The Matter of Disability returns disability to its proper place as an ongoing historical process of corporeal, cognitive, and sensory mutation operating in a world of dynamic, even cataclysmic, change. The book's contributors offer new theorizations of human and nonhuman embodiments and their complex evolutions in our global present, in essays that explore how disability might be imagined as participant in the "complex elaboration of difference," rather than something gone awry in an otherwise stable process. This alternative approach to materiality sheds new light on the capacities that exist within the depictions of disability that the book examines, including Spider-Man, Of Mice and Men, and Bloodchild.

Spinal cord injury, or SCI, is frequently sudden and unexpected--through accident, disease, or violence, patients temporarily lose control of their bodies and, it seems, their lives. With rehabilitation, they can learn to navigate their world once more, retraining muscles and mind to compensate for paralyzed limbs and diminished strength. But as Dr. Michelle Alpert shows here, there is far more to recapturing full, independent lives than regaining movement. Central to long-term success is mending the family unit.

Combining Dr. Alpert's clinical experience with patients' own stories, "Spinal Cord Injury and the Family" is for individuals and their families who must climb back from injury: for the young quad couple, both quadriplegic, who wish to conceive and raise a child; for the paraplegic dad who wants to teach his daughter to drive; for the couple wondering how they can regain the sexual spark in their relationship.

The authors cover the causes of and prognosis for SCI through case studies, review common courses of rehabilitation, and answer the "what now?" questions--from daily routines to larger issues concerning sex, education and employment, childbearing, and parenting with SCI. Rich in clinical information and practical advice, the book shows how real patients and their families are living full lives after spinal cord injury.

The senses are used within New Testament texts as instruments of knowledge and power and thus constitute important mediators of cultural knowledge and experience. Likewise, those instances where sensory faculty is perceived to be 'disabled' in some way also become key sites for ideological commentary and critique. However, often biblical scholarship, itself 'disabled' by eye-centric and textocentric 'norms', has read sensory-disabled characters as nothing more than inert sites of healing; their agency, including their alternative sensory modes of communication and resistance to oppression, remain largely unaddressed. In response, Louise J. Lawrence seeks to initiate a variety of interdisciplinary dialogues with disability studies and sensory anthropology in a quest to refigure characters with sensory disabilities featured in the gospels and provide alternative interpretations of their conditions and social interactions. In each instance the identity of those stigmatised as 'other' (according to particular physiological, social and cultural 'norms') are recovered by exploring ethnographic accounts which document the stories of those experiencing similar rejection on account of perceived sensory 'difference' in diverse cross-cultural settings. Through this process these 'disabled' characters are recast as individuals capable of employing certain strategies which destabilize the stigma imposed upon them and tactical performers who can subversively achieve their social goals.

Since first being identified as a distinct psychiatric disorder in 1943, autism has been steeped in contestation and controversy. Present-day skirmishes over the potential causes of autism, how or even if it should be treated, and the place of Asperger's syndrome on the autism spectrum are the subjects of intense debate in the research community, in the media, and among those with autism and their families. Bringing together innovative work on autism by international scholars in the social sciences and humanities, Worlds of Autism boldly challenges the deficit narrative prevalent in both popular and scientific accounts of autism spectrum disorders, instead situating autism within an abilities framework that respects the complex personhood of individuals with autism. A major contribution to the emerging, interdisciplinary field of critical autism studies, this book is methodologically and conceptually broad. Its authors explore the philosophical questions raised by autism, such as how it complicates neurotypical understandings of personhood; grapple with the politics that inform autism research, treatment, and care; investigate the diagnosis of autism and the recognition of difference; and assess representations of autism and stories told by and about those with autism.From empathy, social circles, and Internet communities to biopolitics, genetics, and diagnoses, Worlds of Autism features a range of perspectives on autistic subjectivities and the politics of cognitive difference, confronting society's assumptions about those with autism and the characterization of autism as a disability. Contributors: Dana Lee Baker, Washington State U; Beatrice Bonniau, Paris Descartes U; Charlotte Brownlow, U of Southern Queensland, Australia; Kristin Bumiller, Amherst College; Brigitte Chamak, Paris Descartes U; Kristina Chew, Saint Peter's U, New Jersey; Patrick McDonagh, Concordia U, Montreal; Stuart Murray, U of Leeds; Majia Holmer Nadesan, Arizona State U; Christina Nicolaidis, Portland State U; Lindsay O'Dell, Open U, London; Francisco Ortega, State U of Rio de Janeiro; Mark Osteen, Loyola U, Maryland; Dawn Eddings Prince; Dora Raymaker; Sara Ryan, U of Oxford; Lila Walsh.

In Authoring Autism M. Remi Yergeau defines neurodivergence as an identity-neuroqueerness-rather than an impairment. Using a queer theory framework, Yergeau notes the stereotypes that deny autistic people their humanity and the chance to define themselves while also challenging cognitive studies scholarship and its reification of the neurological passivity of autistics. They also critique early intensive behavioral interventions-which have much in common with gay conversion therapy-and questions the ableist privileging of intentionality and diplomacy in rhetorical traditions. Using storying as their method, they present an alternative view of autistic rhetoricity by foregrounding the cunning rhetorical abilities of autistics and by framing autism as a narrative condition wherein autistics are the best-equipped people to define their experience. Contending that autism represents a queer way of being that simultaneously embraces and rejects the rhetorical, Yergeau shows how autistic people queer the lines of rhetoric, humanity, and agency. In so doing, they demonstrate how an autistic rhetoric requires the reconceptualization of rhetoric's very essence.

In Bodyminds Reimagined Sami Schalk traces how black women's speculative fiction complicates the understanding of bodyminds-the intertwinement of the mental and the physical-in the context of race, gender, and (dis)ability. Bridging black feminist theory with disability studies, Schalk demonstrates that this genre's political potential lies in the authors' creation of bodyminds that transcend reality's limitations. She reads (dis)ability in neo-slave narratives by Octavia Butler (Kindred) and Phyllis Alesia Perry (Stigmata) not only as representing the literal injuries suffered under slavery, but also as a metaphor for the legacy of racial violence. The fantasy worlds in works by N. K. Jemisin, Shawntelle Madison, and Nalo Hopkinson-where werewolves have obsessive-compulsive-disorder and blind demons can see magic-destabilize social categories and definitions of the human, calling into question the very nature of identity. In these texts, as well as in Butler's Parable series, able-mindedness and able-bodiedness are socially constructed and upheld through racial and gendered norms. Outlining (dis)ability's centrality to speculative fiction, Schalk shows how these works open new social possibilities while changing conceptualizations of identity and oppression through nonrealist contexts.

In Authoring Autism M. Remi Yergeau defines neurodivergence as an identity-neuroqueerness-rather than an impairment. Using a queer theory framework, Yergeau notes the stereotypes that deny autistic people their humanity and the chance to define themselves while also challenging cognitive studies scholarship and its reification of the neurological passivity of autistics. They also critique early intensive behavioral interventions-which have much in common with gay conversion therapy-and questions the ableist privileging of intentionality and diplomacy in rhetorical traditions. Using storying as their method, they present an alternative view of autistic rhetoricity by foregrounding the cunning rhetorical abilities of autistics and by framing autism as a narrative condition wherein autistics are the best-equipped people to define their experience. Contending that autism represents a queer way of being that simultaneously embraces and rejects the rhetorical, Yergeau shows how autistic people queer the lines of rhetoric, humanity, and agency. In so doing, they demonstrate how an autistic rhetoric requires the reconceptualization of rhetoric's very essence.

This book presents interdisciplinary scholarship on art and visual culture that explores disability in terms of lived experience. It will expand critical disability studies scholarship on representation and embodiment, which is theoretically rich, but lacking in attention to art. It is organized in five thematic parts: methodologies of access, agency, and ethics in cultural institutions; the politics and ethics of collaboration; embodied representations of artists with disabilities in the visual and performing arts; negotiating the outsider art label; and first-person reflections on disability and artmaking. This volume will be of interest to scholars who study disability studies, art history, art education, gender studies, museum studies, and visual culture.

For almost sixty years, media technologies have promised users the ability to create sonic safe spaces for themselves-from bedside white noise machines to Beats by Dre's "Hear What You Want" ad campaign, in which Colin Kaepernick's headphones protect him from taunting crowds. In Hush, Mack Hagood draws evidence from noise-canceling headphones, tinnitus maskers, LPs that play ocean sounds, nature-sound mobile apps, and in-ear smart technologies to argue the true purpose of media is not information transmission, but rather the control of how we engage our environment. These devices, which Hagood calls orphic media, give users the freedom to remain unaffected in the changeable and distracting spaces of contemporary capitalism and reveal how racial, gendered, ableist, and class ideologies shape our desire to block unwanted sounds. In a noisy world of haters, trolls, and information overload, guarded listening can be a necessity for self-care, but Hagood argues our efforts to shield ourselves can also decrease our tolerance for sonic and social difference. Challenging our self-defeating attempts to be free of one another, he rethinks media theory, sound studies, and the very definition of media.

Although disability imagery is ubiquitous in the Hebrew Bible, characters with disabilities are not. The presence of the former does not guarantee the presence of the later. While interpreters explain away disabilities in specific characters, they celebrate the rhetorical contributions that disability imagery makes to the literary artistry of biblical prose and poetry, often as a trope to describe the suffering or struggles of a presumably nondisabled person or community. This situation contributes to the appearance (or illusion) of a Hebrew Bible that uses disability as a rich literary trope while disavowing the presence of figures or characters with disabilities.
Isaiah 53 provides a wonderful example of this dynamic at work. The "Suffering Servant" figure in Isaiah 53 has captured the imagination of readers since very early in the history of biblical interpretation. Most interpreters understand the servant as an otherwise able bodied person who suffers. By contrast, Jeremy Schipper's study shows that Isaiah 53 describes the servant with language and imagery typically associated with disability in the Hebrew Bible and other ancient Near Eastern literature. Informed by recent work in disability studies from across the humanities, it traces both the disappearance of the servant's disability from the interpretative history of Isaiah 53 and the scholarly creation of the able bodied suffering servant.

Takes the recent wave of German autobiographical writing on illness and disability seriously as literature, demonstrating the value of a literary disability studies approach. In the German-speaking world there has been a new wave - intensifying since 2007 - of autobiographically inspired writing on illness and disability, death and dying. Nina Schmidt's book takes this writing seriously as literature,examining how the authors of such personal narratives come to write of their experiences between the poles of cliche and exceptionality. Identifying shortcomings in the approaches taken thus far to such texts, she makes suggestions as to how to better read their narratives from the stance of literary scholarship, then demonstrates the value of a literary disability studies approach to such writing with close readings of Charlotte Roche's Schossgebete(2011), Kathrin Schmidt's Du stirbst nicht (2009), Verena Stefan's Fremdschlafer (2007), and - in the final, comparative chapter - Christoph Schlingensief's So schoen wie hier kanns im Himmel gar nicht sein! Tagebuch einer Krebserkrankung (2009) and Wolfgang Herrndorf's blog-cum-book Arbeit und Struktur (2010-13). Schmidt shows that authors dealing with illness and disability do so with an awareness of their precarious subject position in the public eye, a position they negotiate creatively. Writing the liminal experience of serious illness along the borders of genre, moving between fictional and autobiographical modes, they carve out spaces from which they speak up and share their personal stories in the realm of literature, to political ends. Nina Schmidt is a postdoctoral researcher in the Friedrich Schlegel Graduate School of Literary Studies at the Freie Universitat Berlin.

"Mother father deaf" is the phrase commonly used within the Deaf community to refer to hearing children of deaf parents. These children grow up between two cultures, the Hearing and the Deaf, forever balancing the worlds of sound and silence. Paul Preston, one of these children, takes us to the place where Deaf and Hearing cultures meet, where families like his own embody the conflicts and resolutions of two often opposing world views. Based on 150 interviews with adult hearing children of deaf parents throughout the United States, Mother Father Deaf examines the process of assimilation and cultural affiliation among a population whose lives incorporate the paradox of being culturally "Deaf" yet functionally hearing. It is rich in anecdote and analysis, remarkable for its insights into a family life normally closed to outsiders.

In Brilliant Imperfection Eli Clare uses memoir, history, and critical analysis to explore cure-the deeply held belief that body-minds considered broken need to be fixed. Cure serves many purposes. It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds. The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure. Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.

A mother whose child has had a cochlear implant tells Laura Mauldin why enrollment in the sign language program at her daughter's school is plummeting: "The majority of parents want their kids to talk." Some parents, however, feel very differently, because "curing" deafness with cochlear implants is uncertain, difficult, and freighted with judgment about what is normal, acceptable, and right. Made to Hear sensitively and thoroughly considers the structure and culture of the systems we have built to make deaf children hear. Based on accounts of and interviews with families who adopt the cochlear implant for their deaf children, this book describes the experiences of mothers as they navigate the health care system, their interactions with the professionals who work with them, and the influence of neuroscience on the process. Though Mauldin explains the politics surrounding the issue, her focus is not on the controversy of whether to have a cochlear implant but on the long-term, multiyear undertaking of implantation. Her study provides a nuanced view of a social context in which science, technology, and medicine are trusted to vanquish disability-and in which mothers are expected to use these tools. Made to Hear reveals that implantation has the central goal of controlling the development of the deaf child's brain by boosting synapses for spoken language and inhibiting those for sign language, placing the politics of neuroscience front and center. Examining the consequences of cochlear implant technology for professionals and parents of deaf children, Made to Hear shows how certain neuroscientific claims about neuroplasticity, deafness, and language are deployed to encourage compliance with medical technology.

Reach for the Racquet is the story of a young Sikh man, Meva Dhesi, who overcomes adversity following a horrific car accident and ultimately achieves his dreams of becoming a competitive badminton and Para badminton player. With the help of his amputee and badminton friends, Sikh religion, close family, and surrounding community, Meva found he could recover, rehabilitate, get fit, compete, and most important of all, succeed. His story is brought to life in witty, humorous prose. It will inspire anyone who is facing challenges and struggles to overcome and reach their goals. The sky's the limit!

Do you have a finish line in your life? A goal that you want to achieve―a dream that you want to live―but you know the road to get there will be long and hard? There are obstacles in your way and you fear that you might fail, and failure intimidates us all, but you still dream of that moment―your finish line moment. How do you get there? FINISH LINE VISION® is the motivation that comes from visualizing your success, imagining yourself experiencing that moment.

Jay Hewitt will take you on a journey, telling you his remarkable story of overcoming type 1 diabetes to qualify and race on the US national triathlon team, balancing grueling physical training with work as an attorney, diabetes, and life as a husband and father.
He provides research on the neuropsychology of achievement with examples of high achievers in history. You will learn lessons on:

•setting and reaching goals

•overcoming obstacles and doubt

•achieving work-life balance

•fitness and diet for a healthy lifestyle

•handling change and failure

Many people have already been inspired by Jay Hewitt’s powerful message on stage. If you apply these principles, learn from these successes and failures, work hard, and persevere . . . you will reach your finish line.

Never before have the civil rights of people with disabilities aligned so well with developments in information and communication technology. The center of the technology revolution is the Internet, which fosters unprecedented opportunities for engagement in democratic society. The Americans with Disabilities Act likewise is helping to ensure equal participation in society by people with disabilities. Globally, the Convention on the Rights of Persons with Disabilities further affirms that persons with disabilities are entitled to the full and equal enjoyment of fundamental personal freedoms. This book is about the lived struggle for disability rights, with a focus on Web equality for people with cognitive disabilities, such as intellectual disabilities, autism, and print-related disabilities. The principles derived from the right to the Web - freedom of speech and individual dignity - are bound to lead toward full and meaningful involvement in society for persons with cognitive and other disabilities.

The UN Convention on the Rights of Persons with Disabilities promotes ability equality, but this is not experienced in national laws. Australia, Canada, Ireland, the UK and the US all have one thing in common: regulatory frameworks which treat workers with psychosocial disabilities less favorably than workers with either physical or sensory disabilities. Ableism at Work is a comprehensive and comparative legal, practical and theoretical analysis of workplace inequalities experienced by workers with psychosocial disabilities. Whether it be denying anti-discrimination protection to people with episodic disabilities, addictions or other psychological impairments, failing to make reasonable accommodations/adjustments for workers with psychosocial disabilities, or denying them workers' compensation or occupational health and safety protections, regulatory interventions imbed inequalities. Ableism, sanism and prejudice are expressly stated in laws, reflected in judgments, and perpetuated by workplace practices and this book enables advocates, policy makers and lawmakers to understand the wider context in which systems discriminate workers with psychosocial disabilities.

"Offering insight into the compelling history of people with disabilities, this is one of the earliest accounts written by someone with an actual disability rather than by an observer or educator."
"--Library Journal"

"A brief but fascinating glimpse into the role of women, religion, disability and notions of the self in early 19th-century France."
--"Publishers Weekly"

"Both Husson's autobiographical writing and Kudlick's and Weygand's short social history of the blight of the blind in nineteenth-century France will interest anyone whose work or intellectual interests lie in the field of modern disability studies."
-- "H-Net Reviews"

In the 1820s, several years before Braille was invented, Therese-Adele Husson, a young blind woman from provincial France, wrote an audacious manifesto about her life, French society, and her hopes for the future. Through extensive research and scholarly detective work, authors Catherine Kudlick and Zina Weygand have rescued this intriguing woman and the remarkable story of her life and tragic death from obscurity, giving readers a rare look into a world recorded by an unlikely historical figure.

Reflections is one of the earliest recorded manifestations of group solidarity among people with the same disability, advocating self-sufficiency and independence on the part of blind people, encouraging education for all blind children, and exploring gender roles for both men and women. Resolutely defying the sense of "otherness" which pervades discourse about the disabled, Husson instead convinces us that that blindness offers a fresh and important perspective on both history and ourselves.

In rescuing this important historical accountand recreating the life of an obscure but potent figure, Weygand and Kudlick have awakened a perspective that transcends time and which, ultimately, remaps our inherent ideas of physical sensibility

Outlining the key developments of the Disability Hate Crime policy agenda, Seamus Taylor brings together a unique consideration of the theoretical and practical questions at its heart. This book analyses the contributions of activists, politicians, policymakers and criminal justice system practitioners to policy development, and critiques both the under-recognition of disability prejudice fuelled by ableism and the challenge of vulnerability in addressing disability hostility. Concluding that a critically reflective approach on the part of policymakers and practitioners can lead to progress, the author gives clear policy recommendations to address current challenges in the criminal justice system.

An authoritative and indispensable guide to disability and media, this thoughtfully curated collection features varied and provocative contributions from distinguished scholars globally, alongside next-generation research leaders. Disability and media has emerged as a dynamic and exciting area of contemporary culture and social life. Media-- especially digital technology--play a vital role in disability transformations, with widespread implications for global societies and how we understand communications. This book addresses this development, from representation and audience through technologies, innovations and challenges of the field. Through the varied and global perspectives of leading researchers, writers, and practitioners, including many authors with lived experience of disability, it covers a wide range of traditional, emergent and future media forms and formats. International in scope and orientation, The Routledge Companion to Disability and Media offers students and scholars alike a comprehensive survey of the intersections between disability studies and media studies This book is available as an accessible eBook. For more information, please visit https://taylorandfrancis.com/about/corporate-responsibility/accessibility-at-taylor-francis/.

The first book to be written on the Judge Rotenberg Center and their use of painful interventions to control the behavior of children and adults with disabilities. For more than forty years, professionals in the field of disability studies have engaged in debates over the use of aversive interventions (such as electric shock) like the ones used at the Judge Rotenberg Center. Advocates and lawyers have filed complaints and lawsuits to both use them and ban them, scientists have written hundreds of articles for and against them, and people with disabilities have lost their lives and, some would say, lived their lives because of them. There are families who believe deeply in the need to use aversives to control their children's behavior. There are others who believe the techniques used are torture. All of these families have children who have been excluded from numerous educational and treatment programs because of their behaviors. For most of the families, placement at the Judge Rotenberg Center is the last resort. This book is a historical case study of the Judge Rotenberg Center, named after the judge who ruled in favor of keeping its doors open to use aversive interventions. It chronicles and analyzes the events and people involved for over forty years that contributed to the inability of the state of Massachusetts to stop the use of electric shock, and other severe forms of punishment on children and adults with disabilities. It is a long story, sad and tragic, complex, filled with intrigue and questions about society and its ability to protect and support its most vulnerable citizens.

Never before have the civil rights of people with disabilities aligned so well with developments in information and communication technology. The center of the technology revolution is the Internet, which fosters unprecedented opportunities for engagement in democratic society. The Americans with Disabilities Act likewise is helping to ensure equal participation in society by people with disabilities. Globally, the Convention on the Rights of Persons with Disabilities further affirms that persons with disabilities are entitled to the full and equal enjoyment of fundamental personal freedoms. This book is about the lived struggle for disability rights, with a focus on Web equality for people with cognitive disabilities, such as intellectual disabilities, autism, and print-related disabilities. The principles derived from the right to the Web - freedom of speech and individual dignity - are bound to lead toward full and meaningful involvement in society for persons with cognitive and other disabilities.

This book provides an international comparative study of the implementation of disability rights law and policy focused on the emerging principles of self-determination and personalisation. It explores how these principles have been enshrined in the United Nations Convention on the Rights of Persons with Disabilities and how different jurisdictions have implemented them to enable meaningful engagement and participation by persons with disabilities in society. The philosophy of 'active citizenship' underpinning the Convention - that all citizens should (be able to) actively participate in the community - provides the core focal point of this book, which grounds its analysis in exploring how this goal has been imagined and implemented across a range of countries. The case studies examine how different jurisdictions have reformed disability law and policy and reconfigured how support is administered and funded to ensure maximum choice and independence is accorded to people with disabilities.

Long before the English became involved in the African slave trade, they imagined Africans as monstrous and deformed beings. The English drew on pre-existing European ideas about monstrosity and deformity to argue that Africans were a monstrous race, suspended between human and animal, and as such only fit for servitude. Joining blackness to disability transformed English ideas about defective bodies and minds. It also influenced understandings of race and ability even as it shaped the embodied reality of people enslaved in the British Caribbean. Stefanie Hunt-Kennedy provides a three-pronged analysis of disability in the context of Atlantic slavery. First, she examines the connections of enslavement and representations of disability and the parallel development of English anti-black racism. From there, she moves from realms of representation to reality in order to illuminate the physical, emotional, and psychological impairments inflicted by slavery and endured by the enslaved. Finally, she looks at slave law as a system of enforced disablement. Audacious and powerful, Between Fitness and Death is a groundbreaking journey into the entwined histories of racism and ableism.