Pioneering Ethics in a Longitudinal Study - The Early Development of the ALSPAC Ethics and Law Committee (Hardcover)

Available Open Access under CC-BY-NC licence. The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee. This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston. This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed.

General

Imprint:	Policy Press
Country of origin:	United Kingdom
Release date:	2018
First published:	2017
Authors:	Karen Birmingham
Dimensions:	198 x 129mm (L x W)
Format:	Hardcover
Pages:	136
ISBN-13:	978-1-4473-4038-6
Categories:	Books > Social sciences > Sociology, social studies > Social groups & communities > Age groups > Children Books > Social sciences > Sociology, social studies > Social issues > Ethical issues & debates > General Promotions
LSN:	1-4473-4038-8
Barcode:	9781447340386

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