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Testing Baby - The Transformation of Newborn Screening, Parenting, and Policymaking (Hardcover, New)
Loot Price: R2,249
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Testing Baby - The Transformation of Newborn Screening, Parenting, and Policymaking (Hardcover, New)
Series: Critical Issues in Health and Medicine
Expected to ship within 12 - 17 working days
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Within forty-eight hours after birth, the heel of every baby in the
United States has been pricked and the blood sent for compulsory
screening to detect or rule out a large number of disorders.
Newborn screening is expanding rapidly, fueled by the prospect of
saving lives. Yet many lives are also changed by it in ways not yet
recognized. Testing Baby is the first book to draw on parents’
experiences with newborn screening in order to examine its
far-reaching sociological consequences. Rachel Grob’s cautionary
tale also explores the powerful ways that parents’ narratives
have shaped this emotionally charged policy arena. Newborn
screening occurs almost always without parents’ consent and often
without their knowledge or understanding, yet it has the power to
alter such things as family dynamics at the household level, the
context of parenting, the way we manage disease identity, and how
parents’ interests are understood and solicited in policy
debates.
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