The experience of illness (both mental and physical) figures prominently in the critical thought and activism of the 1960s and 1970s, though it is largely overshadowed by practices of sexuality. Lisa Diedrich explores how and why illness was indeed so significant to the social, political, and institutional transformation beginning in the 1960s through the emergence of AIDS in the United States. A rich intervention-both theoretical and methodological, political and therapeutic-Indirect Action illuminates the intersection of illness, thought, and politics. Not merely a revision of the history of this time period, Indirect Action expands the historiographical boundaries through which illness and health activism in the United States have been viewed. Diedrich explores the multiplicity illness-thought-politics through an array of subjects: queering the origin story of AIDS activism by recalling its feminist history; exploring health activism and the medical experience; analyzing psychiatry and self-help movements; thinking ecologically about counterpractices of generalism in science and medicine; and considering the experience and event of epilepsy and the witnessing of schizophrenia. Indirect Action places illness in the leading role in the production of thought during the emergence of AIDS, ultimately showing the critical interconnectedness of illness and political and critical thought.

In the wake of the AIDS pandemic, legions of organizations and compassionate individuals from faraway places descended on Africa to offer help and save lives. Ann Swidler and Susan Cotts Watkins vividly describe the often mismatched expectations and fantasies of altruists who dream of transforming lives, of the villagers who desperately seek help, and of the brokers on whom both Western altruists and impoverished villagers must rely. Based on years of fieldwork in the heavily AIDS-affected country of Malawi, this incisive, irreverent book digs into the sprawling AIDS enterprise and unravels the paradoxes of policy and practice. All who want to do good-from idealistic volunteers to world-weary development professionals-depend on brokers as guides, fixers, and cultural translators. The mutual misunderstandings among these players create all the drama of a romance: longing, exhilaration, disappointment, heartache, and sometimes an enduring connection. A Fraught Embrace unveils the tangled relations of those involved in the collective struggle to contain an epidemic.

Whenever the topic of large jails and public hospitals in urban America is raised, a single idea comes to mind. It is widely believed that because we as a society have dis-invested from public health, the sick and poor now find themselves within the purview of criminal justice institutions. In Redistributing the Poor, ethnographer and historical sociologist Armando Lara-Millan takes us into the day-to-day operations of running the largest hospital and jail system in the world and argues that such received wisdom is a drastic mischaracterization of the way that states govern urban poverty at the turn of the 21st century. Rather than focus on our underinvestment of health and overinvestment of criminal justice, his idea of "redistributing the poor" draws attention to how state agencies circulate people between different institutional spaces in such a way that generates revenue for some agencies, cuts costs for others, and projects illusions that services have been legally rendered. By centering the state's use of redistribution, Lara-Millan shows how certain forms of social suffering-the premature death of mainly poor, people of color-are not a result of the state's failure to act, but instead the necessary outcome of so-called successful policy.

For over a hundred years, millions of Americans have joined together to fight a common enemy by campaigning against diseases. In Common Enemies, Rachel Kahn Best asks why disease campaigns have dominated a century of American philanthropy and health policy and how the fixation on diseases shapes efforts to improve lives. Combining quantitative and qualitative analyses in an unprecedented history of disease politics, Best shows that to achieve consensus, disease campaigns tend to neglect stigmatized diseases and avoid controversial goals. But despite their limitations, disease campaigns do not crowd out efforts to solve other problems. Instead, they teach Americans to give and volunteer and build up public health infrastructure, bringing us together to solve problems and improve our lives.

Whenever the topic of large jails and public hospitals in urban America is raised, a single idea comes to mind. It is widely believed that because we as a society have dis-invested from public health, the sick and poor now find themselves within the purview of criminal justice institutions. In Redistributing the Poor, ethnographer and historical sociologist Armando Lara-Millan takes us into the day-to-day operations of running the largest hospital and jail system in the world and argues that such received wisdom is a drastic mischaracterization of the way that states govern urban poverty at the turn of the 21st century. Rather than focus on our underinvestment of health and overinvestment of criminal justice, his idea of "redistributing the poor" draws attention to how state agencies circulate people between different institutional spaces in such a way that generates revenue for some agencies, cuts costs for others, and projects illusions that services have been legally rendered. By centering the state's use of redistribution, Lara-Millan shows how certain forms of social suffering-the premature death of mainly poor, people of color-are not a result of the state's failure to act, but instead the necessary outcome of so-called successful policy.

HIV/AIDS affects women worldwide. Elderly women bear a disproportionate burden of caring for those who are afflicted with the disease, while young women increasingly comprise the majority of new HIV cases. Intervention programs often fail to take into account the particular situations and behaviors that make women more vulnerable than men. Though policy debates increasingly include women and gender considerations, funds and resources for women, especially those already suffering with HIV/AIDS, remain inadequate.

"Women's Experiences with HIV/AIDS" gives voice to the experience of individual women whose personal stories reveal the daily struggles and concerns that fill their lives, but are ignored in the larger dialogues about HIV/AIDS. Women and men from diverse backgrounds discuss the differences between women within and across cultures and how particular traditions and attitudes can affect the prevention of, or vulnerability to, HIV/AIDS. The authors address not only women's empirical experiences, but also their personal feelings, beliefs, and expectations as reflected in their narratives.

Approaching the issue from several disciplines, "Women's Experiences with HIV/AIDS" paves the way for the empowerment of women by bringing them directly into the debates concerned with their protection against HIV/AIDS. This collection, edited by two well-known scholars in this field, provides a much-needed critical examination of the interventions and policies that do not yet fully address the needs and limitations of women and girls suffering with, or confronting the possibility of, infection.

More and more states are legalizing marijuana in some form. Moreover, a majority of the U.S. population is in favor of the drug for recreational use. In the Weeds looks at how our society has become more permissive in the past 150 years-even though marijuana is still considered a Schedule I drug by the American government. Sociologists Clayton Mosher and Scott Akins take a deep dive into marijuana policy reform, looking at the incremental developments and the historical, legal, social, and political implications of these changes. They investigate the effects, medicinal applications, and possible harms of marijuana. In the Weeds also considers arguments that youth will be heavy users of legalized cannabis, and shows how "weed" is demonized by exaggerations of the drug's risks and claims of its lack of medicinal value. Mosher and Akins end their timely and insightful book by tracing the distinct paths to the legalization of recreational marijuana in the United States and other countries as well as discussing what the future of marijuana law holds.

A Guide for Counselors in the AIDS Community

This practical and state-of-the-art compedium is a rich resource that should be a 'must read' for every health professional working in the field of HIV. . . . The book is bound to instantaneously become the standard against which other books in the field will be judged.
--Michael Shernoff, editor of The Second Decade of AIDS: A Mental Health Practice Handbook and Counseling Chemically DepAndent People with HIV Illness

Highlighting the work of pioneers in the field, this important book is a comprehensive resource for professionals and volunteers working in the HIV epidemic. Now that the epidemic has been with us for more than a decade, researchers and clinicians have had the opportunity to explore the results of the AIDS virus--see the populations affected, note the medical and emotional issues faced by those infected, and think about ways to help. This anthology offers a wealth of practical information and innovative advice. The authors address the therapeutic challenges of treating this population and offer guidance for dealing with issues such as countertransference, grief management, multiple loss, and assisted suicide. The book also describes specific treatment techniques for working with clients with HIV and dual diagnoses such as substance abuse and psychiatric disorders.

From the very beginning of the epidemic, AIDS was linked to punishment. Calls to punish people living with HIV-mostly stigmatized minorities-began before doctors had even settled on a name for the disease. Punitive attitudes toward AIDS prompted lawmakers around the country to introduce legislation aimed at criminalizing the behaviors of people living with HIV. Punishing Disease explains how this happened-and its consequences. With the door to criminalizing sickness now open, what other ailments will follow? As lawmakers move to tack on additional diseases such as hepatitis and meningitis to existing law, the question is more than academic.

We see it all the time: organizations strive to persuade the public to change beliefs or behavior through expensive, expansive media campaigns. Designers painstakingly craft clear, resonant, and culturally sensitive messaging that will motivate people to buy a product, support a cause, vote for a candidate, or take active steps to improve their health. But once these campaigns leave the controlled environments of focus groups, advertising agencies, and stakeholder meetings to circulate, the public interprets and distorts the campaigns in ways their designers never intended or dreamed. In Best Laid Plans, Terence E. McDonnell explains why these attempts at mass persuasion often fail so badly. McDonnell argues that these well-designed campaigns are undergoing "cultural entropy": the process through which the intended meanings and uses of cultural objects fracture into alternative meanings, new practices, failed interactions, and blatant disregard. Using AIDS media campaigns in Accra, Ghana, as its central case study, the book walks readers through best-practice, evidence-based media campaigns that fall totally flat. Female condoms are turned into bracelets, AIDS posters become home decorations, red ribbons fade into pink under the sun to name a few failures. These damaging cultural misfires are not random. Rather, McDonnell makes the case that these disruptions are patterned, widespread, and inevitable indicative of a broader process of cultural entropy.

Winner of the Sociology of Health and Illness Book Prize HIV has changed in the presence of recent biomedical technologies. In particular, the development of anti-retroviral therapies (ARVs) for the treatment of HIV was a significant landmark in the history of the disease. Treatment with ARV drug regimens, which began in 1996, has enabled many thousands to live with the human immunodeficiency virus without progressing to AIDS. Yet ARVs have also been fraught with problems of regimen compliance, viral resistance, and iatrogenic disease. Besides intensifying the technological and ethical complexities of medicine, the drugs have also affected conceptions of risk and risk practices, in turn presenting new challenges for prevention. In order to devise safer, more effective forms of treatment, prevention, and possibly cure, Marsha Rosengarten asserts, it is essential to understand the relationship between HIV, medical technologies, and ideas about the body. HIV is an entity that constitutes and is constituted by complex material and informational environments. Recognition of this two-way traffic between the medical science of HIV and the expression of HIV in individuals and societies provides a novel basis for devising new or supplementary modes of thinking about and intervening in the epidemic. Through such diverse materials as drug advertisements, pill formulations, scientific articles, clinical trials, diagnostic test results, and viral imaging as well as interviews with those living and working with HIV, Rosengarten provides numerous demonstrations of how the entities comprising the HIV epidemic - bodies, viral resistance, diagnostic results, safe sex - are forged through dynamic relations. These various phenomena challenge existing prevention models and raise social and ethical concerns about the impact of additional technologies such as HIV pre- and post-exposure prophylaxis and the promise of vaccines and microbicides. HIV Interventions is relevant to those engaged in questions of the social and ethical dimensions of biomedicine, biotechnology, and genomics. Further, the specific focus of the project offers HIV practitioners - in the sciences and social sciences, in clinical research, clinical practice, social research, policy development and prevention education - new perspectives and analytic tools for intercepting a virus that continues to endure and, most critically, to change in the course of doing so.

This is the tale of a devastating pandemic, of lives cut painfully short - it's also a love story. Derek, a distinguished designer, and J, a pioneering entrepreneur and creator of Heaven, the iconic gay dance club, met and fell in love more than 40 years ago. In the early 1980s their friends began to get sick and die - AIDS had arrived in their lives. When they got tested, J received what was then a death sentence: he was HIV Positive. While the onset of AIDS strengthened stigma and fear globally, they confronted their crisis with courage, humour and an indomitable resolve to survive. J's battle lasted six long years. Turning to spiritual reflection, yoga, nature - and always to love - Derek describes a transformation of the spirit, how compassion and empathy rose phoenix-like from the flames of sickness and death, and how he and J founded the charity Aids Ark, which has helped to save more than 1,000 HIV Positive lives. This is a story of joy and triumph, of facing universal challenges, of the great rewards that come from giving back. Derek speaks for a generation who lived through a global health crisis that many at the time refused even to acknowledge. His is a powerful story chronicling this extraordinary era.

When addressing the factors shaping HIV prevention programs in sub-Saharan Africa, it is important to consider the role of family planning programs that preceded the epidemic. In this book, Rachel Sullivan Robinson argues that both globally and locally, those working to prevent HIV borrowed and adapted resources, discourses, and strategies used for family planning. By combining statistical analysis of all sub-Saharan African countries with comparative case studies of Malawi, Nigeria, and Senegal, Robinson also shows that the nature of countries' interactions with the international community, the strength and composition of civil society, and the existence of technocratic leaders influenced variation in responses to HIV. Specifically, historical and existing relationships with outside actors, the nature of nongovernmental organizations, and perceptions of previous interventions strongly structured later health interventions through processes of path dependence and policy feedback. This book will be of great use to scholars and practitioners interested in global health, international development, African studies and political science.

The global response to HIV/AIDS has been a major aspect of global health and development policy over the last three decades. The book illustrates the devastating health impacts of the epidemic, with life expectancy in some countries falling to the lowest levels observed anywhere, and the remarkable success of the global HIV/AIDS response in reversing such extreme outcomes. Concerns about the implications of HIV/AIDS for economic development have played a role in motivating the global HIV/AIDS response. However, evidence on the impacts of HIV/AIDS on economic growth or poverty is weak, and the magnitude and relevance of such economic effects appears trivial compared to the consequences for life and health. Because of the success in extending access to treatment globally, HIV/AIDS has effectively transitioned into a chronic disease. This means that HIV/AIDS absorbs not only a substantial chunk of current global and national financial resources, but that these spending needs are projected to persist over decades. The costs of the HIV/AIDS response thus resemble a long-term financial liability, shaped by past and current policies. Relatedly, the calculus of cost-effectiveness of HIV/AIDS interventions has changed. People who become infected with HIV can now expect to not die because of AIDS; at the same time, each HIV infection results in medical needs and expenditures extending over decades. The book presents a framework for integrating these financial consequences and the transmission dynamics of HIV in the analysis of cost-effectiveness of HIV/AIDS interventions and in the design of HIV/AIDS programs.

AIDS has been a devastating plague in much of sub-Saharan Africa, yet the long-term implications for gender and sexuality are just emerging. AIDS and Masculinity in the African City tackles this issue head on and examines how AIDS has altered the ways masculinity is lived in Uganda - a country known as Africa's great AIDS success story. Based on a decade of ethnographic research in an urban slum community in the capital Kampala, this book reveals the persistence of masculine privilege in the age of AIDS and the implications such privilege has for combating AIDS across the African continent.

In the short, turbulent history of AIDS research and treatment, the boundaries between scientist insiders and lay outsiders have been crisscrossed to a degree never before seen in medical history. Steven Epstein's astute and readable investigation focuses on the critical question of "how certainty is constructed or deconstructed," leading us through the views of medical researchers, activists, policy makers, and others to discover how knowledge about AIDS emerges out of what he calls "credibility struggles." Epstein shows the extent to which AIDS research has been a social and political phenomenon and how the AIDS movement has transformed biomedical research practices through its capacity to garner credibility by novel strategies. Epstein finds that nonscientist AIDS activists have gained enough of a voice in the scientific world to shape NIH--sponsored research to a remarkable extent. Because of the blurring of roles and responsibilities, the production of biomedical knowledge about AIDS does not, he says, follow the pathways common to science; indeed, AIDS research can only be understood as a field that is unusually broad, public, and contested. He concludes by analyzing recent moves to democratize biomedicine, arguing that although AIDS activists have set the stage for new challenges to scientific authority, all social movements that seek to democratize expertise face unusual difficulties. Avoiding polemics and accusations, Epstein provides a benchmark account of the AIDS epidemic to date, one that will be as useful to activists, policy makers, and general readers as to sociologists, physicians, and scientists.

"Praise for the first edition:
"Farmer's sensitive exploration of the lives and deaths of the people at [the village of] Do Kay give his study a distinctly human face and an emotional edge.... The book is at the same time fiercely personal and coldly objective. The result is both moving and illuminating."-- "Science
"Farmer renders a richly layered and nuanced ethnographic portrait."-- "Harvard Educational Review
"This superbly crafted volume is dedicated to explaining and refuting a popular U.S. belief that AIDS came to the United States from Haiti. . . . Farmer has made an outstanding scholarly contribution to the 'anthropology of suffering, ' the assessment of illness as perceived and experienced by a patient embedded in an interlocking fabric of culture and history."-- "Medical Anthropology Quarterly

In 2008 it was believed that HIV/AIDS was without doubt the worst epidemic to hit humankind since the Black Death. The first case was identified in 1981; by 2004 it was estimated that about 40 million people were living with the disease, and about 20 million had died. Yet the outlook today is a little brighter. Although HIV/ AIDS continues to be a pressing public health issue the epidemic has stabilised globally, and it has become evident it is not, nor will it be, a global issue. The worst affected regions are southern and eastern Africa. Elsewhere, HIV is found in specific, usually, marginalised populations, for example intravenous drug users in Russia. Although there still remains no cure for HIV, there have been unprecedented breakthroughs in understanding the disease and developing drugs. Access to treatment over the last ten years has turned AIDS into a chronic disease, although it is still a challenge to make antiviral treatment available to all that require it. We also have new evidence that treatment greatly reduces infectivity, and this has led to the movement of 'Treatment as Prevention'. In this Very Short Introduction Alan Whiteside provides an introduction to AIDS, tackling the science, the international and local politics, the demographics, and the devastating consequences of the disease. He looks at the problems a developing international 'AIDS fatigue' poses to funding for sufferers, but also shows how domestic resources are increasingly being mobilised, despite the stabilisation of international funding. Finally Whiteside considers how the need to understand and change our behaviour has caused us to reassess what it means to be human and how we should operate in the globalizing world. ABOUT THE SERIES: The Very Short Introductions series from Oxford University Press contains hundreds of titles in almost every subject area. These pocket-sized books are the perfect way to get ahead in a new subject quickly. Our expert authors combine facts, analysis, perspective, new ideas, and enthusiasm to make interesting and challenging topics highly readable.

Thirty years after the identification of the disease that became known as AIDS, humanitarian organizations warn that the fight against HIV/AIDS has slowed, amid a funding shortfall and donor fatigue. In this book, Bjorn Lomborg brings together research by world-class specialist authors, a foreword by UNAIDS founding director Peter Piot and perspectives from Nobel Laureates and African civil society leaders to identify the most effective ways to tackle the pandemic across sub-Saharan Africa. There remains an alarming lack of high-quality data evaluating responses to HIV. We still know too little about what works, where and how to replicate our successes. This book offers the first comprehensive attempt by teams of authors to analyze HIV/AIDS policy choices using cost-benefit analysis, across six major topics. This approach provides a provocative fresh look at the best ways to scale up the fight against this killer epidemic.

In the late 1970s and early 1980s, when HIV first entered the world's blood supply, more than half of the 17,000 hemophiliacs in the United States became infected with the AIDS-causing virus. In Blood on Their Hands, attorney Eric Weinberg and journalist Donna Shaw provide an insider's look at the epic legal battle fought over what has been called the worst medically induced epidemic in the history of modern medicine and one of the twentieth century's worst public health disasters. As one of the key members of the legal team involved with the class action suit filed by the infected, Eric Weinberg was faced with a daunting task: prove the negligence of a powerful, well-connected global industry with billions of dollars in sales at risk. Weinberg and fellow attorneys representing AIDS-stricken hemophiliacs also had to explain why governments and regulators from several nations had failed their clients. Blood on Their Hands underscores how heroic clients, even as they were nearing death, fought tirelessly for justice.

AIDS is devastating many areas of sub-Saharan Africa.
Over twelve million people in the region have died of AIDS in the past decade.
Over 29.4 million people in the region are infected with HIV.
Of the eleven people who contract HIV "each minute" in the world, ten live in sub-Saharan Africa.

With no known cure and no vaccine as yet available, an estimated 600f Africans under the age of eighteen today will be dead of AIDS before they reach 45 years of age. Most prevention programs have largely failed because the research behind them has focused primarily on "risk groups," behavioral change models, and flawed understandings of cultural practices.

"HIV and AIDS in Africa: Beyond Epidemiology" seeks to shift the predominant understandings generated by biomedical and epidemiological research, recognizing that HIV transmission in sub-Saharan Africa is a complex and regionally-specific phenomenon rooted in local economies, deepening poverty, migration, gender, war, global economies, and cultural politics. International contributors from across the social sciences further our understanding of AIDS by looking at the epidemic from angles often inadequately explored. Ultimately, the underlying message of every contributor to this book is that AIDS is not going to diminish in Africa until social, gender, and economic inequities are addressed in meaningful ways.

Conversations between AIDS counsellors and their clients bring delicate and potentially threatening issues into play. In this study Anssi Perakyla applies the principles of conversation analysis to his exploration of AIDS counselling, using data from video-recorded counselling sessions in a London teaching hospital. He meticulously analyses this data to show how various questioning techniques, in this case arising from the Milan School Family Systems theory, operate in these situations, and how counsellors attempt through the design and placement of their questions to achieve the cooperation of their clients, with varying success. His conclusions provide a timely and illuminating insight into the management of a sensitive topic through various techniques of indirectness.

With a Foreword by Desmond Tutu, Generation at Risk brings insightful perspectives from experienced practitioners and researchers on how a better future can be secured for the millions of children who are being orphaned or made vulnerable by HIV/AIDS. The current situation of these children is grim, and while there has been significant action by governments, international organizations, religious bodies, and non-governmental organizations, the vast majority of children made vulnerable by AIDS have not benefited from any assistance beyond their own extended family and community. A Generation at Risk explains in straightforward terms what is required to fill this gap. The book addresses what needs to be done in the areas of education, community mobilization and capacity building, economic strengthening at household and community levels, psychosocial support, and the protection of children and the fulfilment of their rights.

Effective treatment for HIV and AIDS came in 1996. For sufferers in the developed world, this marked a true watershed moment: the end of the death sentence. But for many in the developing world, including in Southeast Asia, these new treatments remained far out of reach. In his early thirties, following the loss of his partner to an AIDS-related illness, Chris Beyrer wrote the first edition of War in the Blood. Three decades later, having served as president of the International AIDS Society, he believes we have arrived at an extraordinary milestone. For the first time, a patient has been demonstrably cured of HIV, new vaccine trials in Thailand have shown great promise, and the PrEP programme genuinely works. So why are over half of the estimated 38.8 million people living with HIV still not on treatment? War in the Blood is a labour of love, both a celebratory account of Southeast Asia and the story of our failure to protect those most vulnerable the world over - gay men, adolescent girls, sex workers, drug users, and transgender women. Beyrer offers an impassioned plea for our communities and governments - and our own hearts and minds - to stop denying the realities of sex, sexuality, and gender, and to take affirmative action.

A Generation at Risk brings up-to-date and insightful perspectives from experienced practitioners and researchers on how a better future can be secured for the millions of children who are being orphaned or made vulnerable by HIV/AIDS. The current situation of these children is grim, and while there has been significant action in the last few years by governments, international organizations, religious bodies, and nongovernmental organizations, the vast majority of children made vulnerable by AIDS have not benefited from any assistance from beyond their own extended family and community. A Generation at Risk explains in straightforward terms what is required to fill this gap. The book addresses what needs to be done in the areas of education, community mobilization and capacity building, economic strengthening at household and community levels, psychosocial support, and the protection of children and the fulfillment of their rights.