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Books > Social sciences > Sociology, social studies > Social issues > Illness & addiction: social aspects > AIDS: social aspects
The HIV epidemic remains one of the most challenging of modern times, despite the enormous promise of anti-retroviral treatment. This timely book takes a critical look at HIV/AIDS in the context of South Africa, the country with the largest HIV epidemic in the world. Drawing on feminist science and technology studies and a close analysis of a range of textual sources, Politics in the Making of HIV/AIDS in South Africa tracks how the disease has been formed and transformed through political struggles. It illuminates the ways these struggles have also generated new selves for those living with HIV. In conducting this enquiry, the book addresses pressing questions about the politics of public health, the ethics of biological citizenship, and agency and the making of neoliberal subjects. It should appeal to scholars and students with interests in the sociology of health and medicine, the body in society, science and technology studies, and public health.
This book provides a unique comparative approach to the politics of HIV/AIDS throughout the world.It features a stellar line-up of scholars including Nana Poku, Tony Barnett, Dennis Altman, Suzanne Leclerc-Madlala, Steven Robins, May Chazan, Beril Egero and Mikael Hammarskjold. It is an excellent accompaniment to Barnett and Whiteside's AIDS in the Twenty-First Century - going deeper into issues explored there. It places African case studies in comparative perspective with Asia, Australasia, Latin America and Europe.HIV/AIDS is the major political challenge of our time. Based on empirical observations from all over the world, this book examines how HIV/AIDS has become increasingly transnational, as nation states have extended their programmes across borders, and transnational networks have increased their activities.
We have not yet unravelled how HIV/AIDS is changing South Africa's social fabric, despite the fact that over 5 million South Africans are living with the virus. Do we know how HIV/AIDS may affect different sectors of society, possibly altering the course set for development? Is it possible that the way in which the epidemic is being fought - through health and human rights activism - is adjusting our expectations of justice and equality? This title is a multidisciplinary overview of the discourse on HIV/AIDS and explores the concept of human security and the global development agenda. Contributions are drawn from a diverse group of academics and activists who examine how the epidemic intersects with politics, society, culture and the economy in South Africa, addressing human rights, gender inequality, prisons, the military, the education sector, rural livelihoods and the orphan crisis.
Identifying the existing challenges and shortfalls of China's current HIV/AIDS programming, this book provides an understanding of the history of HIV/AIDS in China, comparing government responses to global best practice in prevention and treatment. Considering three key populations in China, namely, female sex workers, people who inject drugs and floating migrants, Living in the Shadows of China's HIV/AIDS Epidemics highlights the effects of high mobility and marginalisation on the spread of HIV in China. It is argued that these groups often suffer from stigmatisation and a lack of human security, resulting in sub-optimal outcomes for HIV/AIDS intervention and prevention efforts and the reinforcement of high-risk behaviours, further contributing to the transmission of the virus to the general population. In adding to the emerging body of literature, this book further elucidates the myriad of challenges posed by HIV/AIDS epidemics, allowing sustained engagement and a fresh insight into how governments might respond to the needs of individuals living with HIV/AIDS, both in China and globally. Including case studies which give voice to research participants in a rich and engaging way, this book will appeal to students and scholars of Chinese Studies, Asian Studies, International Relations and Political Science, as well as those engaged in epidemiological studies in the Health Sciences.
Based on several years of ethnographic fieldwork, the book explores life in and around a Luo-speaking village in western Kenya during a time of death: the epidemic of HIV/AIDS, which by the turn of the century had affected every aspect of sociality and pervaded villagers' debates about the past, the future and the ethics of everyday life. Central to such debates is a concern with touch in the broad sense of concrete, material contact between persons. In mundane practices as much as in ritual acts, touch is considered to be key to the creation of bodily life as well as social continuity. Underlying the significance of material contact is its connection with growth - of persons and groups, animals, plants and the land - and the forward movement of life more generally. Under the pressure of illness and death, economic hardship and land scarcity, as well as bitter struggles about the relevance and application of Christianity and "Luo tradition" in daily life, people found it difficult to agree about the role of touch in engendering growth, or indeed about the aims of growth itself. Yet they drew upon shared experiences and imaginaries in their struggles to restore a forward direction to their lives.
This book explores the thoroughly human dimension of the health care and prevention responses to the HIV crisis in the UK, and the impact that such initiatives had on the progression of the epidemic. This book presents a compelling account of the unfolding of the epidemic and the initiatives that made all the difference in the care and prevention of HIV in the UK from the early 1980s to the present time. Drawing on interviews with people with HIV, doctors and nurses involved in their care, leaders of AIDS charities, activists, and politicians, it identifies and describes the models of care developed in response to the onset of the HIV epidemic, and its impact on NHS and voluntary organisations. It goes on to explore the political responses, the evolution of HIV stigma, and the personal impact of the early high mortality rates. Finally, it discusses recent organisational changes in the provision of care and prevention services. In doing so, this volume identifies the lessons learnt from the care and prevention of HIV, both in relation to HIV infection and other conditions, such as COVID-19, and discusses future challenges. This book will be of great value to those working in services dealing with HIV, charities, and Clinical Commissioning Groups and GP organisations, as well as social historians and medical sociologists.
This book demonstrates the political potential of mainstream theatre in the US at the end of the twentieth century, tracing ideological change over time in the reception of US mainstream plays taking HIV/AIDS as their topic from 1985 to 2000. This is the first study to combine the topics of the politics of performance, LGBT theatre, and mainstream theatre's political potential, a juxtaposition that shows how radical ideas become mainstream, that is, how the dominant ideology changes. Using materialist semiotics and extensive archival research, Juntunen delineates the cultural history of four pivotal productions from that period-Larry Kramer's The Normal Heart (1985), Tony Kushner's Angels in America (1992), Jonathan Larson's Rent (1996), and Moises Kaufman's The Laramie Project (2000). Examining the connection between AIDS, mainstream theatre, and the media reveals key systems at work in ideological change over time during a deadly epidemic whose effects changed the nation forever. Employing media theory alongside nationalism studies and utilizing dozens of reviews for each case study, the volume demonstrates that reviews are valuable evidence of how a production was hailed by society's ideological gatekeepers. Mixing this new use of reviews alongside textual analysis and material study-such as the theaters' locations, architectures, merchandise, program notes, and advertising-creates an uncommonly rich description of these productions and their ideological effects. This book will be of interest to scholars and students of theatre, politics, media studies, queer theory, and US history, and to those with an interest in gay civil rights, one of the most successful social movements of the late twentieth century.
This book considers the change in rhetoric surrounding the treatment of AIDS from one of crisis to that of 'ending AIDS'. Exploring what it means to 'end AIDS' and how responsibility is framed in this new discourse, the author considers the tensions generated between the individual and the state in terms of notions such as risk, responsibility and prevention. Based on analyses public health promotions in the UK and the US, HIV prevention science and engaging with the work of Foucault, this volume argues that the discourse of 'ending AIDS' implies a tension-filled space in which global principles and values may clash with localised needs, values and concerns; in which evidence-based policies strive for hegemony over local, tacit and communal regimes of knowledge; and in which desires compete with national and international ideas about what is best for the individual in the name of 'ending AIDS' writ large. As such, it will appeal to scholars of sociology and media studies with interests in the sociology of medicine and health, medical communication and health policy.
The tragedies arising from HIV and AIDS are problems faced on every continent in the world. Case studies of carefully selected countries, representative of every region of the world, are presented in this unique volume. Students, teachers, and researchers can make cross-cultural comparisons to discover how the problem is viewed in different countries, how the problem is changing, what kinds of research is being conducted worldwide to find appropriate interventions for the problem and other details of how this disease affects different societies. Each chapter is divided into similar subsections including the history of HIV and AIDS, the prevalence of HIV and AIDS, public and political views of the problem, and preventative measures. Readers can choose one or more of these aspects and compare how each differs from country to country. Here they will find that perceptions of the problem and the perceptions of degree to which people are taking preventative measures against the disease does not always reflect the reality. This worldview will help students and scholars to think critically about how building a better understanding of how a specific social issue is viewed and handled worldwide can help build a better world community.
Since the time AIDS and HIV infection were first discovered, no medical cures have been developed. It became clear early on that education would be the cornerstone in the fight against AIDS, and that assessment remains true in the 1990s. This book describes how to tailor HIV education and prevention efforts to specific communities, including how to identify those most at risk, what types of interventions are most appropriate to those communities, how to engage those most at risk, and the role of participatory evaluation in determining the effectiveness of community education efforts.
This edited collection brings together the social dimensions of three key aspects of recent biomedical advance in HIV research: Treatment as Prevention (TasP), new technologies such as Pre-Exposure Prophylaxis (PrEP), and the Undetectable equals Untransmittable (U=U) movement. The growth of new forms of biomedical HIV prevention has created hope for the future, signalling the possibility of a world without AIDS. In this context, the volume discusses the profound social, political and ethical dilemmas raised by such advances, which are to do with readiness, access, equity and availability. It examines how HIV prevention has been, and is, re-framed in policy, practice and research, and asks: How best can new biomedical technologies be made available in a profoundly unequal world? What new understandings of responsibility and risk will emerge as HIV becomes a more manageable condition? What new forms of blame will emerge in a context where the technologies to prevent HIV exist, but are not always used? How best can we balance public health's concern for adherence and compliance with the rights of individuals to decide on what is best for themselves and others? Few of these questions have thus far received serious consideration in the academic literature. The editors, all leaders in the social aspects of HIV, have brought together an innovative and international collection of essays by top thinkers and practitioners in the field of HIV. This book is an important resource for academics and professionals interested in HIV research. Chapters "Anticipating Policy, Orienting Services, Celebrating Provision: Reflecting on Scotland's PrEP Journey", "How the science of HIV treatment-as-prevention restructured PEPFAR's strategy: The case for scaling up ART in 'epidemic control' countries", "Stigma and confidentiality indiscretions: Intersecting obstacles to the delivery of Pre-Exposure Prophylaxis to adolescent girls and young women in east Zimbabwe" and "The drive to take an HIV test in rural Uganda: a risk to prevention for young people?" are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.
The Face of AIDS film archive at Karolinska Institutet, Sweden, consists of more than 700 hours of unedited and edited footage, shot over a period of more than thirty years and all over the world by filmmaker and journalist Staffan Hildebrand. The material documents the HIV/AIDS pandemic and includes scenes from conferences and rallies, and interviews with activists, physicians, people with the infection, and researchers. It represents a global historical development from the early years of the AIDS crisis to a situation in which it is possible to live a normal life with the HIV virus. This volume brings together a range of academic perspectives - from media and film studies, medical history, gender studies, history, and cultural studies - to bear on the archive, shedding light on memories, discourses, trauma, and activism. Using a medical humanities framework, the editors explore the influence of historical representations of HIV/AIDS and stigma in a world where antiretroviral treatment has fundamentally altered the conditions under which many people diagnosed with HIV live. Organized into four sections, this book begins by introducing the archive and its role, setting it in a global context. The first part looks at methodological, legal and ethical issues around archiving memories of the present which are then used to construct histories of the past; something that can be particularly controversial when dealing with a socially stigmatized epidemic such as HIV/AIDS. The second section is devoted to analyses of particular films from the archive, looking at the portrayal of people living with HIV/AIDS, the narrative of HIV as a chronic illness and the contemporary context of particular films. The third section looks at how stigma and trauma are negotiated in the material in the Face of AIDS film archive, discussing ideas about suffering and culpability. The final section contributes perspectives on and by the filmmaker as activist and auteur. This interdisciplinary collection is placed at the intersection of medical humanities, sexuality studies and film and media studies, continuing a tradition of studies on the cultural and social understandings of HIV/AIDS.
This manual will help field staff to mainstream HIV andAIDS in humanitarian emergencies. It assumes someknowledge of humanitarian programming and is intended to build staff skills in addressing the underlying causes of vulnerability to HIV infection and the consequences of HIV and AIDS, particularly in rapid-onset emergencies. The authors draw on experience in the field and offer practical recommendations on how to make sure that HIV and AIDS is considered when responding to humanitarian crises. The book explains both how HIV affects emergencies and how emergencies affect HIV, as well as identifying the particular needs of potential vulnerable groups. There is guidance particularly for managers in the planning stage but the book also suggests how to mainstream HIV and AIDS throughout the emergency project cycle. It includes useful checklists and planning tools with examples of inductions, trainings and awareness-raising sessions both for staff and for community members. The CD ROM to accompany the manual features the full text of the book plus training materials for use in the field.
Features a collection of seven research-based articles on AIDS. This work seeks to cut through popular misunderstanding and conventional ideas about the spread and impact of AIDS by employing a political economic perspective in the analysis of the epidemic in diverse settings.
HIV and AIDS have long been problematized in the People's Republic of China as objects of governance in political frameworks and institutions. The state's attitudes towards health programs have, nevertheless, changed significantly during the 21st century. Pilot programs at the beginning of the century, which focused on underground sex workers, have now developed into the roll-out of a nationwide program, with supportive legislation and broadcast media publicity. This book therefore examines China's evolving AIDS response, providing an up to date investigation into the positions and practices of the state. It explains the origins, rationales and implementation of initiatives focused on female sex workers and explores the extension of such initiatives to include other populations identified as key to ending the AIDS epidemic, especially homosexual men and rural-to-urban migrant labourers. Ultimately, through an analysis of the different approaches to the governance of commercial sex and sexual health, Governing HIV in China concludes by considering the challenges raised by China's commitment to the United Nations' vision of ending AIDS as a global health threat by 2030. This book will be useful for students and scholars of Social Policy, Public Health Policy and Chinese Studies.
In Cooking Data Crystal Biruk offers an ethnographic account of research into the demographics of HIV and AIDS in Malawi to rethink the production of quantitative health data. While research practices are often understood within a clean/dirty binary, Biruk shows that data are never clean; rather, they are always "cooked" during their production and inevitably entangled with the lives of those who produce them. Examining how the relationships among fieldworkers, supervisors, respondents, and foreign demographers shape data, Biruk examines the ways in which units of information-such as survey questions and numbers written onto questionnaires by fieldworkers-acquire value as statistics that go on to shape national AIDS policy. Her approach illustrates how on-the-ground dynamics and research cultures mediate the production of global health statistics in ways that impact local economies and formulations of power and expertise.
The Face of AIDS film archive at Karolinska Institutet, Sweden, consists of more than 700 hours of unedited and edited footage, shot over a period of more than thirty years and all over the world by filmmaker and journalist Staffan Hildebrand. The material documents the HIV/AIDS pandemic and includes scenes from conferences and rallies, and interviews with activists, physicians, people with the infection, and researchers. It represents a global historical development from the early years of the AIDS crisis to a situation in which it is possible to live a normal life with the HIV virus. This volume brings together a range of academic perspectives - from media and film studies, medical history, gender studies, history, and cultural studies - to bear on the archive, shedding light on memories, discourses, trauma, and activism. Using a medical humanities framework, the editors explore the influence of historical representations of HIV/AIDS and stigma in a world where antiretroviral treatment has fundamentally altered the conditions under which many people diagnosed with HIV live. Organized into four sections, this book begins by introducing the archive and its role, setting it in a global context. The first part looks at methodological, legal and ethical issues around archiving memories of the present which are then used to construct histories of the past; something that can be particularly controversial when dealing with a socially stigmatized epidemic such as HIV/AIDS. The second section is devoted to analyses of particular films from the archive, looking at the portrayal of people living with HIV/AIDS, the narrative of HIV as a chronic illness and the contemporary context of particular films. The third section looks at how stigma and trauma are negotiated in the material in the Face of AIDS film archive, discussing ideas about suffering and culpability. The final section contributes perspectives on and by the filmmaker as activist and auteur. This interdisciplinary collection is placed at the intersection of medical humanities, sexuality studies and film and media studies, continuing a tradition of studies on the cultural and social understandings of HIV/AIDS.
Brazil has occupied a central role in the access to medicines movement, especially with respect to drugs used to treat those with the human immunodeficiency virus (HIV) that causes the acquired immune deficiency syndrome (AIDS). How and why Brazil succeeded in overcoming powerful political and economic interests, both at home and abroad, to roll-out and sustain treatment represents an intellectual puzzle. In this book, Matthew Flynn traces the numerous challenges Brazil faced in its efforts to provide essential medicines to all of its citizens. Using dependency theory, state theory, and moral underpinnings of markets, Flynn delves deeper into the salient factors contributing to Brazil's successes and weaknesses, including control over technology, creation of political alliances, and instrumental use of normative frameworks and effectively explains the ability of countries to fulfill the prescription drug needs of its population versus the interests and operations of the global pharmaceutical industry Pharmaceutical Autonomy and Public Health in Latin America is one of the only books to provide an in-depth account of the challenges that a developing country, like Brazil, faces to fulfill public health objectives amidst increasing global economic integration and new international trade agreements. Scholars interested in public health issues, HIV/AIDS, and human rights, but also to social scientists interested in Latin America and international political economy will find this an original and thought provoking read.
Given that women and girls carry the heaviest burdens of the African HIV pandemic, their lived experiences should be the starting point for any pedagogy of prevention. In light of this claim, Risky Marriage: HIV and Intimate Relationships in Tanzania uses qualitative fieldwork with HIV positive women living in Mwanza, Tanzania to ask why marriage is an HIV risk factor. By beginning with women's experience as a hermeneutical lens, this book seeks to establish a creative space where African women can imagine new alternatives to HIV prevention that would promote human flourishing and abundant life in African communities. The aim of this book is to listen faithfully to the lived experiences of HIV positive women and ask how their experiences can help us re-imagine Christian conceptions of marriage, sexual ethics, and health in an HIV positive world. By drawing on the unwritten texts of women's lives, this study proposes alternative pedagogies for faith-based prevention methods and contributes to the wider interdisciplinary and theo-ethical discourse on HIV prevention and women's health. At the same time, it makes local impact of equal importance as women in East African communities are invited to think creatively about ways to end the HIV pandemic. For more information and comments from the author, watch a trailer for the book here: http://vimeo.com/semafilms/riskymarriage
Drawing on the case of HIV/AIDS in Thailand, this book examines how anthropological and other interpretative social science research has been utilized in modeling the AIDS epidemic, and in the design and implementation of interventions. It argues that much social science research has been complicit with the forces that generated the epidemic and with the social control agendas of the state, and that as such it has increased the weight of structural violence bearing upon the afflicted. The book also questions claims of Thai AIDS control success, arguing that these can only be made at the cost of excluding categories such as intravenous drug users, the incarcerated, and homosexuals, who continue to experience extraordinarily high levels of levels of HIV infection. Considered deviant and undeserving, these persons have deliberately been excluded from harm reduction programs. Overall, this work argues for the untapped potential of anthropological research in the health field, a confident anthropology rooted in ethnography and a critical reflexivity. Crucially, it argues that in context of interdisciplinary collaborations, anthropological research must refuse relegation to the status of an adjunct discipline, and must be free epistemologically and methodologically from the universalizing assumptions and practices of biomedicine.
How can we care so much about health care yet so little about public health? Before Covid-19, public health programs constituted only 2.5 percent of all US health spending, with the other 97.5 percent going towards the larger health care system. In fact, the United States spends on average $11,000 per citizen per year on health care, but only $286 per person on public health. It seems that Americans value health care, the medical care of individuals, over public health, the well-being of collections of people. In Me vs. Us, primary care doctor and public health advocate Michael Stein takes a hard, insightful look at the larger questions behind American health and health care. He offers eight reasons why our interest in the technologies and delivery of health care supersedes our interest in public health and its focus on the core social, economic, and environmental forces that shape health. Stein documents how public health has continually "lost out" to medicine-from a loss in funding and resources to how we view our personal priorities-and suggests how public health may hold the solutions to our most concerning crises, from pandemics to obesity to climate change. Me vs. Us concludes that individual and public health are inseparable. In the end, Stein argues, we need to recover and sharpen our sense of health based on a reverent appreciation of both perspectives.
Since the onset of the HIV epidemic, the behaviour of men who have sex with men has been subject to intense scrutiny on the part of the behavioural and sociomedical sciences. What happens when we consider the work of these sciences to be not merely descriptive, but also constitutive of the realities it describes? The Gay Science pays attention to lived experiences of sex, drugs and the scientific practices that make these experiences intelligible. Through a series of empirically and historically detailed case studies, the book examines how new technologies and scientific artifacts - such as antiretroviral therapy, digital hookup apps and research methods - mediate sexual encounters and shape the worlds and self-practices of men who have sex with men. Rather than debunking scientific practices or minimizing their significance, The Gay Science approaches these practices as ways in which we 'learn to be affected' by HIV. It explores what knowledge practices best engage us, move us and increase our powers and capacities for action. The book includes an historical analysis of drug use as a significant element in the formation of urban gay cultures; constructivist accounts of the emergence of barebacking and chemsex; a performative response to Pre-Exposure Prophylaxis and its uptake; and, a speculative analysis of ways of thinking and doing sexual community in the digital context. Combining insights from queer theory, process philosophy and science and technology studies to develop an original approach to the analysis of sexuality, drug use, public health and digital practices, this book demonstrates the ontological consequences of different modes of attending to risk and pleasure. It is suitable for those interested in cultural studies, sociology, gender and sexuality studies, digital culture, public health and drug and alcohol studies.
India ranks third in the number of people living with HIV/AIDS globally. The country has high levels of poverty and inequality, poor healthcare infrastructure, especially away from the metropolitan areas, and a legacy of colonialism that bequeathed laws criminalizing non-heteronormative sexualities. These factors mean that many minority groups do not receive adequate access to preventative and treatment programs. This book explores the HIV/AIDS epidemic in India. Based on research in Tamil Nadu, it presents experiences of those marginalized by their sexuality and/ or gender, their struggles and their triumphs. Based on interviews with male and female sex-workers, men who have sex with men, aravanis (male to female transgenders) and HIV positive women-groups usually not included in the policy-making by Indian government agencies, international donors and international NGOs-the author uses an interdisciplinary approach. The approach highlights the historical and cultural context, while providing contemporary narratives. The book thus presents a deeper, multi-dimensional, understanding of the context of the disease and comprehends the roots of the stigma and discrimination that exacerbate the epidemic. An important study of the global HIV/AIDS epidemic, this book will be of interest to researchers in the field of South Asian Studies, Sexuality and Gender Studies, Health Sciences and Public Health.
In the early 1980s we witnessed the birth of one of the most complex and perplexing social problems faced by modern society: the epidemic of infection with human immunodeficiency virus (HIV), which causes acquired immunodeficiency syndrome (AIDS). Originally published in 1993 this title looks at the social psychology surrounding HIV and AIDS. The organization of the volume centres upon two themes: The Theoretical Roots of Prevention and The Dilemma of the PWA (person with AIDS). The goal of this volume is not to evaluate previous attempts to answer these social problems, but to provide theoretical analyses of some of the basic sociopsychological processes that underlie the problems. Over 20 years on this is a snapshot of research into HIV and AIDS and attitudes of the time looking at social problems that are very much still with us.
Since early-on in the epidemic, there has been much interest in the role that bisexual behaviour among men may play in HIV transmission. This text reviews from an international perspective what has been learned about male bisexuality in countries as diverse as Peru and Britain. Its authors examine the forms that bisexuality takes in different cultures, what it means to the men concerned, and whether or not such behaviour poses special risks. The implications of such enquiry for HIV prevention efforts are also examined. |
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