AIDS

"None of us is so unique as to be exempt from the human condition."

As the numbers of reported AIDS cases continue to climb, and the disease continues to take more and more lives, those who have to deal with the complexities of this problem continue to ask: "How do we care for these terminally ill?"

Using letters from patients, questions and answers between patient and doctor, and other compassionate tools, Dr. Elisabeth Kübler-Ross, the world's foremost expert on death and dying, shows us how to comfort the seriously ill and help AIDS patients through the critical "stages of dying" She addresses the stigma surrounding AIDS as a "gay disease" and makes a special plea for prisoners with AIDS, for women and children with AIDS, and for babies with AIDS. This remarkable book is warm and informative on one of the most important subjects of our time.

Janice and Bill were the perfect couple. They met during college, got married and began promising careers. But in 1987 their storybook life was shattered forever when they were diagnosed with HIV. Janice explains how they coped.

With the startling blend of satiric wit, pathos, and heroism found in his acclaimed and iconoclastic novels, Feinberg--who died in 1994 at the age of 37--charts a harrowing journey down that "HIV highway to hell". "This is AIDS literature for a new generation--funny, impertinent, sexy, and enlightening".--The Advocate.

The American public responded to the first cases of AIDS with fear and panic. Both policymakers and activists were concerned not only with stopping the spread of the disease, but also with guiding the public's response toward those already infected. Fatal Advice is an examination of how the nation attempted, with mixed results, to negotiate the fears and concerns brought on by the epidemic. A leading writer on the cultural politics of AIDS, Cindy Patton guides us through the thicket of mass-media productions, policy and public health enterprises, and activist projects as they sprang up to meet the challenge of the epidemic, shaping the nation's notion of what safe-sex is and who ought to know what about it. There is the official story, and then there is another, involving local groups and AIDS activists. Going back to early government and activist attempts to spread information, Patton traces a slow separation between official advice and that provided by those on the front lines in the battle against AIDS. She shows how American anxieties about teen sex played into the nation's inadequate education and protection of its young people, and chronicles the media's attempts to encourage compassion without broaching the touchy subject of sex or disrupting the notion that AIDS was a disease of social and sexual outcasts. Her overview of the relationship between shifting medical perceptions and safe-sex advice reveals why radical safe-sex educators eventually turned to sexually explicit, including pornographic, representations to spread their message-and why even these extreme tactics could not overcome the misguided national teaching on AIDS. Patton closes with a stirring manifesto, an urgent call to action for all those who do not want to see the hard lessons of AIDS education and activism wasted, or, with these lessons, the loss of so many more lives.

An indispensable guide to every aspect of at-home care This thoroughly practical guide details the daily routines and unique concerns that are essential to quality at-home care of people with AIDS. From setting up a safe and comfortable environment to making medical and legal choices and solving emotional problems, each vital issue is covered in depth. Every caregiver and person with AIDS will benefit from this supportive, comprehensive resource.

• Detailed information on protecting against infection
• Concise instructions for both ambulatory and bedridden patients
• How to administer intravenous feedings and medication
• Appendices covering lab tests, alternative therapies, and the latest experimental drugs
• The differences between caring for men and women with AIDS
• Tips for caregivers on maintaining their own health and well-being

Community based organizations assist participants in developing social skills and familiar language for negotiating and practicing safer, non-risky behaviors. AIDS education and awareness is best achieved in local community groups through the use of interactive group sharing and non-professional language. Supportive and informed mutual aid can be extended through community based organizations and can alleviate the psychological effects of isolation, homophobia, abandonment, and political disinterest created by society at large. AIDS therapy and prevention is best accomplished in settings that encourage one-to-one communication and compassion. The seventeen authors of this masterful compilation of AIDS research and policy make a strong case for community organizations as valiant warriors in one of this century's most threatening epidemics against humanity.

"The authors provide important new information about the changing evolution of the HIV/AIDS pandemic, the persons it is affecting, and its global impact. . . . Most important, it presents a compassionate and prophetic vision of what the church's response ought to be. . . ".--James B. Nelson, Professor of Christian Ethics, United Theological Seminary of the Twin Cities, New Brighton, Minnesota.

From the very beginning of the epidemic, AIDS was linked to punishment. Calls to punish people living with HIV-mostly stigmatized minorities-began before doctors had even settled on a name for the disease. Punitive attitudes toward AIDS prompted lawmakers around the country to introduce legislation aimed at criminalizing the behaviors of people living with HIV. Punishing Disease explains how this happened-and its consequences. With the door to criminalizing sickness now open, what other ailments will follow? As lawmakers move to tack on additional diseases such as hepatitis and meningitis to existing law, the question is more than academic.

The search for a "patient zero" popularly understood to be the first infected case in an epidemic has been key to media coverage of major infectious disease outbreaks for more than three decades. Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas and fears about contagion and social disorder. McKay presents a carefully documented and sensitively written account of the life of Gaetan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero adopting, challenging and redirecting its powerful meanings as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.

This timely book gives a voice to those living with HIV who are too often ignored or misunderstood by the Church and other religious institutions - including those in positions of care who may have thought they were helping but have ended up doing more harm than good. The book exposes and challenges attitudes of institutional blindness and abuse and suggests some positive means of remedy, all of which have been formed and tested with the help of clients at the London HIV Chaplaincy. With its powerful combination of moving personal testimony and honest pastoral reflection, this book will encourage a more informed, sensitive and effective interaction with many who, for whatever reason, feel marginalised by our society and alienated by those who most want to help. As Rowan Williams says in his foreword, 'This book is a proclaiming of the gospel as well as a call to judgement. It is necessary material for the self-examination and self-awareness of any Christian minister or community, if the Church's claim to be what it is supposed to be is not to go on being so hollow for so many who need to hear that their agency and dignity are understood and honoured.'

In the years since the end of apartheid, South Africans have enjoyed a progressive constitution, considerable access to social services for the poor and sick, and a booming economy that has made their nation into one of the wealthiest on the continent. At the same time, South Africa experiences extremely unequal income distribution, and its citizens suffer the highest prevalence of HIV in the world. As Archbishop Desmond Tutu has noted, "AIDS is South Africa's new apartheid." In Ancestors and Antiretrovirals, Claire Laurier Decoteau backs up Tutu's assertion with powerful arguments about how this came to pass. Decoteau traces the historical shifts in health policy after apartheid and describes their effects, detailing, in particular, the changing relationship between biomedical and indigenous health care, both at the national and the local level. Decoteau tells this story from the perspective of those living with and dying from AIDS in Johannesburg's squatter camps. At the same time, she exposes the complex and often contradictory ways that the South African government has failed to balance the demands of neoliberal capital with the considerable health needs of its population.

This provocative study examines the role of today's Russian Orthodox Church in the treatment of HIV/AIDS. Russia has one of the fastest-growing rates of HIV infection in the world - 80 per cent from intravenous drug use - and the Church remains its only resource for fighting these diseases. Jarrett Zigon takes the reader into a Church-run treatment center where, along with self-transformational and religious approaches, he explores broader anthropological questions - of morality, ethics, what constitutes a 'normal' life, and who defines it as such. Zigon argues that this rare Russian partnership between sacred and political power carries unintended consequences: even as the Church condemns the influence of globalization as the root of the problem it seeks to combat, its programs are cultivating citizen-subjects ready for self-governance and responsibility, and better attuned to a world the Church ultimately opposes.

AIDS has been a devastating plague in much of sub-Saharan Africa, yet the long-term implications for gender and sexuality are just emerging. AIDS and Masculinity in the African City tackles this issue head on and examines how AIDS has altered the ways masculinity is lived in Uganda - a country known as Africa's great AIDS success story. Based on a decade of ethnographic research in an urban slum community in the capital Kampala, this book reveals the persistence of masculine privilege in the age of AIDS and the implications such privilege has for combating AIDS across the African continent.

"The Night Is Young" takes us past the stereotypes of macho hombres and dark-eyed senoritas to reveal the complex nature of sexuality in modern-day Mexico. Drawing on field research conducted in Guadalajara, Mexico's second-largest city, Hector Carrillo shows how modernization, globalization, and other social changes have affected a wide range of hetero- and homosexual practices and identities.
Carrillo finds that young Mexicans today grapple in a variety of ways with two competing tendencies. On the one hand, many seek to challenge traditional ideas and values they find limiting. But they also want to maintain a sense of Mexico's cultural distinctiveness, especially in relation to the United States. For example, while Mexicans are well aware of the dangers of unprotected sex, they may also prize the surrender to sexual passion, even in casual sexual encounters--an attitude which stems from the strong values placed on collective life, spontaneity, and an openness toward intimacy. Because these expectations contrast sharply with messages about individuality, planning, and overt negotiation commonly promoted in global public health efforts, Carrillo argues that they demand a new approach to AIDS prevention education in Mexico.
A Mexican native, Carrillo has written an exceptionally insightful and accessible study of the relations among sexuality, social change, and AIDS prevention in Mexico. Anyone concerned with the changing place of sexuality in a modern and increasingly globalized world will profit greatly from "The Night Is Young."

In 2013, the U.S. President's Emergency Plan for AIDS Relief (PEPFAR) will mark nearly ten years of success with an extraordinary year of achievements. None of this would have been possible without the vision and leadership of President Bush, President Obama, and the bipartisan support of Congress. A decade ago AIDS was wiping out an entire generation in Africa; today, PEPFAR's efforts and those of its many partners have brought the world to a new era -- a time when new HIV infections and AIDS-related deaths are on the steep decline, and an AIDS-free generation is both U.S. policy and a goal within our reach. Building off recent breakthroughs, which demonstrated the power of key evidence-based interventions to drive down the rate of new infections and save more lives, this book reflects lessons learned from almost ten years of experience in supporting countries to rapidly scale-up HIV prevention, treatment, and care services. It demonstrates the opportunity for the world to help move more countries toward and beyond the tipping point in their epidemics and put them on a path to achieving an AIDS-free generation. The U.S. commitment to the global AIDS response will remain strong, comprehensive, and driven by science -- and clearly outlines what PEPFAR is doing and will continue to do to help make an AIDS-free generation a reality.

Since the early days of the AIDS epidemic, many bizarre and dangerous hypotheses have been advanced as to the origins of the disease. In this compelling book, Nicoli Nattrass explores the social and political factors prolonging the erroneous belief that the American government manufactured the human immunodeficiency virus (HIV) to be used as a biological weapon, as well as the myth’s consequences for behavior, especially within African American and black South African communities.

Contemporary AIDS denialism, the belief that HIV is harmless and that antiretroviral drugs are the true cause of AIDS, is a more insidious AIDS conspiracy theory. Advocates of this position make a “conspiratorial move” against HIV science by implying its methods cannot be trusted, and that untested, alternative therapies are safer than antiretrovirals. These claims are genuinely life-threatening, as tragically demonstrated in South Africa when the delay of antiretroviral treatment resulted in nearly 333,000 AIDS deaths and 180,000 HIV infections thatcould have been prevented – a tragedy of stunning proportion.

Nattrass identifies four symbolically powerful figures ensuring the lifespan of AIDS denialism: the hero scientist (dissident scientists who lend credibility to the movement), the cultropreneur (alternative therapists who exploit the conspiratorial move as a marketing mechanism), the living icon (individuals who claim to be living proof of AIDS denialism’s legitimacy), and the praise-singer (journalists who broadcast movement messages to the public). Nattrass describes how pro-science activists have fought back by deploying empirical evidence and political credibility to resist AIDS conspiracy theories, which is part of the crucial project to defend evidence-based medicine.

How do modern women in developing countries experience sexuality and love? Drawing on a rich variety of interview, ethnographic and survey data from her native country of Kenya, Sanyu Mojola examines how young African women, who suffer disproportionate rates of HIV infection compared to young African men, navigate their relationships, schooling, employment and financial access in the context of a devastating HIV epidemic and economic inequality. Writing from a unique outsider-insider perspective, Mojola argues that the entanglement of love, money, and the production and transformation of girls into "consuming women" lies at the heart of women's health and coming-of-age crises. Engaging in themes of gender, consumption, and the transition to adulthood, this text is an incisive analysis of gender, sexuality, and health in Africa.

This deeply insightful ethnography explores the healing power of caring and intimacy in a small, closely bonded Apostolic congregation during Botswana's HIV/AIDS pandemic. "Death in a Church of Life" paints a vivid picture of how members of the Baitshepi Church make strenuous efforts to sustain loving relationships amid widespread illness and death. Over the course of long-term fieldwork, Frederick Klaits discovered Baitshepi's distinctly maternal ethos and the 'spiritual' kinship embodied in the church's nurturing fellowship practice. Klaits shows that for Baitshepi members, Christian faith is a form of moral passion that counters practices of divination and witchcraft with redemptive hymn singing, prayer, and the use of therapeutic substances. An online audio annex makes available the examples of the church members' preachings and songs.

** With a new introduction by Russell T Davies ** A new edition of the award-winning, ground-breaking account of the early AIDS crisis in Britain. 'A remarkable journalistic achievement.' Time Out 'Powerful . . . Indispensable.' Observer 'Superb.' London Review of Books Winner of the Somerset Maugham Prize How does a country control a virus that is killing increasing numbers of people? How does a government contain an epidemic spread by sex, drug use and blood products? And how does a population react when told that everyone is at risk from infection? By 1986, when the British Government woke up to the problem of AIDS, it estimated that 30,000 people had already been infected with HIV. Why was it so slow to act? Would the situation have been different if most of those affected had not been gay men? Award-winning journalist Simon Garfield presents a story of political intrigue, of panic and hysteria, of wasted opportunities and of a medical battle conducted against seemingly impossible odds. Including interviews with key figures in the fight against the virus as well as those facing personal devastation and prejudice, The End of Innocence is an important and powerful story, compellingly told. Features a new afterword by the author.

AIDS & Representation explores portraits and self-portraits made in response to the AIDS epidemic in America in the 1980s and 1990s. Addressing the work of artists including Mark Morrisroe, Robert Blanchon and Felix Gonzalez-Torres through the interrelated themes of sickness and mortality, desire and sexual identity, love and loss, Fiona Johnstone shows how the self-representational practices of artists with HIV and AIDS offered a richly imaginative response to the limitations of early AIDS imagery. Johnstone argues that the AIDS epidemic changed the very nature of visual representation and artistic practice, necessitating a radical new approach to conceptualising and visualising the human form. An extended epilogue considers the ongoing art historicization of the epidemic, re-contextualising the book's themes in relation to contemporary photographic works. More than just a historical discussion of the art of the AIDS crisis, AIDS and Representation contributes to an emergent body of scholarship on the visual representation of illness. Expanding the established genre of the autopathography or illness narrative beyond the predominantly textual, this important contribution to art history and health humanities sensitively unpicks the entanglements between aesthetic form and the expression of lived experiences of critical and chronic ill health.

Nongovernmental organizations (NGOs) are ubiquitous in the Global South. Often international in origin, many attempt to assist local efforts to improve the lives of people often living in or near poverty. Yet their external origins often cloud their ability to impact health or quality of life, regardless of whether volunteers are local or foreign. By focusing on one particular type of NGO-those organized to help prevent the spread and transmission of HIV in Kenya-Megan Hershey interrogates the ways these organizations achieve (or fail to achieve) their planned outcomes. Along the way, she examines the slippery slope that is often used to define "success" based on meeting donor-set goals versus locally identified needs. She also explores the complex network of bureaucratic requirements at both the national and local levels that affect the delicate relationships NGOs have with the state. Drawing on extensive, original quantitative and qualitative research, Whose Agency serves as a much-needed case study for understanding the strengths and shortcomings of participatory development and community engagement.

More and more states are legalizing marijuana in some form. Moreover, a majority of the U.S. population is in favor of the drug for recreational use. In the Weeds looks at how our society has become more permissive in the past 150 years-even though marijuana is still considered a Schedule I drug by the American government. Sociologists Clayton Mosher and Scott Akins take a deep dive into marijuana policy reform, looking at the incremental developments and the historical, legal, social, and political implications of these changes. They investigate the effects, medicinal applications, and possible harms of marijuana. In the Weeds also considers arguments that youth will be heavy users of legalized cannabis, and shows how "weed" is demonized by exaggerations of the drug's risks and claims of its lack of medicinal value. Mosher and Akins end their timely and insightful book by tracing the distinct paths to the legalization of recreational marijuana in the United States and other countries as well as discussing what the future of marijuana law holds.

Viewing contemporary history from the perspective of the AIDS crisis, Jennifer Brier provides rich, new understandings of the United States' complex social and political trends in the post-1960s era. Brier describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy, even in the face of the expansion of the New Right. Infectious Ideas places recent social, cultural, and political events in a new light, making an important contribution to our understanding of the United States at the end of the twentieth century. |Viewing contemporary history from the perspective of the AIDS crisis, Brier provides new understandings of the complex social and political trends of the post-1960s era. She describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy.

In recent years, the economy of the Caribbean has become almost completely dependent on international tourism. And today one of the chief ways that foreign visitors there seek pleasure is through prostitution. While much has been written on the female sex workers who service these tourists, "Caribbean Pleasure Industry" shifts the focus onto the men. Drawing on his groundbreaking ethnographic research in the Dominican Republic, Mark Padilla discovers a complex world where the global political and economic impact of tourism has led to shifting sexual identities, growing economic pressures, and new challenges for HIV prevention. In fluid prose, Padilla analyzes men who have sex with male tourists, yet identify themselves as "normal" heterosexual men and struggle to maintain this status within their relationships with wives and girlfriends. Padilla's exceptional ability to describe the experiences of these men will interest anthropologists, but his examination of bisexuality and tourism as much-neglected factors in the HIV/AIDS epidemic makes this book essential to anyone concerned with health and sexuality in the Caribbean or beyond.

Each year it is estimated that approximately 40,000 people in the U.S. are newly infected with HIV. In the late 1990s, the number of deaths from AIDS dropped 43% as a result of highly active antiretroviral therapy. Unfortunately, the complex system currently in place for financing and delivering publicly financed HIV care undermines the significant advances that have been made in the development of new technologies to treat it. Many HIV patients experience delays in access to other services that would support adhering to treatment. As a result, each year opportunities are missed that could reduce the mortality, morbidity, and disability suffered by individuals with HIV infections. Public Financing and Delivery of HIV/AIDS Care examines the current standard of care for HIV patients and assesses the extent the system currently used for financing and delivering care allows individuals with HIV to actually receive it. The book recommends an expanded federal program for the treatment of individuals with HIV, administered at the state level. This program would provide timely access and consistent benefits with a strong focus on comprehensive and continuous care and access to antiretroviral therapy. It could help improve the quality of life of HIV/AIDS patients, as well as reduce the number of deaths among those infected. Table of Contents Front Matter Prologue and Executive Summary 1 Introduction: Securing the Legacy of Ryan White 2 HIV/AIDS Care in the Third Decade: Opportunities and Challenges in the Changing Epidemic 3 Current Financing and Delivery of HIV Care 4 Barriers to HIV Care 5 Options for Financing and Delivering HIV Care 6 Recommendations Appendix A: Technical Appendix Estimating the Impact and Cost of Expanded HIV Care Programs Appendix B: Overview of Care Act Allocation Formulas Appendix C: Mental Illness and HIV Comorbidity: A Large and Vulnerable HIV Subpopulation Appendix D: Financing HIV/AIDS Care: A Quilt With Many Holes Appendix E: Towards an Understanding of Meeting HIV-Infected Substance Users Appendix F: Committee on the Public Financing and Delivery of HIV Care Index