Interdisciplinary Pediatric Palliative Care provides a uniquely
integrated, comprehensive resource about palliative care for
seriously ill children and their families. The field of palliative
care is based on the fundamental principle that an
interdisciplinary team is optimal in caring for patients and their
families throughout the illness trajectory. The text integrates
themes including goals of care, discipline-specific roles, cultural
and spiritual considerations, evidence-based outcomes, and far
more. It emphasizes the value of words and high-quality
communication in palliative care. Importantly, content acknowledges
challenging periods between team members, and how those can
ultimately benefit team, patient, and family care outcomes. Each
chapter includes the perspective of the family of a seriously ill
child in the form of a vignette to promote care team understanding
of this crucial perspective. This second edition is founded on a
wealth of evidence that reflects the innovations in pediatric
palliative care science over the past 10 years, including
initiatives in clinical care, research, and education.
Interdisciplinary Pediatric Palliative Care is appropriate for all
pediatric palliative clinicians (PPC), including physicians,
nurses, psychosocial clinicians, chaplains, and many others. All
subspecialists who deliver care to seriously ill children, will
find this book a must-have for their work. Advance Praise for
Interdisciplinary Pediatric Palliative Care, Second Edition "This
new edition is as much a testament to pediatric palliative care's
remarkable evolution as a field as it is a quintessential playbook
for providing the high-quality holistic and compassionate care that
families with seriously ill children desperately want. Every page
thoughtfully weaves together how interprofessional teams can
contribute collaboratively to learning about and supporting the
preferences, needs and priorities of the precious patients and
families in their circle of care. It is a must read for all
practitioners to enhance their palliative care understanding,
appreciation and ability as a foundation for optimizing quality of
life in practice." - Rebecca Kirch, JD, Executive Vice President of
Policy and Programs, National Patient Advocate Foundation "This
book offers a truly contemporary and comprehensive view of the
entire field of pediatric palliative care. The focus on social
determinants of health, cultural humility, and disparities in care
could not be timelier, and the section highlighting conflict and
conflict resolution should be required reading. The continued and
purposeful inclusion of interdisciplinary clinicians in producing
each chapter models the palliative care team itself-an approach in
which all voices are necessary as we seek to provide the most
compassionate care possible." - Rachel Thienprayoon, MD, MSCS,
FAAP, FAAHPM, Associate Professor of Anesthesia, Medical Director,
StarShine Hospice and Palliative Care, Cincinnati Children's
Hospital Medical Center
General
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