The failure of long-term care is the country's best-kept
embarrassing secret. Almost every adult in the United States will
either enter a nursing home or have to deal with a parent or other
relative who does. Studies show that 40 percent of all adults who
live to age sixty-five will enter a nursing home before they die,
while even more will use another form of long-term care.
Part memoir, part practical guide, part prescription for change,
"It Shouldn't Be This Way" is a unique look at the problems of
long-term care. Robert L. Kane, a highly experienced physician and
gerontologist, and his sister, Joan C. West, tell the painful story
of what happened to their mother after she suffered a debilitating
stroke and spent the last years of her life in rehabilitation,
assisted-living facilities, and finally a nursing home. Along the
way, her adult children encountered some professionals who were
kind and considerate but also many frustrations--inadequate care
and the need to hire private duty aides, as well as poor
communication and lack of coordination throughout the system. The
situation, they found, proved far more difficult than it needed to
be.
As the authors recount their mother's story, they impart various
lessons they learned from each phase of the experience. They alert
those who are confronting such situations for the first time about
what they will likely face and how to approach the problems.
Closing with a broader look at why long-term care is the way it is,
they propose steps to make necessary reforms, including the
development of national organizations to work for change. Their
message to families, care professionals, and policy-makers could
not be more urgent.
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