From Tiny Tim to Helen Keller, disabled people in the nineteenth century were portrayed in sentimental terms, as afflicted beings whose sufferings afforded ablebodied people opportunities to practice empathy and compassion. In all kinds of representations of disability, from popular fiction to the reports of institutions established for the education and rehabilitation of disabled people, the equation of disability and sentimentality served a variety of social functions, from ensuring the continued existence of a sympathetic sensibility in a hard-hearted, market-driven world, to asserting the selfhood and equality of disabled adults.
Unique in its focus on blindness and its examination of the interplay between institutional discourse and popular literature, "Woeful Afflictions" offers a detailed historical analysis of the types of cultural work performed by sentimental representations of disability in public reports and lectures, exhibitions, novels, stories, poems, autobiographical writings, and popular media portrayals from the 1830s through the 1890s in the United States.
"Woeful Afflictions" combines contemporary scholarship on sentimentalism with the most recent works on the cultural meanings of disability to argue that sentimentalism, with its emphasis on creating emotional identifications between texts and readers, both reinforces existing associations between disability and otherness and works to rewrite those associations in portraying disabled people, in their emotional capacities, as no different from the ablebodied. This book will interest anyone concerned with disability studies and the social construction of the body, with the history of education and of publicinstitutional care in the United States, and with autobiographical writings.

Despite increased awareness of the needs, circumstances and experiences of families with a disabled child, and the acknowledgement of the need to tackle inequalities and barriers to access in recent NHS reforms, there has been little gain in health or improved access to services for minority ethnic groups. This report presents the findings of the first ever national survey in the UK, in which nearly 600 parents took part, which looked at the needs and circumstances of minority ethnic families caring for a severely disabled child. The quantitative survey was then compared with data on the circumstances and experiences of white families from an earlier survey. The authors highlight the key implications for services to help parents and their children - reducing social exclusion; meeting language, communication and information needs; and bridging and improving informal and formal support. On the edge will inform and influence managers and practitioners within health, education, social services and the voluntary sector about the particular needs and circumstances of minority ethnic families who are caring for a severely disabled child. It will also be a key resource for researchers and students in the fields of disability studies, social policy, social work, ethnic relations, health services research and related fields.

From its beginnings in the 1970s and 1980s, interest in the topic of gender and migration has grown. Gender and Migration seeks to introduce the most relevant sociological theories of gender relations and migration that consider ongoing transnationalization processes, at the beginning of the third millennium. These include intersectionality, queer studies, social inequality theory and the theory of transnational migration and citizenship; all of which are brought together and illustrated by means of various empirical examples. With its explicit focus on the gendered structures of migration-sending and migration-receiving countries, Gender and Migration builds on the most current conceptual tool of gender studies-intersectionality-which calls for collective research on gender with analysis of class, ethnicity/race, sexuality, age and other axes of inequality in the context of transnational migration and mobility. The book also includes descriptions of a number of recommended films that illustrate transnational migrant masculinities and femininities within and outside of Europe. A refreshing attempt to bring in considerations of queer theory and sexual identity in the area of gender migration studies, this insightful volume will appeal to students and researchers interested in fields such as sociology, social anthropology, political science, intersectional studies and transnational migration.

This book explains how space, place and mobility have shaped the experiences of disabled people both in the pasta nd in contemporary societies. It:
* includes a critical appraisal of theories of diability and a new disability model
* uses case studies to explore how the transition to capitalism disadvantaged disabled people
* explores the Western city and the policies of community care and accesbility regulation.

Albinism is one of the foremost disability and public health issues in Africa today. It often makes headlines in local, national and international medias and forms the basis for intense advocacy at all levels. This is primarily due to the harmful representations of persons with albinism deeply entrenched in African traditions. These deeply rooted ideologies about albinism in African thought have largely promoted the continuous discrimination, stigmatization, harming, killing, commodification and violation of the human rights of persons with albinism in African places. How has albinism emerged as a thick concept in African traditions? What are these deeply entrenched ideas about the ontology of albinism in African thought? What epistemic injustice has been done to persons with albinism in Africa places? Why do harmful beliefs about albinism still persist in modern African societies? How does the African communalistic ethic justify the harm done against persons with albinism? What is the duty to, and burden of, care for persons with albinism? What peculiar existential challenges do persons with albinism in general and females with albinism in particular face in African societies and how can they be overcome? What can be learnt from the education philosophy of reconstructionism and genetic engineering in improving the wellbeing of persons with albinism? African Philosophy and the Otherness of Albinism: White Skin, Black Race digs deep into these philosophical questions revealing fascinating but latent aspects of how albinism is understood in African places as a necessary step to take in improving the wellbeing and integrity of persons with albinism in Africa today. This book will be of interest to scholars and students of African philosophy, sociology, African studies and disability studies.

Joy, pain, celebration, and grief are constant companions on the journey of caregiving. While remaining detached might seem the preferable option, it is not possible to disentangle the threads of our interwoven stories. Our lives are shaped by each other. We are transformed by our encounters.In Formed Together, Keith Dow explores the questions of why we should, and why we do, care for one another. He considers what it means for human beings to be interdependent, created in the image of a loving God. Dow recounts personal experiences of supporting people with intellectual disabilities while drawing upon theological and philosophical sources to discover the ethical underpinnings of Christian care. Formed Together reveals that human beings care for one another not merely by choice, but because every person relies upon others. People are called together in mutually formative practices of care, and human flourishing means learning to care well. Dow suggests five virtues that mark ethical caregiving, such as humble courage and quiet attentiveness. These practices can help guide caregivers in responding to the divine call to care. Dow demonstrates that ethical practices of care do not depend upon intelligence or rational ability. Many are called to the vocation of tending to and being present in the needs of others. To be formed together in the divine image means that caregivers never entirely comprehend themselves, others, or God. Rather, caring well means that humans are to accompany one another in and through experiences of profound mystery and revelation.

This book . . . offers a critical review of literature on relationships and chronic illness. . . . This is a carefully constructed integration of a complex, multidisciplinary literature on the dynamic processes of relationships during long-term illness. It is essentially a scholarly work that builds a conceptual model. The authors' use of case illustrations serves to ground and clarify the discussion. It is logical and clear. Both beginning and established scholars will find the book a highly useful resource. 5 stars! --Sara J. Knight in Doody's Health Sciences Book Review Home Page "A recommended book for counselors and medical and academic libraries." --AIDS Book Review Journal How do relationships with friends, family, and couples change with the presence of chronic illness or disability? Adults face new relationship challenges when acquired health problems and disabilities begin to dominate their lives. Relationships in Chronic Illness and Disability explores the interpersonal issues that arise when relationships evolve under the challenges of chronic illness and disability. The authors provide a sensitive yet practical examination of three interactive relationship-illness processes: relationship change, supports and stressors, and relationship-focused coping. Interventions for nurturing close relationships under these difficult circumstances as well as issues of theory and method round out this much-needed volume. This volume from the Sage Series on Close Relationships adds to our understanding of illness-relationship processes and provides new information useful to professionals as well as researchers, students, and interns in social work, rehabilitation and occupational therapy, leisure studies and recreation, gerontology, psychology, nursing, and family studies.

Paul W. Ogden has dedicated his life to educating young deaf and hard of hearing people and raising awareness of what it means to be deaf in a hearing world. He has taught and mentored a generation of teachers, and his classic volume, The Silent Garden, has served as a guide for parents and educators for over thirty years. Now he tells his personal story of challenges faced and lessons learned, revealing that the critical, guiding factors for him have always been language and successful communication. Born in a time when many deaf children had no access to language, Paul learned spoken and written language skills at a young age through the painstaking efforts of his mother. His tight-knit family, which included one deaf and two hearing older brothers, facilitated open and constant communication using a variety of methods. His father was a pastor who was involved in the civil rights movement. Despite the family's closeness, his father struggled with depression, an illness that would take the life of one of Paul's brothers. As a student at a residential deaf school where the use of American Sign Language (ASL) was suppressed, Paul continued to build on the speech and lipreading skills he had learned at home. He returned home for high school and graduated as co-valedictorian unaware of the standing ovation he received as he walked to the podium. Following a rewarding experience as an undergraduate at Antioch College, Paul went on to earn a PhD from the University of Illinois, a rare accomplishment for a deaf person at that time. During his graduate studies, he finally had the opportunity to learn ASL. As an award-winning professor of Deaf Studies at California State University, Fresno, he successfully petitioned for the university to recognize ASL as a language, and he established the Silent Garden program, which has grown into a flourishing provider of training and resources to support the Deaf community. In My Life of Language, Paul offers eloquent reflections on both the joyful and difficult periods of his life as he navigated relationships, faced discrimination, questioned his faith, and found great happiness in his marriage.

Bringing together scholars from around the world to research the intersection between media and disability, this edited collection aims to offer an interdisciplinary exploration and critique of print, broadcast and online representations of physical and mental impairments. Drawing on a wide range of case studies addressing how people can be 'othered' in contemporary media, the chapters focus on analyses of hateful discourses about disability on Reddit, news coverage of disability and education, media access of individuals with disabilities, the logic of memes and brain tumour on Twitter, celebrity and Down Syndrome on Instagram, disability in TV drama, the metaphor of disability for the nation; as well as an autoethnography of treatment of breast cancer. Providing a much-needed global perspective, Disability, Media, and Representations examines the relationship between self-representation and representations in either reinforcing or debunking myths around disability, and ways in which academic discourse can be differently articulated to study the relationship between media and disability. This book will be of interest to students and researchers of disability studies and media studies as well as activists and readers engaged in debates on diversity, inclusivity and the media.

Services to older people with mental health problems have gone through radical change in recent years. Legislation has had a profound effect by dictating how care to older people is delivered both within hospital and within the community. The recent government agenda emphasizes cost effectiveness, value for money and accountability. This, too, is an important driving force in re-evaluat ing the service, although not everyone would agree with many of the proposed strategies and there are clearly different views as to the appropriateness of many of the services. One thing is certain, however - the move towards interdiscipli nary working is here to stay. Not all change has been led by legislation, and many innovations have been founded in the day-to-day practices in the care of older people with mental health problems. A service, of course, does not become integrated merely by imposing joint working on a number of professionally based disciplines, and in many ways this may not be desirable. At its worst it produces duplication, where people from different background are all doing the same job. This is not the intention of joint-working, instead it should attempt to improve the quality of service by a rich mix of skills and experience from a number of related disciplines.

Philosophical interest in disability is rapidly expanding. Philosophers are beginning to grasp the complexity of disability-as a category, with respect to well-being and as a marker of identity. However, the philosophical literature on justice and human rights has often been limited in scope and somewhat abstract. Not enough sustained attention has been paid to the concrete claims made by people with disabilities, concerning their human rights, their legal entitlements and their access to important goods, services and resources. This book discusses how effectively philosophical approaches to distributive justice and human rights can support these concrete claims. It argues that these approaches often fail to lend clear support to common disability demands, revealing both the limitations of existing philosophical theories and the inflated nature of some of these demands. Moving beyond entitlements, the author also develops a unique conception of dignity, which she argues illuminates the specific indignities experienced by people with disabilities in the allocation of goods, in the common experience of discrimination and in a wide range of interpersonal interactions. Disability with Dignity offers an accessible and extended philosophical discussion of disability, justice and human rights. It provides a comprehensive assessment of the benefits and pitfalls of theories of human rights and justice for advancing justice for the disabled. It brings the moral importance of dignity to the centre, arguing that justice must be pursued in a way that preserves and promotes the dignity of people with disabilities.

To what extent is borderline personality disorder (BPD) a truly "female" affliction given how women are socialized? This and other questions are addressed within the context of the historical relationship between women and madness, as well as women's often-strained relationship with the psychiatric profession.In a refreshing look at the facts behind why a preponderance of women are diagnosed with BPD, Dana Becker provides evidence that the struggles of these "borderline" women are extreme versions of the day-to-day struggles many women face. Examining the relationship between gender, psychological distress, and the classification of BPD as a psychiatric disorder, the author offers a new emphasis on elements of female socialization as keys to understanding the development of borderline symptoms.The book should appeal to psychotherapists in all professional groups--psychologists, psychiatrists, social workers, and other mental health professionals--as well as graduate students in these disciplines. It should also be valuable to those involved in the fields of women's studies, psychology of women, sociology, and the history of medicine.

A wonderfully engaging and accessible book, Who Cares? emphasizes finding humane responses to developmentally and physically disabled individuals that are community driven rather than solely reliant on problem-solution oriented social service organizations. David Schwartz examines the roles of both informal communities and sectarian communities for examples and practical techniques that can be applied to the reader's situation. The beautifully written, touching accounts of individual lives swept under the carpet of the social services system make it impossible to read this book without being affected by the stories?such as the boy who was afraid of white,Nancy who moved to an apartment after forty years in a nursing home, and everyday life in a small east coast town whose inhabitants help one another in times of need.Schwartz does not advocate the overthrow or dismantling of the social services, but instead proposes supplemental responses that will lead to richer, better lives for both the recipient and the caregiving individual and community. The practical, easily encouraged methods of building informal models suggested by the author grow out of both his own practice and his informed experiences as director of a state social services agency and are grounded in the basic desires for nurturing, belonging, and a sense of community. Who Cares? will appeal to those working in the field of social services as well as the general reader searching for ways to bring meaning into the modern, disconnected life.

This book is intended for individuals or organizations (teachers, social workers, psychologists, community nurses, parents and carers) who wish to create leisure opportunities for people with profound and multiple impairments.;The text reflects a number of leisure activities based on the authors' experience, from gardening to aromatherapy, drama to microtechnology. It also offers guidance for running and developing workshops for parents, carers and professionals. Useful addresses, contacts and resources are included.

Moving away from clinical, medical or therapeutic perspectives on disability, this book explores disability in India as a social, cultural and political phenomenon, arguing that this `difference' should be accepted as a part of social diversity. It further interrogates the multiple issues of identification of the disabled and the forms of oppressio

This is a longitudinal follow-up to the study reported in The Deaf Child and his Family, now republished as Deaf Children and their Families. Eighteen years after the original study, seventy-five percent of the original families have been traced and this new volume provides an account of the subsequent interviews with both the parents and the deaf young people themselves. Participants reflect not only on the consequences of deafness within their own lives, but on the changing context for deaf people. It includes a comparison of the views of parents with those of their sons and daughters and an examination of factors in early life that may relate to later development. In its provision of a unique insight into the deaf young person's perspective on life, it will be a valuable resource for all those concerned with deafness and special education, including families, deaf people, professionals and academics.

What does 'sexual citizenship' mean in practice for people with mobility impairments who may need professional support to engage in sexual activity? The book explores this subject through empirical investigation based on case studies conducted in four countries - Sweden, England, Australia and the Netherlands - and develops the abstract notion of 'sexual citizenship' to make it practically relevant to disabled people, professionals in disability services and policy-makers. Through a cross-national approach, it demonstrates the variability of how sexual rights are understood and their culturally specific nature. It also shows how the personal is indeed political: states' different policy approaches change the outcomes for disabled people in terms of support to explore and express their sexualities. By proposing a model of sexual facilitation that can be used in policy development, to better cater to disabled service users' needs as well as furthering the theoretical understanding of sexual rights and sexual citizenship, this book will be of interest to professionals in disability services and policy-makers as well as academics and students working in the following subject areas: Disability Studies, Sociology, Social Policy, Sexuality Studies/Sexology, Social Work, Nursing, Occupational Therapy and Public Health.

Disability and the Posthuman is the first study to analyse cultural representations and deployments of disability as they interact with posthumanist theories of technology and embodiment. Working across a wide range of texts, many new to critical enquiry, in contemporary writing, film and cultural practice from North America, Europe, the Middle East and Japan, it covers a diverse range of topics, including: contemporary cultural theory and aesthetics; design, engineering and gender; the visualisation of prosthetic technologies in the representation of war and conflict; and depictions of work, time and sleep. While noting the potential limitations of posthumanist assessments of the technologized body, the study argues that there are exciting, productive possibilities and subversive potentials in the dialogue between disability and posthumanism as they generate dissident crossings of cultural spaces. Such intersections cover both fictional/imagined and material/grounded examples of disability and look to a future in which the development of technology and complex embodiment of disability presence align to produce sustainable yet radical creative and critical voices.

This powerful book presents a series of perspectives on the process of self-organisation of disabled people which has taken place over the last thirty years. The 1980s saw a transformation in our understanding of the nature of disability, and consequently the kinds of policies and services necessary to ensure the full economic and social integration of disabled people. At the heart of this transformation has been the rise in the number of organisations controlled and run by disabled people themselves. Through a series of interviews with disabled people who have been centrally involved in the rise of the disability movement, the authors present a new collective history which throws light on the politics of the 1980s, and offers insights into future political developments in the 1990s and on into the 21st century.

This unique monograph, based on empirical research, used the oral history approach to explore the careers of 31 intellectual disability nurses from England and the Republic of Ireland; each with at least 30 years' experience. We sought to understand motives for such long service to nursing practice. Some had worked in the intellectual disability hospitals of the 19th and 20th Centuries. In both jurisdictions these have almost closed and been replaced with smaller living configurations; subsequently few such nurses have experience of these institutions. This makes it important to hear their stories, which were digitally recorded; now forming a unique collection in the Royal College of Nursing's archives. These oral histories when synthesised with prevailing discourse of intellectual disability nursing from literature, and research put into perspective contemporary nursing workforce challenges faced by these nurses in both jurisdictions. Their stories are testament, amongst other things, to a strong 'sense of justice... doing the right thing and making a difference'. Some reported a 'very early interest in working with people with intellectual disabilities'. And at 'journey's end' sadly, almost universally, they reported a sense of being 'undervalued'. Their narratives articulate enormous health and social care change witnessed over three decades or more. But above all else they give voice to commitment, dedication, and kindness to a vulnerable, and often marginalised people, those with intellectual disabilities, as such it gives voice to otherwise 'Untold Stories'.

Drawing on the work of George Lakoff, this book provides a detailed analysis of the organism metaphor, which draws an analogy between the national or social body and a physical body. With attention to the manner in which this metaphor conceives of various sub-groups as either beneficial or detrimental to the (social) body's overall functioning, the author examines the use of this metaphor to view marginalized sub-populations as invasive or contagious entities that need to be treated in the same way as harmful bacteria or pathogens. Analyzing the organism metaphor as it was employed in the service of social injustice through the nineteenth and twentieth centuries in the United States, Contagion and the National Body focuses on the alarm eras of the restrictive immigration period (1890-1924), the agitation against Chinese and Japanese populations on the West Coast, the eugenic period's targeting of feeble-minded persons and other "defectives," periods of anti-Semitism, the anti-Communist movements, and various forms of racial animosity against African-Americans.

First Published in 1996. The study makes an important contribution to newly emerging participative research methodologies in that it places the parents' view of the world at the centre of the analysis and in so doing, articulates the kinds of changes they think are necessary to improve the quality of life for their families and themselves. Due to an application of a social model, the book is important not just to families with deaf children and the professionals who work with them but to anyone who has an interest in disability issues.

In The Right to Maim Jasbir K. Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of "debility"-bodily injury and social exclusion brought on by economic and political factors-to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar's analysis culminates in an interrogation of Israel's policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them available for injury. Supplementing its right to kill with what Puar calls the right to maim, the Israeli state relies on liberal frameworks of disability to obscure and enable the mass debilitation of Palestinian bodies. Tracing disability's interaction with debility and capacity, Puar offers a brilliant rethinking of Foucauldian biopolitics while showing how disability functions at the intersection of imperialism and racialized capital.

This is a detailed analysis of the Mental Handicap Registers in the North West Thames Region, London. It gives insights into the problems faced by handicapped individuals, their parents and the authorities responsible for providing services.;The incidence of mental handicap has remained fairly static over the decades, but there is an increase in life expectancy, with a resulting increase in prevalence. Quality of life is an important factor. The challenge is to create an environment where individuals can attain their maximum potential without prejudicing others. With its extensive discussion of the issues involved, this text should be beneficial to all professionals involved in implementing changes in services and anyone with an interest in improving quality of life for mentally handicapped people.

Undoing Ableism is a sourcebook for teaching about disability and anti-ableism in K-12 classrooms. Conceptually grounded in disability studies, critical pedagogy, and social justice education, this book provides both a rationale as well as strategies for broad-based inquiries that allow students to examine social and cultural foundations of oppression, learn to disrupt ableism, and position themselves as agents of social change. Using an interactive style, the book provides tools teachers can use to facilitate authentic dialogues with students about constructed meanings of disability, the nature of belongingness, and the creation of inclusive communities.