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Principles and Practice in Biobank Governance (Paperback)
Loot Price: R1,592
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Principles and Practice in Biobank Governance (Paperback)
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Rapid technological advances, the establishment of large-scale
biobanks, and the exchange of data across international boundaries
raise a variety of questions for regulators struggling with the
problem of how to govern such stores of information and the
processes connected with them. Engaging with the pressing issues of
privacy, consent, access to data, and benefit sharing, Principles
and Practice in Biobank Governance draws together the latest
empirical research from the UK, Europe, America, Australia and Asia
to focus on these challenges. Current models of governance are
critiqued, principles and policies are debated, and new models and
theoretical frameworks are presented through this intellectually
stimulating, informative volume. This truly international volume
offers new insights from a range of disciplinary perspectives and
will be essential reading for policy makers and scholars across a
range of social sciences, including sociology, bioethics, law and
social policy.
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