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Books > Social sciences > Sociology, social studies > Social issues > Illness & addiction: social aspects > AIDS: social aspects
AIDS: Rights, Risk and Reason contains a mix of papers linking research with the development of theoretical frameworks in a readable and accessibole style. Issues examined include: perceptions of risk and risk-taking behaviour; rights and responsibilities; and the rationality that underpins individual and collective responses to HIV/AIDS.
The purpose of this book is to encourage professionals to become involved in family-oriented services to prevent the spread of HIV and its consequences and to provide examples of strategies for mobilizing family resources in the prevention and adaptation to HIV and AIDS. The members of the NIMH Consortium on Families and HIV/AIDS have prepared these chapters building on their research and practice experience. Together some of the nation?s most capable behavioral prevention and treatment scientists have developed these prevention programs based on sound scientific principles and are currently testing them in rigorous controlled trials in communities across the country. While these interventions have not yet been demonstrated to be effective, they have received rigorous peer review by independent scientists conducted under the auspices of the NIMH, and were considered worthy of research support. This book focuses on populations were HIV infection is now quickly spreading, and yet relatively little is know about family interventions with these populations. The prevention programs address the spectrum of programs to prevent the spread of HIV and its consequences. The HIV prevention programs are intended to promote greater responsibility in general, and thus encourage healthier lifestyles with respect to drug and sexual behavior among family members. Although not exclusively, a large proportion of the programs presented in this book were designed for African American populations and address the Prevention of the spread of HIV/AIDS and its consequences. With that caveat, however, it should be noted that these interventions can also be adapted for use with other cultural groups, other chronic diseases, STDs and multiple family configurations.
Radical changes in our understanding of health and healthcare are reshaping twenty-first-century personhood. In the last few years, there has been a great influx of public policy and biometric technologies targeted at engaging individuals in their own health, increasing personal responsibility, and encouraging people to "self-manage" their own care. One Blue Child examines the emergence of self-management as a global policy standard, focusing on how healthcare is reshaping our relationships with ourselves and our bodies, our families and our doctors, companies, and the government. Comparing responses to childhood asthma in New Zealand and the Czech Republic, Susanna Trnka traces how ideas about self-management, as well as policies inculcating self-reliance and self-responsibility more broadly, are assumed, reshaped, and ignored altogether by medical professionals, asthma sufferers and parents, environmental activists, and policymakers. By studying nations that share a commitment to the ideals of neoliberalism but approach children's health according to very different cultural, political, and economic priorities, Trnka illuminates how responsibility is reformulated with sometimes surprising results.
This book addresses the ongoing problem of HIV in black South African women as a health inequity. Importantly, it argues that this urgent problem of justice is changeable. Sprague uses the capabilities approach to bring a theory of health justice, together with multiple sources of evidence, to investigate the complex problem of HIV and accompanying poor health outcomes in black South African women. Motivated by a concern for application of knowledge, this work discusses how to better conceptualise what health justice demands of state and society, and how to mobilise available evidence on health inequities in ways that compel greater state action to address problems of gender and health. HIV in women, and possible responses, are investigated on four distinct levels: conceptual, social structure, health systems, and law. The analysis demonstrates that this problem is indeed modifiable with long-term interventions and an enhanced state response targeted at multiple levels. This book will be of interest to academics and students in the social health sciences, gender and development studies, and global health, as well as HIV/health activists, government officials, policy makers, HIV clinicians and health providers interested in HIV.
Nearly thirty years since HIV/AIDS was first identified, confusion over effective mechanisms of controlling and eradicating the illness remain prevalent. This book highlights the need for comprehensive approaches to governance, as responses to HIV/AIDS become increasingly focused upon the health aspect of the epidemic, and financial commitments become subject to aid fatigue. This book examines the roles and influence of multiple actors and initiatives that have come to constitute the global response to the epidemic. It considers how these actors and structures of governance enhance, or limit, participation and accountability; and the impact this is having upon effective HIV/AIDS responses across the world. The book addresses participation and accountability as key elements of governance in four thematic areas: the role of the state and democratic governance; non-state actors and mechanisms of political governance; public-private partnerships and economic governance; and multilateral institutions and global governance. Drawing on the insights of public health specialists; political scientists; economists; lawyers; those working with community groups, and within international organisations, it offers valuable perspectives on the governance of HIV/AIDS. Aimed at both academics and practitioners throughout the world, this book contributes to the academic debate surrounding global governance, health and development economics, and the work of multiple international organisations and civil society organisations.
Since the democratic elections in 1994, there have been concerted efforts to redress race and gender inequalities in South Africa. Learners and teachers have responded in their own ways to change and this nuanced analysis reveals their struggles to realise gender equality by living gender differently. In distinguishing short-term interventions to change behaviour from institutional approaches, which seek to transform school structures, this book offers a new framework for understanding gender-equality initiatives.
** With a new introduction by Russell T Davies ** A new edition of the award-winning, ground-breaking account of the early AIDS crisis in Britain. 'A remarkable journalistic achievement.' Time Out 'Powerful . . . Indispensable.' Observer 'Superb.' London Review of Books Winner of the Somerset Maugham Prize How does a country control a virus that is killing increasing numbers of people? How does a government contain an epidemic spread by sex, drug use and blood products? And how does a population react when told that everyone is at risk from infection? By 1986, when the British Government woke up to the problem of AIDS, it estimated that 30,000 people had already been infected with HIV. Why was it so slow to act? Would the situation have been different if most of those affected had not been gay men? Award-winning journalist Simon Garfield presents a story of political intrigue, of panic and hysteria, of wasted opportunities and of a medical battle conducted against seemingly impossible odds. Including interviews with key figures in the fight against the virus as well as those facing personal devastation and prejudice, The End of Innocence is an important and powerful story, compellingly told. Features a new afterword by the author.
This book challenges the conventional security-based international policy frameworks that have developed for dealing with HIV/AIDS during and after conflicts, and examines first-hand evidence and experiences of conflict and HIV/AIDS. Since the turn of the century international policy agenda on security have focused on HIV/AIDS only as a concern for national and international security, ignoring people s particular experiences, vulnerabilities and needs in conflict and post-conflict contexts. Developing a gender-based framework for HIV/AIDS-conflict analysis, this book draws on research conducted in Burundi to understand the implications of post-conflict demobilization and reintegration policies on women and men and their vulnerability to HIV/AIDS. By centring the argument on personal reflections, this work provides a critical alternative method to engage with conflict and HIV/AIDS, and a much richer understanding of the relationship between the two. International Security, Conflict and Gender will be of interest to students and scholars of healthcare politics, security and governance.
Psychotherapy and ethnography are jointly employed to produce an account of HIV-positive children's lives (and deaths) in Zimbabwe that is sensitive to emotions and their social contexts. The study explores the lives of children growing up HIV-positive in the eastern Zimbabwean town of Mutare at a time of severe crisis in the state, marked by impoverishment, organized violence and mass death. This ethnography grewout of a psychotherapeutic engagement with a group of children living with HIV. The study examines children's experiences through the institutional domains of family and kin, clinics and other forms of healing, churches andreligious practices, and experiences of dying and bereavement. Against patrilineal norms, much daily caring occurs in mothers' families. Clinics continue to offer partial western medical care despite daunting resource constraints. Western medicine sits on older templates of 'traditional' and 'spiritual' healing. Anti-retrovirals and other basic medicines are available but may exacerbate domestic discord and fail to meet more obvious physical symptoms. Children and their families appear to prefer spiritual alternatives to medical care, perhaps partly as a result of the severe limitations placed on the latter. A wide variety of religious practices, primarily Christian in a plethora of forms, flourish in the context. Dying may come to be seen by children as preferable to continued struggle against severe adversity. Child deaths are deeply imbued with religious practice and given voice through religious idioms. Ross Parsons has extensive experience as a psychotherapist, a writer and a social researcher. He lives in Mutare and teaches anthropology and psychology at Africa University. Weaver Press: Zimbabwe and Southern Africa (South Africa, Botswana, Lesotho, Swaziland and Namibia)
?????? Medecins Sans Frontieres (MSF) is an international humanitarian organization, committed to providing medical assistance to populations in danger and to raising awareness of the plight of the people they help. Today MSF is active in more than 60 countries in the world. ?????? MSF has been working in Peru since 1985. In Peru, the prevalence of HIV/AIDS is low, but highest amongst the most neglected members of society there, mainly homosexual men and commercial sex workers. Since 2004, MSF has offered HIV/AIDS care in the slum of Villa El Salvador, Lima. ?????? In Lima, MSF has been working in Lurigancho, one of the most populated prisons of Latin America. In this prison the risk of contracting HIV/AIDS is 5 to 7 times higher than in the rest of the country. ?????? At the end of 2007 MSF hand over all Peruvian projects to local authorities, leaving the country after almost 25 years. ?????? Larry Towell (Magnum Photos) was commissioned by MSF to travel to the prison and the slums in Lima to photograph the result of MSF's 25-year presence, and show that the area is now ready to continue its fight against HIV and AIDS on its own. ?????? Towell brings us black and white images of people shunned by society and desperate through poverty, their situation exacerbated through the endemic HIV and AIDS in their already marginalised population. MSF has targeted their cause for the past 25 years. ?????? This book is a celebration of their work and the people whose existence they have salvaged.
When addressing the factors shaping HIV prevention programs in sub-Saharan Africa, it is important to consider the role of family planning programs that preceded the epidemic. In this book, Rachel Sullivan Robinson argues that both globally and locally, those working to prevent HIV borrowed and adapted resources, discourses, and strategies used for family planning. By combining statistical analysis of all sub-Saharan African countries with comparative case studies of Malawi, Nigeria, and Senegal, Robinson also shows that the nature of countries' interactions with the international community, the strength and composition of civil society, and the existence of technocratic leaders influenced variation in responses to HIV. Specifically, historical and existing relationships with outside actors, the nature of nongovernmental organizations, and perceptions of previous interventions strongly structured later health interventions through processes of path dependence and policy feedback. This book will be of great use to scholars and practitioners interested in global health, international development, African studies and political science.
AIDS on the Agenda is written for policymakers, managers, and program staff in development and humanitarian agencies, to promote debate about the challenges that confront them in a world which has been changed for ever by the pandemic of AIDS. The book considers three possible responses to the problem: * Do nothing.* Try to specialize in direct AIDS work.* Adapt core programs and internal systems to respond to the impact of AIDS.The author argues for the third approach as the essential initial response. She shows how mainstream work in a wide range of sectors - including food security, livelihoods support, education, health promotion, and emergency provision of water and sanitation - can be modified to reduce susceptibility to HIV infection and vulnerability to the impacts of AIDS. She also offers practical advice on modifying personnel and financial systems to protect the interests of staff and the viability of organizations when operating in AIDS-prone contexts.The text is based on case studies drawn from the experiences of three agencies (ActionAid, Oxfam International, and Save the Children UK) and their partners; and on insights contributed by a wide range of other organizations. The problems inherent in the 'mainstreaming' approach are dealt with frankly and constructively. The comprehensive Resources section offers user-friendly guidance on the following topics: * Researching and predicting the internal impacts of AIDS* Assessing the impacts of AIDS education and awareness-raising* Drafting a workplace policy* Monitoring the impact of AIDS and of internal mainstreaming* Training for mainstreaming AIDS in development and humanitarian work* Undertaking community research formainstreaming AIDS in development and humanitarian work* Adapting organizational systems
This volume of the "International Perspectives on Education and Society" series examines the relationship between HIV/AIDS and education worldwide. Much of the mystery surrounding HIV/AIDS and education lies in the fact that many factors contextualize their intersection. Many of the children who are at risk of not finishing school or have never had the chance to attend school live day-to-day in communities with high HIV/AIDS infection rates. To exacerbate the problem, in some countries the highest HIV/AIDS infection rates are in marginalized and extremely poor communities while in others it is within the most affluent communities. This volume examines how education supports, combats or reacts to HIV/AIDS awareness, prevention and impact worldwide as well as its impact on education systems and teaching forces. Given the context and prevalence of HIV/AIDS worldwide, this volume presents information, policy case studies, and empirical research for use by educators, policymakers, and organizations about the relationship between HIV/AIDS and education, including how HIV/AIDS has impacted education systems and the potential impact education has on HIV/AIDS.
In Zambia, due to the rise of tuberculosis and the closely connected HIV epidemic, a large number of children have experienced the illness or death of at least one parent. Children as Caregivers examines how well intentioned practitioners fail to realize that children take on active caregiving roles when their guardians become seriously ill and demonstrates why understanding children's care is crucial for global health policy. Using ethnographic methods, and listening to the voices of the young as well as adults, Jean Hunleth makes the caregiving work of children visible. She shows how children actively seek to "get closer" to ill guardians by providing good care. Both children and ill adults define good care as attentiveness of the young to adults' physical needs, the ability to carry out treatment and medication programs in the home, and above all, the need to maintain physical closeness and proximity. Children understand that losing their guardians will not only be emotionally devastating, but that such loss is likely to set them adrift in Zambian society, where education and advancement depend on maintaining familial, reciprocal relationships.
The Life and Death of ACT UP/LA explores the history of the AIDS Coalition to Unleash Power, Los Angeles, part of the militant anti-AIDS movement of the 1980s and 1990s. ACT UP/LA battled government, medical, and institutional neglect of the AIDS epidemic, engaging in multi-targeted protest in Los Angeles and nationally. The book shows how appealing the direct action anti-AIDS activism was for people across the United States; as well as arguing the need to understand how the politics of place affect organizing, and how the particular features of the Los Angeles cityscape shaped possibilities for activists. A feminist lens is used, seeing social inequalities as mutually reinforcing and interdependent, to examine the interaction of activists and the outcomes of their actions. Their struggle against AIDS and homophobia, and to have a voice in their healthcare, presaged the progressive, multi-issue, anti-corporate, confrontational organizing of the late twentieth century, and deserves to be part of that history.
The Life and Death of ACT UP/LA explores the history of the AIDS Coalition to Unleash Power, Los Angeles, part of the militant anti-AIDS movement of the 1980s and 1990s. ACT UP/LA battled government, medical, and institutional neglect of the AIDS epidemic, engaging in multi-targeted protest in Los Angeles and nationally. The book shows how appealing the direct action anti-AIDS activism was for people across the United States; as well as arguing the need to understand how the politics of place affect organizing, and how the particular features of the Los Angeles cityscape shaped possibilities for activists. A feminist lens is used, seeing social inequalities as mutually reinforcing and interdependent, to examine the interaction of activists and the outcomes of their actions. Their struggle against AIDS and homophobia, and to have a voice in their healthcare, presaged the progressive, multi-issue, anti-corporate, confrontational organizing of the late twentieth century, and deserves to be part of that history.
How do modern women in developing countries experience sexuality and love? Drawing on a rich variety of interview, ethnographic and survey data from her native country of Kenya, Sanyu Mojola examines how young African women, who suffer disproportionate rates of HIV infection compared to young African men, navigate their relationships, schooling, employment and financial access in the context of a devastating HIV epidemic and economic inequality. Writing from a unique outsider-insider perspective, Mojola argues that the entanglement of love, money, and the production and transformation of girls into "consuming women" lies at the heart of women's health and coming-of-age crises. Engaging in themes of gender, consumption, and the transition to adulthood, this text is an incisive analysis of gender, sexuality, and health in Africa.
The HIV/AIDS epidemic in Africa has defined the childhoods of an entire generation. Over the past twenty years, international NGOs and charities have devoted immense attention to the millions of African children orphaned by the disease. But in Crying for Our Elders, anthropologist Kristen Cheney argues that these humanitarian groups have misread the crisis. Moreover, she explains how the global humanitarian focus on orphanhood often elides the social and political circumstances that present the greatest adversity to vulnerable children in effect, actually deepening the crisis and thereby affecting children's lives as irrevocably as the disease itself. Through ethnographic fieldwork and collaborative research with children in Uganda, Cheney traces how the 'best interest' principle that governs development work targeting children often does more harm than good, stigmatizing orphans and leaving children in the post-antiretroviral era even more vulnerable to exploitation. She details the dramatic effects this has on traditional family support and child protection, and stresses child empowerment over pity. Crying for Our Elders advances current discussions on humanitarianism, children's studies, orphanhood, and kinship. By exploring the unique experience of AIDS orphanhood through the eyes of children, caregivers, and policymakers, Cheney shows that despite the extreme challenges of growing up in the era of HIV/AIDS, the post-ARV generation still holds out hope for the future.
We Are Having This Conversation Now offers a history, present, and future of AIDS through thirteen short conversations between Alexandra Juhasz and Theodore Kerr, scholars deeply embedded in HIV responses. They establish multiple timelines of the epidemic, offering six foundational periodizations of AIDS culture, tracing how attention to the crisis has waxed and waned from the 1980s to the present. They begin the book with a 1990 educational video produced by a Black health collective, using it to consider organizing intersectionally, theories of videotape, empowerment movements, and memorialization. This video is one of many powerful yet overlooked objects that the pair focus on through conversation to understand HIV across time. Along the way, they share their own artwork, activism, and stories of the epidemic. Their conversations illuminate the vital role personal experience, community, cultural production, and connection play in the creation of AIDS-related knowledge, archives, and social change. Throughout, Juhasz and Kerr invite readers to reflect and find ways to engage in their own AIDS-related culture and conversation.
HIV and AIDS have long been problematized in the People's Republic of China as objects of governance in political frameworks and institutions. The state's attitudes towards health programs have, nevertheless, changed significantly during the 21st century. Pilot programs at the beginning of the century, which focused on underground sex workers, have now developed into the roll-out of a nationwide program, with supportive legislation and broadcast media publicity. This book therefore examines China's evolving AIDS response, providing an up to date investigation into the positions and practices of the state. It explains the origins, rationales and implementation of initiatives focused on female sex workers and explores the extension of such initiatives to include other populations identified as key to ending the AIDS epidemic, especially homosexual men and rural-to-urban migrant labourers. Ultimately, through an analysis of the different approaches to the governance of commercial sex and sexual health, Governing HIV in China concludes by considering the challenges raised by China's commitment to the United Nations' vision of ending AIDS as a global health threat by 2030. This book will be useful for students and scholars of Social Policy, Public Health Policy and Chinese Studies.
Across Africa, HIV/AIDS is slowly killing millions of people in the prime of their lives, weakening state structures, deepening poverty and reversing the gains in life expectancy achieved over the past century. Although many who study the dynamics of Africa??AA's AIDS crisis accept that, to some degree, its entrenchment is a socially produced phenomenon, few have examined how the course and intensity of the epidemic have been affected by the continents ubiquitous poverty, the impact of the pervasive structural adjustment programmes or Africa??AA's marginalization in the process of globalization until now.This book explores the socio-economic context of Africa??AA's vulnerability to HIV/AIDS as well as assessing the politics of domestic and global response. Using primary and secondary data, it charts the power relations driving Africa??AA's HIV/AIDS epidemic, frustrating the possibility of alleviation and recovery as well as working to relegate the continent to a bleak and vulnerable future. In this sense, the book marks a radical departure by providing a comprehensive analysis of Africa??A A's vulnerability to AIDS and the challenges confronting policy makers as they seek to reverse its escalating prevalence on the continent. ??AAAIDS in Africa??AA is an immensely valuable introduction to the greatest pandemic facing the world today.
Biomedical revolutions seem to have radically altered the environment for HIV transmission: anti-retrovirals (ARVs) and drugs to reduce mother-to-child transmission promise to cut HIV transmission rates, as does male medical circumcision. However, the hopeful messages of UNAIDS are tempered with warning about expenditure shortfalls and calls for funding. Contributions to this book remind us that, along with the external financial constraints, there have been new fractures in state power and in the organisation of health systems. More than this, the book fundamentally calls into question whether biomedical interventions can change the social roots of this disease. As well as considering new policy approaches, the book reasserts a long-standing political economy approach to HIV and to adapt it to reflect new competing theoretical approaches. The chapters attempt to connect the debates about HIV/AIDS to larger discussions about globalisation, class differentiation, inequity and uneven development in African countries. This book was originally published as a special issue of Review of African Political Economy.
Finalist for the 2017 Lambda Literary "Lammy" Award in LGBTQ Studies The first book to examine the correlation between mixed-race identity and HIV/AIDS among Native American gay men and transgendered people, Indian Blood provides an analysis of the emerging and often contested LGBTQ "two-spirit" identification as it relates to public health and mixed-race identity. Prior to contact with European settlers, most Native American tribes held their two-spirit members in high esteem, even considering them spiritually advanced. However, after contact - and religious conversion - attitudes changed and social and cultural support networks were ruptured. This discrimination led to a breakdown in traditional values, beliefs, and practices, which in turn pushed many two-spirit members to participate in high-risk behaviors. The result is a disproportionate number of two-spirit members who currently test positive for HIV. Using surveys, focus groups, and community discussions to examine the experiences of HIV-positive members of San Francisco's two-spirit community, Indian Blood provides an innovative approach to understanding how colonization continues to affect American Indian communities and opens a series of crucial dialogues in the fields of Native American studies, public health, queer studies, and critical mixed-race studies.
Since the onset of the HIV epidemic, the behaviour of men who have sex with men has been subject to intense scrutiny on the part of the behavioural and sociomedical sciences. What happens when we consider the work of these sciences to be not merely descriptive, but also constitutive of the realities it describes? The Gay Science pays attention to lived experiences of sex, drugs and the scientific practices that make these experiences intelligible. Through a series of empirically and historically detailed case studies, the book examines how new technologies and scientific artifacts - such as antiretroviral therapy, digital hookup apps and research methods - mediate sexual encounters and shape the worlds and self-practices of men who have sex with men. Rather than debunking scientific practices or minimizing their significance, The Gay Science approaches these practices as ways in which we 'learn to be affected' by HIV. It explores what knowledge practices best engage us, move us and increase our powers and capacities for action. The book includes an historical analysis of drug use as a significant element in the formation of urban gay cultures; constructivist accounts of the emergence of barebacking and chemsex; a performative response to Pre-Exposure Prophylaxis and its uptake; and, a speculative analysis of ways of thinking and doing sexual community in the digital context. Combining insights from queer theory, process philosophy and science and technology studies to develop an original approach to the analysis of sexuality, drug use, public health and digital practices, this book demonstrates the ontological consequences of different modes of attending to risk and pleasure. It is suitable for those interested in cultural studies, sociology, gender and sexuality studies, digital culture, public health and drug and alcohol studies.
A comprehensive health care system consists of services that are coordinated and integrated along the full continuum of care. For HIV patients, this includes physical health care, infectious disease management, crisis care, mental health care, substance abuse counseling, and social support services including housing, transportation, subsistence, and supports for dealing with multiple sources of stigma. This book highlights the dilemmas faced in providing comprehensive, integrated care to individuals living with HIV, providing both an understanding of existing efforts to integrate diverse systems of care, as well as insight into ways in which systems of care must be challenged in order to meet the needs of people living with HIV. Comprehensive Care for HIV/AIDS is the result of collaborative work with the county Health Department, numerous community-based organizations, and several planning boards in a metropolitan area, which have sought to provide integrated care to people living with HIV. It will be a valuable resource to the diverse community of HIV researchers, advocates and providers. |
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