This book addresses the impact of genetic deafness/hearing
impairment on people' s lives and those around them. It includes
the perspectives of those who are deaf or hard of hearing as well
as those working in the field. Professional topics include genetic
counselling, social science, psychology, social work and - within
medicine - audiological and ENT medical and audiological
paediatrics. These practitioners are both hearing and hearing
impaired.
The impact of deafness on children, those of working age and
elderly people is discussed highlighting the specific effect of
genetic factors. In particular there are chapters on deafblindness
and otosclerosis and NF2 (a potentially lethal condition). The Who
definitions and ICF are used as a framework for considering the
effect on people' s lives of impairment and their participation in
society.
This provides a bridge between the medical and social models of
disability. Contributors write from both their professional and
personal experience in order to try and address some of the issues
raised by the real impact of genetic deafness on everyday life and
how these can best be tackled by those working in the field.
General
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