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Books > Social sciences > Sociology, social studies > Social issues > Illness & addiction: social aspects > AIDS: social aspects
The HIV epidemic in Bolivia has received little attention on a global scale in light of the country's low HIV prevalence rate. However, by profiling the largest city in this land-locked Latin American country, Carina Heckert shows how global health-funded HIV care programs at times clash with local realities, which can have catastrophic effects for people living with HIV who must rely on global health resources to survive. These ethnographic insights, as a result, can be applied to AIDS programs across the globe. In Fault Lines of Care, Heckert provides a detailed examination of the effects of global health and governmental policy decisions on the everyday lives of people living with HIV in Santa Cruz. She focuses on the gendered dynamics that play a role in the development and implementation of HIV care programs and shows how decisions made from above impact what happens on the ground.
AIDS, Behavior, and Culture presents a bold challenge to the prevailing wisdom of "the global AIDS industry" and offers an alternative framework for understanding what works in HIV prevention. Arguing for a behavior-based approach, Green and Ruark make the case that the most effective programs are those that encourage fundamental behavioral changes such as abstinence, delay of sex, faithfulness, and cessation of injection drug use. Successful programs are locally based, low cost, low tech, innovative, and built on existing cultural structures. In contrast, they argue that anthropologists and public health practitioners focus on counseling, testing, condoms, and treatment, and impose their Western values, culture, and political ideologies in an attempt to "liberate" non-Western people from sexual repression and homophobia. This provocative book is essential reading for anyone working in HIV/AIDS prevention, and a stimulating introduction to the key controversies and approaches in global health and medical anthropology for students and general readers.
Successive South African governments have had controversial views on HIV and AIDS which have led to allegations that South Africa is in a state of denial about the AIDS epidemic. This book attempts to determine the validity of such claims of government denial by formulating and testing a denial hypothesis. The hypothesis is contextualized with an overview of the South African epidemic as well as a review of allegations of government denial. It reveals possible political factors that may motivate policy-makers to resort to official denial and tentatively concludes with a confirmation of the allegations contained in the denial hypothesis. However, this is done within the broader notion that denial is inherently vague and couched in language (rarely in writing) and therefore difficult to test with certainty and as such this book's real value lies in the insights gained into the complex politics of denial. By exploring the dynamics of denial and denialism and applying this to the South African AIDS epidemic, this study provides a comprehensive analysis.
AIDS epidemics continue to threaten the livelihoods of millions of people in sub-Saharan Africa. Three decades after the disease was first recognized, the annual death toll from AIDS exceeds that from wars, famine and floods combined. Yet despite millions of dollars of aid and research, there has previously been little detailed on-the-ground analysis of the multifaceted impacts on rural people. Filling that gap, this book brings together recent evidence of AIDS impacts on rural households, livelihoods, and agricultural practice in sub-Saharan Africa. There is particular emphasis on the role of women in affected households, and on the situation of children. The book is unique in presenting micro-level information collected by original empirical research in a range of African countries, and showing how well-grounded conclusions on trends, impacts and local responses can be applied to the design of HIV-responsive policies and programmes. AIDS impacts are more diverse than we previously thought, and local responses more varied - sometimes innovative, sometimes desperate. The book represents a major contribution to our understanding of the impacts of AIDS in the epidemic's heartland, and how these can be managed at different levels.
Upon it's first publication twenty years ago, "And The Band Played" on was quickly recognized as a masterpiece of investigatve reporting. An international bestseller, a nominee for the National Book Critics Circle Award, and made into a critically acclaimed movie, Shilts' expose revealed why AIDS was allowed to spread unchecked during the early 80's while the most trusted institutions ignored or denied the threat. One of the few true modern classics, it changed and framed how AIDS was discussed in the following years. Now republished in a special 20th Anniversary edition, "And the Band Played On" remains one of the essential books of our time.
Brazil's leadership role in the fight against HIV has brought its public health system widespread praise. But the nation still faces serious health challenges and inequities. Though home to the world's second largest African-descendant population, Brazil failed to address many of its public health issues that disproportionately impact Afro-Brazilian women and men. Kia Lilly Caldwell draws on twenty years of engagement with activists, issues, and policy initiatives to document how the country's feminist health movement and black women's movement have fought for much-needed changes in women's health. Merging ethnography with a historical analysis of policies and programs, Caldwell offers a close examination of institutional and structural factors that have impacted the quest for gender and racial health equity in Brazil. As she shows, activists have played an essential role in policy development in areas ranging from maternal mortality to female sterilization. Caldwell's insightful portrait of the public health system also details how its weaknesses contribute to ongoing failures and challenges while also imperiling the advances that have been made.
Inner-city Sydney was the epicenter of gay life in the Southern hemisphere in the 1970s and early 1980s. Gay men moved from across Australasia to find liberation in the city's vibrant community networks; and when HIV and AIDS devastated those networks, they grieved, suffered, and survived in ways that have often been left out of the historical record. This book excavates the intimate lives and memories of HIV-positive gay men in Sydney, focusing on the critical years between 1982 and 1996, when HIV went from being a terrifying unidentified disease to a chronic condition that could be managed with antiretroviral medication. Using oral histories and archival research, Cheryl Ware offers a sensitive, moving exploration of how HIV-positive gay men navigated issues around disclosure, health, sex, grief, death, and survival. HIV Survivors in Sydney reveals how gay men dealt with the virus both within and outside of support networks, and how they remember these experiences nearly three decades later.
Brazil's leadership role in the fight against HIV has brought its public health system widespread praise. But the nation still faces serious health challenges and inequities. Though home to the world's second largest African-descendant population, Brazil failed to address many of its public health issues that disproportionately impact Afro-Brazilian women and men. Kia Lilly Caldwell draws on twenty years of engagement with activists, issues, and policy initiatives to document how the country's feminist health movement and black women's movement have fought for much-needed changes in women's health. Merging ethnography with a historical analysis of policies and programs, Caldwell offers a close examination of institutional and structural factors that have impacted the quest for gender and racial health equity in Brazil. As she shows, activists have played an essential role in policy development in areas ranging from maternal mortality to female sterilization. Caldwell's insightful portrait of the public health system also details how its weaknesses contribute to ongoing failures and challenges while also imperiling the advances that have been made.
Winner of the Sociology of Health and Illness Book Prize 2008 Of approximately 37 million HIV positive people in the world, 24.7 million live in sub-Saharan Africa and about 5..5 million in South Africa. Despite its relatively powerful economy and infrastructure, South Africa has been dramatically affected by the HIV pandemic. Using narrative analysis of a three year interview study and textual analysis of political materials, HIV in South Africa examines the impact of HIV on people's everyday lives in the country. Examining the relationship between personal accounts of living with HIV and wider medical, political and religious discourses, the book also highlights the significance of class, race and gender on individuals' experiences. These engaging stories of everyday lives provide an accessible way to connect with HIV as a health and development issue. Fascinating, challenging and constructive, this is an important contribution in an area of great social relevance. The ebook is available free of charge to those with addresses on the United Nations Development Programme's Human Development Index of Medium and Low Rankings (see http://hdr.undp.org/hdr2006/pdfs/report/HDR_2006_Tables.pdf), who can apply to the following address: www.ebookstore.tandf.co.uk
A witch's curse, an imperialist conspiracy, a racist plot-HIV/AIDS is a catastrophic health crisis with complex cultural dimensions. From small villages to the international system, explanations of where it comes from, who gets it, and who dies are tied to political agendas, religious beliefs, and the psychology of devastating grief. Frequently these explanations conflict with science and clash with prevention and treatment programs. In Witches, Westerners, and HIV Alexander Roedlach draws on a decade of research and work in Zimbabwe to compare beliefs about witchcraft and conspiracy theories surrounding HIV/AIDS in Africa. He shows how both types of beliefs are part of a process of blaming others for AIDS, a process that occurs around the globe but takes on local, culturally specific forms. He also demonstrates the impact of these beliefs on public health and advocacy programs, arguing that cultural misunderstandings contribute to the failure of many well-intentioned efforts. This insightful book provides a cultural perspective essential for everyone interested in AIDS and cross-cultural health issues.
Efforts within the past decade to address the HIV/AIDS pandemic in sub-Saharan Africa have dealt with HIV/AIDS principally as a medical concern-despite the fact that doctors continue to be confronted with the complex relationship of the disease to broader social issues. When medical and governmental institutions fail, artists step in. Contemporary performances in Uganda often focus on gender and health-related issues specific to women and youths, in which song texts warn against risky sexual environments or unprotected sexual behavior. Music, dance, and drama are principal tools of local initiatives that disseminate information, mobilize resources, and raise societal consciousness regarding issues related to HIV/AIDS. Through case studies, song texts, interviews, and testimonies, Singing for Life: HIV/AIDS and Music in Uganda examines the links between the decline in Uganda's infection rate and grassroots efforts that make use of music, dance, and drama. Only when supported and encouraged by such performances drawing on localized musical traditions have medical initiatives taken root and flourished in local healthcare systems. Gregory Barz shows how music can be both a mode of promoting health and a force for personal therapy, presenting a cultural analysis of hope and healing.
Drawing on rich and poignant interviews with mothers who have been diagnosed HIV-positive, Contradicting Maternity provides a rare perspective of motherhood from the mother's point of view. Whereas motherhood is often assumed to be a secondary identity compared to the central figure of the child, this book reverses the focus, arguing that maternal experience is important in its own right. The book explores the situation in which two very powerful identities, those of motherhood and of being HIVpositive, collide in the same moment. This collision takes place at the interface of complex, and often split, social and personal meanings concerning the sanctity of motherhood and the anxieties of HIV. The book offers an interpretation of how these personal and social meanings resonate with, and also fail to encompass, the experiences surrounding HIV positive mothers. Photographs, academic literature and the accounts of real women are read with both a psychodynamic and discursive eye, highlighting the contradictions within maternal experience, but also between maternal experience and the social imagination. Contradicting Maternity will appeal to scholars, students and practitioners in psychology, the social sciences and the health professions. The sensitive and readable analysis will also be of interest to mothers, whether HIV-positive or not.
In this new volume, Michael A. Pagano curates essays focusing on the neighborhood's role in urban policy solutions. The papers emerged from dynamic discussions among policy makers, researchers, public intellectuals, and citizens at the 2014 UIC Urban Forum. As the writers show, the greater the city, the more important its neighborhoods and their distinctions. The topics focus on sustainable capital and societal investments in people and firms at the neighborhood level. Proposed solutions cover a range of possibilities for enhancing the quality of life for individuals, households, and neighborhoods. These include everything from microenterprises to factories; from social spaces for collective and social action to private facilities; from affordable housing and safety to gated communities; and from neighborhood public education to cooperative, charter, and private schools. Contributors: Andy Clarno, Teresa Cordova, Nilda Flores-Gonzalez, Pedro A. Noguera, Alice O'Connor, Mary Pattillo, Janet Smith, Nik Theodore, Elizabeth S. Todd-Breland, Stephanie Truchan, and Rachel Weber.
AIDS on the Agenda is written for policymakers, managers, and program staff in development and humanitarian agencies, to promote debate about the challenges that confront them in a world which has been changed for ever by the pandemic of AIDS. The book considers three possible responses to the problem: * Do nothing.* Try to specialize in direct AIDS work.* Adapt core programs and internal systems to respond to the impact of AIDS.The author argues for the third approach as the essential initial response. She shows how mainstream work in a wide range of sectors - including food security, livelihoods support, education, health promotion, and emergency provision of water and sanitation - can be modified to reduce susceptibility to HIV infection and vulnerability to the impacts of AIDS. She also offers practical advice on modifying personnel and financial systems to protect the interests of staff and the viability of organizations when operating in AIDS-prone contexts.The text is based on case studies drawn from the experiences of three agencies (ActionAid, Oxfam International, and Save the Children UK) and their partners; and on insights contributed by a wide range of other organizations. The problems inherent in the 'mainstreaming' approach are dealt with frankly and constructively. The comprehensive Resources section offers user-friendly guidance on the following topics: * Researching and predicting the internal impacts of AIDS* Assessing the impacts of AIDS education and awareness-raising* Drafting a workplace policy* Monitoring the impact of AIDS and of internal mainstreaming* Training for mainstreaming AIDS in development and humanitarian work* Undertaking community research formainstreaming AIDS in development and humanitarian work* Adapting organizational systems
Psychotherapy and ethnography are jointly employed to produce an account of HIV-positive children's lives (and deaths) in Zimbabwe that is sensitive to emotions and their social contexts. The study explores the lives of children growing up HIV-positive in the eastern Zimbabwean town of Mutare at a time of severe crisis in the state, marked by impoverishment, organized violence and mass death. This ethnography grewout of a psychotherapeutic engagement with a group of children living with HIV. The study examines children's experiences through the institutional domains of family and kin, clinics and other forms of healing, churches andreligious practices, and experiences of dying and bereavement. Against patrilineal norms, much daily caring occurs in mothers' families. Clinics continue to offer partial western medical care despite daunting resource constraints. Western medicine sits on older templates of 'traditional' and 'spiritual' healing. Anti-retrovirals and other basic medicines are available but may exacerbate domestic discord and fail to meet more obvious physical symptoms. Children and their families appear to prefer spiritual alternatives to medical care, perhaps partly as a result of the severe limitations placed on the latter. A wide variety of religious practices, primarily Christian in a plethora of forms, flourish in the context. Dying may come to be seen by children as preferable to continued struggle against severe adversity. Child deaths are deeply imbued with religious practice and given voice through religious idioms. Ross Parsons has extensive experience as a psychotherapist, a writer and a social researcher. He lives in Mutare and teaches anthropology and psychology at Africa University. Weaver Press: Zimbabwe and Southern Africa (South Africa, Botswana, Lesotho, Swaziland and Namibia)
AIDS and the Distribution of Crises engages with the AIDS pandemic as a network of varied historical, overlapping, and ongoing crises born of global capitalism and colonial, racialized, gendered, and sexual violence. Drawing on their investments in activism, media, anticolonialism, feminism, and queer and trans of color critiques, the scholars, activists, and artists in this volume outline how the neoliberal logic of "crisis" structures how AIDS is aesthetically, institutionally, and politically reproduced and experienced. Among other topics, the authors examine the writing of the history of AIDS; settler colonial narratives and laws impacting risk in Indigenous communities; the early internet regulation of both content and online AIDS activism; the Black gendered and sexual politics of pleasure, desire, and (in)visibility; and how persistent attention to white men has shaped AIDS as intrinsic to multiple, unremarkable crises among people of color and in the Global South. Contributors. Cecilia Aldarondo, Pablo Alvarez, Marlon M. Bailey, Emily Bass, Darius Bost, Ian Bradley-Perrin, Jih-Fei Cheng, Bishnupriya Ghosh, Roger Hallas, Pato Hebert, Jim Hubbard, Andrew J. Jolivette, Julia S. Jordan-Zachery, Alexandra Juhasz, Dredge Byung'chu Kang-Nguyen, Theodore (Ted) Kerr, Catherine Yuk-ping Lo, Cait McKinney, Viviane Namaste, Elton Naswood, Cindy Patton, Margaret Rhee, Juana Maria Rodriguez, Sarah Schulman, Nishant Shahani, C. Riley Snorton, Eric A. Stanley, Jessica Whitbread, Quito Ziegler
Among the chief themes of this book are the representation of AIDS in the mass media and in the arts, and the encouragement of a wider understanding of the personal impact of AIDS and its social experience, particularly among those social groups living with the highest levels of illness, death and mourning.
In this single volume, William N. Elwood has gathered potent
evidence of the impact that the HIV/AIDS epidemic has had on the
world, its communities, and its inhabitants, and he addresses the
role of communication in affecting the way in which people respond
to AIDS. With a multidisciplinary group of contributors and topics
ranging from political rhetoric to interpersonal discourse, "Power
in the Blood" offers a multitude of ways in which to think about
power, politics, HIV prevention, and people living with HIV.
Readers will be able to use this information in class discussions,
program designs, grant applications, and research, as well as in
their own lives. With this volume, Elwood makes a thoroughly
convincing argument that communication is the key to understanding,
treating, and preventing AIDS, and he inspires further action
toward the goal of ending the AIDS crisis.
Dry Bones Breathe: Gay Men Creating Post-AIDS Identities and Cultures breaks new ground in offering an original and insightful interpretation of gay men s shifting experience of the AIDS epidemic. From Dry Bones Breathe, you ll gain a deeper understanding of current community debates focused on circuit parties, unprotected sex, and gay men s sexual cultures, and you will learn how social, political, and biomedical changes are dramatically transforming gay identities and cultures.Dry Bones Breathe is Eric Rofes'explosive follow-up to Reviving the Tribe, a book which broke open debates in gay communities around the world about sex, identity, and gay men s relationship to AIDS. In this volume, Rofes contends that most gay men no longer experience AIDS as the crisis they did during the 1980s. Gay men often attribute this shift to the advent of protozoa inhibitors, but Rofes explains how other factors, including the epidemic s predicted trajectory, new treatments for opportunistic infections, the passage of time, and the increasing diversity of gay men inhabiting communities throughout the country have set in motion the transformation of gay life. AIDS organizations and gay leaders, however, continue to assert that gay men experience AIDS as an emergency, resulting in a tremendous dissonance between gay leaders and their communities. In the midst of this controversy, Dry Bones Breathe lets you share in stories of hope and recovery and a new vision for AIDS work that demands a radical redesign of prevention, care, and activism. Dry Bones Breathe tackles several other issues concerning the powerful shifts occurring in gay communities and cultures by: explaining why an understanding of the terms "post-AIDS" and "post-crisis" is crucial to interpreting contemporary gay male cultures and what Australian prevention theorists have to offer gay men in the United States describing the "Protozoa Moment" and exploring how a dangerous obsession with pharmaceuticals is leading many to mistakenly attribute all changes in gay men s cultures to combination therapies examining the writings of Larry Kramer, Andrew Sullivan, Michelangelo Signorile, and Gabriel Rightly to illustrate how the crisis construct has unleashed a backlash against gay sexual cultures discussing the dramatic diminution in gay men s AIDS-related deaths in epicenter cities and the impact of shrinking obituary pages on gay men s mental health exploring the diverse relationships to the epidemic forged by young gay men, gay men of color, gay men from rural or small towns, and middle-aged men not infected with HI detailing how HI prevention and service organizations targeting gay men must redesign their mission and restructure their work In response to continuing efforts to direct gay men back into a state of emergency, Dry Bones Breathe suggests that long-term prevention efforts must be constructed around something other than a crisis. While AIDS organizations look at gay men s diminished participation in AIDS activism, Rofes argues that these organizations should face how they have distanced themselves from the reality of most gay men s lives. From stories and experiences full of hope, anger, sadness, and strength, Dry Bones Breathe will teach you about gay men who no longer base their identities and cultures solely around AIDS.
Activism and Marginalization in the AIDS Crisis shows readers how the advent of HIV-disease has brought into question the utility of certain forms of "activism" as they relate to understanding and fighting the social impacts of disease. This informative and powerful book is centrally concerned about the ways in which institutionally governed social constructions of HIV/AIDS affect policy and public images of the disease more so than activist efforts. It asserts that an accounting of the power institutional structures have over the dominant social constructions of HIV disease is fundamental to adequate forms of present and future AIDS activism. Chapters in Activism and Marginalization in the AIDS Crisis demonstrate how, despite what is thought of as the "successful activism" of the past decade, the claims of the HIV-positive are still being ignored, still being marginalized, and still being administratively "handled" and exploited even as the plight of those who find themselves HIV-positive worsens. Although chapters reject the assertion that activism has been a highly effective remedy to HIV-positive voicelessness, authors do not deny that activists have been vocal, but that they continue to be ignored despite their vocality.Contributors in Activism and Marginalization in the AIDS Crisis offer numerous examples of institutional control and demonstrate that institutional structures, and not activists, are controlling the public meaning of HIV-related issues. Readers learn how messages about HIV/AIDS are produced, negotiated, modified, and sustained through institutional mechanisms that serve mostly institutional interests rather than those of the HIV-positive. In gaining an understanding of these issues, readers will begin to learn how to modify and strengthen activist efforts with valuable insight on: the lack of HIV-positive voices in mainstream news portrayals of HIV/AIDS research on constructions of HIV-disease at the state government level social constructions and how they affect HIV/AIDS policy the political construction of AIDS and interest-based struggles the emergent "bio-politics" of HIV and homosexuality in the U.S. how institutional power works to govern public understanding of HIV diseaseInstitutional structures are defined in this book as groups engaged in and defined by the production of various "truths" which sustain them. Institutional power may be defined as the capacity to regulate, constrain, and disseminate versions of "truth." Activism and Marginalization in the AIDS Crisis reveals how HIV activist groups have been outmaneuvered when it comes to the production and dissemination of various "truths" about HIV/AIDS by institutional structures more deeply steeped in social legitimacy and which have a superior capacity for message dissemination.HIV/AIDS activists, HIV-positive persons and those with AIDS, HIV/AIDS educators, public and institutional policymakers, health professionals, and the general public will find this book essential to understanding the social constructions of HIV/AIDS, how these affect HIV/AIDS-related policy and public opinion, and how to begin to cipher through the plethora of information to find and promote the "truth."
This provocative study examines the role of today's Russian Orthodox Church in the treatment of HIV/AIDS. Russia has one of the fastest-growing rates of HIV infection in the world - 80 per cent from intravenous drug use - and the Church remains its only resource for fighting these diseases. Jarrett Zigon takes the reader into a Church-run treatment center where, along with self-transformational and religious approaches, he explores broader anthropological questions - of morality, ethics, what constitutes a 'normal' life, and who defines it as such. Zigon argues that this rare Russian partnership between sacred and political power carries unintended consequences: even as the Church condemns the influence of globalization as the root of the problem it seeks to combat, its programs are cultivating citizen-subjects ready for self-governance and responsibility, and better attuned to a world the Church ultimately opposes.
AIDS: Rights, Risk and Reason contains a mix of papers linking research with the development of theoretical frameworks in a readable and accessibole style. Issues examined include: perceptions of risk and risk-taking behaviour; rights and responsibilities; and the rationality that underpins individual and collective responses to HIV/AIDS.
"AIDS, Sex, and Culture" is a revealing examination of the impact
the AIDS epidemic in Africa has had on women, based on the author's
own extensive ethnographic research. |
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