The Republic of Therapy tells the story of the global response to the HIV epidemic from the perspective of community organizers, activists, and people living with HIV in West Africa. Drawing on his experiences as a physician and anthropologist in Burkina Faso and Cote d'Ivoire, Vinh-Kim Nguyen focuses on the period between 1994, when effective antiretroviral treatments for HIV were discovered, and 2000, when the global health community acknowledged a right to treatment, making the drugs more available. During the intervening years, when antiretrovirals were scarce in Africa, triage decisions were made determining who would receive lifesaving treatment. Nguyen explains how those decisions altered social relations in West Africa. In 1994, anxious to "break the silence" and "put a face to the epidemic," international agencies unwittingly created a market in which stories about being HIV positive could be bartered for access to limited medical resources. Being able to talk about oneself became a matter of life or death. Tracing the cultural and political logic of triage back to colonial classification systems, Nguyen shows how it persists in contemporary attempts to design, fund, and implement mass treatment programs in the developing world. He argues that as an enactment of decisions about who may live, triage constitutes a partial, mobile form of sovereignty: what might be called therapeutic sovereignty.

In the late 1980s, after a decade spent engaged in more routine interest-group politics, thousands of lesbians and gay men responded to the AIDS crisis by defiantly and dramatically taking to the streets. But by the early 1990s, the organization they founded, ACT UP, was no more--even as the AIDS epidemic raged on. Weaving together interviews with activists, extensive research, and reflections on the author's time as a member of the organization, "Moving Politics" is the first book to chronicle the rise and fall of ACT UP, highlighting a key factor in its trajectory: emotion.

Surprisingly overlooked by many scholars of social movements, emotion, Gould argues, plays a fundamental role in political activism. From anger to hope, pride to shame, and solidarity to despair, feelings played a significant part in ACT UP's provocative style of protest, which included raucous demonstrations, die-ins, and other kinds of street theater. Detailing the movement's public triumphs and private setbacks, "Moving Politics" is the definitive account of ACT UP's origin, development, and decline as well as a searching look at the role of emotion in contentious politics.

As the HIV epidemic enters its third decade, it remains one of the most pressing health issues of our time. Many aspects of the disease remain under-researched and inadequate attention has been given to the implications for the relationships and daily lives of those affected by HIV. Disclosing an HIV diagnosis remains a decision process fraught with difficulty and despite encouraging medical advances, an HIV diagnosis creates significant anxiety and distress about one's health, self-identity, and close relationships. This book provides an overarching view of existing research on privacy and disclosure while bringing together two significant areas: self-disclosure as a communication process and the social/relational consequences of HIV/AIDS. The unifying framework is communication privacy management and the focus of this volume is on private voluntary relational disclosure as opposed to forced or public disclosure. Utilizing numerous interviews with HIV patients and their families, the authors examine disclosure in a variety of social contexts, including relationships with intimate partners, families, friends, health workers, and coworkers. Of note are the examinations of predictors of willingness to disclose HIV infection, the message features of disclosure, and the consequences of both disclosure and non-disclosure. This volume, with its personal exercises and sources of additional information, offers an invaluable resource for individuals living with HIV and their significant others, as well as for professionals in the fields of health communication, social and health psychology, family therapy, clinical and counseling psychology, relationship research, infectious disease, and social service.

A well-informed portrait, part social critique, part memoir, of sexual mores and homosexuality in provincial Mexico.

Although adopting global norms often improves domestic systems of governance, domestic obstacles to norm diffusion are frequent. States that decide to reinvent their political authority simultaneously evaluate which current global norms are desirable and to what extent. In this study, Vlad Kravtsov argues that recent debates about the nature of authority in Putin's Russia and Mbeki's South Africa have resulted in a set of unique ideas on the cardinal goals of the state. This is the first book to explore how these consensual ideas have shaped health governance and impinged on norm diffusion processes. Detailed comparisons of HIV/AIDS governance systems in Russia and South Africa illustrate the argument. The Kremlin's dislike of international recommendations stemmed from the rapidly maturing statism and great power syndrome. Pretoria's responses to global AIDS norms were consistent with the ideas of the African Renaissance, which highlighted indigenousness, market-based empowerment, and moral leadership in global affairs. This book explains how and why the governments under investigation framed the nature of the epidemic, provided evidence-based prevention services, increased universal access to proven lifesaving medicines, and interacted with other participants in social practice.

A tidal wave of panic surrounded homosexuality and AIDS in the 1980s and early 1990s, the period commonly called 'The AIDS Crisis'. With the advent of antiretroviral drugs in the mid '90s, however, the meaning of an HIV diagnosis radically changed. These game-changing drugs now enable many people living with HIV to lead a healthy, regular life, but how has this dramatic shift impacted the representation of gay men and HIV in popular culture? Positive Images is the first detailed examination of how the relationship between gay men and HIV has transformed in the past two decades. From Queer as Folk to Chemsex, The Line of Beauty to The Normal Heart, Dion Kagan examines literature, film, TV, documentaries and news coverage from across the English-speaking world to unearth the socio-cultural foundations underpinning this 'post-crisis' period. His analyses provide acute insights into the fraught legacies of the AIDS Crisis and its continued presence in the modern queer consciousness.

In Cooking Data Crystal Biruk offers an ethnographic account of research into the demographics of HIV and AIDS in Malawi to rethink the production of quantitative health data. While research practices are often understood within a clean/dirty binary, Biruk shows that data are never clean; rather, they are always "cooked" during their production and inevitably entangled with the lives of those who produce them. Examining how the relationships among fieldworkers, supervisors, respondents, and foreign demographers shape data, Biruk examines the ways in which units of information-such as survey questions and numbers written onto questionnaires by fieldworkers-acquire value as statistics that go on to shape national AIDS policy. Her approach illustrates how on-the-ground dynamics and research cultures mediate the production of global health statistics in ways that impact local economies and formulations of power and expertise.

Brazil's leadership role in the fight against HIV has brought its public health system widespread praise. But the nation still faces serious health challenges and inequities. Though home to the world's second largest African-descendant population, Brazil failed to address many of its public health issues that disproportionately impact Afro-Brazilian women and men. Kia Lilly Caldwell draws on twenty years of engagement with activists, issues, and policy initiatives to document how the country's feminist health movement and black women's movement have fought for much-needed changes in women's health. Merging ethnography with a historical analysis of policies and programs, Caldwell offers a close examination of institutional and structural factors that have impacted the quest for gender and racial health equity in Brazil. As she shows, activists have played an essential role in policy development in areas ranging from maternal mortality to female sterilization. Caldwell's insightful portrait of the public health system also details how its weaknesses contribute to ongoing failures and challenges while also imperiling the advances that have been made.

Finalist for the 2017 Lambda Literary "Lammy" Award in LGBTQ Studies The first book to examine the correlation between mixed-race identity and HIV/AIDS among Native American gay men and transgendered people, Indian Blood provides an analysis of the emerging and often contested LGBTQ "two-spirit" identification as it relates to public health and mixed-race identity. Prior to contact with European settlers, most Native American tribes held their two-spirit members in high esteem, even considering them spiritually advanced. However, after contact - and religious conversion - attitudes changed and social and cultural support networks were ruptured. This discrimination led to a breakdown in traditional values, beliefs, and practices, which in turn pushed many two-spirit members to participate in high-risk behaviors. The result is a disproportionate number of two-spirit members who currently test positive for HIV. Using surveys, focus groups, and community discussions to examine the experiences of HIV-positive members of San Francisco's two-spirit community, Indian Blood provides an innovative approach to understanding how colonization continues to affect American Indian communities and opens a series of crucial dialogues in the fields of Native American studies, public health, queer studies, and critical mixed-race studies.

We see it all the time: organizations strive to persuade the public to change beliefs or behavior through expensive, expansive media campaigns. Designers painstakingly craft clear, resonant, and culturally sensitive messaging that will motivate people to buy a product, support a cause, vote for a candidate, or take active steps to improve their health. But once these campaigns leave the controlled environments of focus groups, advertising agencies, and stakeholder meetings to circulate, the public interprets and distorts the campaigns in ways their designers never intended or dreamed. In Best Laid Plans, Terence E. McDonnell explains why these attempts at mass persuasion often fail so badly. McDonnell argues that these well-designed campaigns are undergoing "cultural entropy": the process through which the intended meanings and uses of cultural objects fracture into alternative meanings, new practices, failed interactions, and blatant disregard. Using AIDS media campaigns in Accra, Ghana, as its central case study, the book walks readers through best-practice, evidence-based media campaigns that fall totally flat. Female condoms are turned into bracelets, AIDS posters become home decorations, red ribbons fade into pink under the sun to name a few failures. These damaging cultural misfires are not random. Rather, McDonnell makes the case that these disruptions are patterned, widespread, and inevitable indicative of a broader process of cultural entropy.

Thirty years after AIDS was first recognized, the American South constitutes the epicenter of the United States' epidemic. Southern states claim the highest rates of new infections, the most AIDS-related deaths, and the largest number of adults and adolescents living with the virus. Moreover, the epidemic disproportionately affects African American communities across the region. Using the history of HIV in North Carolina as a case study, Stephen Inrig examines the rise of AIDS in the South in the period from the early spread and discovery of the disease through the late nineties. Drawing on epidemiological, archival, and oral history sources, Inrig probes the social determinants of health that put poor, rural, and minority communities at greater risk of HIV infection in the American South. He also examines the difficulties that health workers and AIDS organizations faced in reaching those communities, especially in the early years of the epidemic. His analysis provides an important counterweight to most accounts of the early history of the disease, which focus on urban areas and the spread of AIDS in the gay community. As one of the first historical studies of AIDS in a southern state, North Carolina and the Problem of AIDS provides powerful insight into the forces and factors that have made AIDS such an intractable health problem in the American South and the greater United States.

"Health Rights Are Civil Rights" tells the story of the important place of health in struggles for social change in Los Angeles in the 1960s and 1970s. Jenna M. Loyd describes how Black freedom, antiwar, welfare rights, and women's movement activists formed alliances to battle oppressive health systems and structural violence, working to establish the principle that health is a right. For a time--with President Nixon, big business, and organized labor in agreement on national health insurance--even universal health care seemed a real possibility.

"Health Rights Are Civil Rights" documents what many Los Angeles activists recognized: that militarization was in part responsible for the inequalities in American cities. This challenging new reading of suburban white flight explores how racial conflicts transpired across a Southland landscape shaped by defense spending. While the war in Vietnam constrained social spending, the New Right gained strength by seizing on the racialized and gendered politics of urban crisis to resist urban reinvestment and social programs.

Recapturing a little-known current of the era's activism, Loyd uses an intersectional approach to show why this diverse group of activists believed that democratic health care and ending war making were essential to create cities of freedom, peace, and social justice--a vision that goes unanswered still today.

Countries in sub-Saharan Africa were once dismissed by Western experts as being too poor and chaotic to benefit from the antiretroviral drugs that transformed the AIDS epidemic in the United States and Europe. Today, however, the region is courted by some of the most prestigious research universities in the world as they search for resource-poor hospitals in which to base their international HIV research and global health programs. In Scrambling for Africa, Johanna Tayloe Crane reveals how, in the space of merely a decade, Africa went from being a continent largely excluded from advancements in HIV medicine to an area of central concern and knowledge production within the increasingly popular field of global health science.

Drawing on research conducted in the U.S. and Uganda during the mid-2000s, Crane provides a fascinating ethnographic account of the transnational flow of knowledge, politics, and research money as well as blood samples, viruses, and drugs. She takes readers to underfunded Ugandan HIV clinics as well as to laboratories and conference rooms in wealthy American cities like San Francisco and Seattle where American and Ugandan experts struggle to forge shared knowledge about the AIDS epidemic. The resulting uncomfortable mix of preventable suffering, humanitarian sentiment, and scientific ambition shows how global health research partnerships may paradoxically benefit from the very inequalities they aspire to redress. A work of outstanding interdisciplinary scholarship, Scrambling for Africa will be of interest to audiences in anthropology, science and technology studies, African studies, and the medical humanities."

South and East Asia may well become the epicentres of the global HIV/AIDS pandemic. More than three-quarters of a million people are now estimated to be living with HIV/AIDS in China. In 2009, AIDS had already become the leading cause of death by infectious disease. Yet, even despite China's recent economic and social progress, a number of development issues - not least the emergence of glaring inequalities - have also emerged. The expansion of the HIV/AIDS epidemic is also an important longer term development challenge. This book analyses China's HIV/AIDS epidemic, with particular attention to the nature and impact of current economic and social changes and how these changes may be driving the epidemic. It examines aspects of income and gender inequality; rural-urban migration; commercial sex work; healthcare and civil society organizations. Health care reforms and the role of NGOs are also considered as well as general government policy. Overall, this book provides a full discussion of the most critical aspects of the current HIV/AIDS situation in China and its impact on Chinese society.

Society was not prepared in 1981 for the appearance of a new infectious disease, but we have since learned that emerging and reemerging diseases will continue to challenge humanity. "AIDS at 30" is the first history of HIV/AIDS written for a general audience that emphasizes the medical response to the epidemic.Award-winning medical historian Victoria A. Harden approaches the AIDS virus from philosophical and intellectual perspectives in the history of medical science, discussing the process of scientific discovery, scientific evidence, and how laboratories found the cause of AIDS and developed therapeutic interventions. Similarly, her book places AIDS as the first infectious disease to be recognized simultaneously worldwide as a single phenomenon.After years of believing that vaccines and antibiotics would keep deadly epidemics away, researchers, doctors, patients, and the public were forced to abandon the arrogant assumption that they had conquered infectious diseases. By presenting an accessible discussion of the history of HIV/AIDS and analyzing how aspects of society advanced or hindered the response to the disease, "AIDS at 30" illustrates for both medical professionals and general readers how medicine identifies and evaluates new infectious diseases quickly and what political and cultural factors limit the medical community s response.

Southeast Asian sex workers are stereotypically understood as passive victims of the political economy, and submissive to western men. The advent of HIV/AIDS only compounds this image. Sex Work in Southeast Asia is a cultural critique of HIV/AIDS prevention programmes targetting sex tourism industries in Southeast Asia.

Faith-based organizations (FBOs) have historically played an important role in delivering health and social services in developing countries; however, little research has been done on their role in HIV prevention and care, particularly in Latin America. This title describes FBO involvement in HIV/AIDS in three Central American countries hard hit by this epidemic: Belize, Guatemala, and Honduras. The authors discuss the range of FBO activities and assess the implications of FBO involvement in addressing HIV/AIDS, such as churches' diverse presence and extensive reach, the unwillingness of some FBOs to discuss condom use, and their lack of experience in evaluating the impact of programs. A Spanish translation of this report is also available.

This provocative study examines the role of today's Russian Orthodox Church in the treatment of HIV/AIDS. Russia has one of the fastest-growing rates of HIV infection in the world - 80 per cent from intravenous drug use - and the Church remains its only resource for fighting these diseases. Jarrett Zigon takes the reader into a Church-run treatment center where, along with self-transformational and religious approaches, he explores broader anthropological questions - of morality, ethics, what constitutes a 'normal' life, and who defines it as such. Zigon argues that this rare Russian partnership between sacred and political power carries unintended consequences: even as the Church condemns the influence of globalization as the root of the problem it seeks to combat, its programs are cultivating citizen-subjects ready for self-governance and responsibility, and better attuned to a world the Church ultimately opposes.

In some parts of South Africa, more than one in three people are HIV positive. Love in the Time of AIDS explores transformations in notions of gender and intimacy to try to understand the roots of this virulent epidemic. By living in an informal settlement and collecting love letters, cell phone text messages, oral histories, and archival materials, Mark Hunter details the everyday social inequalities that have resulted in untimely deaths. Hunter shows how first apartheid and then chronic unemployment have become entangled with ideas about femininity, masculinity, love, and sex and have created an economy of exchange that perpetuates the transmission of HIV/AIDS. This sobering ethnography challenges conventional understandings of HIV/AIDS in South Africa.

This deeply insightful ethnography explores the healing power of caring and intimacy in a small, closely bonded Apostolic congregation during Botswana's HIV/AIDS pandemic. "Death in a Church of Life" paints a vivid picture of how members of the Baitshepi Church make strenuous efforts to sustain loving relationships amid widespread illness and death. Over the course of long-term fieldwork, Frederick Klaits discovered Baitshepi's distinctly maternal ethos and the 'spiritual' kinship embodied in the church's nurturing fellowship practice. Klaits shows that for Baitshepi members, Christian faith is a form of moral passion that counters practices of divination and witchcraft with redemptive hymn singing, prayer, and the use of therapeutic substances. An online audio annex makes available the examples of the church members' preachings and songs.

The spread of HIV/AIDS affects businesses in all sectors, all industries and all countries. For companies and organizations everywhere, the question is no longer whether to take action on HIV/AIDS but which actions to take. Complete with an impressive collection of complex background and research on HIV/AIDS and a foreword by Dr. Peter Piot, former Executive Director of UNAIDS, this volume collects case studies of managers worldwide faced with challenging HIV/AIDS-related management decisions. AIDS and Business will fascinate the general reader seeking an understanding of the HIV/AIDS pandemic and to the advanced reader looking to develop a more sophisticated understanding of the impact of the disease.

The case studies in this volume, set in nine countries, detail the issues facing businesses operating in areas where HIV/AIDS prevalence is growing. The topics discussed include understanding the role of social and cultural factors in the spread of HIV, the different organizations and institutions fighting the epidemic, designing an HIV communications campaign, HIV testing, ethical issues, marketing ethics and CSR, condoms marketing, and designing an HIV workplace program. Useful as a resource on HIV/AIDS and business, a set of case studies, or a training tool, this book contains a unique range of tools for learning to understand the epidemic, designed from a grounded and practical business perspective.

This groundbreaking work, with its unique anthropological approach, sheds new light on a central conundrum surrounding AIDS in Africa and in so doing, reframes current debates about the disease. Robert J. Thornton explores why HIV prevalence fell during the 1990s in Uganda despite that country's having one of Africa's highest fertility rates, while, during the same period, HIV prevalence rose in South Africa, a country with Africa's lowest fertility rate. Using anthropological, epidemiological, and mathematical methods, Thornton finds that culturally and socially determined differences in the structure of sexual networks - rather than changes in individual behavior - were responsible for these radical differences in HIV prevalence. His study exposes these invisible networks, or unimagined communities, unseen both by those who participate in them and by the social sciences, and opens a new area of investigation - the sexual network as social structure. Incorporating such factors as property, mobility, social status, and political authority into our understanding of AIDS transmission, Thornton offers a fresh vision of the disease, one that suggests new avenues for fighting it worldwide.

Reflecting the current state of research into the communication aspects of HIV/AIDS, this volume explores AIDS-related communication scholarship, moving forward from the 1992 publication AIDS: A Communication Perspective. Editors Timothy Edgar, Seth M. Noar, and Vicki S. Freimuth have developed this up-to-date collection to focus on today's key communication issues in the HIV/AIDS epidemic. Chapters herein examine the interplay of the messages individuals receive about AIDS at the public level as well as the messages exchanged between individuals at the interpersonal level. Acknowledging how the face of HIV/AIDS has changed since 1992, the volume promotes the perspective that an understanding of effective communication through both mediated and interpersonal channels is essential to winning the continued battle against AIDS. Issues addressed here include: Social stigma associated with the disease, social support and those living with HIV/AIDS, and the current state of HIV testing Parent-child discussions surrounding HIV/AIDS and safer sexual behavior, and cultural sensitivity relating to developing HIV prevention and sex education programs The effectiveness of health campaigns to impact attitudes, norms, and behavior, as well as the current state of entertainment education and its ability to contribute to HIV prevention News media coverage of HIV/AIDS and the impact of the agenda-setting function on public opinion and policy making Health literacy and its importance to the health and well-being of those undergoing HIV treatment. The role of technological innovations, most notably the Internet, used for both prevention interventions as well as risky behavior The volume also includes exemplars that showcase the diversity of approaches to health communication used to combat the HIV/AIDS epidemic. These cases include interpersonal and mass communication mediums; traditional along with new media and technology; research by academics and practitioners; individual as well as community-based approaches; work based in the United States and internationally; and campaigns directed at at-risk, HIV- positive, as well as general populations. With new topics, new contributors, and a broadened scope, this book goes beyond a revision of the 1992 volume to reflect the current state of communication research on HIV/AIDS across key contexts. It is designed for academics, researchers, practitioners, and students in health communication, health psychology, and other areas of AIDS research. As a unique examination of communication research, it makes an indelible contribution to the growing knowledge base of communication approaches to combating HIV/AIDS.

One in six adults in sub-Saharan Africa will die in their prime of AIDS. It is a stunning cataclysm, plunging life expectancy to pre-modern levels and orphaning millions of children. Yet political trauma does not grip Africa. People living with AIDS are not rioting in the streets or overthrowing governments. In fact, democratic governance is spreading. Contrary to fearful predictions, the social fabric is not being ripped apart by bands of unsocialized orphan children. AIDS and Power explains why social and political life in Africa goes on in a remarkably normal way, and how political leaders have successfully managed the AIDS epidemic so as to overcome any threats to their power. Partly because of pervasive denial, AIDS is not a political priority for electorates, and therefore not for democratic leaders either. AIDS activists have not directly challenged the political order, instead using international networks to promote a rights-based approach to tackling the epidemic. African political systems have proven resilient in the face of AIDS's stresses, and rulers have learned to co-opt international AIDS efforts to their own political ends. In contrast with these successes, African governments and international agencies have a sorry record of tackling the epidemic itself. AIDS and Power concludes without political incentives for HIV prevention, this failure will persist.

When Edwin Cameron announced to a stunned local and international media that he - one of South Africa's most prominent citizens - was himself living with the HIV/AIDS virus cutting swathes through the population of the continent, the impact was immediate. In Witness to AIDS, Edwin Cameron's compelling memoir, he grapples with the meaning of HIV/AIDS: for him as he confronts the possibility of his own lingering death, and for all of us in facing up to one of the most desperate challenges of our time. In his intensely personal account of survival, Cameron blends elements of his destitute childhood with his daily duties as a senior judge and international human rights lawyer, while focusing always on the epidemic's central issues : stigma, unjust discrimination, and, most vitally, the life-and-death question of access to treatment. Cameron's remarkable story of his own survival in an epidemic that has cost millions of lives is at once moving and uplifting, sobering and ultimately hopeful. 'This book will be a major contribution by a courageous South African towards that quest for a better life for all.' - Nelson Mandela 'If truth is beauty, this relentlessly brilliant and hopeful book is beautiful. It is a text to live by, if we aspire to the possibility of a better life for all...in a world widely threatened by HIV/Aids.' - Nadine Gordimer, winner of the Nobel Prize for Literature, 1991