Self-sacrificing mothers and forgiving wives, caretaking lesbians, and vigilant maternal surrogates these "good women" are all familiar figures in the visual and print culture relating to AIDS. In a probing critique of that culture, Katie Hogan demonstrates ways in which literary and popular works use the classic image of the nurturing female to render "queer" AIDS more acceptable, while consigning women to conventional roles and reinforcing the idea that everyone with this disease is somehow suspect.In times of crisis, the figure of the idealized woman who is modest and selfless has repeatedly surfaced in Western culture as a balm and a source of comfort and as a means of mediating controversial issues. Drawing on examples from journalism, medical discourse, fiction, drama, film, television, and documentaries, Hogan describes how texts on AIDS reproduce this historically entrenched paradigm of sacrifice and care, a paradigm that reinforces biases about race and sexuality. Hogan believes that the growing nostalgia for women's traditional roles has deflected attention away from women's own health needs. Throughout her book, she depicts caretaking as a fundamental human obligation, but one that currently falls primarily to those members of society with the least power. Only by rejecting the stereotype of the "good woman," she says, can Americans begin to view caretaking as the responsibility of the entire society."

When an artist dies we face two great losses: the person and the work he did not live to do. This book is a moving collaboration by some of America's most eloquent writers, who supply wry, raging, sorrowful, and buoyant accounts of artist friends and lovers struck down by AIDS. These essayists include Maya Angelou, Alan Gurganus, Brad Gooch, John Berendt, Craig Lucas, Robert Rosenblum, and 18 others. Many of the subjects of the essays were already prominent - James Merrill, Paul Monette, David Wojnarowicz - but many others died young, before they were able to fulfil the promise of their lives and art. ""Loss Within Loss"" spans all of the arts and includes portraits of choreographers, painters, poets, actors, playwrights, sculptors, editors, composers, and architects. This text is published in association with the Estate Project for Artists with AIDS, a national organization that preserves art works created by artists living with HIV or lost to AIDS. ""Loss Within Loss"" stands as a reminder of the devastating impact of the AIDS epidemic on the arts community and as a survey of that devastation.

Over the past five centuries, waves of diseases have ravaged and sometimes annihilated Native American communities. The latest of these silent killers is HIV/AIDS. The first book to detail the devastating impact of the disease on Native Americans, Killing Us Quietly fully and minutely examines the epidemic and its social and cultural consequences among three groups in three geographical areas. Through a series of personal narratives, the book also vividly conveys the terrible individual and emotional toll the disease is taking on Native lives. Exploring Native urban, reservation, and rural perspectives, as well as the viewpoints of Native youth, women, gay or bisexual men, this study combines statistics, Native demography and histories, and profiles of Native organizations to provide a broad understanding of HIV/AIDS among Native Americans. The book confronts the unique economic and political circumstances and cultural practices that can encourage the spread of the disease in Native settings. And perhaps most important, it discusses prevention strategies and educational resources. A much-needed overview of a national calamity, "Killing Us Quietly" is an essential resource for Natives and non-Natives alike.

This revised and updated edition of the pathbreaking report on the global AIDS epidemic outlines the strategic role that government must play in slowing the spread of HIV and mitigating the impact of AIDS. Drawing on the knowledge accumulated in the 17 years since the virus that causes AIDS was first identified, the report highlights policies that are most likely to be effective in managing the epidemic. These include early actions to minimize the spread of the virus, aiming preventive interventions at high risk groups, and evaluating measures that would assist households affected by AIDS according to the same standards applied to other health issues. This revised edition will a valuable resource for public health, policymakers, researchers, and anyone with an interest in this devastating global health crisis.

When a nursing facility for AIDS patients is planned for a city neighborhood, residents might be expected to respond, "Not in my backyard." But, as Jane Balin recounts in A Neighborhood Divided, when that community is known for its racial and ethnic diversity and liberal attitudes, public reaction becomes less predictable and in many ways more important to comprehend.An ethnographer who spent two years talking with inhabitants of a progressive neighborhood facing this prospect, Jane Balin demonstrates that the controversy divided residents in surprising ways. She discovered that those most strongly opposed to the facility lived furthest away, that families with young children were evenly represented in the two camps, and that African Americans followed a Jewish community leader in opposing the home while dismissing their own minister's support of it. By viewing each side sympathetically and allowing participants to express their true feelings about AIDS, the author invites readers to recognize their own anxieties over this sensitive issue. Balin's insightful work stresses the importance of uncovering the ideologies and fears of middle-class Americans in order to understand the range of responses that AIDS has provoked in our society. Its ethnographic approach expands the parameters of NIMBY research, offering a clearer picture of the multi-faceted anxieties that drive responses to AIDS at both the local and national levels.

When a nursing facility for AIDS patients is planned for a city neighborhood, residents might be expected to respond, "Not in my backyard." But, as Jane Balin recounts in A Neighborhood Divided, when that community is known for its racial and ethnic diversity and liberal attitudes, public reaction becomes less predictable and in many ways more important to comprehend.An ethnographer who spent two years talking with inhabitants of a progressive neighborhood facing this prospect, Jane Balin demonstrates that the controversy divided residents in surprising ways. She discovered that those most strongly opposed to the facility lived furthest away, that families with young children were evenly represented in the two camps, and that African Americans followed a Jewish community leader in opposing the home while dismissing their own minister's support of it. By viewing each side sympathetically and allowing participants to express their true feelings about AIDS, the author invites readers to recognize their own anxieties over this sensitive issue. Balin's insightful work stresses the importance of uncovering the ideologies and fears of middle-class Americans in order to understand the range of responses that AIDS has provoked in our society. Its ethnographic approach expands the parameters of NIMBY research, offering a clearer picture of the multi-faceted anxieties that drive responses to AIDS at both the local and national levels.

Last year, more African Americans were reported with AIDS than any other racial or ethnic group. And while African Americans make up only 13 percent of the U.S. population, they account for more than 55 percent of all newly diagnosed HIV infections. These alarming developments have caused reactions ranging from profound grief to extreme anger in African-American communities, yet the organized political reaction has remained remarkably restrained.
"The Boundaries of Blackness" is the first full-scale exploration of the social, political, and cultural impact of AIDS on the African-American community. Informed by interviews with activists, ministers, public officials, and people with AIDS, Cathy Cohen unflinchingly brings to light how the epidemic fractured, rather than united, the black community. She traces how the disease separated blacks along different fault lines and analyzes the ensuing struggles and debates.
More broadly, Cohen analyzes how other cross-cutting issues--of class, gender, and sexuality--challenge accepted ideas of who belongs in the community. Such issues, she predicts, will increasingly occupy the political agendas of black organizations and institutions and can lead to either greater inclusiveness or further divisiveness.
"The Boundaries of Blackness," by examining the response of a changing community to an issue laced with stigma, has much to teach us about oppression, resistance, and marginalization. It also offers valuable insight into how the politics of the African-American community--and other marginal groups--will evolve in the twenty-first century.

Written by a team of nationally recognized African American social work professionals with extensive and distinguished backgrounds of HIV/AIDS service, the book examines the crisis facing African American communities. The editors strive to convey to academics, researchers, and students the magnitude of the crisis and that individuals and organizations serving African Americans need to be able to respond to the service delivery needs this crisis brings.

The crisis is evident in the fact that by year 2000 fully 50% of all AIDS cases will be among African Americans--who only constitute 12% of the nation's population. This book serves as a wake-up call and is designed to stimulate discussion and planning for new models of service to all African Americans and HIV prevention, education, and treatment.

AIDS

"None of us is so unique as to be exempt from the human condition."

As the numbers of reported AIDS cases continue to climb, and the disease continues to take more and more lives, those who have to deal with the complexities of this problem continue to ask: "How do we care for these terminally ill?"

Using letters from patients, questions and answers between patient and doctor, and other compassionate tools, Dr. Elisabeth Kübler-Ross, the world's foremost expert on death and dying, shows us how to comfort the seriously ill and help AIDS patients through the critical "stages of dying" She addresses the stigma surrounding AIDS as a "gay disease" and makes a special plea for prisoners with AIDS, for women and children with AIDS, and for babies with AIDS. This remarkable book is warm and informative on one of the most important subjects of our time.

With the startling blend of satiric wit, pathos, and heroism found in his acclaimed and iconoclastic novels, Feinberg--who died in 1994 at the age of 37--charts a harrowing journey down that "HIV highway to hell". "This is AIDS literature for a new generation--funny, impertinent, sexy, and enlightening".--The Advocate.

Janice and Bill were the perfect couple. They met during college, got married and began promising careers. But in 1987 their storybook life was shattered forever when they were diagnosed with HIV. Janice explains how they coped.

Through the voices of people living with HIV or AIDS, this text explores the ways in which HIV affects personal, family and work relationships. It draws on the experinces of black and white, heterosexual and gay, women and men with or without symtoms who show how they work through everyday life.

The American public responded to the first cases of AIDS with fear and panic. Both policymakers and activists were concerned not only with stopping the spread of the disease, but also with guiding the public's response toward those already infected. Fatal Advice is an examination of how the nation attempted, with mixed results, to negotiate the fears and concerns brought on by the epidemic. A leading writer on the cultural politics of AIDS, Cindy Patton guides us through the thicket of mass-media productions, policy and public health enterprises, and activist projects as they sprang up to meet the challenge of the epidemic, shaping the nation's notion of what safe-sex is and who ought to know what about it. There is the official story, and then there is another, involving local groups and AIDS activists. Going back to early government and activist attempts to spread information, Patton traces a slow separation between official advice and that provided by those on the front lines in the battle against AIDS. She shows how American anxieties about teen sex played into the nation's inadequate education and protection of its young people, and chronicles the media's attempts to encourage compassion without broaching the touchy subject of sex or disrupting the notion that AIDS was a disease of social and sexual outcasts. Her overview of the relationship between shifting medical perceptions and safe-sex advice reveals why radical safe-sex educators eventually turned to sexually explicit, including pornographic, representations to spread their message-and why even these extreme tactics could not overcome the misguided national teaching on AIDS. Patton closes with a stirring manifesto, an urgent call to action for all those who do not want to see the hard lessons of AIDS education and activism wasted, or, with these lessons, the loss of so many more lives.

AIDS strikes most heavily at those already marginalized by conventional society. With no immediate prospect of vaccination or cure, how can liberty, dignity, and reasoned hope be preserved in the shadow of an epidemic? In this humane and graceful book, philosopher Timothy Murphy offers insight into our attempts - popular and academic, American and non-American, scientific and political - to make moral sense of pain. Murphy addresses the complex moral questions raised by AIDS for health-care workers, politicians, policy makers, and even people with AIDS themselves. He ranges widely, analyzing contrasting visions of the origin and the future of the epidemic, the moral and political functions of obituaries, the uncertain value of celebrity involvement in anti-AIDS education, the functional uses of AIDS in the discourse of presidential campaigns, the exclusionary function of HIV testing for immigrants, the priority given to AIDS on the national health agenda, and the hypnotic publicity given to 'innocent' victims. Murphy's discussions of the many social and political confusions about AIDS are unified by his attempt to articulate the moral assumptions framing our interpretations of the epidemic. By understanding those assumptions, we will be in a better position to resist self-serving and invidious moralizing, reckless political response, and social censure of the sick and the dying.

Community based organizations assist participants in developing social skills and familiar language for negotiating and practicing safer, non-risky behaviors. AIDS education and awareness is best achieved in local community groups through the use of interactive group sharing and non-professional language. Supportive and informed mutual aid can be extended through community based organizations and can alleviate the psychological effects of isolation, homophobia, abandonment, and political disinterest created by society at large. AIDS therapy and prevention is best accomplished in settings that encourage one-to-one communication and compassion. The seventeen authors of this masterful compilation of AIDS research and policy make a strong case for community organizations as valiant warriors in one of this century's most threatening epidemics against humanity.

"The authors provide important new information about the changing evolution of the HIV/AIDS pandemic, the persons it is affecting, and its global impact. . . . Most important, it presents a compassionate and prophetic vision of what the church's response ought to be. . . ".--James B. Nelson, Professor of Christian Ethics, United Theological Seminary of the Twin Cities, New Brighton, Minnesota.

An indispensable guide to every aspect of at-home care This thoroughly practical guide details the daily routines and unique concerns that are essential to quality at-home care of people with AIDS. From setting up a safe and comfortable environment to making medical and legal choices and solving emotional problems, each vital issue is covered in depth. Every caregiver and person with AIDS will benefit from this supportive, comprehensive resource.

• Detailed information on protecting against infection
• Concise instructions for both ambulatory and bedridden patients
• How to administer intravenous feedings and medication
• Appendices covering lab tests, alternative therapies, and the latest experimental drugs
• The differences between caring for men and women with AIDS
• Tips for caregivers on maintaining their own health and well-being

From the very beginning of the epidemic, AIDS was linked to punishment. Calls to punish people living with HIV-mostly stigmatized minorities-began before doctors had even settled on a name for the disease. Punitive attitudes toward AIDS prompted lawmakers around the country to introduce legislation aimed at criminalizing the behaviors of people living with HIV. Punishing Disease explains how this happened-and its consequences. With the door to criminalizing sickness now open, what other ailments will follow? As lawmakers move to tack on additional diseases such as hepatitis and meningitis to existing law, the question is more than academic.

In the years since the end of apartheid, South Africans have enjoyed a progressive constitution, considerable access to social services for the poor and sick, and a booming economy that has made their nation into one of the wealthiest on the continent. At the same time, South Africa experiences extremely unequal income distribution, and its citizens suffer the highest prevalence of HIV in the world. As Archbishop Desmond Tutu has noted, "AIDS is South Africa's new apartheid." In Ancestors and Antiretrovirals, Claire Laurier Decoteau backs up Tutu's assertion with powerful arguments about how this came to pass. Decoteau traces the historical shifts in health policy after apartheid and describes their effects, detailing, in particular, the changing relationship between biomedical and indigenous health care, both at the national and the local level. Decoteau tells this story from the perspective of those living with and dying from AIDS in Johannesburg's squatter camps. At the same time, she exposes the complex and often contradictory ways that the South African government has failed to balance the demands of neoliberal capital with the considerable health needs of its population.

This provocative study examines the role of today's Russian Orthodox Church in the treatment of HIV/AIDS. Russia has one of the fastest-growing rates of HIV infection in the world - 80 per cent from intravenous drug use - and the Church remains its only resource for fighting these diseases. Jarrett Zigon takes the reader into a Church-run treatment center where, along with self-transformational and religious approaches, he explores broader anthropological questions - of morality, ethics, what constitutes a 'normal' life, and who defines it as such. Zigon argues that this rare Russian partnership between sacred and political power carries unintended consequences: even as the Church condemns the influence of globalization as the root of the problem it seeks to combat, its programs are cultivating citizen-subjects ready for self-governance and responsibility, and better attuned to a world the Church ultimately opposes.

AIDS has been a devastating plague in much of sub-Saharan Africa, yet the long-term implications for gender and sexuality are just emerging. AIDS and Masculinity in the African City tackles this issue head on and examines how AIDS has altered the ways masculinity is lived in Uganda - a country known as Africa's great AIDS success story. Based on a decade of ethnographic research in an urban slum community in the capital Kampala, this book reveals the persistence of masculine privilege in the age of AIDS and the implications such privilege has for combating AIDS across the African continent.

The Sub-Specialty Care of HIV-Infected Patients is a synthesis of current policies, practices, and recommendations regarding the management of HIV-infected patients, authored by academicians at two major Houston medical institutions, Baylor College of Medicine and the University of Texas at Houston. The chapters represent the traditional sub-specialties of internal medicine, with infectious disease represented in chapters on immunizations and on the current new directions in antiretroviral management. Additional clinical material is provided by members from the Department of Medicine, the Department of Neurology, and the Department of Psychiatry. The material is intended as a discussion of current positions and directions, with the realization that these change often and that the material is intended thus to be current pertaining to the date of submission (October 31, 2017). Almost all of the providers for this book have worked at the Thomas Street Clinic in Houston, a multidisciplinary, free-standing clinic dedicated to the care of HIV-infected patients and the dedicatee of this work.

Since the beginning of the acquired immunodeficiency syndrome (AIDS) epidemic in the early 1980s, many individuals living with the disease have had difficulty finding affordable, stable housing. As individuals become ill, they may find themselves unable to work, while at the same time facing health care expenses that leave few resources to pay for housing. In addition, many persons living with AIDS struggled to afford housing even before being diagnosed with the disease. The financial vulnerability associated with AIDS, as well as the human immunodeficiency virus (HIV) that causes AIDS, results in a greater likelihood of homelessness among persons living with the disease. At the same time, those who are homeless may be more likely to engage in activities through which they could acquire or transmit HIV. Further, recent research has indicated that individuals living with HIV who live in stable housing have better health outcomes than those who are homeless or unstably housed, and that they spend fewer days in hospitals and emergency rooms. This book describes research that shows how housing and health status are related and the effects of stable housing on patient health. It also describes the Housing Opportunities for Persons with AIDS (HOPWA) program, the only federal program that provides housing and services specifically for persons who are HIV positive or who have AIDS, together with their families. In addition, the book describes how a small portion of funds appropriated through the Ryan White HIV/AIDS program may be used by states and local jurisdictions to provide short-term housing assistance for persons living with HIV/AIDS.