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Books > Social sciences > Sociology, social studies > Social issues > Illness & addiction: social aspects > AIDS: social aspects
Winner, 2018 Donald W. Light Award for Applied Medical Sociology, American Sociological Association Medical Sociology Section Winner, 2018 Distinguished Scholarship Award presented by the Pacific Sociology Association Honorable Mention, 2017 ESS Mirra Komarovsky Book Award presented by the Eastern Sociological Society Outstanding Book Award for the Section on Altruism, Morality, and Social Solidarity presented by the American Sociological Association A rich, multi-faceted examination into the attitudes and beliefs of parents who choose not to immunize their children The measles outbreak at Disneyland in December 2014 spread to a half-dozen U.S. states and sickened 147 people. It is just one recent incident that the medical community blames on the nation's falling vaccination rates. Still, many parents continue to claim that the risks that vaccines pose to their children are far greater than their benefits. Given the research and the unanimity of opinion within the medical community, many ask how such parents-who are most likely to be white, college educated, and with a family income over $75,000-could hold such beliefs. For over a decade, Jennifer Reich has been studying the phenomenon of vaccine refusal from the perspectives of parents who distrust vaccines and the corporations that make them, as well as the health care providers and policy makers who see them as essential to ensuring community health. Reich reveals how parents who opt out of vaccinations see their decision: what they fear, what they hope to control, and what they believe is in their child's best interest. Based on interviews with parents who fully reject vaccines as well as those who believe in "slow vax," or altering the number of and time between vaccinations, the author provides a fascinating account of these parents' points of view. Placing these stories in dialogue with those of pediatricians who see the devastation that can be caused by vaccine-preventable diseases and the policy makers who aim to create healthy communities, Calling the Shots offers a unique opportunity to understand the points of disagreement on what is best for children, communities, and public health, and the ways in which we can bridge these differences.
Throughout the debate over how - and if - AIDS education should be taught to school age children, teachers who want to bring the subject of AIDS into their classroom have had few, if any, resources to guide them. This work responds to the need for AIDS education material with a practice-based, interactive curriculum that should enable teachers to effectively educate students about the risk of AIDS and HIV infection. It begins with a discussion of how teachers can create an environment of support for an AIDS education programme. Recognizing that AIDS education must differ for students of different age groups, the text presents tailored, age-appropriate material - what and how teachers should communicate AIDS information to young children, older children and teenage students. It also addresses actual methods teachers can use to influence their students' attitudes and behaviour by helping them to recognize problem situations in which risks might arise, and presenting them with the actual skills they need to protect themselves in such situations.
The inability of the medical establishment to effectively curtail the rapid spread of the HIV/AIDS epidemic in South Africa, coupled with the questionable response to HIV/AIDS by the state and the public debates around the issue have all combined to draw attention to the sociological aspects of health and disease and to put them in the public arena. There is also an increasing recognition that health practitioners need to have a better understanding of the social aspects of health and disease. Sociology as a resource of knowledge and a unique analytical and conceptual perspective can be used to understand, to explain and to positively influence the course of the epidemic and our response to it.
This overview provides an introduction to a study on The Political Cost of AIDS in Africa conducted by the South African democracy institute Idasa, and its research partners in different countries in Africa. It provides comprehensive empirical evidence of the impact HIV/AIDS is having on politics and the electoral process and demonstrates that the fledgling multi-party democracies in parts of the continent are being undermined by sickness, incapacity and premature deaths among elected leaders as well as within the electorate. The culmination of three years of exploratory research, the study shows how AIDS is interwoven with the continent's ambitions for deepening democracy. It is also available is an expanded companion volume, which provides the details of the study's research findings in separate chapters on Namibia, Malawi, Tanzania, South Africa, Senegal and Zambia.
Methods designed to guide the allocation of healthcare so as to maximize population health have been criticized as fundamentally unfair. In a closer analysis of this ethical critique of the use of cost-effectiveness author Daniel M. Hausman responds to the main complaints about the unfairness of cost-effectiveness, while also recognizing that there should be other factors-especially in cases of discrimination-guiding health-related treatment. Central to How Health Care Can Be Cost-Effective and Fair is whether cost-effective allocation of healthcare violates ethical constraints. Several commentators argue that using cost-effective reasoning to guide the distribution of healthcare is fundamentally unfair, not just because it does not take distribution into account, but because it fails to prioritize the severity of illness and fails to give everyone, and especially disabled people and those from historically underprivileged populations, a fair chance of being treated. While Hausman recognizes the complexity and shortcomings of cost-effective reasoning, he maintains that it should be a leading principle in the allocation of health-related resources. In Hausman's view, many values-such as compassion, freedom, respect, and solidarity should govern healthcare in addition to promoting well-being and treating individuals fairly. In its efforts to promote population health fairly, healthcare should respond to and respect individuals' values and choices.
Whenever the topic of large jails and public hospitals in urban America is raised, a single idea comes to mind. It is widely believed that because we as a society have dis-invested from public health, the sick and poor now find themselves within the purview of criminal justice institutions. In Redistributing the Poor, ethnographer and historical sociologist Armando Lara-Millan takes us into the day-to-day operations of running the largest hospital and jail system in the world and argues that such received wisdom is a drastic mischaracterization of the way that states govern urban poverty at the turn of the 21st century. Rather than focus on our underinvestment of health and overinvestment of criminal justice, his idea of "redistributing the poor" draws attention to how state agencies circulate people between different institutional spaces in such a way that generates revenue for some agencies, cuts costs for others, and projects illusions that services have been legally rendered. By centering the state's use of redistribution, Lara-Millan shows how certain forms of social suffering-the premature death of mainly poor, people of color-are not a result of the state's failure to act, but instead the necessary outcome of so-called successful policy.
Early in the 1980s AIDS epidemic, six gay activists created one of the most iconic and lasting images that would come to symbolize a movement: a protest poster of a pink triangle with the words "Silence=Death." The graphic and the slogan still resonate widely today, the latter an anthem for AIDS activism, and are often used-and misused-to brand the entire movement, appearing in a variety of ubiquitous manifestations. Cofounder of the collective Silence=Death and member of the art collective Gran Fury, Avram Finkelstein tells the story of how his work and other protest artworks associated with the early years of the pandemic were created. In his writing about art and AIDS activism, the formation of collectives, and the political process, Finkelstein exposes us to a different side of the traditional HIV/AIDS history told twenty-five years later and offers a creative toolbox for those who want to learn how art and activism save lives.
The HIV/AIDS epidemic in Africa has defined the childhoods of an entire generation. Over the past twenty years, international NGOs and charities have devoted immense attention to the millions of African children orphaned by the disease. But in Crying for Our Elders, anthropologist Kristen Cheney argues that these humanitarian groups have misread the crisis. Moreover, she explains how the global humanitarian focus on orphanhood often elides the social and political circumstances that present the greatest adversity to vulnerable children in effect, actually deepening the crisis and thereby affecting children's lives as irrevocably as the disease itself. Through ethnographic fieldwork and collaborative research with children in Uganda, Cheney traces how the 'best interest' principle that governs development work targeting children often does more harm than good, stigmatizing orphans and leaving children in the post-antiretroviral era even more vulnerable to exploitation. She details the dramatic effects this has on traditional family support and child protection, and stresses child empowerment over pity. Crying for Our Elders advances current discussions on humanitarianism, children's studies, orphanhood, and kinship. By exploring the unique experience of AIDS orphanhood through the eyes of children, caregivers, and policymakers, Cheney shows that despite the extreme challenges of growing up in the era of HIV/AIDS, the post-ARV generation still holds out hope for the future.
For over a hundred years, millions of Americans have joined together to fight a common enemy by campaigning against diseases. In Common Enemies, Rachel Kahn Best asks why disease campaigns have dominated a century of American philanthropy and health policy and how the fixation on diseases shapes efforts to improve lives. Combining quantitative and qualitative analyses in an unprecedented history of disease politics, Best shows that to achieve consensus, disease campaigns tend to neglect stigmatized diseases and avoid controversial goals. But despite their limitations, disease campaigns do not crowd out efforts to solve other problems. Instead, they teach Americans to give and volunteer and build up public health infrastructure, bringing us together to solve problems and improve our lives.
Whenever the topic of large jails and public hospitals in urban America is raised, a single idea comes to mind. It is widely believed that because we as a society have dis-invested from public health, the sick and poor now find themselves within the purview of criminal justice institutions. In Redistributing the Poor, ethnographer and historical sociologist Armando Lara-Millan takes us into the day-to-day operations of running the largest hospital and jail system in the world and argues that such received wisdom is a drastic mischaracterization of the way that states govern urban poverty at the turn of the 21st century. Rather than focus on our underinvestment of health and overinvestment of criminal justice, his idea of "redistributing the poor" draws attention to how state agencies circulate people between different institutional spaces in such a way that generates revenue for some agencies, cuts costs for others, and projects illusions that services have been legally rendered. By centering the state's use of redistribution, Lara-Millan shows how certain forms of social suffering-the premature death of mainly poor, people of color-are not a result of the state's failure to act, but instead the necessary outcome of so-called successful policy.
A witch's curse, an imperialist conspiracy, a racist plot-HIV/AIDS is a catastrophic health crisis with complex cultural dimensions. From small villages to the international system, explanations of where it comes from, who gets it, and who dies are tied to political agendas, religious beliefs, and the psychology of devastating grief. Frequently these explanations conflict with science and clash with prevention and treatment programs. In Witches, Westerners, and HIV Alexander Roedlach draws on a decade of research and work in Zimbabwe to compare beliefs about witchcraft and conspiracy theories surrounding HIV/AIDS in Africa. He shows how both types of beliefs are part of a process of blaming others for AIDS, a process that occurs around the globe but takes on local, culturally specific forms. He also demonstrates the impact of these beliefs on public health and advocacy programs, arguing that cultural misunderstandings contribute to the failure of many well-intentioned efforts. This insightful book provides a cultural perspective essential for everyone interested in AIDS and cross-cultural health issues.
AIDS and the Distribution of Crises engages with the AIDS pandemic as a network of varied historical, overlapping, and ongoing crises born of global capitalism and colonial, racialized, gendered, and sexual violence. Drawing on their investments in activism, media, anticolonialism, feminism, and queer and trans of color critiques, the scholars, activists, and artists in this volume outline how the neoliberal logic of "crisis" structures how AIDS is aesthetically, institutionally, and politically reproduced and experienced. Among other topics, the authors examine the writing of the history of AIDS; settler colonial narratives and laws impacting risk in Indigenous communities; the early internet regulation of both content and online AIDS activism; the Black gendered and sexual politics of pleasure, desire, and (in)visibility; and how persistent attention to white men has shaped AIDS as intrinsic to multiple, unremarkable crises among people of color and in the Global South. Contributors. Cecilia Aldarondo, Pablo Alvarez, Marlon M. Bailey, Emily Bass, Darius Bost, Ian Bradley-Perrin, Jih-Fei Cheng, Bishnupriya Ghosh, Roger Hallas, Pato Hebert, Jim Hubbard, Andrew J. Jolivette, Julia S. Jordan-Zachery, Alexandra Juhasz, Dredge Byung'chu Kang-Nguyen, Theodore (Ted) Kerr, Catherine Yuk-ping Lo, Cait McKinney, Viviane Namaste, Elton Naswood, Cindy Patton, Margaret Rhee, Juana Maria Rodriguez, Sarah Schulman, Nishant Shahani, C. Riley Snorton, Eric A. Stanley, Jessica Whitbread, Quito Ziegler
HIV/AIDS affects women worldwide. Elderly women bear a disproportionate burden of caring for those who are afflicted with the disease, while young women increasingly comprise the majority of new HIV cases. Intervention programs often fail to take into account the particular situations and behaviors that make women more vulnerable than men. Though policy debates increasingly include women and gender considerations, funds and resources for women, especially those already suffering with HIV/AIDS, remain inadequate. "Women's Experiences with HIV/AIDS" gives voice to the experience of individual women whose personal stories reveal the daily struggles and concerns that fill their lives, but are ignored in the larger dialogues about HIV/AIDS. Women and men from diverse backgrounds discuss the differences between women within and across cultures and how particular traditions and attitudes can affect the prevention of, or vulnerability to, HIV/AIDS. The authors address not only women's empirical experiences, but also their personal feelings, beliefs, and expectations as reflected in their narratives. Approaching the issue from several disciplines, "Women's Experiences with HIV/AIDS" paves the way for the empowerment of women by bringing them directly into the debates concerned with their protection against HIV/AIDS. This collection, edited by two well-known scholars in this field, provides a much-needed critical examination of the interventions and policies that do not yet fully address the needs and limitations of women and girls suffering with, or confronting the possibility of, infection.
This is the tale of a devastating pandemic, of lives cut painfully short - it's also a love story. Derek, a distinguished designer, and J, a pioneering entrepreneur and creator of Heaven, the iconic gay dance club, met and fell in love more than 40 years ago. In the early 1980s their friends began to get sick and die - AIDS had arrived in their lives. When they got tested, J received what was then a death sentence: he was HIV Positive. While the onset of AIDS strengthened stigma and fear globally, they confronted their crisis with courage, humour and an indomitable resolve to survive. J's battle lasted six long years. Turning to spiritual reflection, yoga, nature - and always to love - Derek describes a transformation of the spirit, how compassion and empathy rose phoenix-like from the flames of sickness and death, and how he and J founded the charity Aids Ark, which has helped to save more than 1,000 HIV Positive lives. This is a story of joy and triumph, of facing universal challenges, of the great rewards that come from giving back. Derek speaks for a generation who lived through a global health crisis that many at the time refused even to acknowledge. His is a powerful story chronicling this extraordinary era.
The global response to HIV/AIDS has been a major aspect of global health and development policy over the last three decades. The book illustrates the devastating health impacts of the epidemic, with life expectancy in some countries falling to the lowest levels observed anywhere, and the remarkable success of the global HIV/AIDS response in reversing such extreme outcomes. Concerns about the implications of HIV/AIDS for economic development have played a role in motivating the global HIV/AIDS response. However, evidence on the impacts of HIV/AIDS on economic growth or poverty is weak, and the magnitude and relevance of such economic effects appears trivial compared to the consequences for life and health. Because of the success in extending access to treatment globally, HIV/AIDS has effectively transitioned into a chronic disease. This means that HIV/AIDS absorbs not only a substantial chunk of current global and national financial resources, but that these spending needs are projected to persist over decades. The costs of the HIV/AIDS response thus resemble a long-term financial liability, shaped by past and current policies. Relatedly, the calculus of cost-effectiveness of HIV/AIDS interventions has changed. People who become infected with HIV can now expect to not die because of AIDS; at the same time, each HIV infection results in medical needs and expenditures extending over decades. The book presents a framework for integrating these financial consequences and the transmission dynamics of HIV in the analysis of cost-effectiveness of HIV/AIDS interventions and in the design of HIV/AIDS programs.
AIDS has been a devastating plague in much of sub-Saharan Africa, yet the long-term implications for gender and sexuality are just emerging. AIDS and Masculinity in the African City tackles this issue head on and examines how AIDS has altered the ways masculinity is lived in Uganda - a country known as Africa's great AIDS success story. Based on a decade of ethnographic research in an urban slum community in the capital Kampala, this book reveals the persistence of masculine privilege in the age of AIDS and the implications such privilege has for combating AIDS across the African continent.
In the short, turbulent history of AIDS research and treatment, the boundaries between scientist insiders and lay outsiders have been crisscrossed to a degree never before seen in medical history. Steven Epstein's astute and readable investigation focuses on the critical question of "how certainty is constructed or deconstructed," leading us through the views of medical researchers, activists, policy makers, and others to discover how knowledge about AIDS emerges out of what he calls "credibility struggles." Epstein shows the extent to which AIDS research has been a social and political phenomenon and how the AIDS movement has transformed biomedical research practices through its capacity to garner credibility by novel strategies. Epstein finds that nonscientist AIDS activists have gained enough of a voice in the scientific world to shape NIH--sponsored research to a remarkable extent. Because of the blurring of roles and responsibilities, the production of biomedical knowledge about AIDS does not, he says, follow the pathways common to science; indeed, AIDS research can only be understood as a field that is unusually broad, public, and contested. He concludes by analyzing recent moves to democratize biomedicine, arguing that although AIDS activists have set the stage for new challenges to scientific authority, all social movements that seek to democratize expertise face unusual difficulties. Avoiding polemics and accusations, Epstein provides a benchmark account of the AIDS epidemic to date, one that will be as useful to activists, policy makers, and general readers as to sociologists, physicians, and scientists.
From the very beginning of the epidemic, AIDS was linked to punishment. Calls to punish people living with HIV-mostly stigmatized minorities-began before doctors had even settled on a name for the disease. Punitive attitudes toward AIDS prompted lawmakers around the country to introduce legislation aimed at criminalizing the behaviors of people living with HIV. Punishing Disease explains how this happened-and its consequences. With the door to criminalizing sickness now open, what other ailments will follow? As lawmakers move to tack on additional diseases such as hepatitis and meningitis to existing law, the question is more than academic.
Winner, 2018 Best Atlantic Published Book AwardA National BestsellerBy the time the AIDS pandemic in Africa had reached its height in the early 2000s, millions of children had been orphaned. In the face of overwhelming loss, the grandmothers of Africa stepped in to hold families and communities together. Author Joanna Henry and photographer Alexis MacDonald visited eight African countries, interviewing and photographing hundreds of grandmothers (including Sarah Obama, Barack Obama's grandmother) who are reclaiming hope and resurrecting lives. The extraordinary images and stories of resourceful women fighting for a better future make Powered by Love an inspiration for everyone.Writes journalist-social activist Michele Landsberg, "We thought we knew what was happening in Africa when the AIDS pandemic raged across the continent, sweeping away 35 million lives. But we never knew it the way this book reveals it, in the shockingly intimate voices of the grandmothers who had to save the abandoned children when no one else was left alive. These voices will leap straight into your heart. Their unguarded faces, in portraits that glow with character, pain and humour, will captivate you."In 2006, the Stephen Lewis Foundation launched a campaign to engage Canadian grandmothers to support their African sisters. The Grandmothers Campaign, now a movement 10,000 strong, has raised over $25 million that has gone directly into the hands of African grandmothers and their grassroots organizations. Powered by Love joins this campaign by telling the story of these indomitable women and by directing all royalties from the sale of the book to African grandmothers raising children orphaned by AIDS.
Fifteen years ago the AIDS `epidemic' did not exist on the public agenda. In just over a decade the public and official response to the disease has resulted in the development of a whole network of organizations devoted to the study, containment, and practical treatment of AIDS. In this important and original analysis of AIDS policy, Virginia Berridge examines the speed and nature of the official (and unofficial) response to this new and critical historical event. The policy reaction in Britain passed through three stages. From 1981-1986 the outbreak of a new contagious disease led to public alarm and social stigmatization, with a lack of scientific certainty about the nature of the disorder. AIDS was a new and open policy area - there were no established departmental, local, or health authority mechanisms for dealing with the problem. This was a period of policy development from below, with relatively little official action and many voluntary initiatives behind the scenes. This phase was succeeded in 1986-1987 by a brief stage of quasi-wartime emergency, in which national politicians and senior civil servants intervened, and a high-level political response emerged. The response was a liberal one of `safe sex' and harm minimization rather than draconian notification or isolation of carriers. The author demonstrates that despite the `Thatcher revolution'in government in the 1980s, crisis could still stimulate a consensual response. The current period of `normalization' of the disease sees panic levels subsiding as the rate of growth slows and the fear of the unknown recedes. Official institutions have been established and formal procedures adopted and reviewed; paid professionals have replaced the earlier volunteers. The 1990s have seen change in the liberal consensus towards a harsher response and the partial repoliticization of AIDS. In this fascinating and scholarly account, Virginia Berridge analyses a remarkable period in contemporary British history, and exposes the reaction of the British political and medical elites, and of the British public to one of the most challenging issues of this century.
In Cooking Data Crystal Biruk offers an ethnographic account of research into the demographics of HIV and AIDS in Malawi to rethink the production of quantitative health data. While research practices are often understood within a clean/dirty binary, Biruk shows that data are never clean; rather, they are always "cooked" during their production and inevitably entangled with the lives of those who produce them. Examining how the relationships among fieldworkers, supervisors, respondents, and foreign demographers shape data, Biruk examines the ways in which units of information-such as survey questions and numbers written onto questionnaires by fieldworkers-acquire value as statistics that go on to shape national AIDS policy. Her approach illustrates how on-the-ground dynamics and research cultures mediate the production of global health statistics in ways that impact local economies and formulations of power and expertise.
The first ever book by music legend and author of the bestselling Me, Sir Elton John: a personal, passionate and illuminating journey of his fight to end the AIDS epidemic. In the 1980s, Elton John saw friend after friend, loved one after loved one, perish needlessly from AIDS. In the midst of the plague, he befriended Ryan White, a young Indiana boy ostracized by his town and his school because of the HIV infection he had contracted from a blood transfusion. Ryan's inspiring life and devastating death led Elton to two realizations: His own life was a mess. And he had to do something to help stop the AIDS crisis. Since then, Elton has dedicated himself to overcoming the plague and the stigma of AIDS. He has done this through the Elton John AIDS Foundation, which has raised and donated $275 million to date to fighting the disease worldwide. Love Is The Cure is Elton's personal account of his life during the AIDS epidemic, including stories of his close friendships with Ryan White, Freddie Mercury, Princess Diana, Elizabeth Taylor, and others, and the story of the Elton John AIDS Foundation. With powerful conviction and emotional force, Elton conveys the personal toll AIDS has taken on his life - and his infinite determination to stop its spread. Elton writes, 'This is a disease that must be cured not by a miraculous vaccine, but by changing hearts and minds, and through a collective effort to break down social barriers and to build bridges of compassion. Why are we not doing more? This is a question I have thought deeply about, and wish to answer - and help to change - by writing this book.' The sale of Love Is the Cure will benefit the Elton John AIDS Foundation.
"This book is a fabulous read--ethnographically rich, theoretically
engaged, and emotionally and intellectually captivating. The first
major ethnographic study of its kind, the text is very clearly
written and accessible. Hyde does a majestic job of drawing the
reader into the places and practices described, bringing to
stunning life the politics of AIDS on a border region."--Ralph
Litzinger, author of "Other Chinas: The Yao and the Politics of
National Belonging"
In 2008 it was believed that HIV/AIDS was without doubt the worst epidemic to hit humankind since the Black Death. The first case was identified in 1981; by 2004 it was estimated that about 40 million people were living with the disease, and about 20 million had died. Yet the outlook today is a little brighter. Although HIV/ AIDS continues to be a pressing public health issue the epidemic has stabilised globally, and it has become evident it is not, nor will it be, a global issue. The worst affected regions are southern and eastern Africa. Elsewhere, HIV is found in specific, usually, marginalised populations, for example intravenous drug users in Russia. Although there still remains no cure for HIV, there have been unprecedented breakthroughs in understanding the disease and developing drugs. Access to treatment over the last ten years has turned AIDS into a chronic disease, although it is still a challenge to make antiviral treatment available to all that require it. We also have new evidence that treatment greatly reduces infectivity, and this has led to the movement of 'Treatment as Prevention'. In this Very Short Introduction Alan Whiteside provides an introduction to AIDS, tackling the science, the international and local politics, the demographics, and the devastating consequences of the disease. He looks at the problems a developing international 'AIDS fatigue' poses to funding for sufferers, but also shows how domestic resources are increasingly being mobilised, despite the stabilisation of international funding. Finally Whiteside considers how the need to understand and change our behaviour has caused us to reassess what it means to be human and how we should operate in the globalizing world. ABOUT THE SERIES: The Very Short Introductions series from Oxford University Press contains hundreds of titles in almost every subject area. These pocket-sized books are the perfect way to get ahead in a new subject quickly. Our expert authors combine facts, analysis, perspective, new ideas, and enthusiasm to make interesting and challenging topics highly readable.
Early in the 1980s AIDS epidemic, six gay activists created one of the most iconic and lasting images that would come to symbolize a movement: a protest poster of a pink triangle with the words "Silence = Death." The graphic and the slogan still resonate today, often used-and misused-to brand the entire movement. Cofounder of the collective Silence = Death and member of the art collective Gran Fury, Avram Finkelstein tells the story of how his work and other protest artwork associated with the early years of the pandemic were created. In writing about art and AIDS activism, the formation of collectives, and the political process, Finkelstein reveals a different side of the traditional HIV/AIDS history, told twenty-five years later, and offers a creative toolbox for those who want to learn how to save lives through activism and making art. |
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