Approaching disability as a cultural construction rather than a medical pathology, this book studies the impact of disability and concepts of disability on composers, performers, and listeners with disabilities, as well as on discourse about music and works of music themselves. For composers with disabilities--like Beethoven, Delius, and Schumann--awareness of the disability sharply inflects critical reception. For performers with disabilities--such as Itzhak Perlman and Evelyn Glennie--the performance of disability and the performance of music are deeply intertwined. For listeners with disabilities, extraordinary bodies and minds may give rise to new ways of making sense of music. In the stories that people tell about music, and in the stories that music itself tells, disability has long played a central but unrecognized role. Some of these stories are narratives of overcoming-the triumph of the human spirit over adversity-but others are more nuanced tales of accommodation and acceptance of life with a non-normative body or mind. In all of these ways, music both reflects and constructs disability.

From the National Book Award-winning author of The Noonday Demon: An Atlas of Depression comes a monumental new work, a decade in the writing, about family. In Far from the Tree, Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. Solomons startling proposition is that diversity is what unites us all. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, as are the triumphs of love Solomon documents in every chapter. All parenting turns on a crucial question: to what extent parents should accept their children for who they are, and to what extent they should help them become their best selves. Drawing on forty thousand pages of interview transcripts with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges. Whether considering prenatal screening for genetic disorders, cochlear implants for the deaf, or gender reassignment surgery for transgender people, Solomon narrates a universal struggle toward compassion. Many families grow closer through caring for a challenging child; most discover supportive communities of others similarly affected; some are inspired to become advocates and activists, celebrating the very conditions they once feared. Woven into their courageous and affirming stories is Solomons journey to accepting his own identity, which culminated in his midlife decision, influenced by this research, to become a parent. Elegantly reported by a spectacularly original thinker, Far from the Tree explores themes of generosity, acceptance, and tolerance--all rooted in the insight that love can

Friendship requires hard work even for the most able, and the odds are heavily stacked against those with an autism spectrum disorder. Designed for younger children, aged between 2 and 8, this set of activities emphasises foundation skills such as social referencing, regulating behaviour, coversational reciprocity and synchronized actions.;This volume is also available as a set with "Relationship Development Intervention with Children, Adolescents and Adults" (ISBN 1-84310-720-1).

An authoritative and indispensable guide to disability and media, this thoughtfully curated collection features varied and provocative contributions from distinguished scholars globally, alongside next-generation research leaders. Disability and media has emerged as a dynamic and exciting area of contemporary culture and social life. Media-- especially digital technology--play a vital role in disability transformations, with widespread implications for global societies and how we understand communications. This book addresses this development, from representation and audience through technologies, innovations and challenges of the field. Through the varied and global perspectives of leading researchers, writers, and practitioners, including many authors with lived experience of disability, it covers a wide range of traditional, emergent and future media forms and formats. International in scope and orientation, The Routledge Companion to Disability and Media offers students and scholars alike a comprehensive survey of the intersections between disability studies and media studies This book is available as an accessible eBook. For more information, please visit https://taylorandfrancis.com/about/corporate-responsibility/accessibility-at-taylor-francis/.

Statistics show that one out of every five Americans suffer from a disability. Whether the disability be mental or physical, proper care is required for one's own health and financial needs. Since finding the proper care affects many Americans, financial advisors and policymakers strive to find a system that financially supports Americans with disabilities. This includes research on how to find accommodating long term financial services, how to investigate and manage marketing demands and how to work with external advisors and policy makers. This book explores the many different possibilities of financial reform and services for those with disabilities nation-wide.

What does it mean to live with life-threatening illness? How does one respond to loss? Freud's Jaw and Other Lost Objects attempts to answer these questions and, as such, illuminates the vulnerabilities of the human body and how human beings suffer harm. In particular, it examines how cancer disrupts feelings of bodily integrity and agency. Employing psychoanalytic theory and literary analysis, Lana Lin tracks three exemplary figures, psychoanalyst Sigmund Freud, poet Audre Lorde, and literary and queer theorist Eve Kosofsky Sedgwick. Freud's sixteen-year ordeal with a prosthetic jaw, the result of oral cancer, demonstrates the powers and failures of prosthetic objects in warding off physical and psychic fragmentation. Lorde's life writing reveals how losing a breast to cancer is experienced as yet another attack directed toward her racially and sexually vilified body. Sedgwick's memoir and breast cancer advice column negotiate her morbidity by disseminating a public discourse of love and pedagogy. Lin concludes with an analysis of reparative efforts at the rival Freud Museums in London and Vienna. The disassembled Freudian archive, like the subjectivities-in-dissolution upon which the book focuses, shows how the labor of integration is tethered to persistent discontinuities. Freud's Jaw asks what are the psychic effects of surviving in proximity to one's mortality, and it suggests that violences stemming from social, cultural, and biological environments condition the burden of such injury. Drawing on psychoanalyst Melanie Klein's concept of "reparation," wherein constructive forces are harnessed to repair damage to internal psychic objects, Lin proposes that the prospect of imminent destruction paradoxically incites creativity. The afflicted are obliged to devise means to reinstate, at least temporarily, their destabilized physical and psychic unity through creative, reparative projects of love and writing.

A free open access ebook is available upon publication. Learn more at www.luminosoa.org. The Camphill movement, one of the world's largest and most enduring networks of intentional communities, deserves both recognition and study. Founded in Scotland at the beginning of the Second World War, Camphill communities still thrive today, encompassing thousands of people living in more than one hundred twenty schools, villages, and urban neighborhoods on four continents. Camphillers of all abilities share daily work, family life, and festive celebrations with one another and their neighbors. Unlike movements that reject mainstream society, Camphill expressly seeks to be "a seed of social renewal" by evolving along with society to promote the full inclusion and empowerment of persons with disabilities, who comprise nearly half of their residents. In this multifaceted exploration of Camphill, Dan McKanan traces the complexities of the movement's history, envisions its possible future, and invites ongoing dialogue between the fields of disability studies and communal studies.

Tomas Young's War is the tragic yet life affirming story of a paralyzed Iraq War veteran who spent his last ten years battling heroically with his injuries, while courageously speaking against America's wars. Based on hours of interviews with Young and those close to him, the book puts the reader alongside Young as he struggles with life as a paralyzed veteran, suffering frustration and humiliation as he attempts to reenter society and resume as normal an existence as possible. It shows his fight to balance his precarious health with his drive to speak out for veterans care and against the war, and the impact his catastrophic injuries had on his family and his relationships. This emotional and powerful book sheds light on many crucial but often overlooked issues such as veterans' care, public attitudes toward the disabled, medical marijuana, and the terminally ill. Tomas Young's War shares everything, as unflinchingly honest as Tomas himself: the depression, the pain, the love, and laughter . . . the life of this man whose world was turned upside down by an Iraqi bullet more than ten years ago. Throughout, it serves as a powerful testament to the true cost of war.

The modern concept of disability did not exist in the Romantic period. This study addresses the anachronistic use of 'disability' in scholarship of the Romantic era, providing a disability studies theorized account that explores the relationship between ideas of function and aesthetics. Unpacking the politics of ability, the book reveals the centrality of capacity and weakness concepts to the egalitarian politics of the 1790s, and the importance of desert theory to debates about sentiment and the charitable relief of impaired soldiers. Clarifying the aesthetics of deformity as distinct from discussions of ability, Joshua uncovers a controversy over the use of deformity in picturesque aesthetics, offers accounts of deformity that anticipate recent disability studies theory, and discusses deformity and monstrosity as a blended category in Frankenstein. Setting aside the modern concept of disability, Joshua cogently argues for the historical and critical value of period-specific terms.

This book addresses the impact of genetic deafness/hearing impairment on people' s lives and those around them. It includes the perspectives of those who are deaf or hard of hearing as well as those working in the field. Professional topics include genetic counselling, social science, psychology, social work and - within medicine - audiological and ENT medical and audiological paediatrics. These practitioners are both hearing and hearing impaired.

The impact of deafness on children, those of working age and elderly people is discussed highlighting the specific effect of genetic factors. In particular there are chapters on deafblindness and otosclerosis and NF2 (a potentially lethal condition). The Who definitions and ICF are used as a framework for considering the effect on people' s lives of impairment and their participation in society.

This provides a bridge between the medical and social models of disability. Contributors write from both their professional and personal experience in order to try and address some of the issues raised by the real impact of genetic deafness on everyday life and how these can best be tackled by those working in the field.

Defining the role of a job coach, this book sets out EU-wide training standards for helping people with disabilities gain and maintain meaningful employment. The book includes the perspectives of both people with disabilities and their job coaches, offering first-hand experience of the specific issues faced by those who want to enter the competitive open jobs market. It describes how to provide bespoke support for people with an intellectual disability, physical disability, as well as for autistic people and individuals with mental health conditions. Guidance on functional assessment, task analysis, collaborating with employers and training for new and student job coaches is also included.

The Willowbrook Wars is a dramatic and illuminating account of the effort to close down a scandal-ridden institution and return its 5,400 handicapped residents to communities in New York. The wars began in 1972 with Geraldo Rivera's televised raid on the Willowbrook State School. They continued for three years in a federal courtroom, with civil libertarian lawyers persuading a conservative and conscience-stricken judge to expand the rights of the disabled, and they culminated in a 1975 consent decree, with the state of New York pledging to accomplish the unprecedented assignment in six years.

From 1975 to 1982, David and Sheila Rothman observed this remarkable chapter in American reform of mental disabilities care. Would the state live up to its agreement without "dumping" residents into other nightmarish institutions? Would the lawyers prove as interested in meeting client needs as in securing client rights? Could a tradition-bound bureaucracy create a new network of community services? And finally, would a governor and a legislature tolerate such outside intervention, and if so, for how long? In answering these questions,

The Willowbrook Wars takes us behind the scenes to clarify the role of the judiciary, the fate of the underprivileged, and the potential for social justice. In their new afterword, the authors bring the story up to date, describing the results of the closing of the institution in 1987 from the experiences of integrating the former residents into communities to the legal battles between the state of New York and advocates for the mentally handicapped.

Over the past two decades, there has been increasing recognition of the ways in which disabled children and adults have been denied human and civil rights that others take for granted. In the year 2000, the Human Rights Act 1998 came into force. This book reviews the implications of the Act for disabled people. The book provides: an overview of key policy and legislative developments in the UK in relation to disabled children and adults in the post war period; an outline of the European Convention on Human Rights, The Human Rights Act 1998 and related procedures; an account of the ways in which disabled people's human rights have increasingly become a matter of concern and the implications of the Human Rights Act in relation to specific issues; a debate about the ways in which public bodies and practitioners within them can engage positively with the provisions of the Human Rights Act to develop better practice. Disabled people and human rights will be of interest to both disabled people themselves and organisations representing their interests, professionals whose work brings them into contact with disabled people, and students of social work, social care, disability studies and law.

Many critical analyses of disability address important 'macro' concerns, but are often far removed from an interactional and micro-level focus. Written by leading scholars in the field, and containing a range of theoretical and empirical contributions from around the world, this book focuses on the taken-for-granted, mundane human activities at the heart of how social life is reproduced, and how this impacts on the lives of those with a disability, family members, and other allies. It departs from earlier accounts by making sense of how disability is lived, mobilised, and enacted in everyday lives. Although broad in focus and navigating diverse social contexts, chapters are united by a concern with foregrounding micro, mundane moments for making sense of powerful discourses, practices, affects, relations, and world-making for disabled people and their allies. Using different examples - including learning disabilities, cerebral palsy, dementia, polio, and Parkinson's disease - contributions move beyond a simplified narrow classification of disability which creates rigid categories of existence and denies bodily variation. Disability, Normalcy, and the Everyday should be considered essential reading for disability studies students and academics, as well as professionals involved in health and social care. With contributions located within new and familiar debates around embodiment, stigma, gender, identity, inequality, care, ethics, choice, materiality, youth, and representation, this book will be of interest to academics from different disciplinary backgrounds including sociology, anthropology, humanities, public health, allied health professions, science and technology studies, social work, and social policy.

Exploring contemporary theory and practice surrounding loss and bereavement for people with intellectual disabilities (ID), this book brings together international contributors with a range of academic, professional and personal experience. This authoritative edited book looks at diverse experiences of loss across this population whether it be loss due to transition, the loss or death of others, or facing their own impending death. The book begins by offering theoretical perspectives on loss and compassion, bereavement, disenfranchised grief, spirituality, and psychological support. It then addresses contemporary practice issues in health and social care contexts and explores loss for specific communities with ID including children, individuals with autism, those in forensic environments, and those at the end of life. Identifying inherent challenges that arise when supporting individuals with ID experiencing loss, and providing evidence and case studies to support best practice approaches, this book will be valuable reading for students, academics and professionals in the fields of disability, health and social care.

In this new edition, the editors and contributors update and expand on the educational framework that was introduced in the first edition for rethinking disability in public health study and practice and for attaining the competencies that should accompany this knowledge. The second edition highlights key areas of research that have emerged since the first edition was published. This edition includes new and updated chapters that have particular relevance for public health practice: Disability, Intersectionality, and Inequity: Life in the Margins Disability and Health Programs: Emerging Partners Children with Special Healthcare Needs Disasters and Disability: Rhetoric and Reality Inter-relationship of Health Insurance and Employment for People with Disabilities Public Health, Work, and Disability Actions to Prepare a Competent Workforce Public Health Perspectives on Disability: Science, Social Justice, Ethics, and Beyond, 2nd Edition, is an essential resource for public health educators and practitioners as well as students in graduate schools of public health throughout the United States.

The UN Convention on the Rights of Persons with Disabilities promotes ability equality, but this is not experienced in national laws. Australia, Canada, Ireland, the UK and the US all have one thing in common: regulatory frameworks which treat workers with psychosocial disabilities less favorably than workers with either physical or sensory disabilities. Ableism at Work is a comprehensive and comparative legal, practical and theoretical analysis of workplace inequalities experienced by workers with psychosocial disabilities. Whether it be denying anti-discrimination protection to people with episodic disabilities, addictions or other psychological impairments, failing to make reasonable accommodations/adjustments for workers with psychosocial disabilities, or denying them workers' compensation or occupational health and safety protections, regulatory interventions imbed inequalities. Ableism, sanism and prejudice are expressly stated in laws, reflected in judgments, and perpetuated by workplace practices and this book enables advocates, policy makers and lawmakers to understand the wider context in which systems discriminate workers with psychosocial disabilities.

Intellectual and Developmental Disabilities provides a unique contribution not currently available in the professional literature by addressing the experiences and perspectives of families living with or raising a child with a disability. Designed for family therapists, social workers, and other helping professionals, it provides empirically-based, practical information for working with families experiencing intellectual and developmental disabilities of a loved one. This book also provides important information for navigating the various professional systems of care with which these families interface: health care providers, early childhood intervention teams, educational systems, the legal system, and financial planners.

There is a growing concern about the social exclusion of a range of minority groups, including people with learning difficulties. Lifelong learning is seen as one of the central means of challenging the exclusion of this group, but also of enhancing their economic status. This book demonstrates that policy based on human capital premises has produced forms of lifelong learning which exacerbate the marginalisation of people with learning difficulties. The Learning Society and people with learning difficulties: reviews the range of policy fields which increasingly intervene in the lifelong learning arena; maps the agencies involved in service delivery and describes their (sometimes conflicting) ethos; provides in-depth accounts of the lived experiences of individuals with learning difficulties as they navigate lifelong learning options. Its exploration of the links between community care, education, training, employment, housing and benefits policies in the context of lifelong learning is unique. This book makes a significant contribution to debates about how people with learning difficulties may achieve social inclusion, and the part which lifelong learning may play in this. It is therefore invaluable reading for policy makers, practitioners and academics interested in these issues.

Championing the liberatory potential of silence to address the fraught disability politics of queerness In queer culture, silence has been equated with voicelessness, complicity, and even death. Queer Silence insists, however, that silence can be a generative and empowering mode of survival. Triangulating insights from queer studies, disability studies, and rhetorical studies, J. Logan Smilges explores what silence can mean for people whose bodyminds signify more powerfully than their words. Queer Silence begins by historicizing silence's negative reputation, beginning with the ways homophile activists rejected medical models pathologizing homosexuality as a disability, resulting in the silencing of disability itself. This silencing was redoubled by HIV/AIDS activism's demand for "out, loud, and proud" rhetorical activities that saw silence as capitulation. Reading a range of cultural artifacts whose relative silence has failed to attract queer attachment, from anonymous profiles on Grindr to ex-gays to belated gender transitions to disability performance art, Smilges argues for silence's critical role in serving the needs of queers who are never named as such. Queer Silence urges queer activists and queer studies scholars to reconcile with their own ableism by acknowledging the liberatory potential of silence, a mode of engagement that disattached queers use every day for resistance, sociality, and survival. Cover alt text: Background detail of a painting on canvas shows a partial view of the upper body and face of a figure, bearded and naked; title in painted script.

Disability studies has become a legitimate area of academic study. It is multi-disciplinary in its critique of the oppressions that have historically "dumped" disabled people on the margins of society. This fully revised and updated edition not only explains disability studies as an academic field of inquiry, it also explores many of the current issues affecting the lives and circumstances of disabled people.
The book explores and analyzes "quality of life" factors in the lives of disabled people in relation to the professional development of undergraduates and examines the emergence of "rights" for disabled people in the local area, the UK and abroad. The author indicates the strengths and weaknesses of organizations "of" and "for" disabled people, and provides examples of individual and institutional oppressions against disabled people and "success stories," exploring how these have been overcome in education and employment. The book suggests how disabled and non-disabled people can collaborate in the development of inclusive communities and neighborhoods.
The text is suitable for students taking courses in the areas of health, social care and allied services at NVQ, BTEC, Degree and PGCE level. The author encourages students to raise their own questions and develop their own forms of inquiry.

Sensory-being: the enveloping of natural presentness and awareness in an unfolding sensory moment. Sensory Beings: people whose experience of the world, and meaning within it, is primarily sensory. Often these are people who do not have access to language. If you support someone who understands the world in a primarily sensory way, for example someone with PMLD or later stage dementia, you will recognise that they often face periods of time in which they are left without an activity they can access. This unique, practical guide helps you to plan and deliver sensory activities that lead people into a calm, focused state. You are even invited to let the person you support lead you into a state of sensory focus. Written by a leading sensory specialist this book will help you to: View the world as the person you support may view it, and identify times when a sensory-being activity may be appropriate. Understand how to select and create the most engaging, low cost, sensory foci to suit the specific needs of the individuals in your care. Effectively facilitate sensory-being sessions from start to finish so that the people you care for receive the full and many benefits of calm, focused time. Tried and tested in a diverse range of settings prior to publication, these techniques and practical tools have already helped many people provide an enriched experience of life for those in their care. Throughout the book you will find numerous case studies and insights from parents, carers, special school practitioners, therapists, research institutions and more so that you can benefit from this broad body of experience.

Children of Parents with Mental Illness is a groundbreaking study into the frequently overlooked impact on children whose parents have a mental illness. By balancing theory with first-hand experiences from parents and adult children, it examines the nature of a wide range of psychological disorders.Through case studies, it analyses a parent's ability to still function in the role of caregiver, and the impact their illness can have on their children.

A mother whose child has had a cochlear implant tells Laura Mauldin why enrollment in the sign language program at her daughter's school is plummeting: "The majority of parents want their kids to talk." Some parents, however, feel very differently, because "curing" deafness with cochlear implants is uncertain, difficult, and freighted with judgment about what is normal, acceptable, and right. Made to Hear sensitively and thoroughly considers the structure and culture of the systems we have built to make deaf children hear. Based on accounts of and interviews with families who adopt the cochlear implant for their deaf children, this book describes the experiences of mothers as they navigate the health care system, their interactions with the professionals who work with them, and the influence of neuroscience on the process. Though Mauldin explains the politics surrounding the issue, her focus is not on the controversy of whether to have a cochlear implant but on the long-term, multiyear undertaking of implantation. Her study provides a nuanced view of a social context in which science, technology, and medicine are trusted to vanquish disability-and in which mothers are expected to use these tools. Made to Hear reveals that implantation has the central goal of controlling the development of the deaf child's brain by boosting synapses for spoken language and inhibiting those for sign language, placing the politics of neuroscience front and center. Examining the consequences of cochlear implant technology for professionals and parents of deaf children, Made to Hear shows how certain neuroscientific claims about neuroplasticity, deafness, and language are deployed to encourage compliance with medical technology.