Looking back over the course of the three-plus decades of the HIV/AIDS epidemic, scholars and researchers have made many significant strides in understanding and responding to HIV and AIDS. From the inception of the HIV/AIDS epidemic during the early 1980s until the mid-1990s, when highly active antiretroviral treatment (HAART) was introduced as an innovative and highly-effective way of controlling HIV and HIV-related diseases, the "average" person diagnosed as being HIV-positive could expect to live for several months and if lucky, for a few years. Today, with the medical advances that have been made in the fight against HIV/AIDS, people who have contracted HIV usually can expect to live relatively healthy lives, in most instances for many years without experiencing any serious complications of HIV disease. This book focuses on the social science aspects of current HIV research.

This deeply insightful ethnography explores the healing power of caring and intimacy in a small, closely bonded Apostolic congregation during Botswana's HIV/AIDS pandemic. "Death in a Church of Life" paints a vivid picture of how members of the Baitshepi Church make strenuous efforts to sustain loving relationships amid widespread illness and death. Over the course of long-term fieldwork, Frederick Klaits discovered Baitshepi's distinctly maternal ethos and the 'spiritual' kinship embodied in the church's nurturing fellowship practice. Klaits shows that for Baitshepi members, Christian faith is a form of moral passion that counters practices of divination and witchcraft with redemptive hymn singing, prayer, and the use of therapeutic substances. An online audio annex makes available the examples of the church members' preachings and songs.

The fight against HIV/AIDS is, above all, an economic issue. The scale of the pandemic and the lack of funds needed to eradicate it require identifying key issues in field interventions and optimal economic policies to fund them. In developing countries, where the epidemic is reaching its peak, the magnitude of governmental and international interventions triggers major crowding-out effects on every other economic decision of those countries, and thus HIV/AIDS affects every aspect of social life. Economic policies alleviating crowding-out effects are thus paramount to foster the economic growth of developing countries and, in turn, their future welfare. Economic issues in the fight against HIV/AIDS are also a primary concern for developed countries, in charge not only of subsidising current treatment campaigns domestically but also of funding R&D in innovative treatments. Designing optimal incentives for public and private agencies to reduce the costs of available medicines, and to develop innovative treatments such as a therapeutic vaccine, is as important as drug delivery or any other field campaign to eventually eradicate the disease. Over two decades of practical implementation of economic policies and academic research have shown many pitfalls in current policies, and they have made it possible to identify previously missed issues. This book shall provide a recent and comprehensive coverage of those policies, and it shall analyse their economic efficiency as well as ways of improvement using state-of-the-art academic findings in Economics and Finance. The authors discuss in detail and provide new economic analyses on the following issues: The nation-wide and international economic consequences of the spread of the disease; Market incentives and disincentives to produce and to develop treatment technologies; The nature and optimality of economic policies devoted to fighting the disease in developing countries, as well as the enhancement of current policies through financial innovations.

The first decade of the HIV/AIDS epidemic was defined by young gay men dying and activism. The second decade saw people of colour and women account for the majority of those with HIV, as well as the development of effective drugs and the hope that HIV could become treatable or even curable. In this third decade, HIV has evolved into a chronic manageable disease. Few would have ever thought that there would be large numbers of older adults living with HIV in our lifetimes. Developing a strategy to best sustain the health and quality of life for the ageing population living with HIV requires a rigorous assessment of this group's characteristics and needs. Research on Older Adults with HIV (ROAH), conducted by the AIDS Community Research Initiative of America (ACRIA), is the first step to begin to establish a valid comprehensive knowledge-base of the unique characteristics and needs of this growing population.

This volume focuses on the role of language in the construction of knowledge about HIV/AIDS in diverse regions of the world. The collection of studies yields helpful insights about the discursive construction of this knowledge in both formal and informal contexts, while demonstrating how the tools of applied linguistics can be exercised to reveal a deeper understanding of the production and dissemination of this knowledge. The authors use a range of qualitative methodologies to critically explore the role of language and discourse in educational contexts in which various and sometimes competing forms of knowledge about HIV/AIDS are constructed. They draw on various forms of discourse analysis, ethnography, and social semiotics to interpret meaning-making practices in HIV/AIDS education in Australia, Cambodia, Burkina Faso, Hong Kong, India, South Africa, Tanzania, Thailand, and Uganda.

HIV/AIDS is holding firm as one of the worst diseases in history and the leading cause of death in sub-Saharan Africa. This collection of essays shares various case studies from sub-Saharan Africa and one from the African Diaspora that demonstrate how multi-faceted women's lives, and thus their HIV risk, are. Notwithstanding women's marginalisation, the essays in this volume maintain that women in Africa are not merely puppets of globalisation, cultural norms, or biological imperatives, but rather agents in their own livelihoods. In each case we see women presented with many challenges that they must navigate in order to mitigate their HIV risk. Some of the most trying challenges are based on economic and political structures that occur at various scales, from the global to the household. While structural factors are indeed important, the authors in this volume also show that traditional norms, cultural beliefs, and gender roles are equally necessary to consider when planning HIV prevention programs. Gender disempowerment is of particular importance, as it is seen in all of these case studies. In order for the HIV epidemic to dissipate in sub-Saharan Africa, prevention programs that truly understand the local circumstances and strive for gender equality must be instituted immediately and broadly. The book is divided into three parts, each concentrating on a different aspect of women and HIV/AIDS in sub-Saharan Africa. The first part provides case studies of the social, political, economic, cultural, and geographic dynamics that play into women's and girls' risk for the virus. The second part transitions into case studies of prevention, concentrating on condom use. The chapters in the final section expand on Part II by highlighting other ways of promoting HIV/AIDS awareness and prevention across the region. In short, the papers in this volume highlight the complicated decision making processes that women in countries of sub-Saharan Africa must make when it comes to HIV risk. In many cases, women find themselves in economically dependent relationships with men whereby they must stay in sexually risky situations to be able to feed themselves and, very often, their children.

The acquired immunodeficiency syndrome (AIDS), is a disease of the body's immune system caused by the human immunodeficiency virus (HIV). AIDS is characterised by the death of CD4 cells (an important part of the body's immune system), which leaves the body vulnerable to life-threatening conditions such as infections and cancers. This book explores how this deadly virus has affected America and high-risk children, and presents reports on different forms of funding provided by the international and United States governments, and the fluctuating rates of AIDS cases.

This book examines the epidemic of AIDS in Africa, poses questions about the practical and ethical possibilities of making HIV cocktails available on a wide scale, and provides an up-to-date bibliography on AIDS in Africa. Contents: TOC: Preface: Overview; AIDS in Africa; The Economic Impact of AIDS; Bibliography; Index.

How do modern women in developing countries experience sexuality and love? Drawing on a rich variety of interview, ethnographic and survey data from her native country of Kenya, Sanyu Mojola examines how young African women, who suffer disproportionate rates of HIV infection compared to young African men, navigate their relationships, schooling, employment and financial access in the context of a devastating HIV epidemic and economic inequality. Writing from a unique outsider-insider perspective, Mojola argues that the entanglement of love, money, and the production and transformation of girls into "consuming women" lies at the heart of women's health and coming-of-age crises. Engaging in themes of gender, consumption, and the transition to adulthood, this text is an incisive analysis of gender, sexuality, and health in Africa.

AIDS & Representation explores portraits and self-portraits made in response to the AIDS epidemic in America in the 1980s and 1990s. Addressing the work of artists including Mark Morrisroe, Robert Blanchon and Felix Gonzalez-Torres through the interrelated themes of sickness and mortality, desire and sexual identity, love and loss, Fiona Johnstone shows how the self-representational practices of artists with HIV and AIDS offered a richly imaginative response to the limitations of early AIDS imagery. Johnstone argues that the AIDS epidemic changed the very nature of visual representation and artistic practice, necessitating a radical new approach to conceptualising and visualising the human form. An extended epilogue considers the ongoing art historicization of the epidemic, re-contextualising the book's themes in relation to contemporary photographic works. More than just a historical discussion of the art of the AIDS crisis, AIDS and Representation contributes to an emergent body of scholarship on the visual representation of illness. Expanding the established genre of the autopathography or illness narrative beyond the predominantly textual, this important contribution to art history and health humanities sensitively unpicks the entanglements between aesthetic form and the expression of lived experiences of critical and chronic ill health.

A tidal wave of panic surrounded homosexuality and AIDS in the 1980s and early 1990s, the period commonly called 'The AIDS Crisis'. With the advent of antiretroviral drugs in the mid '90s, however, the meaning of an HIV diagnosis radically changed. These game-changing drugs now enable many people living with HIV to lead a healthy, regular life, but how has this dramatic shift impacted the representation of gay men and HIV in popular culture? Positive Images is the first detailed examination of how the relationship between gay men and HIV has transformed in the past two decades. From Queer as Folk to Chemsex, The Line of Beauty to The Normal Heart, Dion Kagan examines literature, film, TV, documentaries and news coverage from across the English-speaking world to unearth the socio-cultural foundations underpinning this 'post-crisis' period. His analyses provide acute insights into the fraught legacies of the AIDS Crisis and its continued presence in the modern queer consciousness.

Countries in sub-Saharan Africa were once dismissed by Western experts as being too poor and chaotic to benefit from the antiretroviral drugs that transformed the AIDS epidemic in the United States and Europe. Today, however, the region is courted by some of the most prestigious research universities in the world as they search for resource-poor hospitals in which to base their international HIV research and global health programs. In Scrambling for Africa, Johanna Tayloe Crane reveals how, in the space of merely a decade, Africa went from being a continent largely excluded from advancements in HIV medicine to an area of central concern and knowledge production within the increasingly popular field of global health science.

Drawing on research conducted in the U.S. and Uganda during the mid-2000s, Crane provides a fascinating ethnographic account of the transnational flow of knowledge, politics, and research money as well as blood samples, viruses, and drugs. She takes readers to underfunded Ugandan HIV clinics as well as to laboratories and conference rooms in wealthy American cities like San Francisco and Seattle where American and Ugandan experts struggle to forge shared knowledge about the AIDS epidemic. The resulting uncomfortable mix of preventable suffering, humanitarian sentiment, and scientific ambition shows how global health research partnerships may paradoxically benefit from the very inequalities they aspire to redress. A work of outstanding interdisciplinary scholarship, Scrambling for Africa will be of interest to audiences in anthropology, science and technology studies, African studies, and the medical humanities."

This first extensive study of the practice of blood transfusion in Africa traces the history of one of the most important therapies in modern medicine from the period of colonial rule to independence and the AIDS epidemic. The introduction of transfusion held great promise for improving health, but like most new medical practices, transfusion needed to be adapted to the needs of sub-Saharan Africa, for which there was no analogous treatment in traditional African medicine.
This otherwise beneficent medical procedure also created a "royal road" for microorganisms, and thus played a central part in the emergence of human immune viruses in epidemic form. As with more developed health care systems, blood transfusion practices in sub-Saharan Africa were incapable of detecting the emergence of HIV. As a result, given the wide use of transfusion, it became an important pathway for the initial spread of AIDS. Yet African health officials were not without means to understand and respond to the new danger, thanks to forty years of experience and a framework of appreciating long-standing health risks. The response to this risk, detailed in this book, yields important insight into the history of epidemics and HIV/AIDS.
Drawing on research from colonial-era governments, European Red Cross societies, independent African governments, and directly from health officers themselves, this book is the only historical study of the practice of blood transfusion in Africa.

Viewing contemporary history from the perspective of the AIDS crisis, Jennifer Brier provides rich, new understandings of the United States' complex social and political trends in the post-1960s era. Brier describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy, even in the face of the expansion of the New Right. Infectious Ideas places recent social, cultural, and political events in a new light, making an important contribution to our understanding of the United States at the end of the twentieth century. |Viewing contemporary history from the perspective of the AIDS crisis, Brier provides new understandings of the complex social and political trends of the post-1960s era. She describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy.

The Republic of Therapy tells the story of the global response to the HIV epidemic from the perspective of community organizers, activists, and people living with HIV in West Africa. Drawing on his experiences as a physician and anthropologist in Burkina Faso and Cote d'Ivoire, Vinh-Kim Nguyen focuses on the period between 1994, when effective antiretroviral treatments for HIV were discovered, and 2000, when the global health community acknowledged a right to treatment, making the drugs more available. During the intervening years, when antiretrovirals were scarce in Africa, triage decisions were made determining who would receive lifesaving treatment. Nguyen explains how those decisions altered social relations in West Africa. In 1994, anxious to "break the silence" and "put a face to the epidemic," international agencies unwittingly created a market in which stories about being HIV positive could be bartered for access to limited medical resources. Being able to talk about oneself became a matter of life or death. Tracing the cultural and political logic of triage back to colonial classification systems, Nguyen shows how it persists in contemporary attempts to design, fund, and implement mass treatment programs in the developing world. He argues that as an enactment of decisions about who may live, triage constitutes a partial, mobile form of sovereignty: what might be called therapeutic sovereignty.

In the late 1980s, after a decade spent engaged in more routine interest-group politics, thousands of lesbians and gay men responded to the AIDS crisis by defiantly and dramatically taking to the streets. But by the early 1990s, the organization they founded, ACT UP, was no more--even as the AIDS epidemic raged on. Weaving together interviews with activists, extensive research, and reflections on the author's time as a member of the organization, "Moving Politics" is the first book to chronicle the rise and fall of ACT UP, highlighting a key factor in its trajectory: emotion.

Surprisingly overlooked by many scholars of social movements, emotion, Gould argues, plays a fundamental role in political activism. From anger to hope, pride to shame, and solidarity to despair, feelings played a significant part in ACT UP's provocative style of protest, which included raucous demonstrations, die-ins, and other kinds of street theater. Detailing the movement's public triumphs and private setbacks, "Moving Politics" is the definitive account of ACT UP's origin, development, and decline as well as a searching look at the role of emotion in contentious politics.

As the HIV epidemic enters its third decade, it remains one of the most pressing health issues of our time. Many aspects of the disease remain under-researched and inadequate attention has been given to the implications for the relationships and daily lives of those affected by HIV. Disclosing an HIV diagnosis remains a decision process fraught with difficulty and despite encouraging medical advances, an HIV diagnosis creates significant anxiety and distress about one's health, self-identity, and close relationships. This book provides an overarching view of existing research on privacy and disclosure while bringing together two significant areas: self-disclosure as a communication process and the social/relational consequences of HIV/AIDS. The unifying framework is communication privacy management and the focus of this volume is on private voluntary relational disclosure as opposed to forced or public disclosure. Utilizing numerous interviews with HIV patients and their families, the authors examine disclosure in a variety of social contexts, including relationships with intimate partners, families, friends, health workers, and coworkers. Of note are the examinations of predictors of willingness to disclose HIV infection, the message features of disclosure, and the consequences of both disclosure and non-disclosure. This volume, with its personal exercises and sources of additional information, offers an invaluable resource for individuals living with HIV and their significant others, as well as for professionals in the fields of health communication, social and health psychology, family therapy, clinical and counseling psychology, relationship research, infectious disease, and social service.

Kenny Fries embarks on a journey of profound self-discovery as a disabled foreigner in Japan, a society historically hostile to difference. As he visits gardens, experiences Noh and butoh, and meets artists and scholars, he also discovers disabled gods, one-eyed samurai, blind chanting priests, and A-bomb survivors. When he is diagnosed as HIV positive, all his assumptions about Japan, the body, and mortality are shaken, and he must find a way to reenter life on new terms.

A well-informed portrait, part social critique, part memoir, of sexual mores and homosexuality in provincial Mexico.

Although adopting global norms often improves domestic systems of governance, domestic obstacles to norm diffusion are frequent. States that decide to reinvent their political authority simultaneously evaluate which current global norms are desirable and to what extent. In this study, Vlad Kravtsov argues that recent debates about the nature of authority in Putin's Russia and Mbeki's South Africa have resulted in a set of unique ideas on the cardinal goals of the state. This is the first book to explore how these consensual ideas have shaped health governance and impinged on norm diffusion processes. Detailed comparisons of HIV/AIDS governance systems in Russia and South Africa illustrate the argument. The Kremlin's dislike of international recommendations stemmed from the rapidly maturing statism and great power syndrome. Pretoria's responses to global AIDS norms were consistent with the ideas of the African Renaissance, which highlighted indigenousness, market-based empowerment, and moral leadership in global affairs. This book explains how and why the governments under investigation framed the nature of the epidemic, provided evidence-based prevention services, increased universal access to proven lifesaving medicines, and interacted with other participants in social practice.

We see it all the time: organizations strive to persuade the public to change beliefs or behavior through expensive, expansive media campaigns. Designers painstakingly craft clear, resonant, and culturally sensitive messaging that will motivate people to buy a product, support a cause, vote for a candidate, or take active steps to improve their health. But once these campaigns leave the controlled environments of focus groups, advertising agencies, and stakeholder meetings to circulate, the public interprets and distorts the campaigns in ways their designers never intended or dreamed. In Best Laid Plans, Terence E. McDonnell explains why these attempts at mass persuasion often fail so badly. McDonnell argues that these well-designed campaigns are undergoing "cultural entropy": the process through which the intended meanings and uses of cultural objects fracture into alternative meanings, new practices, failed interactions, and blatant disregard. Using AIDS media campaigns in Accra, Ghana, as its central case study, the book walks readers through best-practice, evidence-based media campaigns that fall totally flat. Female condoms are turned into bracelets, AIDS posters become home decorations, red ribbons fade into pink under the sun to name a few failures. These damaging cultural misfires are not random. Rather, McDonnell makes the case that these disruptions are patterned, widespread, and inevitable indicative of a broader process of cultural entropy.

Finalist for the 2017 Lambda Literary "Lammy" Award in LGBTQ Studies The first book to examine the correlation between mixed-race identity and HIV/AIDS among Native American gay men and transgendered people, Indian Blood provides an analysis of the emerging and often contested LGBTQ "two-spirit" identification as it relates to public health and mixed-race identity. Prior to contact with European settlers, most Native American tribes held their two-spirit members in high esteem, even considering them spiritually advanced. However, after contact - and religious conversion - attitudes changed and social and cultural support networks were ruptured. This discrimination led to a breakdown in traditional values, beliefs, and practices, which in turn pushed many two-spirit members to participate in high-risk behaviors. The result is a disproportionate number of two-spirit members who currently test positive for HIV. Using surveys, focus groups, and community discussions to examine the experiences of HIV-positive members of San Francisco's two-spirit community, Indian Blood provides an innovative approach to understanding how colonization continues to affect American Indian communities and opens a series of crucial dialogues in the fields of Native American studies, public health, queer studies, and critical mixed-race studies.

Thirty years after AIDS was first recognized, the American South constitutes the epicenter of the United States' epidemic. Southern states claim the highest rates of new infections, the most AIDS-related deaths, and the largest number of adults and adolescents living with the virus. Moreover, the epidemic disproportionately affects African American communities across the region. Using the history of HIV in North Carolina as a case study, Stephen Inrig examines the rise of AIDS in the South in the period from the early spread and discovery of the disease through the late nineties. Drawing on epidemiological, archival, and oral history sources, Inrig probes the social determinants of health that put poor, rural, and minority communities at greater risk of HIV infection in the American South. He also examines the difficulties that health workers and AIDS organizations faced in reaching those communities, especially in the early years of the epidemic. His analysis provides an important counterweight to most accounts of the early history of the disease, which focus on urban areas and the spread of AIDS in the gay community. As one of the first historical studies of AIDS in a southern state, North Carolina and the Problem of AIDS provides powerful insight into the forces and factors that have made AIDS such an intractable health problem in the American South and the greater United States.

Why do alternative, non-scientific explanations of HIV/AIDS continue to circulate in South Africa's townships after almost 30 years of AIDS education? In A different kind of AIDS, David Dickinson explores the folk and lay theories that still circulate within township communities, despite extensive educational efforts and the availability of antiretroviral treatment. Dickinson's investigations are in partnership with HIV/AIDS peer educators and alongside township residents; and he argues that these theories constitute a robust hydra of beliefs that underlies and supports the de facto plural health care system in South Africa. The book explores township life and language and includes a methodological manifesto aimed at social science research students. The end-result is essential reading for the academic and lay reader alike, and a deeply sympathetic portrait of South African realities today.

Since the early days of the AIDS epidemic, many bizarre and dangerous hypotheses have been advanced as to the origins of the disease. In this compelling book, Nicoli Nattrass explores the social and political factors prolonging the erroneous belief that the American government manufactured the human immunodeficiency virus (HIV) to be used as a biological weapon, as well as the myth’s consequences for behavior, especially within African American and black South African communities.

Contemporary AIDS denialism, the belief that HIV is harmless and that antiretroviral drugs are the true cause of AIDS, is a more insidious AIDS conspiracy theory. Advocates of this position make a “conspiratorial move” against HIV science by implying its methods cannot be trusted, and that untested, alternative therapies are safer than antiretrovirals. These claims are genuinely life-threatening, as tragically demonstrated in South Africa when the delay of antiretroviral treatment resulted in nearly 333,000 AIDS deaths and 180,000 HIV infections thatcould have been prevented – a tragedy of stunning proportion.

Nattrass identifies four symbolically powerful figures ensuring the lifespan of AIDS denialism: the hero scientist (dissident scientists who lend credibility to the movement), the cultropreneur (alternative therapists who exploit the conspiratorial move as a marketing mechanism), the living icon (individuals who claim to be living proof of AIDS denialism’s legitimacy), and the praise-singer (journalists who broadcast movement messages to the public). Nattrass describes how pro-science activists have fought back by deploying empirical evidence and political credibility to resist AIDS conspiracy theories, which is part of the crucial project to defend evidence-based medicine.