Written by a team of nationally recognized African American social work professionals with extensive and distinguished backgrounds of HIV/AIDS service, the book examines the crisis facing African American communities. The editors strive to convey to academics, researchers, and students the magnitude of the crisis and that individuals and organizations serving African Americans need to be able to respond to the service delivery needs this crisis brings.

The crisis is evident in the fact that by year 2000 fully 50% of all AIDS cases will be among African Americans--who only constitute 12% of the nation's population. This book serves as a wake-up call and is designed to stimulate discussion and planning for new models of service to all African Americans and HIV prevention, education, and treatment.

AIDS

"None of us is so unique as to be exempt from the human condition."

As the numbers of reported AIDS cases continue to climb, and the disease continues to take more and more lives, those who have to deal with the complexities of this problem continue to ask: "How do we care for these terminally ill?"

Using letters from patients, questions and answers between patient and doctor, and other compassionate tools, Dr. Elisabeth Kübler-Ross, the world's foremost expert on death and dying, shows us how to comfort the seriously ill and help AIDS patients through the critical "stages of dying" She addresses the stigma surrounding AIDS as a "gay disease" and makes a special plea for prisoners with AIDS, for women and children with AIDS, and for babies with AIDS. This remarkable book is warm and informative on one of the most important subjects of our time.

With the startling blend of satiric wit, pathos, and heroism found in his acclaimed and iconoclastic novels, Feinberg--who died in 1994 at the age of 37--charts a harrowing journey down that "HIV highway to hell". "This is AIDS literature for a new generation--funny, impertinent, sexy, and enlightening".--The Advocate.

Janice and Bill were the perfect couple. They met during college, got married and began promising careers. But in 1987 their storybook life was shattered forever when they were diagnosed with HIV. Janice explains how they coped.

The American public responded to the first cases of AIDS with fear and panic. Both policymakers and activists were concerned not only with stopping the spread of the disease, but also with guiding the public's response toward those already infected. Fatal Advice is an examination of how the nation attempted, with mixed results, to negotiate the fears and concerns brought on by the epidemic. A leading writer on the cultural politics of AIDS, Cindy Patton guides us through the thicket of mass-media productions, policy and public health enterprises, and activist projects as they sprang up to meet the challenge of the epidemic, shaping the nation's notion of what safe-sex is and who ought to know what about it. There is the official story, and then there is another, involving local groups and AIDS activists. Going back to early government and activist attempts to spread information, Patton traces a slow separation between official advice and that provided by those on the front lines in the battle against AIDS. She shows how American anxieties about teen sex played into the nation's inadequate education and protection of its young people, and chronicles the media's attempts to encourage compassion without broaching the touchy subject of sex or disrupting the notion that AIDS was a disease of social and sexual outcasts. Her overview of the relationship between shifting medical perceptions and safe-sex advice reveals why radical safe-sex educators eventually turned to sexually explicit, including pornographic, representations to spread their message-and why even these extreme tactics could not overcome the misguided national teaching on AIDS. Patton closes with a stirring manifesto, an urgent call to action for all those who do not want to see the hard lessons of AIDS education and activism wasted, or, with these lessons, the loss of so many more lives.

This book presents the frightening story behind one of the most ominous trends in contemporary America. AIDS in adolescents is increasing at alarming rates yet teen access to HIV prevention and treatment services is limited and uneven. It seems that apathy and risk denial are major problems in developing meaningful HIV prevention programs. This book is based on excerpted materials from a report of Congress dealing with AIDS augmented with an extensive subject index for easy access and a bibliography especially compiled for this edition.

Community based organizations assist participants in developing social skills and familiar language for negotiating and practicing safer, non-risky behaviors. AIDS education and awareness is best achieved in local community groups through the use of interactive group sharing and non-professional language. Supportive and informed mutual aid can be extended through community based organizations and can alleviate the psychological effects of isolation, homophobia, abandonment, and political disinterest created by society at large. AIDS therapy and prevention is best accomplished in settings that encourage one-to-one communication and compassion. The seventeen authors of this masterful compilation of AIDS research and policy make a strong case for community organizations as valiant warriors in one of this century's most threatening epidemics against humanity.

An indispensable guide to every aspect of at-home care This thoroughly practical guide details the daily routines and unique concerns that are essential to quality at-home care of people with AIDS. From setting up a safe and comfortable environment to making medical and legal choices and solving emotional problems, each vital issue is covered in depth. Every caregiver and person with AIDS will benefit from this supportive, comprehensive resource.

• Detailed information on protecting against infection
• Concise instructions for both ambulatory and bedridden patients
• How to administer intravenous feedings and medication
• Appendices covering lab tests, alternative therapies, and the latest experimental drugs
• The differences between caring for men and women with AIDS
• Tips for caregivers on maintaining their own health and well-being

From the very beginning of the epidemic, AIDS was linked to punishment. Calls to punish people living with HIV-mostly stigmatized minorities-began before doctors had even settled on a name for the disease. Punitive attitudes toward AIDS prompted lawmakers around the country to introduce legislation aimed at criminalizing the behaviors of people living with HIV. Punishing Disease explains how this happened-and its consequences. With the door to criminalizing sickness now open, what other ailments will follow? As lawmakers move to tack on additional diseases such as hepatitis and meningitis to existing law, the question is more than academic.

"The authors provide important new information about the changing evolution of the HIV/AIDS pandemic, the persons it is affecting, and its global impact. . . . Most important, it presents a compassionate and prophetic vision of what the church's response ought to be. . . ".--James B. Nelson, Professor of Christian Ethics, United Theological Seminary of the Twin Cities, New Brighton, Minnesota.

In the years since the end of apartheid, South Africans have enjoyed a progressive constitution, considerable access to social services for the poor and sick, and a booming economy that has made their nation into one of the wealthiest on the continent. At the same time, South Africa experiences extremely unequal income distribution, and its citizens suffer the highest prevalence of HIV in the world. As Archbishop Desmond Tutu has noted, "AIDS is South Africa's new apartheid." In Ancestors and Antiretrovirals, Claire Laurier Decoteau backs up Tutu's assertion with powerful arguments about how this came to pass. Decoteau traces the historical shifts in health policy after apartheid and describes their effects, detailing, in particular, the changing relationship between biomedical and indigenous health care, both at the national and the local level. Decoteau tells this story from the perspective of those living with and dying from AIDS in Johannesburg's squatter camps. At the same time, she exposes the complex and often contradictory ways that the South African government has failed to balance the demands of neoliberal capital with the considerable health needs of its population.

This provocative study examines the role of today's Russian Orthodox Church in the treatment of HIV/AIDS. Russia has one of the fastest-growing rates of HIV infection in the world - 80 per cent from intravenous drug use - and the Church remains its only resource for fighting these diseases. Jarrett Zigon takes the reader into a Church-run treatment center where, along with self-transformational and religious approaches, he explores broader anthropological questions - of morality, ethics, what constitutes a 'normal' life, and who defines it as such. Zigon argues that this rare Russian partnership between sacred and political power carries unintended consequences: even as the Church condemns the influence of globalization as the root of the problem it seeks to combat, its programs are cultivating citizen-subjects ready for self-governance and responsibility, and better attuned to a world the Church ultimately opposes.

This first extensive study of the practice of blood transfusion in Africa traces the history of one of the most important therapies in modern medicine from the period of colonial rule to independence and the AIDS epidemic. The introduction of transfusion held great promise for improving health, but like most new medical practices, transfusion needed to be adapted to the needs of sub-Saharan Africa, for which there was no analogous treatment in traditional African medicine.
This otherwise beneficent medical procedure also created a "royal road" for microorganisms, and thus played a central part in the emergence of human immune viruses in epidemic form. As with more developed health care systems, blood transfusion practices in sub-Saharan Africa were incapable of detecting the emergence of HIV. As a result, given the wide use of transfusion, it became an important pathway for the initial spread of AIDS. Yet African health officials were not without means to understand and respond to the new danger, thanks to forty years of experience and a framework of appreciating long-standing health risks. The response to this risk, detailed in this book, yields important insight into the history of epidemics and HIV/AIDS.
Drawing on research from colonial-era governments, European Red Cross societies, independent African governments, and directly from health officers themselves, this book is the only historical study of the practice of blood transfusion in Africa.

A sparkling satire on international aid and celebrity, Looking for Bono charts one man's accidental quest to bring water to his community. Baba is a semi-literate man living a simple life centred on the local auto repair shop in Palemo, how he will find his next meal and an obsession with his disinterested, Nollywood star-wannabe wife Munira and her voluptuous body. Baba is acutely aware of the water corruption that has left him, on occasion, without so much as a drop to even brush his teeth. One day on the news, a story about international humanitarian Bono flashes onscreen. Bono is in Africa to do good and like a thunderbolt, Baba decides that Bono is the answer to all of his problems. Once Bono hears about the local water issues he will want to step in and convince the president of Nigeria to end the corruption. Once the water is flowing, Baba can clean up and Munira will set her sights a little closer to home. Before he knows it, Baba is a celebrity being feted by the Lagos media and Munira has turned into his virtuous wife. Will the ensuing media storm engulf Baba as he is launched into a world of high stakes foreign aid dealings and competing interests? Or will he return to his simple life with water for his community and the renewed affections of his Munira?

AIDS has been a devastating plague in much of sub-Saharan Africa, yet the long-term implications for gender and sexuality are just emerging. AIDS and Masculinity in the African City tackles this issue head on and examines how AIDS has altered the ways masculinity is lived in Uganda - a country known as Africa's great AIDS success story. Based on a decade of ethnographic research in an urban slum community in the capital Kampala, this book reveals the persistence of masculine privilege in the age of AIDS and the implications such privilege has for combating AIDS across the African continent.

The Republic of Therapy tells the story of the global response to the HIV epidemic from the perspective of community organizers, activists, and people living with HIV in West Africa. Drawing on his experiences as a physician and anthropologist in Burkina Faso and Cote d'Ivoire, Vinh-Kim Nguyen focuses on the period between 1994, when effective antiretroviral treatments for HIV were discovered, and 2000, when the global health community acknowledged a right to treatment, making the drugs more available. During the intervening years, when antiretrovirals were scarce in Africa, triage decisions were made determining who would receive lifesaving treatment. Nguyen explains how those decisions altered social relations in West Africa. In 1994, anxious to "break the silence" and "put a face to the epidemic," international agencies unwittingly created a market in which stories about being HIV positive could be bartered for access to limited medical resources. Being able to talk about oneself became a matter of life or death. Tracing the cultural and political logic of triage back to colonial classification systems, Nguyen shows how it persists in contemporary attempts to design, fund, and implement mass treatment programs in the developing world. He argues that as an enactment of decisions about who may live, triage constitutes a partial, mobile form of sovereignty: what might be called therapeutic sovereignty.

Islam and AIDS is the first book to comprehensively address the HIV/AIDS pandemic from an Islamic perspective, with contributions from a number of internationally known activists and scholars of Islam, including Kecia Ali and Abdulaziz Sachedina. With an introduction by Peter Piot, Director of the Joint United Nations Programme on HIV/AIDS, this landmark work provides an insight into new possibilities of critical and progressive Islamic approaches, in both law and ethics, to one of the most urgent crises facing humankind today. Covering emotive issues such as gender, justice, poverty, health, disease, addiction, and sexuality, Islam and AIDS provides the religious analysis so essential for the communities at the forefront of the epidemic.

Speech and Song at the Margins of Global Health tells the story of a unique Zulu gospel choir comprised of people living with HIV in South Africa, and how they maintained healthy, productive lives amid globalized inequality, international aid, and the stigma that often comes with having HIV. By singing, joking, and narrating about HIV in Zulu, the performers in the choir were able to engage with international audiences, connect with global health professionals, and also maintain traditional familial respect through the prism of performance. The focus on gospel singing in the narrative provides a holistic viewpoint on life with HIV in the later years of the pandemic, and the author's musical engagement led to fieldwork in participants' homes and communities, including the larger stigmatized community of infected individuals. This viewpoint suggests overlooked ways that aid recipients contribute to global health in support, counseling, and activism, as the performers set up instruments, waited around in hotel lobbies, and struck up conversations with passersby and audience members. The story of the choir reveals the complexity and inequities of global health interventions, but also the positive impact of those interventions in the crafting of community.

This deeply insightful ethnography explores the healing power of caring and intimacy in a small, closely bonded Apostolic congregation during Botswana's HIV/AIDS pandemic. "Death in a Church of Life" paints a vivid picture of how members of the Baitshepi Church make strenuous efforts to sustain loving relationships amid widespread illness and death. Over the course of long-term fieldwork, Frederick Klaits discovered Baitshepi's distinctly maternal ethos and the 'spiritual' kinship embodied in the church's nurturing fellowship practice. Klaits shows that for Baitshepi members, Christian faith is a form of moral passion that counters practices of divination and witchcraft with redemptive hymn singing, prayer, and the use of therapeutic substances. An online audio annex makes available the examples of the church members' preachings and songs.

This volume focuses on the role of language in the construction of knowledge about HIV/AIDS in diverse regions of the world. The collection of studies yields helpful insights about the discursive construction of this knowledge in both formal and informal contexts, while demonstrating how the tools of applied linguistics can be exercised to reveal a deeper understanding of the production and dissemination of this knowledge. The authors use a range of qualitative methodologies to critically explore the role of language and discourse in educational contexts in which various and sometimes competing forms of knowledge about HIV/AIDS are constructed. They draw on various forms of discourse analysis, ethnography, and social semiotics to interpret meaning-making practices in HIV/AIDS education in Australia, Cambodia, Burkina Faso, Hong Kong, India, South Africa, Tanzania, Thailand, and Uganda.

In 2003-2006, Patricia Henderson lived in the South African province of KwaZulu-Natal where she recorded the experiences of people living with HIV/AIDS. In this illuminating study, she recounts the concerns of rural people and explores local repertoires through which illness was folded into everyday life. The book spans a period when antiretroviral medication was not available, and moves on to a time when the treatment became accessible. Hope gradually became manifest in the recovery of a number of people through antiretroviral therapies and 'the return' of bodies they could recognise as their own. This research implies that protracted interaction with people over time, offers insights into the unfolding textures of everyday life, in particular in its focus on suffering, social and structural inequality, illness, violence, mourning, sensibility, care and intimacy.

Michael Lynch, the central figure of this book, was a long-time gay activist and a dynamic force in organizing an early response to the AIDS epidemic. Lynch's prescient articles in The Body Politic spoke to the gay communities of Toronto, New York, and San Francisco. His organizing efforts meant change and hope."AIDS Activist" is a crisp and passionate introduction to a wide range of issues. Focusing on personal stories Silversides furnishes a snap-shot history of how the AIDS crisis unfolded and some of the heroic responses to it. Her emphasis on the politics of the gay community response makes this book unique.

WINNER, 2017 RACHEL CARSON PRIZE, SOCIETY FOR THE SOCIAL STUDIES OF SCIENCE In 2002, Sierra Leone emerged from a decadelong civil war. Seeking international attention and development aid, its government faced a dilemma. Though devastated by conflict, Sierra Leone had a low prevalence of HIV. However, like most African countries, it stood to benefit from a large influx of foreign funds specifically targeted at HIV/AIDS prevention and care. What Adia Benton chronicles in this ethnographically rich and often moving book is how one war-ravaged nation reoriented itself as a country suffering from HIV at the expense of other, more pressing health concerns. During her fieldwork in the capital, Freetown, a city of one million people, at least thirty NGOs administered internationally funded programs that included HIV/AIDS prevention and care. Benton probes why HIV exceptionalism-the idea that HIV is an exceptional disease requiring an exceptional response-continues to guide approaches to the epidemic worldwide and especially in Africa, even in low-prevalence settings. In the fourth decade since the emergence of HIV/AIDS, many today are questioning whether the effort and money spent on this health crisis has in fact helped or exacerbated the problem. HIV Exceptionalism does this and more, asking, what are the unanticipated consequences that HIV/AIDS development programs engender?

How do modern women in developing countries experience sexuality and love? Drawing on a rich variety of interview, ethnographic and survey data from her native country of Kenya, Sanyu Mojola examines how young African women, who suffer disproportionate rates of HIV infection compared to young African men, navigate their relationships, schooling, employment and financial access in the context of a devastating HIV epidemic and economic inequality. Writing from a unique outsider-insider perspective, Mojola argues that the entanglement of love, money, and the production and transformation of girls into "consuming women" lies at the heart of women's health and coming-of-age crises. Engaging in themes of gender, consumption, and the transition to adulthood, this text is an incisive analysis of gender, sexuality, and health in Africa.