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Books > Social sciences > Sociology, social studies > Social issues > Illness & addiction: social aspects > AIDS: social aspects
This book presents the frightening story behind one of the most ominous trends in contemporary America. AIDS in adolescents is increasing at alarming rates yet teen access to HIV prevention and treatment services is limited and uneven. It seems that apathy and risk denial are major problems in developing meaningful HIV prevention programs. This book is based on excerpted materials from a report of Congress dealing with AIDS augmented with an extensive subject index for easy access and a bibliography especially compiled for this edition.
An indispensable guide to every aspect of at-home care This thoroughly practical guide details the daily routines and unique concerns that are essential to quality at-home care of people with AIDS. From setting up a safe and comfortable environment to making medical and legal choices and solving emotional problems, each vital issue is covered in depth. Every caregiver and person with AIDS will benefit from this supportive, comprehensive resource.
Community based organizations assist participants in developing social skills and familiar language for negotiating and practicing safer, non-risky behaviors. AIDS education and awareness is best achieved in local community groups through the use of interactive group sharing and non-professional language. Supportive and informed mutual aid can be extended through community based organizations and can alleviate the psychological effects of isolation, homophobia, abandonment, and political disinterest created by society at large. AIDS therapy and prevention is best accomplished in settings that encourage one-to-one communication and compassion. The seventeen authors of this masterful compilation of AIDS research and policy make a strong case for community organizations as valiant warriors in one of this century's most threatening epidemics against humanity.
From the very beginning of the epidemic, AIDS was linked to punishment. Calls to punish people living with HIV-mostly stigmatized minorities-began before doctors had even settled on a name for the disease. Punitive attitudes toward AIDS prompted lawmakers around the country to introduce legislation aimed at criminalizing the behaviors of people living with HIV. Punishing Disease explains how this happened-and its consequences. With the door to criminalizing sickness now open, what other ailments will follow? As lawmakers move to tack on additional diseases such as hepatitis and meningitis to existing law, the question is more than academic.
"The authors provide important new information about the changing evolution of the HIV/AIDS pandemic, the persons it is affecting, and its global impact. . . . Most important, it presents a compassionate and prophetic vision of what the church's response ought to be. . . ".--James B. Nelson, Professor of Christian Ethics, United Theological Seminary of the Twin Cities, New Brighton, Minnesota.
The search for a "patient zero" popularly understood to be the first infected case in an epidemic has been key to media coverage of major infectious disease outbreaks for more than three decades. Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas and fears about contagion and social disorder. McKay presents a carefully documented and sensitively written account of the life of Gaetan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero adopting, challenging and redirecting its powerful meanings as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.
In the years since the end of apartheid, South Africans have enjoyed a progressive constitution, considerable access to social services for the poor and sick, and a booming economy that has made their nation into one of the wealthiest on the continent. At the same time, South Africa experiences extremely unequal income distribution, and its citizens suffer the highest prevalence of HIV in the world. As Archbishop Desmond Tutu has noted, "AIDS is South Africa's new apartheid." In Ancestors and Antiretrovirals, Claire Laurier Decoteau backs up Tutu's assertion with powerful arguments about how this came to pass. Decoteau traces the historical shifts in health policy after apartheid and describes their effects, detailing, in particular, the changing relationship between biomedical and indigenous health care, both at the national and the local level. Decoteau tells this story from the perspective of those living with and dying from AIDS in Johannesburg's squatter camps. At the same time, she exposes the complex and often contradictory ways that the South African government has failed to balance the demands of neoliberal capital with the considerable health needs of its population.
This provocative study examines the role of today's Russian Orthodox Church in the treatment of HIV/AIDS. Russia has one of the fastest-growing rates of HIV infection in the world - 80 per cent from intravenous drug use - and the Church remains its only resource for fighting these diseases. Jarrett Zigon takes the reader into a Church-run treatment center where, along with self-transformational and religious approaches, he explores broader anthropological questions - of morality, ethics, what constitutes a 'normal' life, and who defines it as such. Zigon argues that this rare Russian partnership between sacred and political power carries unintended consequences: even as the Church condemns the influence of globalization as the root of the problem it seeks to combat, its programs are cultivating citizen-subjects ready for self-governance and responsibility, and better attuned to a world the Church ultimately opposes.
'A Blood Condition is one of the most arresting and beautiful set of poems of this or any year' Guardian, Books of the Year 2021 *SHORTLISTED FOR THE COSTA POETRY AWARD* *SHORTLISTED FOR THE T. S. ELIOT PRIZE* *SHORTLISTED FOR THE FORWARD PRIZE FOR BEST COLLECTION* *LONGLISTED FOR THE 2022 JHALAK PRIZE* The moving, expansive, and dazzling second collection from award-winning poet Kayo Chingonyi Kayo Chingonyi's remarkable second collection follows the course of a 'blood condition' as it finds its way to deeply personal grounds. From the banks of the Zambezi river to London and Leeds, these poems speak to how distance and time, nations and history, can collapse within a body. With astonishing lyricism and musicality, this is a story of multiple inheritances -- of grief and survival, renewal and the painful process of letting go -- and a hymn to the people and places that run in our blood. 'A thing of beauty. It's a pleasure to read such a sure and strident second outing from one of our most celebrated young poets' Diana Evans 'An elegantly spare, cathartic and poignant but never indulgent collection that invites repeated reading' Telegraph 'The musicality and the hard reason is just so fresh, you feel altered by it' Andrew O'Hagan
This first extensive study of the practice of blood transfusion in
Africa traces the history of one of the most important therapies in
modern medicine from the period of colonial rule to independence
and the AIDS epidemic. The introduction of transfusion held great
promise for improving health, but like most new medical practices,
transfusion needed to be adapted to the needs of sub-Saharan
Africa, for which there was no analogous treatment in traditional
African medicine.
A sparkling satire on international aid and celebrity, Looking for Bono charts one man's accidental quest to bring water to his community. Baba is a semi-literate man living a simple life centred on the local auto repair shop in Palemo, how he will find his next meal and an obsession with his disinterested, Nollywood star-wannabe wife Munira and her voluptuous body. Baba is acutely aware of the water corruption that has left him, on occasion, without so much as a drop to even brush his teeth. One day on the news, a story about international humanitarian Bono flashes onscreen. Bono is in Africa to do good and like a thunderbolt, Baba decides that Bono is the answer to all of his problems. Once Bono hears about the local water issues he will want to step in and convince the president of Nigeria to end the corruption. Once the water is flowing, Baba can clean up and Munira will set her sights a little closer to home. Before he knows it, Baba is a celebrity being feted by the Lagos media and Munira has turned into his virtuous wife. Will the ensuing media storm engulf Baba as he is launched into a world of high stakes foreign aid dealings and competing interests? Or will he return to his simple life with water for his community and the renewed affections of his Munira?
AIDS has been a devastating plague in much of sub-Saharan Africa, yet the long-term implications for gender and sexuality are just emerging. AIDS and Masculinity in the African City tackles this issue head on and examines how AIDS has altered the ways masculinity is lived in Uganda - a country known as Africa's great AIDS success story. Based on a decade of ethnographic research in an urban slum community in the capital Kampala, this book reveals the persistence of masculine privilege in the age of AIDS and the implications such privilege has for combating AIDS across the African continent.
Islam and AIDS is the first book to comprehensively address the HIV/AIDS pandemic from an Islamic perspective, with contributions from a number of internationally known activists and scholars of Islam, including Kecia Ali and Abdulaziz Sachedina. With an introduction by Peter Piot, Director of the Joint United Nations Programme on HIV/AIDS, this landmark work provides an insight into new possibilities of critical and progressive Islamic approaches, in both law and ethics, to one of the most urgent crises facing humankind today. Covering emotive issues such as gender, justice, poverty, health, disease, addiction, and sexuality, Islam and AIDS provides the religious analysis so essential for the communities at the forefront of the epidemic.
Speech and Song at the Margins of Global Health tells the story of a unique Zulu gospel choir comprised of people living with HIV in South Africa, and how they maintained healthy, productive lives amid globalized inequality, international aid, and the stigma that often comes with having HIV. By singing, joking, and narrating about HIV in Zulu, the performers in the choir were able to engage with international audiences, connect with global health professionals, and also maintain traditional familial respect through the prism of performance. The focus on gospel singing in the narrative provides a holistic viewpoint on life with HIV in the later years of the pandemic, and the author's musical engagement led to fieldwork in participants' homes and communities, including the larger stigmatized community of infected individuals. This viewpoint suggests overlooked ways that aid recipients contribute to global health in support, counseling, and activism, as the performers set up instruments, waited around in hotel lobbies, and struck up conversations with passersby and audience members. The story of the choir reveals the complexity and inequities of global health interventions, but also the positive impact of those interventions in the crafting of community.
"The Night Is Young" takes us past the stereotypes of macho hombres
and dark-eyed senoritas to reveal the complex nature of sexuality
in modern-day Mexico. Drawing on field research conducted in
Guadalajara, Mexico's second-largest city, Hector Carrillo shows
how modernization, globalization, and other social changes have
affected a wide range of hetero- and homosexual practices and
identities.
This deeply insightful ethnography explores the healing power of caring and intimacy in a small, closely bonded Apostolic congregation during Botswana's HIV/AIDS pandemic. "Death in a Church of Life" paints a vivid picture of how members of the Baitshepi Church make strenuous efforts to sustain loving relationships amid widespread illness and death. Over the course of long-term fieldwork, Frederick Klaits discovered Baitshepi's distinctly maternal ethos and the 'spiritual' kinship embodied in the church's nurturing fellowship practice. Klaits shows that for Baitshepi members, Christian faith is a form of moral passion that counters practices of divination and witchcraft with redemptive hymn singing, prayer, and the use of therapeutic substances. An online audio annex makes available the examples of the church members' preachings and songs.
In 2003-2006, Patricia Henderson lived in the South African province of KwaZulu-Natal where she recorded the experiences of people living with HIV/AIDS. In this illuminating study, she recounts the concerns of rural people and explores local repertoires through which illness was folded into everyday life. The book spans a period when antiretroviral medication was not available, and moves on to a time when the treatment became accessible. Hope gradually became manifest in the recovery of a number of people through antiretroviral therapies and 'the return' of bodies they could recognise as their own. This research implies that protracted interaction with people over time, offers insights into the unfolding textures of everyday life, in particular in its focus on suffering, social and structural inequality, illness, violence, mourning, sensibility, care and intimacy.
Michael Lynch, the central figure of this book, was a long-time gay activist and a dynamic force in organizing an early response to the AIDS epidemic. Lynch's prescient articles in The Body Politic spoke to the gay communities of Toronto, New York, and San Francisco. His organizing efforts meant change and hope."AIDS Activist" is a crisp and passionate introduction to a wide range of issues. Focusing on personal stories Silversides furnishes a snap-shot history of how the AIDS crisis unfolded and some of the heroic responses to it. Her emphasis on the politics of the gay community response makes this book unique.
AIDS & Representation explores portraits and self-portraits made in response to the AIDS epidemic in America in the 1980s and 1990s. Addressing the work of artists including Mark Morrisroe, Robert Blanchon and Felix Gonzalez-Torres through the interrelated themes of sickness and mortality, desire and sexual identity, love and loss, Fiona Johnstone shows how the self-representational practices of artists with HIV and AIDS offered a richly imaginative response to the limitations of early AIDS imagery. Johnstone argues that the AIDS epidemic changed the very nature of visual representation and artistic practice, necessitating a radical new approach to conceptualising and visualising the human form. An extended epilogue considers the ongoing art historicization of the epidemic, re-contextualising the book's themes in relation to contemporary photographic works. More than just a historical discussion of the art of the AIDS crisis, AIDS and Representation contributes to an emergent body of scholarship on the visual representation of illness. Expanding the established genre of the autopathography or illness narrative beyond the predominantly textual, this important contribution to art history and health humanities sensitively unpicks the entanglements between aesthetic form and the expression of lived experiences of critical and chronic ill health.
How do modern women in developing countries experience sexuality and love? Drawing on a rich variety of interview, ethnographic and survey data from her native country of Kenya, Sanyu Mojola examines how young African women, who suffer disproportionate rates of HIV infection compared to young African men, navigate their relationships, schooling, employment and financial access in the context of a devastating HIV epidemic and economic inequality. Writing from a unique outsider-insider perspective, Mojola argues that the entanglement of love, money, and the production and transformation of girls into "consuming women" lies at the heart of women's health and coming-of-age crises. Engaging in themes of gender, consumption, and the transition to adulthood, this text is an incisive analysis of gender, sexuality, and health in Africa.
Through the voices of people living with HIV or AIDS, this text explores the ways in which HIV affects personal, family and work relationships. It draws on the experinces of black and white, heterosexual and gay, women and men with or without symtoms who show how they work through everyday life.
Based on three village case studies from different parts of Kenya, this co-authored study explores the relationship between HIV/AIDS and land rights focusing on women as a socially vulnerable group. The study compares affected with non-affected households and HIV/AIDS emerges as a significant but not primary cause of tenure insecurity.
This watershed cultural and demographic survey monitors the HIV/AIDS epidemic in South Africa. This study sampled a thorough cross-section of 9 963 South Africans and came up with some surprising results. The Full Report takes a deeper look at the methodology and processes involved.
In Zambia, due to the rise of tuberculosis and the closely connected HIV epidemic, a large number of children have experienced the illness or death of at least one parent. Children as Caregivers examines how well intentioned practitioners fail to realize that children take on active caregiving roles when their guardians become seriously ill and demonstrates why understanding children's care is crucial for global health policy. Using ethnographic methods, and listening to the voices of the young as well as adults, Jean Hunleth makes the caregiving work of children visible. She shows how children actively seek to "get closer" to ill guardians by providing good care. Both children and ill adults define good care as attentiveness of the young to adults' physical needs, the ability to carry out treatment and medication programs in the home, and above all, the need to maintain physical closeness and proximity. Children understand that losing their guardians will not only be emotionally devastating, but that such loss is likely to set them adrift in Zambian society, where education and advancement depend on maintaining familial, reciprocal relationships.
Viewing contemporary history from the perspective of the AIDS crisis, Jennifer Brier provides rich, new understandings of the United States' complex social and political trends in the post-1960s era. Brier describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy, even in the face of the expansion of the New Right. Infectious Ideas places recent social, cultural, and political events in a new light, making an important contribution to our understanding of the United States at the end of the twentieth century. |Viewing contemporary history from the perspective of the AIDS crisis, Brier provides new understandings of the complex social and political trends of the post-1960s era. She describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy. |
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