Why do racial and ethnic controversies become attached, as they
often do, to discussions of modern genetics? How do theories about
genetic difference become entangled with political debates about
cultural and group differences in America? Such issues are a
conspicuous part of the histories of three hereditary diseases:
Tay-Sachs, commonly identified with Jewish Americans; cystic
fibrosis, often labeled a "Caucasian" disease; and sickle cell
disease, widely associated with African Americans.
In this captivating account, historians Keith Wailoo and Stephen
Pemberton reveal how these diseases -- fraught with ethnic and
racial meanings for many Americans -- became objects of biological
fascination and crucibles of social debate. Peering behind the
headlines of breakthrough treatments and coming cures, they tell a
complex story: about different kinds of suffering and faith, about
unequal access to the promises and perils of modern medicine, and
about how Americans consume innovation and how they come to believe
in, or resist, the notion of imminent medical breakthroughs.
With Tay-Sachs, cystic fibrosis, and sickle cell disease as a
powerful backdrop, the authors provide a glimpse into a diverse
America where racial ideologies, cultural politics, and conflicting
beliefs about the power of genetics shape disparate health care
expectations and experiences.
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