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This splendid volume is easily understandable, uses real-life
situations as examples and is far more up-to-the-minute than other
such books. From sexuality to surgery, it offers practical and
science-based advice.--Charles M. Plotz, M.D., Editor-in-Chief,
Rheuma21st.com
Your complete guide to understanding and living well with
rheumatoid arthritis
If you or someone close to you suffers from rheumatoid arthritis
(RA), this book is a powerful tool you don't want to be without.
Two of the authors are physicians at the Hospital for Special
Surgery, one of the nation's oldest and best orthopedic research
hospitals. Its purpose is to arm you with the information you need
to take charge of your disease management and work with your
doctors to develop a treatment program that's right for your
lifestyle and life goals.
In plain English, the authors demystify rheumatoid arthritis-its
causes, progression, and various effects on the human body-and
decode the often perplexing language that doctors use to describe
RA and its diagnosis and treatment. They explain the various
treatment and pain management options available to you and ways to
discuss them with your doctor. The authors also include the true
stories of RA patients whose tales offer encouragement and powerful
insights for dealing with the difficult psychological and lifestyle
issues RA sufferers face. Their expert advice and guidance covers a
range of topics of vital concern to people affected by RA,
including:
* Old, new, and emerging drug therapies, including gold,
corticosteroids, and immunosuppressants
* Analgesics and anti-inflammatories
* Alternative treatment strategies
* Nutrition, diet, and exercise for RA
* Vitamins and supplements, including glucosamine and Evening
Primrose oil
* Managing crucial lifestyle issues such as sports, travel, and
sex
* Pregnancy and RA
* Alleviating depression and pain
* Surgical options, including joint replacement therapy
This new edition is a comprehensive and updated resource on
antiphospholipid syndrome (APS), which is an autoimmune disorder.
In APS, the body recognizes certain normal components of blood
and/or cell membranes as foreign substances and produces antibodies
(antiphospholipid antibodies) against them. APS is associated with
recurrent clotting events (thrombosis) including premature stroke,
repeated miscarriages, phlebitis, venous thrombosis, and pulmonary
thromboembolism. It is also associated with low platelet or blood
elements that prevent bleeding. Recently, however, even more
disease states have been linked with APS, including premature heart
attack, various cardiac valvular abnormalities, skin lesions,
kidney disease, abnormal involuntary movement/chorea, diseases that
mimic multiple sclerosis, and vascular diseases of the eye that can
lead to visual loss and blindness. The International Congress on
Antiphospholipid Antibodies, held every 3 years, is the venue where
representatives from different disciplines gather to discuss the
recent advances in APS. The conference intends to cover basic
aspects of APS, such as pathogenesis, origins, genetics,
intracellular and molecular events, the role of infections, as well
as traditional and non-traditional clinical manifestations
associated with antiphospholipid antibodies. The 15th Congress took
place in September 2016. A novel aspect of the Congress was that
multiple teams, chaired by Scientific Planning Committee members,
used evidence-based literature reviews and expert discussions to
answer specific pre-defined APS-related questions. These teams
included points of view from experts in rheumatology, hematology,
cardiovascular medicine, obstetrics, neurology, and immunology. The
Scientific Planning Committee members also chaired the congress
sessions and supervised completion of the reports that are the
bases of the chapters of this book. In addition, there are two
chapters included specifically written for APS patients. Much like
the previous volume, dedicated to the 13th International Congress
on Antiphospholipid Antibodies (April 2010), this up-to-date and
comprehensive work gathers invaluable insights from a
multidisciplinary team of world-renowned experts and represents the
authoritative resource on causes, symptoms, diagnosis, and
treatment of APS.
This new edition is a comprehensive and updated resource on
antiphospholipid syndrome (APS), which is an autoimmune disorder.
In APS, the body recognizes certain normal components of blood
and/or cell membranes as foreign substances and produces antibodies
(antiphospholipid antibodies) against them. APS is associated with
recurrent clotting events (thrombosis) including premature stroke,
repeated miscarriages, phlebitis, venous thrombosis, and pulmonary
thromboembolism. It is also associated with low platelet or blood
elements that prevent bleeding. Recently, however, even more
disease states have been linked with APS, including premature heart
attack, various cardiac valvular abnormalities, skin lesions,
kidney disease, abnormal involuntary movement/chorea, diseases that
mimic multiple sclerosis, and vascular diseases of the eye that can
lead to visual loss and blindness. The International Congress on
Antiphospholipid Antibodies, held every 3 years, is the venue where
representatives from different disciplines gather to discuss the
recent advances in APS. The conference intends to cover basic
aspects of APS, such as pathogenesis, origins, genetics,
intracellular and molecular events, the role of infections, as well
as traditional and non-traditional clinical manifestations
associated with antiphospholipid antibodies. The 15th Congress took
place in September 2016. A novel aspect of the Congress was that
multiple teams, chaired by Scientific Planning Committee members,
used evidence-based literature reviews and expert discussions to
answer specific pre-defined APS-related questions. These teams
included points of view from experts in rheumatology, hematology,
cardiovascular medicine, obstetrics, neurology, and immunology. The
Scientific Planning Committee members also chaired the congress
sessions and supervised completion of the reports that are the
bases of the chapters of this book. In addition, there are two
chapters included specifically written for APS patients. Much like
the previous volume, dedicated to the 13th International Congress
on Antiphospholipid Antibodies (April 2010), this up-to-date and
comprehensive work gathers invaluable insights from a
multidisciplinary team of world-renowned experts and represents the
authoritative resource on causes, symptoms, diagnosis, and
treatment of APS.
Doctors, patients, investigators, administrators, and policymakers
who assign diagnoses assume three elements: the name describes an
entity with conceptual or evidentiary boundaries, the person
setting the name has a high degree of certainty, and the name has a
consensus definition. This book challenges this practice and offers
an alternative to assigning diagnoses: quantitating diagnostic
uncertainty in personal and public medical plans. This book offers
the stakeholders' views participating in a workshop, sponsored by
the Barbara Volcker Center/Hospital for Special Surgery, taking
place in April 2020, about uncertain diagnoses. Chapters examine
the circumstances in which diagnosis names are "unassignable",
either because patients do not fit within diagnostic "boxes" or
because health abnormalities evolve and change over time. In
addition, the book deconstructs the processes of diagnosis and
explores how different stakeholders used diagnosis names for
various purposes. In examining pertinent questions, the book offers
a roadmap to achieving consensus definitions or including measures
of uncertainty in personal care, research, and policy. Diagnoses
Without Names: Challenges for Medical Care, Research, and Policy is
an essential resource for physicians and related professionals,
residents, fellows, and graduate students in internal medicine,
rheumatology, and clinical immunology as well as investigators,
administrators, policymakers.
15 years ago the noted physician, Dr. Michael Lockshin, Professor
of Medicine and Gynecology at Weill Cornell Medical School and
Director of the Barbara Volker Center at the Hospital for Special
Surgery wrote Guarded Prognosis, a book about the health care
system from the point of view of a physician with broad experience
in treating chronic disease. Michael Lockshin is one of America's
preeminent experts in the long-term care of chronically ill
patients. He is a pioneer in solving health-care issues that arise
with the illnesses on which he has done his most renowned
research-systemic lupus erythematosus, Antiphospholipid syndrome,
and other autoimmune diseases which especially afflict women.
Guarded Prognosis has been re-issued as an eBook. 15 years after
its first publication, the reader will be struck by how far the we
have come-in terms of electronic records and the new hospitalist
system-but also by how little has changed for patients with chronic
illness navigating the U.S. healthcare system. Guarded Prognosis is
newly relevant in the light of the acrimonious debate over
"Obamacare" whose passage Dr. Lockshin heartily endorses as a route
to the universal health coverage so desperately needed by those
with chronic illness. These affecting stories of chronically ill
patients and the policy lessons learned from their experience make
clear how important it is to change our inefficient, costly, and
often inhumane healthcare system. Otherwise, each of us could be at
risk not only from disease, but from fragmented and costly
healthcare.
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