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Books > Social sciences > Sociology, social studies > Social issues > Illness & addiction: social aspects > AIDS: social aspects
Viewing contemporary history from the perspective of the AIDS crisis, Jennifer Brier provides rich, new understandings of the United States' complex social and political trends in the post-1960s era. Brier describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy, even in the face of the expansion of the New Right. Infectious Ideas places recent social, cultural, and political events in a new light, making an important contribution to our understanding of the United States at the end of the twentieth century. |Viewing contemporary history from the perspective of the AIDS crisis, Brier provides new understandings of the complex social and political trends of the post-1960s era. She describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy.
Ideological blinders have led to millions of preventable AIDS deaths in Africa. Dr. Edward C. Green, former director of the Harvard AIDS Prevention Project, describes how Western AIDS "experts" stubbornly pursued ineffective remedies and sabotaged the most successful AIDS prevention program on that ravaged continent. Drawing on 30 years of conducting research in Africa, Southeast Asia, and other parts of the world in international health, Green offers a set of evidence-based and experience-rich solutions to the AIDS crisis. He calls for new emphasis on promoting sexual fidelity, the only strategy shown by research to work. Controversial but important findings for health researchers, international development specialists, and policy makers.
This provocative study examines the role of today's Russian Orthodox Church in the treatment of HIV/AIDS. Russia has one of the fastest-growing rates of HIV infection in the world - 80 per cent from intravenous drug use - and the Church remains its only resource for fighting these diseases. Jarrett Zigon takes the reader into a Church-run treatment center where, along with self-transformational and religious approaches, he explores broader anthropological questions - of morality, ethics, what constitutes a 'normal' life, and who defines it as such. Zigon argues that this rare Russian partnership between sacred and political power carries unintended consequences: even as the Church condemns the influence of globalization as the root of the problem it seeks to combat, its programs are cultivating citizen-subjects ready for self-governance and responsibility, and better attuned to a world the Church ultimately opposes.
This deeply insightful ethnography explores the healing power of caring and intimacy in a small, closely bonded Apostolic congregation during Botswana's HIV/AIDS pandemic. "Death in a Church of Life" paints a vivid picture of how members of the Baitshepi Church make strenuous efforts to sustain loving relationships amid widespread illness and death. Over the course of long-term fieldwork, Frederick Klaits discovered Baitshepi's distinctly maternal ethos and the 'spiritual' kinship embodied in the church's nurturing fellowship practice. Klaits shows that for Baitshepi members, Christian faith is a form of moral passion that counters practices of divination and witchcraft with redemptive hymn singing, prayer, and the use of therapeutic substances. An online audio annex makes available the examples of the church members' preachings and songs.
This groundbreaking work, with its unique anthropological approach, sheds new light on a central conundrum surrounding AIDS in Africa and in so doing, reframes current debates about the disease. Robert J. Thornton explores why HIV prevalence fell during the 1990s in Uganda despite that country's having one of Africa's highest fertility rates, while, during the same period, HIV prevalence rose in South Africa, a country with Africa's lowest fertility rate. Using anthropological, epidemiological, and mathematical methods, Thornton finds that culturally and socially determined differences in the structure of sexual networks - rather than changes in individual behavior - were responsible for these radical differences in HIV prevalence. His study exposes these invisible networks, or unimagined communities, unseen both by those who participate in them and by the social sciences, and opens a new area of investigation - the sexual network as social structure. Incorporating such factors as property, mobility, social status, and political authority into our understanding of AIDS transmission, Thornton offers a fresh vision of the disease, one that suggests new avenues for fighting it worldwide.
Each year it is estimated that approximately 40,000 people in the U.S. are newly infected with HIV. In the late 1990s, the number of deaths from AIDS dropped 43% as a result of highly active antiretroviral therapy. Unfortunately, the complex system currently in place for financing and delivering publicly financed HIV care undermines the significant advances that have been made in the development of new technologies to treat it. Many HIV patients experience delays in access to other services that would support adhering to treatment. As a result, each year opportunities are missed that could reduce the mortality, morbidity, and disability suffered by individuals with HIV infections. Public Financing and Delivery of HIV/AIDS Care examines the current standard of care for HIV patients and assesses the extent the system currently used for financing and delivering care allows individuals with HIV to actually receive it. The book recommends an expanded federal program for the treatment of individuals with HIV, administered at the state level. This program would provide timely access and consistent benefits with a strong focus on comprehensive and continuous care and access to antiretroviral therapy. It could help improve the quality of life of HIV/AIDS patients, as well as reduce the number of deaths among those infected. Table of Contents Front Matter Prologue and Executive Summary 1 Introduction: Securing the Legacy of Ryan White 2 HIV/AIDS Care in the Third Decade: Opportunities and Challenges in the Changing Epidemic 3 Current Financing and Delivery of HIV Care 4 Barriers to HIV Care 5 Options for Financing and Delivering HIV Care 6 Recommendations Appendix A: Technical Appendix Estimating the Impact and Cost of Expanded HIV Care Programs Appendix B: Overview of Care Act Allocation Formulas Appendix C: Mental Illness and HIV Comorbidity: A Large and Vulnerable HIV Subpopulation Appendix D: Financing HIV/AIDS Care: A Quilt With Many Holes Appendix E: Towards an Understanding of Meeting HIV-Infected Substance Users Appendix F: Committee on the Public Financing and Delivery of HIV Care Index
Healers Abroad:Americans Responding to the Human Resource Crisis in HIV/AIDS calls for the federal government to create and fund the United States Global Health Service (GHS) to mobilize the nationA-A'A1/2s best health care professionals and other highly skilled experts to help combat HIV/AIDS in hard-hit African, Caribbean, and Southeast Asian countries. The dearth of qualified health care workers in many lowincome nations is often the biggest roadblock to mounting effective responses to public health needs. The proposalA-A'A1/2s goal is to build the capacity of targeted countries to fight the HIV/AIDS pandemic over the long run. The GHS would be comprised of six multifaceted components. Full-time, salaried professionals would make up the organizationA-A'A1/2s pivotal A-A'A1/2service corps,A-A'A1/2 working side-by-side with other colleagues already on the ground to provide medical care and drug therapy to affected populations while offering local counterparts training and assistance in clinical, technical, and managerial areas.
We Are Having This Conversation Now offers a history, present, and future of AIDS through thirteen short conversations between Alexandra Juhasz and Theodore Kerr, scholars deeply embedded in HIV responses. They establish multiple timelines of the epidemic, offering six foundational periodizations of AIDS culture, tracing how attention to the crisis has waxed and waned from the 1980s to the present. They begin the book with a 1990 educational video produced by a Black health collective, using it to consider organizing intersectionally, theories of videotape, empowerment movements, and memorialization. This video is one of many powerful yet overlooked objects that the pair focus on through conversation to understand HIV across time. Along the way, they share their own artwork, activism, and stories of the epidemic. Their conversations illuminate the vital role personal experience, community, cultural production, and connection play in the creation of AIDS-related knowledge, archives, and social change. Throughout, Juhasz and Kerr invite readers to reflect and find ways to engage in their own AIDS-related culture and conversation.
We Are Having This Conversation Now offers a history, present, and future of AIDS through thirteen short conversations between Alexandra Juhasz and Theodore Kerr, scholars deeply embedded in HIV responses. They establish multiple timelines of the epidemic, offering six foundational periodizations of AIDS culture, tracing how attention to the crisis has waxed and waned from the 1980s to the present. They begin the book with a 1990 educational video produced by a Black health collective, using it to consider organizing intersectionally, theories of videotape, empowerment movements, and memorialization. This video is one of many powerful yet overlooked objects that the pair focus on through conversation to understand HIV across time. Along the way, they share their own artwork, activism, and stories of the epidemic. Their conversations illuminate the vital role personal experience, community, cultural production, and connection play in the creation of AIDS-related knowledge, archives, and social change. Throughout, Juhasz and Kerr invite readers to reflect and find ways to engage in their own AIDS-related culture and conversation.
In the Eye of the Storm tells the remarkable story of AIDS volunteers who engaged in a struggle for life against death. The people who volunteered to help during the HIV/AIDS crisis of the 1980s and early 1990s provided compassion and support to heavily stigmatised people. These volunteers provided in-home care for the sick and dying, staffed needle exchanges and telephone help-lines, produced educational resources, served on boards of management, and provided friendship and practical support, among many other roles. They helped people affected by the virus to navigate a medical system that in preceding decades had been openly hostile towards the marginalised communities of homosexuals, drug users and sex workers. In the process, volunteering left and indelible mark on the lives and outlooks of these volunteers. For the first time, by focusing on individual life stories, this book explores the crucial role of the men and women who volunteered at at time of disaster. Despite their critical role, they have not been sufficiently recognised. Through their stories, drawn from oral histories conducted by the authors, we see how those on the front-line navigated and survived a devastating epidemic, and the long-term impact of those grim years of illness, death and loss.
Facing a Pandemic traces the history and spread of the HIV/AIDS virus in Africa and its impact on African society and public policy before considering new priorities needed to combat the pandemic. The central argument is that the theological motif of the image of God invites a prophetic critique of the social environment in which HIV/AIDS thrives and calls for a praxis of love and compassion.
The Sub-Specialty Care of HIV-Infected Patients is a synthesis of current policies, practices, and recommendations regarding the management of HIV-infected patients, authored by academicians at two major Houston medical institutions, Baylor College of Medicine and the University of Texas at Houston. The chapters represent the traditional sub-specialties of internal medicine, with infectious disease represented in chapters on immunizations and on the current new directions in antiretroviral management. Additional clinical material is provided by members from the Department of Medicine, the Department of Neurology, and the Department of Psychiatry. The material is intended as a discussion of current positions and directions, with the realization that these change often and that the material is intended thus to be current pertaining to the date of submission (October 31, 2017). Almost all of the providers for this book have worked at the Thomas Street Clinic in Houston, a multidisciplinary, free-standing clinic dedicated to the care of HIV-infected patients and the dedicatee of this work.
A tidal wave of panic surrounded homosexuality and AIDS in the 1980s and early 1990s, the period commonly called 'The AIDS Crisis'. With the advent of antiretroviral drugs in the mid '90s, however, the meaning of an HIV diagnosis radically changed. These game-changing drugs now enable many people living with HIV to lead a healthy, regular life, but how has this dramatic shift impacted the representation of gay men and HIV in popular culture? Positive Images is the first detailed examination of how the relationship between gay men and HIV has transformed in the past two decades. From Queer as Folk to Chemsex, The Line of Beauty to The Normal Heart, Dion Kagan examines literature, film, TV, documentaries and news coverage from across the English-speaking world to unearth the socio-cultural foundations underpinning this 'post-crisis' period. His analyses provide acute insights into the fraught legacies of the AIDS Crisis and its continued presence in the modern queer consciousness.
In Zambia, due to the rise of tuberculosis and the closely connected HIV epidemic, a large number of children have experienced the illness or death of at least one parent. Children as Caregivers examines how well intentioned practitioners fail to realize that children take on active caregiving roles when their guardians become seriously ill and demonstrates why understanding children's care is crucial for global health policy. Using ethnographic methods, and listening to the voices of the young as well as adults, Jean Hunleth makes the caregiving work of children visible. She shows how children actively seek to "get closer" to ill guardians by providing good care. Both children and ill adults define good care as attentiveness of the young to adults' physical needs, the ability to carry out treatment and medication programs in the home, and above all, the need to maintain physical closeness and proximity. Children understand that losing their guardians will not only be emotionally devastating, but that such loss is likely to set them adrift in Zambian society, where education and advancement depend on maintaining familial, reciprocal relationships.
Since the beginning of the acquired immunodeficiency syndrome (AIDS) epidemic in the early 1980s, many individuals living with the disease have had difficulty finding affordable, stable housing. As individuals become ill, they may find themselves unable to work, while at the same time facing health care expenses that leave few resources to pay for housing. In addition, many persons living with AIDS struggled to afford housing even before being diagnosed with the disease. The financial vulnerability associated with AIDS, as well as the human immunodeficiency virus (HIV) that causes AIDS, results in a greater likelihood of homelessness among persons living with the disease. At the same time, those who are homeless may be more likely to engage in activities through which they could acquire or transmit HIV. Further, recent research has indicated that individuals living with HIV who live in stable housing have better health outcomes than those who are homeless or unstably housed, and that they spend fewer days in hospitals and emergency rooms. This book describes research that shows how housing and health status are related and the effects of stable housing on patient health. It also describes the Housing Opportunities for Persons with AIDS (HOPWA) program, the only federal program that provides housing and services specifically for persons who are HIV positive or who have AIDS, together with their families. In addition, the book describes how a small portion of funds appropriated through the Ryan White HIV/AIDS program may be used by states and local jurisdictions to provide short-term housing assistance for persons living with HIV/AIDS.
Examining three interconnected case studies, Tamar Carroll powerfully demonstrates the ability of grassroots community activism to bridge racial and cultural differences and effect social change. Drawing on a rich array of oral histories, archival records, newspapers, films, and photographs from post-World War II New York City, Carroll shows how poor people transformed the antipoverty organization Mobilization for Youth and shaped the subsequent War on Poverty. Highlighting the little-known National Congress of Neighborhood Women, she reveals the significant participation of working-class white ethnic women and women of color in New York City's feminist activism. Finally, Carroll traces the partnership between the AIDS Coalition to Unleash Power (ACT UP) and Women's Health Action Mobilization (WHAM!), showing how gay men and feminists collaborated to create a supportive community for those affected by the AIDS epidemic, to improve health care, and to oppose homophobia and misogyny during the culture wars of the 1980s and 1990s. Carroll contends that social policies that encourage the political mobilization of marginalized groups and foster coalitions across identity differences are the most effective means of solving social problems and realizing democracy.
Thirty years after AIDS was first recognized, the American South constitutes the epicenter of the United States' epidemic. Southern states claim the highest rates of new infections, the most AIDS-related deaths, and the largest number of adults and adolescents living with the virus. Moreover, the epidemic disproportionately affects African American communities across the region. Using the history of HIV in North Carolina as a case study, Stephen Inrig examines the rise of AIDS in the South in the period from the early spread and discovery of the disease through the late nineties. Drawing on epidemiological, archival, and oral history sources, Inrig probes the social determinants of health that put poor, rural, and minority communities at greater risk of HIV infection in the American South. He also examines the difficulties that health workers and AIDS organizations faced in reaching those communities, especially in the early years of the epidemic. His analysis provides an important counterweight to most accounts of the early history of the disease, which focus on urban areas and the spread of AIDS in the gay community. As one of the first historical studies of AIDS in a southern state, North Carolina and the Problem of AIDS provides powerful insight into the forces and factors that have made AIDS such an intractable health problem in the American South and the greater United States.
Religion has become deeply involved in HIV/AIDS treatment, care and prevention, and is substantially influencing attitudes and behaviour in the domains of sexuality, relationships and the body. At the same time, AIDS as a disease, as a field of biomedicine, and as a realm of international aid interventions is heavily affecting socio-religious formations and developments in Africa. Religion and AIDS are transforming African public and private domains together. Yet, scant attention is paid to the ways in which this intertwined engagement between the domains of religion and the domains of AIDS prevention, care, and treatment in African societies become increasingly linked to an outside world. This book seeks to address the question why so much of the transnational religious engagement with the disease has seemed to serve a conservative agenda. It is unique in drawing attention to the transnationalisation of religion and AIDS in Africa. The disciplinary scope for studying this phenomenon is wide-ranging as it speaks to anthropological, sociological, developmental, historical, and religious studies, and global health perspectives on these issues. Introducing concepts from the study of transnationalism into the study of religion and AIDS and their mutual intertwinement, this book offers the various fields which explore how religious ideologies and moralities have been shaping the experience of AIDS in Africa a new set of conceptual tools for analysis. The multi-disciplinary, empirical chapters from a wide range of localities shows how African public domains are being shaped by forces that are transnational, steered by forceful religious and moral agendas, and often have substantial international resources behind them. These are, so the authors argue, the strings attached to the present-day transnational, religious involvement with AIDS in Africa.
""AIDS, Culture, and Gay Men" addresses the urgent need for research on HIV and the behaviors of men who have sex with men. Based on studies in the U.S., Australia, Greece, and Belgium, the authors provide ethnographic, epidemiological, biological, and historical data and cover issues of risk, ethics, language, and the nature of evidence, all directed at developing effective forms of intervention."--Shirley Lindenbaum, City University of New York "This book makes a compelling case that culturally oriented anthropological research is essential in understanding and responding to the AIDS crises among MSM and in gay communities."--Serena Nanda, City University of New York There are approximately seven million adult gay and bisexual men in the United States and 120 million adult gay and bisexual men globally. This highly readable volume of original essays explores the cultural dimensions of AIDS among men who have sex with men (MSM). The traditional emphasis in HIV/AIDS research within gay communities has focused on sexual behavior and psychological issues. Yet to better understand the social and cultural dimensions of the disease, and to halt the spread of HIV, it is essential to recognize and understand the culture of MSM. Cultural anthropologists, unquestionably, are in a unique position to achieve this understanding. Douglas Feldman has gathered a diverse group of experts to contribute to this collection, and the volume features a wealth of scholarly data unavailable elsewhere. Douglas A. Feldman is professor of anthropology at the State University of New York, Brockport. Awarded the AAA's Kimball Award in Public Anthropology in 1996 for his work exploring the connection between AIDS and anthropology, Feldman is the editor of five books, including "The AIDS Crisis: A Documentary History" and "AIDS, Culture, and Africa."
Given that women and girls carry the heaviest burdens of the African HIV pandemic, their lived experiences should be the starting point for any pedagogy of prevention. In light of this claim, Risky Marriage: HIV and Intimate Relationships in Tanzania uses qualitative fieldwork with HIV positive women living in Mwanza, Tanzania to ask why marriage is an HIV risk factor. By beginning with women's experience as a hermeneutical lens, this book seeks to establish a creative space where African women can imagine new alternatives to HIV prevention that would promote human flourishing and abundant life in African communities. The aim of this book is to listen faithfully to the lived experiences of HIV positive women and ask how their experiences can help us re-imagine Christian conceptions of marriage, sexual ethics, and health in an HIV positive world. By drawing on the unwritten texts of women's lives, this study proposes alternative pedagogies for faith-based prevention methods and contributes to the wider interdisciplinary and theo-ethical discourse on HIV prevention and women's health. At the same time, it makes local impact of equal importance as women in East African communities are invited to think creatively about ways to end the HIV pandemic. For more information and comments from the author, watch a trailer for the book here: http://vimeo.com/semafilms/riskymarriage
Countries in sub-Saharan Africa were once dismissed by Western experts as being too poor and chaotic to benefit from the antiretroviral drugs that transformed the AIDS epidemic in the United States and Europe. Today, however, the region is courted by some of the most prestigious research universities in the world as they search for resource-poor hospitals in which to base their international HIV research and global health programs. In Scrambling for Africa, Johanna Tayloe Crane reveals how, in the space of merely a decade, Africa went from being a continent largely excluded from advancements in HIV medicine to an area of central concern and knowledge production within the increasingly popular field of global health science. Drawing on research conducted in the U.S. and Uganda during the mid-2000s, Crane provides a fascinating ethnographic account of the transnational flow of knowledge, politics, and research money as well as blood samples, viruses, and drugs. She takes readers to underfunded Ugandan HIV clinics as well as to laboratories and conference rooms in wealthy American cities like San Francisco and Seattle where American and Ugandan experts struggle to forge shared knowledge about the AIDS epidemic. The resulting uncomfortable mix of preventable suffering, humanitarian sentiment, and scientific ambition shows how global health research partnerships may paradoxically benefit from the very inequalities they aspire to redress. A work of outstanding interdisciplinary scholarship, Scrambling for Africa will be of interest to audiences in anthropology, science and technology studies, African studies, and the medical humanities."
In 2013, the U.S. President's Emergency Plan for AIDS Relief (PEPFAR) will mark nearly ten years of success with an extraordinary year of achievements. None of this would have been possible without the vision and leadership of President Bush, President Obama, and the bipartisan support of Congress. A decade ago AIDS was wiping out an entire generation in Africa; today, PEPFAR's efforts and those of its many partners have brought the world to a new era -- a time when new HIV infections and AIDS-related deaths are on the steep decline, and an AIDS-free generation is both U.S. policy and a goal within our reach. Building off recent breakthroughs, which demonstrated the power of key evidence-based interventions to drive down the rate of new infections and save more lives, this book reflects lessons learned from almost ten years of experience in supporting countries to rapidly scale-up HIV prevention, treatment, and care services. It demonstrates the opportunity for the world to help move more countries toward and beyond the tipping point in their epidemics and put them on a path to achieving an AIDS-free generation. The U.S. commitment to the global AIDS response will remain strong, comprehensive, and driven by science -- and clearly outlines what PEPFAR is doing and will continue to do to help make an AIDS-free generation a reality.
This first extensive study of the practice of blood transfusion in
Africa traces the history of one of the most important therapies in
modern medicine from the period of colonial rule to independence
and the AIDS epidemic. The introduction of transfusion held great
promise for improving health, but like most new medical practices,
transfusion needed to be adapted to the needs of sub-Saharan
Africa, for which there was no analogous treatment in traditional
African medicine.
Looking back over the course of the three-plus decades of the HIV/AIDS epidemic, scholars and researchers have made many significant strides in understanding and responding to HIV and AIDS. From the inception of the HIV/AIDS epidemic during the early 1980s until the mid-1990s, when highly active antiretroviral treatment (HAART) was introduced as an innovative and highly-effective way of controlling HIV and HIV-related diseases, the "average" person diagnosed as being HIV-positive could expect to live for several months and if lucky, for a few years. Today, with the medical advances that have been made in the fight against HIV/AIDS, people who have contracted HIV usually can expect to live relatively healthy lives, in most instances for many years without experiencing any serious complications of HIV disease. This book focuses on the social science aspects of current HIV research.
Since the early days of the AIDS epidemic, many bizarre and dangerous hypotheses have been advanced as to the origins of the disease. In this compelling book, Nicoli Nattrass explores the social and political factors prolonging the erroneous belief that the American government manufactured the human immunodeficiency virus (HIV) to be used as a biological weapon, as well as the myth’s consequences for behavior, especially within African American and black South African communities. Contemporary AIDS denialism, the belief that HIV is harmless and that antiretroviral drugs are the true cause of AIDS, is a more insidious AIDS conspiracy theory. Advocates of this position make a “conspiratorial move” against HIV science by implying its methods cannot be trusted, and that untested, alternative therapies are safer than antiretrovirals. These claims are genuinely life-threatening, as tragically demonstrated in South Africa when the delay of antiretroviral treatment resulted in nearly 333,000 AIDS deaths and 180,000 HIV infections thatcould have been prevented – a tragedy of stunning proportion. Nattrass identifies four symbolically powerful figures ensuring the lifespan of AIDS denialism: the hero scientist (dissident scientists who lend credibility to the movement), the cultropreneur (alternative therapists who exploit the conspiratorial move as a marketing mechanism), the living icon (individuals who claim to be living proof of AIDS denialism’s legitimacy), and the praise-singer (journalists who broadcast movement messages to the public). Nattrass describes how pro-science activists have fought back by deploying empirical evidence and political credibility to resist AIDS conspiracy theories, which is part of the crucial project to defend evidence-based medicine. |
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