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Data Matters - Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop (Paperback)
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Data Matters - Ethics, Data, and International Research Collaboration in a Changing World: Proceedings of a Workshop (Paperback)
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In an increasingly interconnected world, perhaps it should come as
no surprise that international collaboration in science and
technology research is growing at a remarkable rate. As science and
technology capabilities grow around the world, U.S.-based
organizations are finding that international collaborations and
partnerships provide unique opportunities to enhance research and
training. International research agreements can serve many
purposes, but data are always involved in these collaborations. The
kinds of data in play within international research agreements
varies widely and may range from financial and consumer data, to
Earth and space data, to population behavior and health data, to
specific project-generated data?this is just a narrow set of
examples of research data but illustrates the breadth of
possibilities. The uses of these data are various and require
accounting for the effects of data access, use, and sharing on many
different parties. Cultural, legal, policy, and technical concerns
are also important determinants of what can be done in the realms
of maintaining privacy, confidentiality, and security, and ethics
is a lens through which the issues of data, data sharing, and
research agreements can be viewed as well. A workshop held on March
14-16, 2018, in Washington, DC explored the changing opportunities
and risks of data management and use across disciplinary domains.
The third workshop in a series, participants gathered to examine
advisory principles for consideration when developing international
research agreements, in the pursuit of highlighting promising
practices for sustaining and enabling international research
collaborations at the highest ethical level possible. The intent of
the workshop was to explore, through an ethical lens, the changing
opportunities and risks associated with data management and use
across disciplinary domains?all within the context of international
research agreements. This publication summarizes the presentations
and discussions from the workshop. Table of Contents Front Matter 1
Introduction and Overview 2 Privacy, Security, and Confidentiality
of Data Sharing and Storage 3 Emerging Technologies and the Social
Landscape 4 Reports from the Breakout Sessions 5 Final Thoughts and
Next Steps References Appendix A: Workshop Agenda Appendix B:
Statement of Task Appendix C: Guiding Questions for the Breakout
Sessions Appendix D: Speaker and Moderator Biographies
General
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