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The Postgenomic Condition - Ethics, Justice, and Knowledge after the Genome (Paperback)
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The Postgenomic Condition - Ethics, Justice, and Knowledge after the Genome (Paperback)
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While the sequencing of the human genome was a landmark
achievement, the availability and manipulation of such a vast
amount of data about our species has inevitably led to questions
that are increasingly fundamental and urgent: now that information
about human bodies can be transformed into a natural resource, how
will and should we interpret and use it? With The Postgenomic
Condition, Jenny Reardon draws on more than a decade of research in
molecular biology labs, commercial startups, governmental agencies
and civic spaces to examine the extensive efforts after the
completion of the Human Genome Project to transform genomics from
high tech informatics practiced by a few well-financed scientists
and engineers to meaningful knowledge beneficial to all people.
Through her in-depth profiles of genomic initiatives around the
world, we see hopes to forge public knowledge and goods from blood
and DNA meet the reality of limited resources and conflicting
values. Building the argument around the limits of liberal concepts
of openness, information, inclusion, privacy, property and the
public concepts that proved salient at different points in the
unfolding story of efforts to make sense of human genomes Reardon
shows how genomics challenges us to move beyond existing liberal
frameworks to ask deeper questions of knowledge and justice. While
the news media is filled with grand visions of future designer
drugs and babies, The Postgenomic Condition brings richly into view
these hard on-the-ground questions about what can be known and who
and how we will live on a depleted but data-rich, interconnected
yet fractured planet, where technoscience garners disproportionate
resources.
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