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Books > Social sciences > Sociology, social studies > Social issues > Illness & addiction: social aspects > AIDS: social aspects
AIDS and the Distribution of Crises engages with the AIDS pandemic as a network of varied historical, overlapping, and ongoing crises born of global capitalism and colonial, racialized, gendered, and sexual violence. Drawing on their investments in activism, media, anticolonialism, feminism, and queer and trans of color critiques, the scholars, activists, and artists in this volume outline how the neoliberal logic of "crisis" structures how AIDS is aesthetically, institutionally, and politically reproduced and experienced. Among other topics, the authors examine the writing of the history of AIDS; settler colonial narratives and laws impacting risk in Indigenous communities; the early internet regulation of both content and online AIDS activism; the Black gendered and sexual politics of pleasure, desire, and (in)visibility; and how persistent attention to white men has shaped AIDS as intrinsic to multiple, unremarkable crises among people of color and in the Global South. Contributors. Cecilia Aldarondo, Pablo Alvarez, Marlon M. Bailey, Emily Bass, Darius Bost, Ian Bradley-Perrin, Jih-Fei Cheng, Bishnupriya Ghosh, Roger Hallas, Pato Hebert, Jim Hubbard, Andrew J. Jolivette, Julia S. Jordan-Zachery, Alexandra Juhasz, Dredge Byung'chu Kang-Nguyen, Theodore (Ted) Kerr, Catherine Yuk-ping Lo, Cait McKinney, Viviane Namaste, Elton Naswood, Cindy Patton, Margaret Rhee, Juana Maria Rodriguez, Sarah Schulman, Nishant Shahani, C. Riley Snorton, Eric A. Stanley, Jessica Whitbread, Quito Ziegler
Conversations between AIDS counsellors and their clients bring delicate and potentially threatening issues into play. In this study Anssi Perakyla applies the principles of conversation analysis to his exploration of AIDS counselling, using data from video-recorded counselling sessions in a London teaching hospital. He meticulously analyses this data to show how various questioning techniques, in this case arising from the Milan School Family Systems theory, operate in these situations, and how counsellors attempt through the design and placement of their questions to achieve the cooperation of their clients, with varying success. His conclusions provide a timely and illuminating insight into the management of a sensitive topic through various techniques of indirectness.
This book addresses the ongoing problem of HIV in black South African women as a health inequity. Importantly, it argues that this urgent problem of justice is changeable. Sprague uses the capabilities approach to bring a theory of health justice, together with multiple sources of evidence, to investigate the complex problem of HIV and accompanying poor health outcomes in black South African women. Motivated by a concern for application of knowledge, this work discusses how to better conceptualise what health justice demands of state and society, and how to mobilise available evidence on health inequities in ways that compel greater state action to address problems of gender and health. HIV in women, and possible responses, are investigated on four distinct levels: conceptual, social structure, health systems, and law. The analysis demonstrates that this problem is indeed modifiable with long-term interventions and an enhanced state response targeted at multiple levels. This book will be of interest to academics and students in the social health sciences, gender and development studies, and global health, as well as HIV/health activists, government officials, policy makers, HIV clinicians and health providers interested in HIV.
The impact of AIDS cannot be adequately measured by epidemiology alone. As the editors of this volume argue, AIDS must be understood as a 'disease of society', which is challenging and changing society profoundly. Numerous books on AIDS have looked at the ways in which our social institutions, norms and values have determined how the disease has been dealt with, but this book, first published in 1991, examines the ways in which AIDS is, in turn, changing our social institutions, norms and values. It explores the impact of AIDS on the arts and popular entertainment, on our concept of family, on government and legal institutions and on the health services, and the ways in which AIDS is forcing society to come to terms with longstanding tensions between community values and individual rights.
This module is designed to improve the awareness, knowledge and skills of health professionals on poverty and gender concerns in the field of HIV/AIDS. Experience increasingly shows that the socioeconomic factors contributing to the rapid spread of HIV in the Region include low education, limited access to health care services and increased mobility within and between countries-factors that are largely determined by poverty and gender inequality. The growing commitment to curbing the HIV/AIDS epidemic requires that health professionals at community, provincial, national and international levels have the knowledge, skills and tools to more effectively respond to the health needs of poor and marginalized people and address the gender inequalities fuelling the epidemic. However, many health professionals in the Region are not adequately prepared to address these issues. This module is designed to help fill this gap. This module, which is part of a Sourcebook for health professionals, is intended to be used in pre-service and in-service training of health professionals. It is divided into six sections: Section 1 provides a brief overview of the HIV/AIDS pandemic and an understanding of HIV/AIDS; Section 2 examines What the links are between poverty, gender and HIV/AIDS; Section 3 discusses why it is important for health professionals to address HIV/AIDS, from efficiency, equity and human rights perspectives; Section 4 discusses how health professionals can address poverty and gender concerns in HIV/AIDS; Section 5 provides notes for facilitators; and finally, Section 6 contains a collection of tools, resources and references to support health professionals in their work in this field.
To date, there is a dearth of surveillance data on the prevalence of HIV and associated risk behaviours among men who have sex with men (MSM) in South Africa. This is particularly true for data collected from several sites using the same sampling approach. This study called the Marang Men's Project was undertaken to fill this information gap. It was implemented among MSM in the three largest cities of South Africa, namely, Cape Town in the Western Cape, Durban in KwaZulu-Natal and Johannesburg in Gauteng. The high HIV prevalence estimates found in our study among MSM in each of the three study cities call for a need to implement a national HIV bio-behavioural surveillance programme for MSM. The Marang Men's Project has demonstrated that there is an urgent need for interventions, which respond not only to the heterosexual HIV epidemic but also to the HIV epidemic among MSM in South Africa. This survey therefore provides valuable information to SANAC, the national and provincial Departments of Health (DoHs), and lesbian, gay, bisexual, transgender and intersex (LGBTI) organisations to both implement and advocate for improved programmes for the health of MSM.
A citizen's guide to America's most debated policy-in-waiting There are few issues as consequential in the lives of Americans as health care-and few issues more politically vexing. Every single American will interact with the health care system at some point in their lives, and most people will find that interaction less than satisfactory. And yet for every dollar spent in our economy, 19 cents go to health care. What are we paying for, exactly? Health care policy is notoriously complex, but what Americans want is quite simple: good health care that's easy to use and doesn't break the bank. Polls show that as many as 70 percent of Americans want the government to provide universal health coverage to all Americans. What's less clear is how to get there. Medicare for All is the leading proposal to achieve to universal health coverage in America. But what is it exactly? How would it work? More importantly, is it practical or practicable? This book goes beyond partisan talking points to offer a serious examination of how Medicare for All would transform the way we give, receive, and pay for healthcare in America.
Currently 6.4 million people in South Africa live with HIV, this figure represents a quarter of the burden of HIV infections in sub-Saharan Africa and 18 per cent of the global burden. With this view, the South African National HIV Prevalence, Incidence and Behaviour Survey, 2012 is a crucial report for government, policy makers and other stakeholders as they work towards reducing the HIV epidemic in South Africa. This 2012 HIV survey is the fourth in the series of national population-based surveys. The survey was conducted from December 2011 to November 2012. As with previous surveys, it was designed to investigate the overall HIV prevalence, incidence and behaviour as well as social determinants that drive the epidemic. It also served to collect data to help monitor the National Strategic Plan 2007-2011 and set the baseline for the 2012-2016 NSP. This report is a must-read and essential for researchers who want to understand the HIV dynamics in South Africa.
Educator Patti Lather and psychologist Chris Smithies observed and chronicled support groups for women diagnosed with HIV. Whether black, Latina, poor, or middle class, the women in these groups share the common bond of living with HIV/AIDS, and they describe how it affects their lives in terms full of practical reality and moving poignancy, as they fight the disease, accept, reflect, live and die with and in it.
For years, technologists and computer scientists have promised an AI revolution that would transform the very basis of how we imagine and administer modern medicine. AI-driven advancements in medical error rates, diagnostic accuracy, or disease outbreak detection could potentially save thousands of lives. But health AI also carries the potential for exacerbating deep systemic biases if left unchecked. The Doctor and the Algorithm combines insights from science and technology studies, critical algorithm studies, and public interest informatics to better understand the promise and peril of health AI. The book draws on case studies in automated diagnostics, algorithmic pain measurement, AI-driven drug discovery, and death prediction to investigate how health AI is made, promoted, and justified. It explores the enthusiastic promises of health AI marketing communication and medical futurism while also analyzing the inequitable outcomes new AI technology often creates for already marginalized communities. Finally, the book closes with specific recommendations for regulatory frameworks that might support more ethical and equitable approaches to health AI in the future. Interweaving textual analysis and original informatics, The Doctor and the Algorithm offers a sobering analysis of the promise of medical AI against the real and unintended consequences that deep medicine can bring for patients, providers, and public health alike.
Since the democratic elections in 1994, there have been concerted efforts to redress race and gender inequalities in South Africa. Learners and teachers have responded in their own ways to change and this nuanced analysis reveals their struggles to realise gender equality by living gender differently. In distinguishing short-term interventions to change behaviour from institutional approaches, which seek to transform school structures, this book offers a new framework for understanding gender-equality initiatives.
For young gay men who came of age in the United States in the 1980s, the HIV/AIDS epidemic was a formative experience in fear, hardship, and loss. Those who were diagnosed before 1996 suffered an exceptionally high rate of mortality, and the survivors-both the infected individuals and those close to them-today constitute a "bravest generation" in American history. The AIDS Generation: Stories of Survival and Resilience examines the strategies for survival and coping employed by these HIV-positive gay men, who together constitute the first generation of long-term survivors of the disease. Through interviews conducted by the author, it narrates the stories of gay men who have survived since the early days of the epidemic; documents and delineates the strategies and behaviors enacted by men of this generation to survive it; and examines the extent to which these approaches to survival inform and are informed by the broad body of literature on resilience and health. The stories and strategies detailed here, all used to combat the profound physical, emotional, and social challenges faced by those in the crosshairs of the AIDS epidemic, provide a gateway for understanding how individuals cope with chronic and life-threatening diseases. Halkitis takes readers on a journey of first-hand data collection (the interviews themselves), the popular culture representations of these phenomena, and his own experiences as one of the men of the AIDS generation. This riveting account will be of interest to health practitioners and historians throughout the clinical and social sciences-or to anyone with an interest in this important chapter in social history.
** With a new introduction by Russell T Davies ** A new edition of the award-winning, ground-breaking account of the early AIDS crisis in Britain. 'A remarkable journalistic achievement.' Time Out 'Powerful . . . Indispensable.' Observer 'Superb.' London Review of Books Winner of the Somerset Maugham Prize How does a country control a virus that is killing increasing numbers of people? How does a government contain an epidemic spread by sex, drug use and blood products? And how does a population react when told that everyone is at risk from infection? By 1986, when the British Government woke up to the problem of AIDS, it estimated that 30,000 people had already been infected with HIV. Why was it so slow to act? Would the situation have been different if most of those affected had not been gay men? Award-winning journalist Simon Garfield presents a story of political intrigue, of panic and hysteria, of wasted opportunities and of a medical battle conducted against seemingly impossible odds. Including interviews with key figures in the fight against the virus as well as those facing personal devastation and prejudice, The End of Innocence is an important and powerful story, compellingly told. Features a new afterword by the author.
Following the detection of the first HIV infections in the early 1980s, by the 1990s Thailand was routinely depicted as having the world's fastest moving HIV/AIDS epidemic. However, by the early 2000's the bulk of scholarly and medical AIDS literature portrayed the epidemic as being largely under control, and claimed that Thai AIDS prevention efforts during the 1990s had been successful. Based on long-term ethnographic research conducted in Northern Thailand this book makes an in-depth study of the social construction of Thailand's HIV/AIDS epidemic over this period. In addition to his own field research the author draws on an extensive corpus of English and Thai language social science and medical HIV/AIDS literature to examine the modeling of Thailand's AIDS epidemic, and addresses concepts and issues such as risk groups, risk behaviour, alcohol use, gender and class, masculinity, the scapegoating of female prostitutes and men in the underclass, the reporting of the HIV/AIDS epidemic in Thailand's indigenous Thai language media, and sexual activity amongst Thai youth. The analysis demonstrates the contribution of anthropology as an interpretative social science, and the use of anthropological theory and research methods, to finding alternative ways of framing the problems of Thai AIDS and of posing new questions that will lead to more effective points of intervention. It emphasises the necessity for critically reflexive approaches that question the 'taken for granted' and demonstrates how qualitative research techniques guided by social theory have the potential to take account of local meanings in complex social contexts where traditional values and cultural practices are rapidly transforming due to economic and social change. The book offers a sustained and powerful criticism of the limitations of the normative model of the Thai AIDS epidemic and, in its aim of promoting critically reflexive AIDS research techniques in order to produce a better understanding of issues 'on the ground' and hence better health policy and more effective AIDS interventions, speaks not only to the Thai AIDS epidemic but to AIDS epidemics throughout Southeast Asia and elsewhere. This is the only English language study of Thailand's HIV/AIDS epidemic to draw on long-term qualitative research in Northern Thailand as well as on a broad range of Thai (and some Khmer language) materials. Its contextualised and subtly nuanced analysis of the AIDS epidemic and of the impact of AIDS control initiatives, in concert with the theoretical and methodological contributions it makes to AIDS research and policy and behavioural interventions, makes it a timely publication of vital interest to scholars in the social sciences, as well as to the members of non-governmental organisations and international organisations working in the HIV/AIDS, health and development fields.
In the short, turbulent history of AIDS research and treatment, the boundaries between scientist insiders and lay outsiders have been crisscrossed to a degree never before seen in medical history. Steven Epstein's astute and readable investigation focuses on the critical question of "how certainty is constructed or deconstructed," leading us through the views of medical researchers, activists, policy makers, and others to discover how knowledge about AIDS emerges out of what he calls "credibility struggles." Epstein shows the extent to which AIDS research has been a social and political phenomenon and how the AIDS movement has transformed biomedical research practices through its capacity to garner credibility by novel strategies. Epstein finds that nonscientist AIDS activists have gained enough of a voice in the scientific world to shape NIH--sponsored research to a remarkable extent. Because of the blurring of roles and responsibilities, the production of biomedical knowledge about AIDS does not, he says, follow the pathways common to science; indeed, AIDS research can only be understood as a field that is unusually broad, public, and contested. He concludes by analyzing recent moves to democratize biomedicine, arguing that although AIDS activists have set the stage for new challenges to scientific authority, all social movements that seek to democratize expertise face unusual difficulties. Avoiding polemics and accusations, Epstein provides a benchmark account of the AIDS epidemic to date, one that will be as useful to activists, policy makers, and general readers as to sociologists, physicians, and scientists.
?????? Medecins Sans Frontieres (MSF) is an international humanitarian organization, committed to providing medical assistance to populations in danger and to raising awareness of the plight of the people they help. Today MSF is active in more than 60 countries in the world. ?????? MSF has been working in Peru since 1985. In Peru, the prevalence of HIV/AIDS is low, but highest amongst the most neglected members of society there, mainly homosexual men and commercial sex workers. Since 2004, MSF has offered HIV/AIDS care in the slum of Villa El Salvador, Lima. ?????? In Lima, MSF has been working in Lurigancho, one of the most populated prisons of Latin America. In this prison the risk of contracting HIV/AIDS is 5 to 7 times higher than in the rest of the country. ?????? At the end of 2007 MSF hand over all Peruvian projects to local authorities, leaving the country after almost 25 years. ?????? Larry Towell (Magnum Photos) was commissioned by MSF to travel to the prison and the slums in Lima to photograph the result of MSF's 25-year presence, and show that the area is now ready to continue its fight against HIV and AIDS on its own. ?????? Towell brings us black and white images of people shunned by society and desperate through poverty, their situation exacerbated through the endemic HIV and AIDS in their already marginalised population. MSF has targeted their cause for the past 25 years. ?????? This book is a celebration of their work and the people whose existence they have salvaged.
There is now a vast literature on HIV and AIDS but much of it is based on traditional biomedical or epidemiological approaches. Hence it tells us very little about the experiences of the millions of people whose living and dying constitute the reality of this devastating pandemic. Doyal brings together findings from a wide range of empirical studies spanning the social sciences to explore experiences of HIV positive people across the world. This will illustrate how the disease is physically manifested and psychologically internalised by individuals in diverse ways depending on the biological, social, cultural and economic circumstances in which they find themselves. A proper understanding of these commonalities and differences will be essential if future strategies are to be effective in mitigating the effects of HIV and AIDS. Doyal shows that such initiatives will also require a better appreciation of the needs and rights of those affected within the wider context of global inequalities and injustices. Finally, she outlines approaches to address these challenges. This book will appeal to everyone involved in struggles to improve the well-being of those with HIV and AIDS. While academically rigorous, it is written in an accessible manner that transcends specific disciplines and, through its extensive bibliography, provides diverse source material for future teaching, learning and research.
The Culture of AIDS in Africa enters into the many worlds of
expression brought forth across this vast continent by the ravaging
presence of HIV/AIDS. Africans and non-Africans, physicians and
social scientists, journalists and documentarians share here a
common and essential interest in understanding creative expression
in crushing and uncertain times. They investigate and engage the
social networks, power relationships, and cultural structures that
enable the arts to convey messages of hope and healing, and of
knowledge and good counsel to the wider community. And from Africa
to the wider world, they bring intimate, inspiring portraits of the
performers, artists, communities, and organizations that have
shared with them their insights and the sense they have made of
their lives and actions from deep within this devastating epidemic.
HIV/AIDS affects women worldwide. Elderly women bear a disproportionate burden of caring for those who are afflicted with the disease, while young women increasingly comprise the majority of new HIV cases. Intervention programs often fail to take into account the particular situations and behaviors that make women more vulnerable than men. Though policy debates increasingly include women and gender considerations, funds and resources for women, especially those already suffering with HIV/AIDS, remain inadequate. "Women's Experiences with HIV/AIDS" gives voice to the experience of individual women whose personal stories reveal the daily struggles and concerns that fill their lives, but are ignored in the larger dialogues about HIV/AIDS. Women and men from diverse backgrounds discuss the differences between women within and across cultures and how particular traditions and attitudes can affect the prevention of, or vulnerability to, HIV/AIDS. The authors address not only women's empirical experiences, but also their personal feelings, beliefs, and expectations as reflected in their narratives. Approaching the issue from several disciplines, "Women's Experiences with HIV/AIDS" paves the way for the empowerment of women by bringing them directly into the debates concerned with their protection against HIV/AIDS. This collection, edited by two well-known scholars in this field, provides a much-needed critical examination of the interventions and policies that do not yet fully address the needs and limitations of women and girls suffering with, or confronting the possibility of, infection.
Foreword by Amartya Sen (Nobel Prize for Economics, 1998) Afterword by Kailash Satyarthi (Nobel Peace Prize, 2014) In 2005, Nick Danziger began to create an archive of photographs documenting the lives of women and children in eight of the world's poorest countries. He returned five years later, and again in 2015. Had the United Nation's millennium development goals made a difference to their lives? The stories he tells - in pictures and words - are unforgettable and have created a unique document, one that reveals the uncomfortable truths of a globalised planet. It is full of hope, sadness, pain, anger and beauty. Some of the women and children Nick followed died through sickness and poverty. One has become the most successful entrepreneur her African border town has ever known. Another - who once dreamed of becoming a banker - is now a gang member in the world's murder capital. Yet another has confronted conformists and successfully changed his gender. The book will stand as a permanent record of their courage and humanity, but also as a reminder that much work still needs to be done if these goals are ever to be met. Too many people in India, Cambodia, Zambia, Uganda, Niger, Honduras, Bolivia and Armenia are still living in extreme poverty, without access to the health and education the goals were supposed to deliver.
Winner of the Sociology of Health and Illness Book Prize 2008 Of approximately 37 million HIV positive people in the world, 24.7 million live in sub-Saharan Africa and about 5..5 million in South Africa. Despite its relatively powerful economy and infrastructure, South Africa has been dramatically affected by the HIV pandemic. Using narrative analysis of a three year interview study and textual analysis of political materials, HIV in South Africa examines the impact of HIV on people's everyday lives in the country. Examining the relationship between personal accounts of living with HIV and wider medical, political and religious discourses, the book also highlights the significance of class, race and gender on individuals' experiences. These engaging stories of everyday lives provide an accessible way to connect with HIV as a health and development issue. Fascinating, challenging and constructive, this is an important contribution in an area of great social relevance. The ebook is available free of charge to those with addresses on the United Nations Development Programme's Human Development Index of Medium and Low Rankings (see http://hdr.undp.org/hdr2006/pdfs/report/HDR_2006_Tables.pdf), who can apply to the following address: www.ebookstore.tandf.co.uk
Dawning Answers charts the legacy of the global HIV/AIDS epidemic to the theory and practice of public health. Richly detailed chapters describe how advances in techniques and startegies to monitor health events, develop public policy, set funding priorities, mobilize communities, support the adoption of safer behaviors, ensure access to needed prevention and treatment services, and involve affected populations in public health research, intervention, and evaluation, all owe a substantial debt to those who have adapted, redefined, and extended these techniques and startegies in response to HIV/AIDS. The book offers thoughtful analyses from experts in various fields and disciplines. Although most of the examples reflect the U.S. experience, relevant examples from other countries are cited, and an entire chapter is devoted to the evolving impact of HIV/AIDS on global health and development. Devastating as the losses from AIDS have been, the many public health lessons learned as a result of the epidemic have positively influenced other domains of public health and will continue to exert an influence on new approaches to health assessment, policy development, and assurance.
An international team of eighteen doctors, philosophers, and lawyers present a fresh and thorough discussion of the ethical, legal, and social issues raised by testing and screening for HIV and AIDS. They aim to point the way to practical advances but also to give an accessible guide for those new to the debate.
Much has been written about how many parents, children and educators are infected or affected by HIV and Aids. However, little has been offered in the way of practical, pedagogical and emotional help for teachers dealing with HIV and Aids in their classrooms. This updated book is an attempt to help those teachers cope on a day-to-day basis in the classroom. This revised edition of Dealing with HIV and Aids in the classroom was inspired by reflections, comments and photographs provided by real teachers who created a new understanding of what it is like to be a teacher in a world where HIV and Aids are endemic.
The late-20th century has witnessed dramatic technological developments in biomedical science and the delivery of health care, and these developments have brought with them important social changes. All too often ethical analysis has lagged behind these changes. The purpose of the "Issues in Biomedical Ethics" series is to provide lively, up-to-date, and authoritative studies for the increasingly large and diverse readership concerned with issues in biomedical ethics - not just health care trainees and professionals, but also social scientists, philosophers, lawyers, social workers and legislators. The focus of this volume is the testing and screening for HIV and AIDS which gives rise to ethical, legal and social issues of the most controversial and delicate kind. An international team of 18 doctors, philosophers and lawyers present a fresh and thorough discussion of these issues; they aim to show the way to practical advances but also to give an accessible guide to the debates for readers new to them. The contributors pay particular attention to the sensitive nature of the information yielded by a test for HIV antibody. They consider such questions as these: Are we under an obliga |
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