A primary concern of rare disease diagnosis is the lack of accurate
information that may lead to delayed interventions, administering
inaccurate treatments, and social consequences. Health
communication continues to be one-way and rely on the expertise
from the health practitioner. In such a broad spectrum of rare
diseases, patients may find it difficult to obtain timely
information, accurate diagnosis, and appropriate treatments,
surgeries, medications, or psychological counseling in their own
countries. The use of information and communication technologies
can create new communication channels that address this lack of
knowledge. Communicating Rare Diseases and Disorders in the Digital
Age is an essential reference source that uses computer-mediated
communication to improve patient knowledge when afflicted or
dealing with rare health conditions. Featuring research on topics
such as support networking, eHealth management, and social
computing, this book is ideally designed for health practitioners,
physicians, patients, medical administrators, nurses, surgeons,
infectious disease educators, hospital directors, world health
organizations, academicians, students, and researchers seeking
coverage on current advances in health communication, computer
science, and epidemiology.
General
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