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People's Science - Bodies and Rights on the Stem Cell Frontier (Hardcover, New)
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People's Science - Bodies and Rights on the Stem Cell Frontier (Hardcover, New)
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Stem cell research has sparked controversy and heated debate since
the first human stem cell line was derived in 1998. Too frequently
these debates devolve to simple judgmentsOCogood or bad,
life-saving medicine or bioethical nightmare, symbol of human
ingenuity or our fall from graceOCoignoring the people affected.
With this book, Ruha Benjamin moves the terms of debate to focus on
the shifting relationship between science and society, on the
people who benefitOCoor don'tOCofrom regenerative medicine and what
this says about our democratic commitments to an equitable society.
"People's Science" uncovers the tension between scientific
innovation and social equality, taking the reader inside
California's 2004 stem cell initiative, the first of many state
referenda on scientific research, to consider the lives it has
affected. Benjamin reveals the promise and peril of public
participation in science, illuminating issues of race, disability,
gender, and socio-economic class that serve to define certain
groups as more or less deserving in their political aims and
biomedical hopes. Under the shadow of the free market and in a
nation still at odds with universal healthcare, the socially
marginalized are often eagerly embraced as test-subjects, yet often
are unable to afford new medicines and treatment regimes as
patients.
Ultimately, Ruha Benjamin argues that without more deliberate
consideration about how scientific initiatives can and should
reflect a wider array of social concerns, stem cell researchOCo
from African Americans' struggle with sickle cell treatment to the
recruitment of women as tissue donorsOCostill risks excluding many.
Even as regenerative medicine is described as a participatory
science for the people, Benjamin asks us to consider if the people
ultimately reflects our democratic ideals.
"
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