told with gut wrenching honesty, Nozibele is at her most vulnerable in this brave account about what it means to live and love beyond HIV.

Each chapter begins with a story of the experience of HIV/AIDS. Based on the story, a particular aspect of living with HIV/AIDS is discussed. The reader is encouraged to reflect on how these issues challenge us and carry the seeds of hope. Two or three texts are taken from the spiritual and religious traditions of the world, to deepen the reflection. Each chapter culminates in suggestions for positive, practical action for the whole school and for the classroom. Thus the chapters are structured according to the Look, Judge, Act method.

An international bestseller and winner of the Stonewall Book Award, which inspired an award-winning film 'A heroic work of journalism on what must rank as one of the foremost catastrophes of modern history.' The New York Times 'Stunning ... An impressively researched and richly detailed narrative.' TIME Randy Shilts was the first openly gay journalist dealing with gay issues for the San Francisco Chronicle. In 1981, the year when AIDS came to international attention, he quickly devoted himself to reporting on the developing epidemic, one which devastated his community and eventually took his life as well. Shilts interviewed over 1,000 people, weaving together extensive research in the form of personal stories and political reportage. He was perfectly placed to understand the cultural, medical and political impact of the disease on the gay community and United States society as a whole. And the Band Played On exposes why AIDS was allowed to spread while the medical and political authorities ignored and even denied the threat. This book remains one of the great works of contemporary journalism and provides the foundation for continuing debates over governmental failure in handling lethal epidemics.

A practical guide for primary health care personnel in the clinical and supportive care of people with HIV/AIDS. This book is a user-friendly, practical guide for medical personnel who treat, care for, or support people with HIV/AIDS at the primary care level. This updated edition addresses many areas including TB, STDs, HIV testing, counselling, treatment, education terminal care, specific needs of women and children, mother to child transmission and risk and injury to health care personnel. Illustrations are used throughout the book to promote a caring, accepting attidue to AIDS. In addition to doctors and primary care nurses, this book is also useful for counsellors, social workers, psychologists, alternative health care professionals and therapists. It also serves as a useful reference guide in clinics and in the training of personnel.

The devastating AIDS pandemic in Africa poses daunting medical, social, and economic challenges, placing local, regional, national, and international communities at a moral crossroads. This title, the first to systematically examine the ethical implications of the AIDS pandemic for Africa, examines such pressing questions as: How do we deal with the uncertainties surrounding AIDS statistics? Is it really too costly to provide people highly active antiretroviral therapies in Africa? What is the relationship between AIDS and poverty? Is the political leadership in South Africa doing what is right and prudent to meet the challenge of AIDS? Is the developed world responding responsibly and justly to this crisis in the developing world? Is it moral for companies to make profits from AIDS drugs? Given the scope of the crisis, ought First World ethical standards for doing research on AIDS drugs and vaccines to apply unchanged to Africa? Ought we to include children in research for AIDS vaccines, and if so, how? Why do people persist in regarding AIDS as punishment for sin? Internationally acclaimed experts in their fields, most of them Africans themselves, come together in this title to address these challenging questions that have tested South Africa's and Africa's leadership, and that of the Western world. They challenge also us. For in Central and Southern Africa AIDS is not someone else's problem - it is our own. Our response to AIDS – in our own lives and households and workplaces and communities and organisations – will help determine the calibre of society in the future. A major topic in biomedical ethics, AIDS is discussed here in this context in a single volume that will serve as a resource for public health workers, doctors, care givers and managers in the workplace, all of whom confront ethical problems in their handling of the disease. It is intended also as a textbook for students of medical ethics at undergraduate and postgraduate levels and addresses some of the fault lines that emerge in finding a global solution to the pandemic, as well as the radical changes AIDS is likely to leave in its wake.

Womanist AIDS Activism in the United States: "It's Who We Are" is an in-depth exploration of AIDS advocacy work among Black women. HIV/AIDS has had a disproportionate impact on Black women. In addition to high infection and mortality rates, they are likely to be responsible for the caretaking of family, friends, and community members with HIV. Angelique Harris and Omar Mushtaq conducted interviews with 36 activists from across the nation to examine the ways in which race, gender, and identity influence the motivations and approaches behind their work. The authors use womanism - an epistemological framework that centers the world views of women of color - to better situate this activism within a larger sociocultural and historical context. They also argue that womanism better encapsulates the experiences of Black women than feminism or Black feminism. The authors provide an in-depth analysis of womanism and propose how it can be applied more broadly in examinations of community engagement among women of color, specifically Black women.

This book explores the experiences and emotional expression of 30 people Living with HIV/AIDS (PLWHA) using qualitative research methods such as "illness narratives," and analyzes the dilemmas of "sicknesses of the society" including "Acquired Needs Deficiency" Syndrome, "Acquired Expectation Insufficiency" Syndrome, and "Acquired Punishment" Syndrome at the micro, meso and macro levels, so as to investigate higher-intensity negative emotions.In turn, the book draws on the perspectives of conflict and game, structure and function, and system and interaction, in order to propose a dynamic mechanism of emotion and expression, and argues that these negative emotions can be transformed, strengthened and presented through defense mechanisms such as suppression and attribution, which will influence social institutions at the micro, meso and macro levels and even possibly bring about positive changes in the social structure.

Surviving HIV/AIDS in the Inner City explores the survival strategies of poor, HIV-positive Puerto Rican women by asking four key questions: Given their limited resources, how did they manage an illness as serious as HIV/AIDS? Did they look for alternatives to conventional medical treatment? Did the challenges they faced deprive them of self-determination, or could they help themselves and each other? What can we learn from these resourceful women? Based on her work with minority women living in Newark, New Jersey, Sabrina Marie Chase illuminates the hidden traps and land mines burdening our current health care system as a whole. For the women she studied, alliances with doctors, nurses, and social workers could literally mean the difference between life and death. By applying the theories of sociologist Pierre Bourdieu to the day-to-day experiences of HIV-positive Latinas, Chase explains why some struggled and even died while others flourished and thrived under difficult conditions. These gripping, true-life stories advocate for those living with chronic illness who depend on the health care "safety net." Through her exploration of life and death among Newark's resourceful women, Chase provides the groundwork for inciting positive change in the U.S. health care system.

There is an inherently powerful and complex paradox underlying HIV/AIDS prevention - between the focus on collective advocacy mobilised to combat global HIV/AIDS and the staggeringly disproportionate rates of HIV/AIDS in many places. In Treating AIDS, Thurka Sangaramoorthy examines the everyday practises of HIV/AIDS prevention in the United States from the perspective of AIDS experts and Haitian immigrants in South Florida. Although there is worldwide emphasis on the universality of HIV/AIDS as a social, political, economic and biomedical problem, developments in HIV/AIDS prevention are rooted in and focused exclusively on disparities in HIV/AIDS morbidity and mortality framed through the rubric of race, ethnicity and nationality. Everyone is at equal risk for contracting HIV/AIDS, Sangaramoorthy notes, but the ways in which people experience and manage that risk - and the disease itself - is highly dependent on race, ethnic identity, sexuality, gender, immigration status and other notions of "difference." Sangaramoorthy documents in detail the work of AIDS prevention programmes and their effect on the health and well-being of Haitians, a transnational community long plagued by the stigma of being stereotyped in public discourse as disease carriers. By tracing the ways in which public knowledge of AIDS prevention science circulates from sites of surveillance and regulation, to various clinics and hospitals, to the social worlds embraced by this immigrant community, she ultimately demonstrates the ways in which AIDS prevention programmes help to reinforce categories of individual and collective difference and how they continue to sustain the persistent and pernicious idea of race and ethnicity as risk factors for the disease.

The deluge of metaphors triggered in 1981 in France by the first public reports of what would turn out to be the AIDS epidemic spread with far greater speed and efficiency than the virus itself. To understand why it took France so long to react to the AIDS crisis, "AIDS in French Culture" analyzes the intersections of three discourses--the literary, the medical, and the political--and traces the origin of French attitudes about AIDS back to nineteenth-century anxieties about nationhood, masculinity, and sexuality.

This book addresses the ongoing problem of HIV in black South African women as a health inequity. Importantly, it argues that this urgent problem of justice is changeable. Sprague uses the capabilities approach to bring a theory of health justice, together with multiple sources of evidence, to investigate the complex problem of HIV and accompanying poor health outcomes in black South African women. Motivated by a concern for application of knowledge, this work discusses how to better conceptualise what health justice demands of state and society, and how to mobilise available evidence on health inequities in ways that compel greater state action to address problems of gender and health. HIV in women, and possible responses, are investigated on four distinct levels: conceptual, social structure, health systems, and law. The analysis demonstrates that this problem is indeed modifiable with long-term interventions and an enhanced state response targeted at multiple levels. This book will be of interest to academics and students in the social health sciences, gender and development studies, and global health, as well as HIV/health activists, government officials, policy makers, HIV clinicians and health providers interested in HIV.

Given that women and girls carry the heaviest burdens of the African HIV pandemic, their lived experiences should be the starting point for any pedagogy of prevention. In light of this claim, Risky Marriage: HIV and Intimate Relationships in Tanzania uses qualitative fieldwork with HIV positive women living in Mwanza, Tanzania to ask why marriage is an HIV risk factor. By beginning with women's experience as a hermeneutical lens, this book seeks to establish a creative space where African women can imagine new alternatives to HIV prevention that would promote human flourishing and abundant life in African communities. The aim of this book is to listen faithfully to the lived experiences of HIV positive women and ask how their experiences can help us re-imagine Christian conceptions of marriage, sexual ethics, and health in an HIV positive world. By drawing on the unwritten texts of women's lives, this study proposes alternative pedagogies for faith-based prevention methods and contributes to the wider interdisciplinary and theo-ethical discourse on HIV prevention and women's health. At the same time, it makes local impact of equal importance as women in East African communities are invited to think creatively about ways to end the HIV pandemic. For more information and comments from the author, watch a trailer for the book here: http://vimeo.com/semafilms/riskymarriage

Written by a team of nationally recognized African American social work professionals with extensive and distinguished backgrounds of HIV/AIDS service, the book examines the crisis facing African American communities. The editors strive to convey to academics, researchers, and students the magnitude of the crisis and that individuals and organizations serving African Americans need to be able to respond to the service delivery needs this crisis brings.

The crisis is evident in the fact that by year 2000 fully 50% of all AIDS cases will be among African Americans--who only constitute 12% of the nation's population. This book serves as a wake-up call and is designed to stimulate discussion and planning for new models of service to all African Americans and HIV prevention, education, and treatment.

This book, written decades into the HIV epidemic, reflects critically on the idea that the socially excluded populations often focused on in HIV research are in fact difficult to access and reach. The author broadly applies the concept 'hard to reach' to characterize populations that researchers find difficult to engage with. Social factors that produce marginalization and ultimately result in people choosing not to engage in research are not captured by the concept of 'hard to reach'. Limited attention has focused on how researchers can address the social factors that result in decisions to not engage in research. Disrupting the ways in which people are conceptualized as 'hard to reach' so as to refocus on transforming social systems and personal values, beliefs and approaches is understudied. This book uses case examples based on HIV research with Indigenous youth, internally displaced women, LGBTQ communities in the Global North and Global South, and persons at the intersection of these identities, to identify successful approaches to working with marginalized and often vulnerable communities and groups. The chapters signal the need for attention to five key social factors when developing successful approaches: context and storytelling; cultural humility; critical hope; imagination and possibility; and love, intimate inquiry, and the beloved community, if nations, individuals and communities are to address the epidemic in a sustainable and impactful way.

"It has long been a belief of the feminist academic community that personal voices and experiences must be validated and heard. This volume succeeds admirably in being true to that tradition."--"Canadia HIV/AIDS Policy and Law Newsletter"

Women now account for the majority of all new HIV/AIDS cases diagnosed in the United States. Yet, the resources allotted to women for research, health services, education, and outreach remain woefully inadequate. The Gender Politics of HIV/AIDS in Women fills crucial gaps in understanding the specific effects of HIV and AIDS on and in women's lives. It takes as its starting point the premise that it is vitally important for researchers, teachers, health service providers, public policy makers, and community-based organizers to begin taking gender-- especially as it intersects with race, class, and sexuality-- into consideration as they work with HIV-infected women.

The first comprehensive, interdisciplinary volume on this topic, The Gender Politics of HIV/AIDS in Women goes beyond tokenism, with a contributor's list made up of approximately 45% people of color, including African Americans, Latinos/as, Asian Americans and Pacific Islanders, and Native Americans. The volume emphasizes marginalized populations such as the homeless, sexworkers, youth, the elderly, intravenous drug users, transgendered people, lesbians, bisexuals, incarcerated women, and victims of sexual abuse and domestic violence.

The contributors, including Evelyn Hammonds, Risa Denenberg, Michelle Murrain, and Paul Farmer, are recognized experts in their diverse fields. From their posts at the center of the pandemic--in the laboratory, the academy, clinics, and communitybased organizations--they criticize blind spots in the recognition and treatment of HIV in women and articulate accessible and practical solutions to specific areas of difficulty.

This book examines the responses of African Initiated Churches to HIV in Zimbabwe. It describes the changing attitudes of African Initiated Churches to the pandemic, exploring the adjustments that have been undertaken to both doctrine and practice within the movement. The contributors show how the rigidity that often characterizes African Initiated Churches (such as opposing the use of condoms, insisting on polygamy and insisting exclusively on faith healing) have gradually given way to more constructive approaches to HIV and AIDS .

Today young adults are contracting HIV more rapidly than virtually any period during the past two decades. Young women, particularly those who are black and Latina, are bearing the brunt of this 'new wave' of infection. Putting Risk in Perspective explores the many factors associated with HIV infection among young black women. HIV infection often occurs as a result of high risk behavior. Understanding what causes a young woman to take sexual and reproductive risks requires a consideration of the kinds of life issues she faces. Drawing on ethnographic study and interviews, RenZe T. White introduces to the reader many young women who are dealing with economic pressures, family relationships, dating and courtship, intimate relationship issues, and questions of sexual identity. These along with the mythology surrounding HIV and AIDS_and knowledge about contraception_influence whether or not a black teenager will engage in risky activity. This powerful book shows why the fight against AIDS must incorporate a commitment to improving the social and economic opportunities available to young black women.

This collection is a serious attempt to explore the relationship between cultural content and the form AIDS takes in different cultural settings. Written mostly by anthropologists, these essays examine different cultural areas and AIDS: central Africa (Rwanda), New York City, Houston, and London. In addition, articles address topics such as stigmatization of AIDS victims by the press; language and AIDS; class variations in the delivery of social services as experienced by gay and bisexual men in New York City; and homophobia and AIDS. The volume is a valuable addition to the social-anthropological literature on AIDS and should be useful to professionals and for graduate and advanced undergraduate courses dealing with sociocultural aspects of AIDS. "Choice"

AIDS has become a pandemic with major implications for the future vitality of humankind, according to this powerful new book compiled by the editor of the widely acclaimed The Social Dimensions of AIDS. As a cultural phenomenon the social patterning of AIDS can be explained and its direction largely predicted. Culture and AIDS is written almost entirely by anthropologists and represents the interest of dozens of anthropologists and represents the anthropologists' interest in AIDS related research and activities. Thirteen essays explore the social and cultural context of AIDS related behavior and clarify key domains in AIDS and the social sciences. This volume seeks to broaden its readers' understanding of how AIDS is changing our lives as it redirects human experience.

"Culture and AIDS" is not intended as an introduction to AIDS. It looks at AIDS as a cultural phenomenon. It includes an introduction and postscript by its editor, Douglas A Feldman. Eleven essays explore: AIDS in Rwanda (Central Africa); A Haitian village handling AIDS; possible cofactors in HIV transmission; social service needs of gay men with AIDS in NYC; psychological factors influencing adjustment among HIV-infected gay men in Houston; social behavior of female prostitutes in London; social effects of AIDS on minority women; AIDS-related stigma in the press; language and AIDS; and other AIDS related areas.

The result of an intensive two-year research study, this volume examines the likely course of the AIDS epidemic over the next fifteen years. Extremely well-documented and based largely on sophisticated statistical analysis, the study makes detailed forecasts of who will become sick; explores the social, political, and economic consequences of the spread of the disease; and analyzes the controversial policy choices that must be made if the epidemic is to be contained. The authors argue that current policies have failed in their efforts to combat the spread of AIDS and suggest new public policy measures aimed at dramatically reducing the spread of the virus. AIDS researchers, health care practitioners, and policymakers will find The Catastrophe Ahead both an invaluable source of detailed statistical information about the AIDS epidemic and an urgent call to action.

Based on the study results, the authors conclude that by 2002, a million and a half people may die of AIDS and more than 4 million others may be infected with the disease. They explore various scenarios--worst, best, and middle cases--demonstrating that blacks face by far the greatest risks: under the most likely scenario some 15 percent of all blacks between the ages of 15 and 50 will carry the virus by 2002. The authors propose a universal routine voluntary testing program to avert this catastrophe, enabling people to sexually self-segregate themselves based on whether or not they carry the HIV virus. While the authors concede that this program cannot completely stem the tide of infection, they argue that it offers one of the best defenses available against the epidemic. Well written and illustrated with numerous tables and figures, this volume should be required reading for anyone involved in AIDS counseling and policymaking.

In this extraordinary history, James Driscoll reveals the untold story of how AIDS activists, by thwarting bureaucratic plans imposed by the U.S. Federal Drug Administration (FDA), both saved HIV patients and rescued the FDA itself from a self-inflicted public health catastrophe. By 1996, accelerated approval of AIDS drug cocktails transformed AIDS from a death sentence to a manageable disease. That approval, however, came only after years of struggle pitting AIDS activists against the hidebound culture of the Food and Drug Administration, which wanted to run lengthy efficacy trials required for full approval and possibly delay the drugs at a cost of tens of thousands of lives. Driscoll's courageous efforts, which are an important personal part of the story, navigated conflicts among AIDS activist groups as they struggled with both major American political parties to be heard and respected. He examines the effect of AIDS activism on the LGBT community, its views of itself, and its place in modern American society. Additional materials analyze FDA mistakes, drug pricing, and other contemporary challenges for the LGBTs community.

This book examines the gender context of HIV and critiques the global policy response. Anderson contributes to the feminist task of de-invisibilising gender as structural violence and identifies how gendered power structures are responded to at the local level in Malawi.

"For the LORD brought Judah low because of Ahaz, King of Israel, for he had encouraged moral decline in Judah and had been continually unfaithful to the LORD." 2 Chronicles 28:19 NKJV In this twenty-first century, the eruption of HIV/AIDS is a disturbing result of moral decline. This is a call to the people of all nations --and all in authority --to learn from history and uphold a moral culture. Wherever you live as an honorable father, mother, sister, and brother, please do not ignore this essential and timely call. This book offers you, your family, and your children a new dimension of exceptional living. Readers of all ages will find this book indispensable. It offers sensible and practical suggestions on how to manage the disease, relate with those already infected and, best of all, avoid becoming a victim of HIV/AIDS. HIV/AIDS is a global health problem. Only those who are equipped with knowledge and understanding will be able to escape. Whether you are so far free of HIV or have already been stricken, save yourself and your children, arm yourself with the facts, and do your part to stop this pandemic. Do not despair . . . In the words of Scripture, "Everything is possible." Yes, it is.

Almost four decades since AIDS was first reported in Africa, the epidemic has reached a watershed moment where progress in prevention, care and support programs confronts intransigent socioeconomic and gender rights barriers and emerging funding uncertainties. While there are grounds for cautious optimism that the incidence of HIV infections and AIDS-related mortality can be further reduced, they cannot, by themselves, end the epidemic. This will require overcoming gendered inequalities, HIV stigma and neglect of high-risk youth and socially peripheralized groups.

This book describes how Christian communities in South Africa have responded to HIV/AIDS and how these responses have affected the lives HIV-positive people, youth and broader communities. Drawing on Foucault and the sociology of knowledge, it explains how religion became influential in reshaping ideas about sexuality, medicine and modernity.