A coming-of-age memoir of life on the front lines of the AIDS crisis with ACT UP New York. From the moment Ron Goldberg stumbled into his first ACT UP meeting in June 1987, the AIDS activist organization became his life. For the next eight years, he chaired committees, planned protests, led teach-ins, and facilitated their Monday night meetings. He cruised and celebrated at ACT UP parties, attended far too many AIDS memorials, and participated in more than a hundred zaps and demonstrations, becoming the group's unofficial "Chant Queen," writing and leading chants for many of their major actions. Boy with the Bullhorn is both a memoir and an immersive history of the original New York chapter of ACT UP, the AIDS Coalition to Unleash Power, from 1987 to 1995, told with great humor, heart, and insight. Using the author's own story, "the activist education of a well-intentioned, if somewhat naive nice gay Jewish theater queen," Boy with the Bullhorn intertwines Goldberg's experiences with the larger chronological history of ACT UP, the grassroots AIDS activist organization that confronted politicians, scientists, drug companies, religious leaders, the media, and an often uncaring public to successfully change the course of the AIDS epidemic. Diligently sourced and researched, Boy with the Bullhorn provides both an intimate look into how activist strategies are developed and deployed and a snapshot of life in New York City during the darkest days of the AIDS epidemic. On the occasions where Goldberg writes outside his personal experience, he relies on his extensive archive of original ACT UP documents, news articles, and other published material, as well as activist videos and oral histories, to help flesh out actions, events, and the background stories of key activists. Writing with great candor, Goldberg examines the group's triumphs and failures, as well as the pressures and bad behaviors that eventually tore ACT UP apart. A story of ordinary people doing extraordinary things, from engaging in outrageous, media-savvy demonstrations, to navigating the intricacies of drug research and the byzantine bureaucracies of the FDA, NIH, and CDC, Boy with the Bullhorn captures the passion, smarts, and evanescent spirit of ACT UP-the anger, grief, and desperation, but also the joy, camaraderie, and sexy, campy playfulness-and the exhilarating adrenaline rush of activism.

There is now a vast literature on HIV and AIDS but much of it is based on traditional biomedical or epidemiological approaches. Hence it tells us very little about the experiences of the millions of people whose living and dying constitute the reality of this devastating pandemic. Doyal brings together findings from a wide range of empirical studies spanning the social sciences to explore experiences of HIV positive people across the world. This will illustrate how the disease is physically manifested and psychologically internalised by individuals in diverse ways depending on the biological, social, cultural and economic circumstances in which they find themselves. A proper understanding of these commonalities and differences will be essential if future strategies are to be effective in mitigating the effects of HIV and AIDS. Doyal shows that such initiatives will also require a better appreciation of the needs and rights of those affected within the wider context of global inequalities and injustices. Finally, she outlines approaches to address these challenges. This book will appeal to everyone involved in struggles to improve the well-being of those with HIV and AIDS. While academically rigorous, it is written in an accessible manner that transcends specific disciplines and, through its extensive bibliography, provides diverse source material for future teaching, learning and research.

The Culture of AIDS in Africa enters into the many worlds of expression brought forth across this vast continent by the ravaging presence of HIV/AIDS. Africans and non-Africans, physicians and social scientists, journalists and documentarians share here a common and essential interest in understanding creative expression in crushing and uncertain times. They investigate and engage the social networks, power relationships, and cultural structures that enable the arts to convey messages of hope and healing, and of knowledge and good counsel to the wider community. And from Africa to the wider world, they bring intimate, inspiring portraits of the performers, artists, communities, and organizations that have shared with them their insights and the sense they have made of their lives and actions from deep within this devastating epidemic.
Covering the wide expanse of the African continent, the 30 chapters include explorations of, for example, the use of music to cope with AIDS; the relationship between music, HIV/AIDS, and social change; visual approaches to HIV literacy; radio and television as tools for "edutainment;" several individual artists' confrontations with HIV/AIDS; various performance groups' response to the epidemic; combating HIV/AIDS with local cultural performance; and more. Source material, such as song lyrics and interviews, weaves throughout the collection, and contributions by editors Gregory Baz and Judah M. Cohen bookend the whole, to bring together a vast array of perspectives and sources into a nuanced and profoundly affective portrayal of the intricate relationship between HIV/AIDS and the arts in Africa.

Foreword by Amartya Sen (Nobel Prize for Economics, 1998) Afterword by Kailash Satyarthi (Nobel Peace Prize, 2014) In 2005, Nick Danziger began to create an archive of photographs documenting the lives of women and children in eight of the world's poorest countries. He returned five years later, and again in 2015. Had the United Nation's millennium development goals made a difference to their lives? The stories he tells - in pictures and words - are unforgettable and have created a unique document, one that reveals the uncomfortable truths of a globalised planet. It is full of hope, sadness, pain, anger and beauty. Some of the women and children Nick followed died through sickness and poverty. One has become the most successful entrepreneur her African border town has ever known. Another - who once dreamed of becoming a banker - is now a gang member in the world's murder capital. Yet another has confronted conformists and successfully changed his gender. The book will stand as a permanent record of their courage and humanity, but also as a reminder that much work still needs to be done if these goals are ever to be met. Too many people in India, Cambodia, Zambia, Uganda, Niger, Honduras, Bolivia and Armenia are still living in extreme poverty, without access to the health and education the goals were supposed to deliver.

How to Survive a Plague by David France is the riveting, powerful and profoundly moving story of the AIDS epidemic and the grass-roots movement of activists, many of them facing their own life-or-death struggles, who grabbed the reins of scientific research to help develop the drugs that turned HIV from a mostly fatal infection to a manageable disease. Around the globe, the 15.8 million people taking anti-AIDS drugs today are alive thanks to their efforts.

Not since the publication of Randy Shilts's now classic And the Band Played On in 1987 has a book sought to measure the AIDS plague in such brutally human, intimate, and soaring terms.

Weaving together the stories of dozens of individuals, this is an insider's account of a pivotal moment in our history and one that changed the way that medical science is practised worldwide.

Winner of the Sociology of Health and Illness Book Prize 2008 Of approximately 37 million HIV positive people in the world, 24.7 million live in sub-Saharan Africa and about 5..5 million in South Africa. Despite its relatively powerful economy and infrastructure, South Africa has been dramatically affected by the HIV pandemic. Using narrative analysis of a three year interview study and textual analysis of political materials, HIV in South Africa examines the impact of HIV on people's everyday lives in the country. Examining the relationship between personal accounts of living with HIV and wider medical, political and religious discourses, the book also highlights the significance of class, race and gender on individuals' experiences. These engaging stories of everyday lives provide an accessible way to connect with HIV as a health and development issue. Fascinating, challenging and constructive, this is an important contribution in an area of great social relevance. The ebook is available free of charge to those with addresses on the United Nations Development Programme's Human Development Index of Medium and Low Rankings (see http://hdr.undp.org/hdr2006/pdfs/report/HDR_2006_Tables.pdf), who can apply to the following address: www.ebookstore.tandf.co.uk

Dawning Answers charts the legacy of the global HIV/AIDS epidemic to the theory and practice of public health. Richly detailed chapters describe how advances in techniques and startegies to monitor health events, develop public policy, set funding priorities, mobilize communities, support the adoption of safer behaviors, ensure access to needed prevention and treatment services, and involve affected populations in public health research, intervention, and evaluation, all owe a substantial debt to those who have adapted, redefined, and extended these techniques and startegies in response to HIV/AIDS. The book offers thoughtful analyses from experts in various fields and disciplines. Although most of the examples reflect the U.S. experience, relevant examples from other countries are cited, and an entire chapter is devoted to the evolving impact of HIV/AIDS on global health and development. Devastating as the losses from AIDS have been, the many public health lessons learned as a result of the epidemic have positively influenced other domains of public health and will continue to exert an influence on new approaches to health assessment, policy development, and assurance.

An international team of eighteen doctors, philosophers, and lawyers present a fresh and thorough discussion of the ethical, legal, and social issues raised by testing and screening for HIV and AIDS. They aim to point the way to practical advances but also to give an accessible guide for those new to the debate.

Based on interviews with women who are HIV positive, this sobering pandemic brings to light the deeply rooted and complex problems of living with HIV. Already pushed to the edges of society by poverty, racial politics, and gender injustice, women with HIV in South Africa have found ways to cope with work and men, disclosure of their HIV status, and care for families and children to create a sense of normalcy in their lives. As women take control of their treatment, they help to determine effective routes to ending the spread of the disease.

The late-20th century has witnessed dramatic technological developments in biomedical science and the delivery of health care, and these developments have brought with them important social changes. All too often ethical analysis has lagged behind these changes. The purpose of the "Issues in Biomedical Ethics" series is to provide lively, up-to-date, and authoritative studies for the increasingly large and diverse readership concerned with issues in biomedical ethics - not just health care trainees and professionals, but also social scientists, philosophers, lawyers, social workers and legislators. The focus of this volume is the testing and screening for HIV and AIDS which gives rise to ethical, legal and social issues of the most controversial and delicate kind. An international team of 18 doctors, philosophers and lawyers present a fresh and thorough discussion of these issues; they aim to show the way to practical advances but also to give an accessible guide to the debates for readers new to them. The contributors pay particular attention to the sensitive nature of the information yielded by a test for HIV antibody. They consider such questions as these: Are we under an obliga

This book examines the issues surrounding the growing epidemic of women and children with HIV and AIDS. It explores such issues as discrimination in employment, housing, health care, and education, and looks at medical testing, confidentiality, reproductive freedom, income assistance, child welfare, and child custody. Focusing on the federal and state statutes that protect women and children with HIV and AIDS from discrimination, this book also examines the statutes that govern the operation of the public systems to which significant numbers of women with HIV and AIDS turn to for financial and medical needs, housing assistance, and social services. Clear and accessible, this book is vital reading for anyone interested in learning more about the policies, provisions, and legal concepts surrounding this issue.

This book offers an original anthropological approach to the AIDS epidemic in South Africa. Based on a more than fifteen years association with the region, it demonstrates why AIDS interventions in the former homeland of Venda have failed and possibly even been counterproductive. It does so through a series of ethnographic encounters, from kings to condoms, which expose the ways in which biomedical understanding of the virus have been rejected by and incorporated into local understandings of health, illness, sex, and death. Through the songs of female initiation, AIDS education, and wandering minstrels, the book argues that music is central to understanding how AIDS interventions operate. This book elucidates a hidden world of meaning in which people sing about what they cannot talk about, where educators are blamed for spreading the virus, and in which condoms are often thought to cause AIDS. The policy implications are clear: African worldviews must be taken seriously if AIDS interventions in Africa are to become successful.

Historically, the fields of public health and human rights have remained largely separate. The AIDS pandemic, however, made it clear that a complex relationship exists between the two fields. Women and children have proven to be extremely vulnerable to infection with HIV due to their inability to protect themselves in intimate relationships, their sexual exploitation, and their lack of economic and educational alternatives. On the other hand, coercive government policies aimed at controlling the AIDS pandemic often infringe on the rights of individuals known or suspected of having AIDS, and decrease the effectiveness of public health measures. Protecting and promoting human rights is becoming one of the key means of preserving the health of individuals and populations. A penetrating analysis of the close relationship between public health and human rights, this book makes a compelling case for synergy between the two fields. Using the AIDS pandemic as a lens, the authors demonstrate that human health cannot be maintained without respect for the dignity and rights of persons, and that human rights cannot be deemed adequate and comprehensive without ensuring the health of individuals and populations. In the course of their analysis, Gostin and Lazzarini tackle some of the most vexing issues of our time, including the universality of human rights and the counter-claims of cultural relativity. Taking a cue from environmental impact assessments, they propose a human rights impact assessment for examining health policies. Such a tool will be invaluable for evaluating real-world public health problems and is bound to become essential for teaching human rights in schools of public health, medicine, government, and law. The volume critically examines such issues as HIV testing, screening, partner notification, isolation, quarantine, and criminalization of persons with HIV/AIDS, all within the framework of international human rights law. The authors evaluate the public health effects of a wide range of AIDS policies in developed as well as developing countries. The role of women in society receives special emphasis. Finally, the book presents three case histories that are important in the HIV/AIDS pandemic: discrimination and the transmission of HIV and tuberculosis in an occupational health care setting; breast feeding in the least developed countries; and confidentiality and the right of sexual partners to know of potential exposure to HIV. The cases challenge readers with some of the complex questions facing policy-makers, scientists, and public health professionals, and exemplify a method for analysing these problems from a human rights perspective. Gostin and Lazzarini have written a book that will be a valuable addition to the libraries of public health teachers and practitioners, legal scholars, bioethicists, policy makers, and public rights activists.

Winner, 2018 Donald W. Light Award for Applied Medical Sociology, American Sociological Association Medical Sociology Section Winner, 2018 Distinguished Scholarship Award presented by the Pacific Sociology Association Honorable Mention, 2017 ESS Mirra Komarovsky Book Award presented by the Eastern Sociological Society Outstanding Book Award for the Section on Altruism, Morality, and Social Solidarity presented by the American Sociological Association A rich, multi-faceted examination into the attitudes and beliefs of parents who choose not to immunize their children The measles outbreak at Disneyland in December 2014 spread to a half-dozen U.S. states and sickened 147 people. It is just one recent incident that the medical community blames on the nation's falling vaccination rates. Still, many parents continue to claim that the risks that vaccines pose to their children are far greater than their benefits. Given the research and the unanimity of opinion within the medical community, many ask how such parents-who are most likely to be white, college educated, and with a family income over $75,000-could hold such beliefs. For over a decade, Jennifer Reich has been studying the phenomenon of vaccine refusal from the perspectives of parents who distrust vaccines and the corporations that make them, as well as the health care providers and policy makers who see them as essential to ensuring community health. Reich reveals how parents who opt out of vaccinations see their decision: what they fear, what they hope to control, and what they believe is in their child's best interest. Based on interviews with parents who fully reject vaccines as well as those who believe in "slow vax," or altering the number of and time between vaccinations, the author provides a fascinating account of these parents' points of view. Placing these stories in dialogue with those of pediatricians who see the devastation that can be caused by vaccine-preventable diseases and the policy makers who aim to create healthy communities, Calling the Shots offers a unique opportunity to understand the points of disagreement on what is best for children, communities, and public health, and the ways in which we can bridge these differences.

Since the 1980s HIV/AIDS has occupied a singular position because of the rapidly emergent threat and devastation the disease has caused, particularly in sub-Saharan Africa. New infections continue to create a formidable challenge to households, communities, and health systems: last year alone, 2.7 million new infections occurred globally. Sub-Saharan Africa remains the epicenter of the suffering, with around two-thirds of infected individuals worldwide found there, and a disproportionate number of deaths and new infections.

For years there have been widespread and concerted efforts to prevent the spread of HIV/AIDS, identify a cure, and understand and mitigate the deleterious social and economic ramifications of the disease. Despite these efforts, and some apparent successes, there is still a long way to go in terms of altering behaviors in order to realize the objective of dramatic reductions in the spread of HIV/AIDS in Africa. The authors in this volume examine the HIV/AIDS crisis in Africa, which persists despite major strides in averting deaths due to antiretroviral therapy. They tell an important story of the distinct nature of the disease and its socioeconomic implications.

Throughout the debate over how - and if - AIDS education should be taught to school age children, teachers who want to bring the subject of AIDS into their classroom have had few, if any, resources to guide them. This work responds to the need for AIDS education material with a practice-based, interactive curriculum that should enable teachers to effectively educate students about the risk of AIDS and HIV infection. It begins with a discussion of how teachers can create an environment of support for an AIDS education programme. Recognizing that AIDS education must differ for students of different age groups, the text presents tailored, age-appropriate material - what and how teachers should communicate AIDS information to young children, older children and teenage students. It also addresses actual methods teachers can use to influence their students' attitudes and behaviour by helping them to recognize problem situations in which risks might arise, and presenting them with the actual skills they need to protect themselves in such situations.

This is the tale of a devastating pandemic, of lives cut painfully short - it's also a love story. Derek, a distinguished designer, and J, a pioneering entrepreneur and creator of Heaven, the iconic gay dance club, met and fell in love more than 40 years ago. In the early 1980s their friends began to get sick and die - AIDS had arrived in their lives. When they got tested, J received what was then a death sentence: he was HIV Positive. While the onset of AIDS strengthened stigma and fear globally, they confronted their crisis with courage, humour and an indomitable resolve to survive. J's battle lasted six long years. Turning to spiritual reflection, yoga, nature - and always to love - Derek describes a transformation of the spirit, how compassion and empathy rose phoenix-like from the flames of sickness and death, and how he and J founded the charity Aids Ark, which has helped to save more than 1,000 HIV Positive lives. This is a story of joy and triumph, of facing universal challenges, of the great rewards that come from giving back. Derek speaks for a generation who lived through a global health crisis that many at the time refused even to acknowledge. His is a powerful story chronicling this extraordinary era.

Courage and Hope gives voice to the real life experiences of 12 HIV-positive teachers, five of whom are women, from Burkina Faso, Cameroon, Ghana, Kenya, Mozambique, Rwanda, Senegal, Tanzania (both Mainland and Zanzibar) and Zambia. The teachers recount their experiences of discovering their HIV-positive status and how this has affected them in their families, their communities, and their professional lives. Their stories are documented by journalists, emphasizing the human dimension. The voices of these teachers suggest that a number of obstacles are commonly faced by teachers living with HIV. Paramount among them are stigma and discrimination, both within their families and communities as well as their workplaces and in society more generally. The difficulties of overcoming stigma and discrimination are further exacerbated by a failure to ensure confidentiality in the workplace. The voices of these teachers also suggest that these obstacles could be usefully addressed by: * Fully implementing existing national and institutional policies. * Increasing involvement of teachers living with HIV in setting policies and giving practical advice. * Providing universal access to voluntary counselling and testing, care and support. * Addressing HIV issues during teacher training activities to reduce stigma among teachers and to equip teachers with the skills to avoid infection and teach young people about HIV, including avoiding infection and focusing on stigma and discrimination reduction. Each teacher presents a unique story demonstrating a wide range of challenges as well as insights and successes and, individually as well as collectively, displaying extraordinary courage and hope.

The inability of the medical establishment to effectively curtail the rapid spread of the HIV/AIDS epidemic in South Africa, coupled with the questionable response to HIV/AIDS by the state and the public debates around the issue have all combined to draw attention to the sociological aspects of health and disease and to put them in the public arena. There is also an increasing recognition that health practitioners need to have a better understanding of the social aspects of health and disease. Sociology as a resource of knowledge and a unique analytical and conceptual perspective can be used to understand, to explain and to positively influence the course of the epidemic and our response to it.

Methods designed to guide the allocation of healthcare so as to maximize population health have been criticized as fundamentally unfair. In a closer analysis of this ethical critique of the use of cost-effectiveness author Daniel M. Hausman responds to the main complaints about the unfairness of cost-effectiveness, while also recognizing that there should be other factors-especially in cases of discrimination-guiding health-related treatment. Central to How Health Care Can Be Cost-Effective and Fair is whether cost-effective allocation of healthcare violates ethical constraints. Several commentators argue that using cost-effective reasoning to guide the distribution of healthcare is fundamentally unfair, not just because it does not take distribution into account, but because it fails to prioritize the severity of illness and fails to give everyone, and especially disabled people and those from historically underprivileged populations, a fair chance of being treated. While Hausman recognizes the complexity and shortcomings of cost-effective reasoning, he maintains that it should be a leading principle in the allocation of health-related resources. In Hausman's view, many values-such as compassion, freedom, respect, and solidarity should govern healthcare in addition to promoting well-being and treating individuals fairly. In its efforts to promote population health fairly, healthcare should respond to and respect individuals' values and choices.

Whenever the topic of large jails and public hospitals in urban America is raised, a single idea comes to mind. It is widely believed that because we as a society have dis-invested from public health, the sick and poor now find themselves within the purview of criminal justice institutions. In Redistributing the Poor, ethnographer and historical sociologist Armando Lara-Millan takes us into the day-to-day operations of running the largest hospital and jail system in the world and argues that such received wisdom is a drastic mischaracterization of the way that states govern urban poverty at the turn of the 21st century. Rather than focus on our underinvestment of health and overinvestment of criminal justice, his idea of "redistributing the poor" draws attention to how state agencies circulate people between different institutional spaces in such a way that generates revenue for some agencies, cuts costs for others, and projects illusions that services have been legally rendered. By centering the state's use of redistribution, Lara-Millan shows how certain forms of social suffering-the premature death of mainly poor, people of color-are not a result of the state's failure to act, but instead the necessary outcome of so-called successful policy.

Early in the 1980s AIDS epidemic, six gay activists created one of the most iconic and lasting images that would come to symbolize a movement: a protest poster of a pink triangle with the words "Silence=Death." The graphic and the slogan still resonate widely today, the latter an anthem for AIDS activism, and are often used-and misused-to brand the entire movement, appearing in a variety of ubiquitous manifestations. Cofounder of the collective Silence=Death and member of the art collective Gran Fury, Avram Finkelstein tells the story of how his work and other protest artworks associated with the early years of the pandemic were created. In his writing about art and AIDS activism, the formation of collectives, and the political process, Finkelstein exposes us to a different side of the traditional HIV/AIDS history told twenty-five years later and offers a creative toolbox for those who want to learn how art and activism save lives.

The HIV/AIDS epidemic in Africa has defined the childhoods of an entire generation. Over the past twenty years, international NGOs and charities have devoted immense attention to the millions of African children orphaned by the disease. But in Crying for Our Elders, anthropologist Kristen Cheney argues that these humanitarian groups have misread the crisis. Moreover, she explains how the global humanitarian focus on orphanhood often elides the social and political circumstances that present the greatest adversity to vulnerable children in effect, actually deepening the crisis and thereby affecting children's lives as irrevocably as the disease itself. Through ethnographic fieldwork and collaborative research with children in Uganda, Cheney traces how the 'best interest' principle that governs development work targeting children often does more harm than good, stigmatizing orphans and leaving children in the post-antiretroviral era even more vulnerable to exploitation. She details the dramatic effects this has on traditional family support and child protection, and stresses child empowerment over pity. Crying for Our Elders advances current discussions on humanitarianism, children's studies, orphanhood, and kinship. By exploring the unique experience of AIDS orphanhood through the eyes of children, caregivers, and policymakers, Cheney shows that despite the extreme challenges of growing up in the era of HIV/AIDS, the post-ARV generation still holds out hope for the future.

For over a hundred years, millions of Americans have joined together to fight a common enemy by campaigning against diseases. In Common Enemies, Rachel Kahn Best asks why disease campaigns have dominated a century of American philanthropy and health policy and how the fixation on diseases shapes efforts to improve lives. Combining quantitative and qualitative analyses in an unprecedented history of disease politics, Best shows that to achieve consensus, disease campaigns tend to neglect stigmatized diseases and avoid controversial goals. But despite their limitations, disease campaigns do not crowd out efforts to solve other problems. Instead, they teach Americans to give and volunteer and build up public health infrastructure, bringing us together to solve problems and improve our lives.

Whenever the topic of large jails and public hospitals in urban America is raised, a single idea comes to mind. It is widely believed that because we as a society have dis-invested from public health, the sick and poor now find themselves within the purview of criminal justice institutions. In Redistributing the Poor, ethnographer and historical sociologist Armando Lara-Millan takes us into the day-to-day operations of running the largest hospital and jail system in the world and argues that such received wisdom is a drastic mischaracterization of the way that states govern urban poverty at the turn of the 21st century. Rather than focus on our underinvestment of health and overinvestment of criminal justice, his idea of "redistributing the poor" draws attention to how state agencies circulate people between different institutional spaces in such a way that generates revenue for some agencies, cuts costs for others, and projects illusions that services have been legally rendered. By centering the state's use of redistribution, Lara-Millan shows how certain forms of social suffering-the premature death of mainly poor, people of color-are not a result of the state's failure to act, but instead the necessary outcome of so-called successful policy.