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Books > Social sciences > Sociology, social studies > Social issues > Illness & addiction: social aspects > AIDS: social aspects
Foreword by Amartya Sen (Nobel Prize for Economics, 1998) Afterword by Kailash Satyarthi (Nobel Peace Prize, 2014) In 2005, Nick Danziger began to create an archive of photographs documenting the lives of women and children in eight of the world's poorest countries. He returned five years later, and again in 2015. Had the United Nation's millennium development goals made a difference to their lives? The stories he tells - in pictures and words - are unforgettable and have created a unique document, one that reveals the uncomfortable truths of a globalised planet. It is full of hope, sadness, pain, anger and beauty. Some of the women and children Nick followed died through sickness and poverty. One has become the most successful entrepreneur her African border town has ever known. Another - who once dreamed of becoming a banker - is now a gang member in the world's murder capital. Yet another has confronted conformists and successfully changed his gender. The book will stand as a permanent record of their courage and humanity, but also as a reminder that much work still needs to be done if these goals are ever to be met. Too many people in India, Cambodia, Zambia, Uganda, Niger, Honduras, Bolivia and Armenia are still living in extreme poverty, without access to the health and education the goals were supposed to deliver.
AIDS, Behavior, and Culture presents a bold challenge to the prevailing wisdom of "the global AIDS industry" and offers an alternative framework for understanding what works in HIV prevention. Arguing for a behavior-based approach, Green and Ruark make the case that the most effective programs are those that encourage fundamental behavioral changes such as abstinence, delay of sex, faithfulness, and cessation of injection drug use. Successful programs are locally based, low cost, low tech, innovative, and built on existing cultural structures. In contrast, they argue that anthropologists and public health practitioners focus on counseling, testing, condoms, and treatment, and impose their Western values, culture, and political ideologies in an attempt to "liberate" non-Western people from sexual repression and homophobia. This provocative book is essential reading for anyone working in HIV/AIDS prevention, and a stimulating introduction to the key controversies and approaches in global health and medical anthropology for students and general readers.
Successive South African governments have had controversial views on HIV and AIDS which have led to allegations that South Africa is in a state of denial about the AIDS epidemic. This book attempts to determine the validity of such claims of government denial by formulating and testing a denial hypothesis. The hypothesis is contextualized with an overview of the South African epidemic as well as a review of allegations of government denial. It reveals possible political factors that may motivate policy-makers to resort to official denial and tentatively concludes with a confirmation of the allegations contained in the denial hypothesis. However, this is done within the broader notion that denial is inherently vague and couched in language (rarely in writing) and therefore difficult to test with certainty and as such this book's real value lies in the insights gained into the complex politics of denial. By exploring the dynamics of denial and denialism and applying this to the South African AIDS epidemic, this study provides a comprehensive analysis.
AIDS epidemics continue to threaten the livelihoods of millions of people in sub-Saharan Africa. Three decades after the disease was first recognized, the annual death toll from AIDS exceeds that from wars, famine and floods combined. Yet despite millions of dollars of aid and research, there has previously been little detailed on-the-ground analysis of the multifaceted impacts on rural people. Filling that gap, this book brings together recent evidence of AIDS impacts on rural households, livelihoods, and agricultural practice in sub-Saharan Africa. There is particular emphasis on the role of women in affected households, and on the situation of children. The book is unique in presenting micro-level information collected by original empirical research in a range of African countries, and showing how well-grounded conclusions on trends, impacts and local responses can be applied to the design of HIV-responsive policies and programmes. AIDS impacts are more diverse than we previously thought, and local responses more varied - sometimes innovative, sometimes desperate. The book represents a major contribution to our understanding of the impacts of AIDS in the epidemic's heartland, and how these can be managed at different levels.
Speaking truth to power is about the resurgence of activism in post-apartheid South Africa. A small legal NGO in Johannesburg, the AIDS Law Project (ALP), along with its allies in the Treatment Action Campaign, fought for more than a decade for the rights of people living with HIV/AIDS. Today South Africa has the laws that protect the rights of people living with HIV/AIDS and the largest treatment programme in the world. This would not have happened without dedicated activism and a commitment to social justice. Speaking truth to power tells how people used our constitution and the law in this struggle. The leadership of the ALP was clear as to how they wanted their history to be told. They saw the ALP story as the story of their clients and their cases, which form the milestones in this struggle. So this is a story about ordinary people who in their own way did some extraordinary things at an exceptionally difficult time. They stood up against prejudice and disinformation because they felt strongly about their rights. For some it was discrimination against themselves; for others it was discrimination against their fellow citizens who were vulnerable because they were living with a disease that had no cure and they were often seriously ill, even dying. To add insult to injury the country's president and, for some time, the government denied the scale of the epidemic. People's rights were being violated, but the law gave them a way to reassert them, generating the first resurgence of civil society in post-apartheid South Africa. This book is about the power of people and their courage to speak the truth.
This book, written decades into the HIV epidemic, reflects critically on the idea that the socially excluded populations often focused on in HIV research are in fact difficult to access and reach. The author broadly applies the concept 'hard to reach' to characterize populations that researchers find difficult to engage with. Social factors that produce marginalization and ultimately result in people choosing not to engage in research are not captured by the concept of 'hard to reach'. Limited attention has focused on how researchers can address the social factors that result in decisions to not engage in research. Disrupting the ways in which people are conceptualized as 'hard to reach' so as to refocus on transforming social systems and personal values, beliefs and approaches is understudied. This book uses case examples based on HIV research with Indigenous youth, internally displaced women, LGBTQ communities in the Global North and Global South, and persons at the intersection of these identities, to identify successful approaches to working with marginalized and often vulnerable communities and groups. The chapters signal the need for attention to five key social factors when developing successful approaches: context and storytelling; cultural humility; critical hope; imagination and possibility; and love, intimate inquiry, and the beloved community, if nations, individuals and communities are to address the epidemic in a sustainable and impactful way.
What happened to the plague of HIV/AIDS that once seemed so
threatening? Gabriele Griffin argues that the explosion of HIV/AIDS
into highly visible cultural forms, from movies, theatre, activist
interventions, and art from the late-1980s to the mid-1990s has
been replaced by a retreat to artisitic invisibility. Griffin
suggests that changes in the understanding of HIV/AIDS, the shift
from "dying of the disease" to "living with it" in Western
cultures, and a failure to grasp the full extent of the growth and
impact of HIV/AIDS in a number of African and Asian countries has
led to the "death" of the disease in the Western media.
Inner-city Sydney was the epicenter of gay life in the Southern hemisphere in the 1970s and early 1980s. Gay men moved from across Australasia to find liberation in the city's vibrant community networks; and when HIV and AIDS devastated those networks, they grieved, suffered, and survived in ways that have often been left out of the historical record. This book excavates the intimate lives and memories of HIV-positive gay men in Sydney, focusing on the critical years between 1982 and 1996, when HIV went from being a terrifying unidentified disease to a chronic condition that could be managed with antiretroviral medication. Using oral histories and archival research, Cheryl Ware offers a sensitive, moving exploration of how HIV-positive gay men navigated issues around disclosure, health, sex, grief, death, and survival. HIV Survivors in Sydney reveals how gay men dealt with the virus both within and outside of support networks, and how they remember these experiences nearly three decades later.
Brazil's leadership role in the fight against HIV has brought its public health system widespread praise. But the nation still faces serious health challenges and inequities. Though home to the world's second largest African-descendant population, Brazil failed to address many of its public health issues that disproportionately impact Afro-Brazilian women and men. Kia Lilly Caldwell draws on twenty years of engagement with activists, issues, and policy initiatives to document how the country's feminist health movement and black women's movement have fought for much-needed changes in women's health. Merging ethnography with a historical analysis of policies and programs, Caldwell offers a close examination of institutional and structural factors that have impacted the quest for gender and racial health equity in Brazil. As she shows, activists have played an essential role in policy development in areas ranging from maternal mortality to female sterilization. Caldwell's insightful portrait of the public health system also details how its weaknesses contribute to ongoing failures and challenges while also imperiling the advances that have been made.
This book addresses the impact of HIV on populations of men who have sex with men in Africa and local responses to the issue. It documents the enduring existence of a rich variety of same-sex practices between men. More critically, it analyses how the denial and social rejection of same-sex sexuality, together with the legacy of criminalization by former colonial rulers, has not only fueled the transmission of HIV between men, but has also impeded an effective response. The book also documents some of the outstanding progress that has been made and acknowledges the differences between African countries. Through its focus on lived realities and grassroots activism in Africa, this book will appeal to researchers, policy makers and practitioners alike.
This edited collection brings together the social dimensions of three key aspects of recent biomedical advance in HIV research: Treatment as Prevention (TasP), new technologies such as Pre-Exposure Prophylaxis (PrEP), and the Undetectable equals Untransmittable (U=U) movement. The growth of new forms of biomedical HIV prevention has created hope for the future, signalling the possibility of a world without AIDS. In this context, the volume discusses the profound social, political and ethical dilemmas raised by such advances, which are to do with readiness, access, equity and availability. It examines how HIV prevention has been, and is, re-framed in policy, practice and research, and asks: How best can new biomedical technologies be made available in a profoundly unequal world? What new understandings of responsibility and risk will emerge as HIV becomes a more manageable condition? What new forms of blame will emerge in a context where the technologies to prevent HIV exist, but are not always used? How best can we balance public health's concern for adherence and compliance with the rights of individuals to decide on what is best for themselves and others? Few of these questions have thus far received serious consideration in the academic literature. The editors, all leaders in the social aspects of HIV, have brought together an innovative and international collection of essays by top thinkers and practitioners in the field of HIV. This book is an important resource for academics and professionals interested in HIV research. Chapters "Anticipating Policy, Orienting Services, Celebrating Provision: Reflecting on Scotland's PrEP Journey", "How the science of HIV treatment-as-prevention restructured PEPFAR's strategy: The case for scaling up ART in 'epidemic control' countries", "Stigma and confidentiality indiscretions: Intersecting obstacles to the delivery of Pre-Exposure Prophylaxis to adolescent girls and young women in east Zimbabwe" and "The drive to take an HIV test in rural Uganda: a risk to prevention for young people?" are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.
We have not yet unravelled how HIV/AIDS is changing South Africa's social fabric, despite the fact that over 5 million South Africans are living with the virus. Do we know how HIV/AIDS may affect different sectors of society, possibly altering the course set for development? Is it possible that the way in which the epidemic is being fought - through health and human rights activism - is adjusting our expectations of justice and equality? This title is a multidisciplinary overview of the discourse on HIV/AIDS and explores the concept of human security and the global development agenda. Contributions are drawn from a diverse group of academics and activists who examine how the epidemic intersects with politics, society, culture and the economy in South Africa, addressing human rights, gender inequality, prisons, the military, the education sector, rural livelihoods and the orphan crisis.
Winner of the Sociology of Health and Illness Book Prize 2008 Of approximately 37 million HIV positive people in the world, 24.7 million live in sub-Saharan Africa and about 5..5 million in South Africa. Despite its relatively powerful economy and infrastructure, South Africa has been dramatically affected by the HIV pandemic. Using narrative analysis of a three year interview study and textual analysis of political materials, HIV in South Africa examines the impact of HIV on people's everyday lives in the country. Examining the relationship between personal accounts of living with HIV and wider medical, political and religious discourses, the book also highlights the significance of class, race and gender on individuals' experiences. These engaging stories of everyday lives provide an accessible way to connect with HIV as a health and development issue. Fascinating, challenging and constructive, this is an important contribution in an area of great social relevance. The ebook is available free of charge to those with addresses on the United Nations Development Programme's Human Development Index of Medium and Low Rankings (see http://hdr.undp.org/hdr2006/pdfs/report/HDR_2006_Tables.pdf), who can apply to the following address: www.ebookstore.tandf.co.uk
A witch's curse, an imperialist conspiracy, a racist plot-HIV/AIDS is a catastrophic health crisis with complex cultural dimensions. From small villages to the international system, explanations of where it comes from, who gets it, and who dies are tied to political agendas, religious beliefs, and the psychology of devastating grief. Frequently these explanations conflict with science and clash with prevention and treatment programs. In Witches, Westerners, and HIV Alexander Roedlach draws on a decade of research and work in Zimbabwe to compare beliefs about witchcraft and conspiracy theories surrounding HIV/AIDS in Africa. He shows how both types of beliefs are part of a process of blaming others for AIDS, a process that occurs around the globe but takes on local, culturally specific forms. He also demonstrates the impact of these beliefs on public health and advocacy programs, arguing that cultural misunderstandings contribute to the failure of many well-intentioned efforts. This insightful book provides a cultural perspective essential for everyone interested in AIDS and cross-cultural health issues.
Connect multiple resources to form effective strategies to deal with AIDS An effective strategy to deal with the AIDS epidemic is to have a wide range of scientists, clinicians, front-line workers, and clients distribute theory, care, and resource knowledge geometrically through all levels. The Geometry of Care: Linking Resources, Research, and Community to Reduce Degrees of Separation Between HIV Treatment and Prevention shows how to link bottom-up and top-down approaches to advance care, services, resources, training, theory, and policy analysis. Leading authorities draw upon behavioral and organizational theory to discuss the development of the frameworks necessary to effectively disseminate knowledge to benefit those needing care and to protect the community from further risk. The Geometry of Care builds a powerful case for the development of sustained links among academic resources and the community. Practical strategies are provided to set up a dynamic response framework to integrate the latest advances in treatment and prevention. The first section focuses on System and Program Level Geometry, the second on Patient and Provider Level Geometry. This is the book that shows how to meet the challenge to effectively understand, diagnose, treat, and prevent AIDS simultaneously on multiple fronts. Topics in The Geometry of Care include: expanding strategic care to include patient, community, and medical centers the assessment, dissemination, and integration of new advances the bottom-up development of links among providers, systems, and settings increased communication through the network of generalists and specialists within hospitals examples of infrastructure building at a family health service, a medical center-based AIDS center, and a home-based ambulatory care program how sustained setting/site relationships help to foster customized interventions serving clients better by tracking them through data management integration of prevention and treatment for clients dealing with multiple co-morbidities forging links between Western and traditional medicine tailoring prevention strategies to fit the individual shifting the locus of care to the HIV-positive individual an inter-organizational approach to supporting patient-provider interaction understanding barriers to adherence HIV as a family diseaseand the geometry of care as a family issue the need for partnership between patient and primary care provider individuals with HIV and their instrumental role in prevention and transmission much, much more! The Geometry of Care is a unique, horizon-expanding book that is perfect for community workers, community activists, public health professionals, HIV clinical providers, adherence specialists, applied sociologists, and other practitioners dedicated to finding ways to provide the best in care.
The AIDS epidemic continues to grow in this country and around the world. Currently, the only hope of stopping this tragedy is through interventions that change individual behavior. This book provides an excellent overview of current knowledge and research on how to promote the behaviors of safer sex and safer drug use, which will slow down the spread of HIV. It will be a useful resource for researchers who examine HIV prevention and for community workers and clinicians who wish to use sound, well-tested techniques for their intervention work. In addition, the book can serve as a thorough introduction for students who are new to the area of behavioral research on HIV and AIDS. --from the Overview by Suzanne C. Thompson & Stuart Oskamp Bringing together some of the most active and respected researchers in the field, this volume presents a state-of-the-art, integrated examination of behavioral research aimed at reducing the transmission of HIV. In almost 20 years of battling the AIDS epidemic, one theme has consistently emerged: The solution to stopping the spread of the AIDS virus rests with individual behavior. Understanding and Preventing HIV Risk Behavior grapples with the critical question of how to influence people to change high-risk behaviors, particularly in sexual activity and drug use. The contributors take an in-depth look at the most current HIV and AIDS epidemiological findings; the information-motivation-behavioral skills model of risk behavior; and empirical analyses of contraceptive decision making, denial processes, and the role of attraction in heterosexual behavior. This timely volume also examines research with special populations, including African American youths, Latinos, both gay and straight residents of HIV-impacted communities, active drug users, and adolescents in countries that have different AIDS risk levels and public health policies. Representing the latest in research on safer sex and altering drug use behaviors, Understanding and Preventing HIV Risk Behavior will be a valuable resource for HIV-prevention researchers, community workers, and clinicians who want to utilize research findings in their HIV intervention programs. This volume will also benefit students seeking an up-to-date overview of research on HIV/AIDS risk behavior.
Efforts within the past decade to address the HIV/AIDS pandemic in sub-Saharan Africa have dealt with HIV/AIDS principally as a medical concern-despite the fact that doctors continue to be confronted with the complex relationship of the disease to broader social issues. When medical and governmental institutions fail, artists step in. Contemporary performances in Uganda often focus on gender and health-related issues specific to women and youths, in which song texts warn against risky sexual environments or unprotected sexual behavior. Music, dance, and drama are principal tools of local initiatives that disseminate information, mobilize resources, and raise societal consciousness regarding issues related to HIV/AIDS. Through case studies, song texts, interviews, and testimonies, Singing for Life: HIV/AIDS and Music in Uganda examines the links between the decline in Uganda's infection rate and grassroots efforts that make use of music, dance, and drama. Only when supported and encouraged by such performances drawing on localized musical traditions have medical initiatives taken root and flourished in local healthcare systems. Gregory Barz shows how music can be both a mode of promoting health and a force for personal therapy, presenting a cultural analysis of hope and healing.
In this new volume, Michael A. Pagano curates essays focusing on the neighborhood's role in urban policy solutions. The papers emerged from dynamic discussions among policy makers, researchers, public intellectuals, and citizens at the 2014 UIC Urban Forum. As the writers show, the greater the city, the more important its neighborhoods and their distinctions. The topics focus on sustainable capital and societal investments in people and firms at the neighborhood level. Proposed solutions cover a range of possibilities for enhancing the quality of life for individuals, households, and neighborhoods. These include everything from microenterprises to factories; from social spaces for collective and social action to private facilities; from affordable housing and safety to gated communities; and from neighborhood public education to cooperative, charter, and private schools. Contributors: Andy Clarno, Teresa Cordova, Nilda Flores-Gonzalez, Pedro A. Noguera, Alice O'Connor, Mary Pattillo, Janet Smith, Nik Theodore, Elizabeth S. Todd-Breland, Stephanie Truchan, and Rachel Weber.
Drawing on rich and poignant interviews with mothers who have been diagnosed HIV-positive, Contradicting Maternity provides a rare perspective of motherhood from the mother's point of view. Whereas motherhood is often assumed to be a secondary identity compared to the central figure of the child, this book reverses the focus, arguing that maternal experience is important in its own right. The book explores the situation in which two very powerful identities, those of motherhood and of being HIVpositive, collide in the same moment. This collision takes place at the interface of complex, and often split, social and personal meanings concerning the sanctity of motherhood and the anxieties of HIV. The book offers an interpretation of how these personal and social meanings resonate with, and also fail to encompass, the experiences surrounding HIV positive mothers. Photographs, academic literature and the accounts of real women are read with both a psychodynamic and discursive eye, highlighting the contradictions within maternal experience, but also between maternal experience and the social imagination. Contradicting Maternity will appeal to scholars, students and practitioners in psychology, the social sciences and the health professions. The sensitive and readable analysis will also be of interest to mothers, whether HIV-positive or not.
The revelation of being HIV positive continues to be a discourse
fraught with meaning. In Infecting the Treatment: Being an
HIV-Positive Analyst, Gilbert Cole offers an intimate and deeply
insightful examination of disclosure of his HIV seropositivity on
his analytic sense of self and on his clinical work with
patients. Comprising Cole's personal engagement of the issues inherent in being an HIV-positive analyst, his report of clinical work attendant to disclosure of his condition, and a research project compiling the experiences of other HIV-positive analysts, Infecting the Treatment is an intimate and deeply insightful examination of the impact of one analyst's disclosure of HIV seropositivity on his analytic sense of self. With admirable candor and uncommon thoughtfulness, Cole shows how the analyst's disclosure of information of the most meaningful sort may deepen and even transform the therapeutic dialogue.
Among the chief themes of this book are the representation of AIDS in the mass media and in the arts, and the encouragement of a wider understanding of the personal impact of AIDS and its social experience, particularly among those social groups living with the highest levels of illness, death and mourning.
Finalist for the 2017 Lambda Literary "Lammy" Award in LGBTQ Studies The first book to examine the correlation between mixed-race identity and HIV/AIDS among Native American gay men and transgendered people, Indian Blood provides an analysis of the emerging and often contested LGBTQ "two-spirit" identification as it relates to public health and mixed-race identity. Prior to contact with European settlers, most Native American tribes held their two-spirit members in high esteem, even considering them spiritually advanced. However, after contact - and religious conversion - attitudes changed and social and cultural support networks were ruptured. This discrimination led to a breakdown in traditional values, beliefs, and practices, which in turn pushed many two-spirit members to participate in high-risk behaviors. The result is a disproportionate number of two-spirit members who currently test positive for HIV. Using surveys, focus groups, and community discussions to examine the experiences of HIV-positive members of San Francisco's two-spirit community, Indian Blood provides an innovative approach to understanding how colonization continues to affect American Indian communities and opens a series of crucial dialogues in the fields of Native American studies, public health, queer studies, and critical mixed-race studies.
In this single volume, William N. Elwood has gathered potent
evidence of the impact that the HIV/AIDS epidemic has had on the
world, its communities, and its inhabitants, and he addresses the
role of communication in affecting the way in which people respond
to AIDS. With a multidisciplinary group of contributors and topics
ranging from political rhetoric to interpersonal discourse, "Power
in the Blood" offers a multitude of ways in which to think about
power, politics, HIV prevention, and people living with HIV.
Readers will be able to use this information in class discussions,
program designs, grant applications, and research, as well as in
their own lives. With this volume, Elwood makes a thoroughly
convincing argument that communication is the key to understanding,
treating, and preventing AIDS, and he inspires further action
toward the goal of ending the AIDS crisis. |
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