Neonatal intensive care has been one of the most morally
controversial areas of medicine during the past thirty years. This
study examines the interconnected development of four key aspects
of neonatal intensive care: medical advances, ethical analysis,
legal scrutiny, and econometric evaluation.
The authors assert that a dramatic shift in societal attitudes
toward newborns and their medical care was a stimulus for and then
a result of developments in the medical care of newborns. They
divide their analysis into three eras of neonatal intensive care.
The first, characterized by the rapid advance of medical technology
from the late 1960s to the Baby Doe case of 1982, established
neonatal care as a legitimate specialty of medical care, separate
from the rest of pediatrics and medicine. During this era, legal
scholars and moral philosophers debated the relative importance of
parental autonomy, clinical prognosis, and children's rights.
The second era, beginning with the Baby Doe case (a legal battle
that spurred legislation mandating that infants with debilitating
birth defects be treated unless the attending physician deems
efforts to prolong life "futile"), stimulated efforts to establish
a consistent federal standard on neonatal care decisions and raised
important moral questions concerning the meaning of "futility" and
of "inhumane" treatment. In the third era, a consistent set of
decision-making criteria and policies was established. These
policies were the result of the synergy and harmonization of newly
agreed upon ethical principles and newly discovered epidemiological
characteristics of neonatal care.
Tracing the field's recent history, notable advances, and
considerable challenges yet to be faced, the authors present
neonatal bioethics as a paradigm of complex conversation among
physicians, philosophers, policy makers, judges, and legislators
which has led to responsible societal oversight of a controversial
medical innovation.
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