Anna Ott died in the Wisconsin State Hospital for the Insane in 1893. She had enjoyed status and financial success first as a physician's wife and then as the only female doctor in Madison. Throughout her first marriage, attempts to divorce her abusive second husband, and twenty years of institutionalization, Ott determinedly shaped her own life. Kim E. Nielsen explores a life at once irregular and unexceptional. Historical and institutional structures, like her whiteness and laws that liberalized divorce and women's ability to control their property, opened up uncommon possibilities for Ott. Other structures, from domestic violence in the home to rampant sexism and ableism outside of it, remained a part of even affluent women's lives. Money, Marriage, and Madness tells a forgotten story of how the legal and medical cultures of the time shaped one woman-and what her life tells us about power and society in nineteenth century America.

Uses literature to understand and remake our ethics regarding nonhuman animals, old human beings, disabled human beings, and cloned posthumans Literary Bioethics argues for literature as an untapped and essential site for the exploration of bioethics. Novels, Maren Tova Linett argues, present vividly imagined worlds in which certain values hold sway, casting new light onto those values; and the more plausible and well rendered readers find these imagined worlds, the more thoroughly we can evaluate the justice of those values. In an innovative set of readings, Linett thinks through the ethics of animal experimentation in H.G. Wells's The Island of Doctor Moreau, explores the elimination of aging in Aldous Huxley's Brave New World, considers the valuation of disabled lives in Flannery O'Connor's The Violent Bear It Away, and questions the principles of humane farming through reading Kazuo Ishiguro's Never Let Me Go. By analyzing novels published at widely spaced intervals over the span of a century, Linett offers snapshots of how we confront questions of value. In some cases the fictions are swayed by dominant devaluations of nonnormative or nonhuman lives, while in other cases they confirm the value of such lives by resisting instrumental views of their worth-views that influence, explicitly or implicitly, many contemporary bioethical discussions, especially about the value of disabled and nonhuman lives. Literary Bioethics grapples with the most fundamental questions of how we value different kinds of lives, and questions what those in power ought to be permitted to do with those lives as we gain unprecedented levels of technological prowess.

This book is intended for individuals or organizations (teachers, social workers, psychologists, community nurses, parents and carers) who wish to create leisure opportunities for people with profound and multiple impairments.;The text reflects a number of leisure activities based on the authors' experience, from gardening to aromatherapy, drama to microtechnology. It also offers guidance for running and developing workshops for parents, carers and professionals. Useful addresses, contacts and resources are included.

Parents of children with disabilities often situate their activism as a means of improving the world for their child. However, some disabled activists perceive parental activism as working against the independence and dignity of people with disabilities. This thorny relationship is at the heart of the groundbreaking Allies and Obstacles. The authors chronicle parents' path-breaking advocacy in arenas such as the right to education and to liberty via deinstitutionalization as well as how they engaged in legal and political advocacy. Allies and Obstacles provides a macro analysis of parent activism using a social movement perspective to reveal and analyze the complex-and often tense-relationship of parents to disability rights organizations and activism. The authors look at organizational and individual narratives using four case studies that focus on intellectual disability, psychiatric diagnoses, autism, and a broad range of physical disabilities including cerebral palsy and muscular dystrophy. These cases explore the specific ways in which activism developed among parents and people with disabilities, as well as the points of alliance and the key points of contestation. Ultimately, Allies and Obstacles develops new insights into disability activism, policy, and the family.

To what extent is borderline personality disorder (BPD) a truly "female" affliction given how women are socialized? This and other questions are addressed within the context of the historical relationship between women and madness, as well as women's often-strained relationship with the psychiatric profession.In a refreshing look at the facts behind why a preponderance of women are diagnosed with BPD, Dana Becker provides evidence that the struggles of these "borderline" women are extreme versions of the day-to-day struggles many women face. Examining the relationship between gender, psychological distress, and the classification of BPD as a psychiatric disorder, the author offers a new emphasis on elements of female socialization as keys to understanding the development of borderline symptoms.The book should appeal to psychotherapists in all professional groups--psychologists, psychiatrists, social workers, and other mental health professionals--as well as graduate students in these disciplines. It should also be valuable to those involved in the fields of women's studies, psychology of women, sociology, and the history of medicine.

A wonderfully engaging and accessible book, Who Cares? emphasizes finding humane responses to developmentally and physically disabled individuals that are community driven rather than solely reliant on problem-solution oriented social service organizations. David Schwartz examines the roles of both informal communities and sectarian communities for examples and practical techniques that can be applied to the reader's situation. The beautifully written, touching accounts of individual lives swept under the carpet of the social services system make it impossible to read this book without being affected by the stories?such as the boy who was afraid of white,Nancy who moved to an apartment after forty years in a nursing home, and everyday life in a small east coast town whose inhabitants help one another in times of need.Schwartz does not advocate the overthrow or dismantling of the social services, but instead proposes supplemental responses that will lead to richer, better lives for both the recipient and the caregiving individual and community. The practical, easily encouraged methods of building informal models suggested by the author grow out of both his own practice and his informed experiences as director of a state social services agency and are grounded in the basic desires for nurturing, belonging, and a sense of community. Who Cares? will appeal to those working in the field of social services as well as the general reader searching for ways to bring meaning into the modern, disconnected life.

This powerful book presents a series of perspectives on the process of self-organisation of disabled people which has taken place over the last thirty years. The 1980s saw a transformation in our understanding of the nature of disability, and consequently the kinds of policies and services necessary to ensure the full economic and social integration of disabled people. At the heart of this transformation has been the rise in the number of organisations controlled and run by disabled people themselves. Through a series of interviews with disabled people who have been centrally involved in the rise of the disability movement, the authors present a new collective history which throws light on the politics of the 1980s, and offers insights into future political developments in the 1990s and on into the 21st century.

This 1982 book examines the changes in hospital care in New York that occurred around the turn of the twentieth century. It represents a fundamental departure from traditional medical history, which has usually emphasised 'progress' through science and technology. Professor Rosner identifies the economic, political and demographic pressures that brought about a reshaping of the health care system, and analyses the dramatic reorganisation of hospitals that took place. He also discusses major scientific advances such as the discovery of anaesthetic properties of ether, nitrous oxide and chloroform, and the consequent increase in surgical solutions to medical problems.

From its beginnings in the 1970s and 1980s, interest in the topic of gender and migration has grown. Gender and Migration seeks to introduce the most relevant sociological theories of gender relations and migration that consider ongoing transnationalization processes, at the beginning of the third millennium. These include intersectionality, queer studies, social inequality theory and the theory of transnational migration and citizenship; all of which are brought together and illustrated by means of various empirical examples. With its explicit focus on the gendered structures of migration-sending and migration-receiving countries, Gender and Migration builds on the most current conceptual tool of gender studies-intersectionality-which calls for collective research on gender with analysis of class, ethnicity/race, sexuality, age and other axes of inequality in the context of transnational migration and mobility. The book also includes descriptions of a number of recommended films that illustrate transnational migrant masculinities and femininities within and outside of Europe. A refreshing attempt to bring in considerations of queer theory and sexual identity in the area of gender migration studies, this insightful volume will appeal to students and researchers interested in fields such as sociology, social anthropology, political science, intersectional studies and transnational migration.

First Published in 1996. The study makes an important contribution to newly emerging participative research methodologies in that it places the parents' view of the world at the centre of the analysis and in so doing, articulates the kinds of changes they think are necessary to improve the quality of life for their families and themselves. Due to an application of a social model, the book is important not just to families with deaf children and the professionals who work with them but to anyone who has an interest in disability issues.

Moving away from clinical, medical or therapeutic perspectives on disability, this book explores disability in India as a social, cultural and political phenomenon, arguing that this `difference' should be accepted as a part of social diversity. It further interrogates the multiple issues of identification of the disabled and the forms of oppressio

This is a detailed analysis of the Mental Handicap Registers in the North West Thames Region, London. It gives insights into the problems faced by handicapped individuals, their parents and the authorities responsible for providing services.;The incidence of mental handicap has remained fairly static over the decades, but there is an increase in life expectancy, with a resulting increase in prevalence. Quality of life is an important factor. The challenge is to create an environment where individuals can attain their maximum potential without prejudicing others. With its extensive discussion of the issues involved, this text should be beneficial to all professionals involved in implementing changes in services and anyone with an interest in improving quality of life for mentally handicapped people.

Bringing together scholars from around the world to research the intersection between media and disability, this edited collection aims to offer an interdisciplinary exploration and critique of print, broadcast and online representations of physical and mental impairments. Drawing on a wide range of case studies addressing how people can be 'othered' in contemporary media, the chapters focus on analyses of hateful discourses about disability on Reddit, news coverage of disability and education, media access of individuals with disabilities, the logic of memes and brain tumour on Twitter, celebrity and Down Syndrome on Instagram, disability in TV drama, the metaphor of disability for the nation; as well as an autoethnography of treatment of breast cancer. Providing a much-needed global perspective, Disability, Media, and Representations examines the relationship between self-representation and representations in either reinforcing or debunking myths around disability, and ways in which academic discourse can be differently articulated to study the relationship between media and disability. This book will be of interest to students and researchers of disability studies and media studies as well as activists and readers engaged in debates on diversity, inclusivity and the media.

This book provides a framework for explaining why governments adopt the policies they do. In addition, it establishes a basis for comparing political systems in terms of their public policies rather than their institutions or political processes. The book begins by placing in a historical perspective the worldwide role of the state as a major provider of goods and services. Following this general background is an 'accounting scheme' that brings some semblance of order to the seemingly infinite variety of policy-relevant variables and makes the comparative study of public policy more manageable. It is suggested that any nation's public policies can be explained in terms of situational, structural, environmental and cultural factors. The second part of the book applies the accounting scheme to an increasingly specific and narrow range of public policies. The author examines one crucial area of public policy - health care - and the evolution of that policy in four diverse nations: Germany, Great Britain, the Soviet Union and Japan. The book concludes with an assessment of the prospects for an American national health care programme in the light of the experiences of these other nations.

R. Leidl, P. Potthoff, and D. Schwefel Health is a most vital resource represented in the degree of our well-being and our ability to conduct active and satisfactory lives. Acute and chronic illnesses diminish such well-being and abilities and may require resources for medical or nursing care. The improvement in health status, a major objective of health policy, requires the measurement of the severity of diseases and their consequences as essential elements of information. In application, the measurement approaches are gaining in relevance as they become more feasible and as more experience is gathered about their implementation and utilization. The feasibility of these new information tools is supported by developments in data processing technologies that permit broadly based empirical applications. Wider applications lead to improvements in the management use of this information. At the European level, better indicator systems of diseases and their various aspects are facing an increasing demand for patient-based health and health system comparisons and analyses. The measurement of health status and its implications can comprise a number of dimensions: various concepts of health and disease, types of diseases, methodological approaches of measurement, purposes of application and states of implementation.

This is the only text to examine the experience of disability in relation to theories of human growth and development. It provides a foundational and comprehensive examination of disability that encompasses the intellectual, psychiatric, physical, and social arenas. The second edition is updated to underscore its versatility as an introductory text about the developmental tasks of people with disabilities for all the helping professions. Reorganized to illuminate the book's interdisciplinary focus, it includes new demographics, new case studies and first-person accounts, discussions on cultural aspects of disabilities, family concerns, and more.The text delivers practice guidelines for each of the conventional life stages and describes the developmental tasks of individuals with disabilities (IWDs) and the difficulties they may have in completing them. It emphasizes the positive trend in the perception of individuals with disabilities as normal and underscores the fact that IWDs have the same motivations, emotions, and goals as those without disabilities. Learning activities, suggestions for writing exercises, and websites for further study reinforce learning, as do graphs, charts, and photos to illustrate trends and demographics. New to the Second Edition: Introductory chapter on understanding disability Demographic updates New case studies and first-person accounts Expanded discussions about cultural issues, and intersectionality, trauma related to disability, financial abuse, and psychiatric disabilities New and expanded learning activities to help students apply concepts Updated Instructor's Manual with sample syllabus, suggested guest speakers, Test Bank, and PowerPoints Key Features: Examines the conventional stages of human growth and development from the perspective of individuals with disabilities Integrates disability concepts with developmental theories and stages of the lifespan Addresses common ethical issues to illuminate the real-world implications faced by individuals with disabilities and their families Includes learning activities, suggestions for writing exercises, and websites for further study

This collection explores the historical origins of our modern concepts of intellectual or learning disability. The essays, from some of the leading historians of ideas of intellectual disability, focus on British and European material from the Middle Ages to the late-nineteenth century and extend across legal, educational, literary, religious, philosophical and psychiatric histories. They investigate how precursor concepts and discourses were shaped by and interacted with their particular social, cultural and intellectual environments, eventually giving rise to contemporary ideas. The collection is essential reading for scholars interested in the history of intelligence, intellectual disability and related concepts, as well as in disability history generally. -- .

Constructing the (M)other is a collection of personal narratives about motherhood in the context of a society in which disability holds a stigmatized position. From multiple vantage points, these autoethnographies reveal how ableist beliefs about disability are institutionally upheld and reified. Collectively they seek to call attention to a patriarchal surveillance of mothering, challenge the trope of the good mother, and dismantle the constructed hierarchy of acceptable children. The stories contained in this volume are counter-narratives of resistance-they are the devices through which mothers push back. Rejecting notions of the otherness of their children, in these essays, mothers negotiate their identities and claim access to the category of normative motherhood. Readers are likely to experience dissonance, have their assumptions about disability challenged, and find their parameters of normalcy transformed.

Constructing the (M)other is a collection of personal narratives about motherhood in the context of a society in which disability holds a stigmatized position. From multiple vantage points, these autoethnographies reveal how ableist beliefs about disability are institutionally upheld and reified. Collectively they seek to call attention to a patriarchal surveillance of mothering, challenge the trope of the good mother, and dismantle the constructed hierarchy of acceptable children. The stories contained in this volume are counter-narratives of resistance-they are the devices through which mothers push back. Rejecting notions of the otherness of their children, in these essays, mothers negotiate their identities and claim access to the category of normative motherhood. Readers are likely to experience dissonance, have their assumptions about disability challenged, and find their parameters of normalcy transformed.

In this book I present a series of eleven essays written between 1978 and 1987 on subjects relevant to the anthropology of health and international health. The issues addressed in these essays were investigated during 38 months of fieldwork in rural southwest peninsular India (197 4-86) and 15 months of fieldwork in southwest Sri Lanka (1983-84 ).;During various periods of this time I conducted ethnographic fieldwork, explored the feasibility of participatory community research, facilitated the development of a postgraduate health education training program, and served as a consultant to various international health organizations. The essays document my ongoing attempts to integrate academic interests in the anthropology of health with applications of anthropology for international health and development. The volume is divided into four sections structured around the themes of: ethnophysiology, illness ethnography, pharmaceutical related behavior, and health communication. Included are studies of fertility and pregnancy (Chapters 1 and 2), states of malnutrition and approaches to nutrition education (Chapters 5 and 11 ), diarrheal disease and water boiling behavior (Chapters 6 and 1 0), and lay perceptions of fertility control methods and medicines (Chapters 3 and 7). Emerging from these studies is a recognition that perceptions of ethnophysiology and contingent health concerns signifi cantly influence health behavior and the use as well as demand for traditional and modern health resources."

What does 'sexual citizenship' mean in practice for people with mobility impairments who may need professional support to engage in sexual activity? The book explores this subject through empirical investigation based on case studies conducted in four countries - Sweden, England, Australia and the Netherlands - and develops the abstract notion of 'sexual citizenship' to make it practically relevant to disabled people, professionals in disability services and policy-makers. Through a cross-national approach, it demonstrates the variability of how sexual rights are understood and their culturally specific nature. It also shows how the personal is indeed political: states' different policy approaches change the outcomes for disabled people in terms of support to explore and express their sexualities. By proposing a model of sexual facilitation that can be used in policy development, to better cater to disabled service users' needs as well as furthering the theoretical understanding of sexual rights and sexual citizenship, this book will be of interest to professionals in disability services and policy-makers as well as academics and students working in the following subject areas: Disability Studies, Sociology, Social Policy, Sexuality Studies/Sexology, Social Work, Nursing, Occupational Therapy and Public Health.

Drawing on the work of George Lakoff, this book provides a detailed analysis of the organism metaphor, which draws an analogy between the national or social body and a physical body. With attention to the manner in which this metaphor conceives of various sub-groups as either beneficial or detrimental to the (social) body's overall functioning, the author examines the use of this metaphor to view marginalized sub-populations as invasive or contagious entities that need to be treated in the same way as harmful bacteria or pathogens. Analyzing the organism metaphor as it was employed in the service of social injustice through the nineteenth and twentieth centuries in the United States, Contagion and the National Body focuses on the alarm eras of the restrictive immigration period (1890-1924), the agitation against Chinese and Japanese populations on the West Coast, the eugenic period's targeting of feeble-minded persons and other "defectives," periods of anti-Semitism, the anti-Communist movements, and various forms of racial animosity against African-Americans.

'Urgent, compelling and lyrically, luminously beautiful . . . a brilliant, heart-rending read.' Psychologies Magazine Brown constellates the subjects that define her inside and out: a disabled and conspicuous body, a religious conversion, a missing twin, a life in poetry. As she does, she depicts vividly for us not only her own life but a striking array of sites and topics, among them Mary Shelley's Frankenstein and the world's oldest anatomical theater, Eugenics, and Jerry Falwell's Liberty University. Throughout, Brown offers us the gift of her exquisite sentences, woven together in consideration, always, of what it means to be human: flawed, potent, feeling.

The deaf community in the West has endured radical changes in the past centuries. This historical volume tracks the changes in education and the social world of deaf people through the years. Topics covered include the attitudes toward the deaf in Europe and America, the evolution of communication and language and the increasing influence of education. Of particular interest is the way in which deafness has been increasingly humanized, rather than medicalized or pathologized, as it was in the past. Successful contributions to the deaf and non-deaf world by deaf individuals are also highlighted.

This graduate-level text on rehabilitation and mental health counseling disseminates foundational knowledge of assessment principles and processes with a focus on clinical application. Written by recognized leaders in rehabilitation and mental health, it is the only book to use the World Health Organization's International Classification of Disability, Functioning, and Health framework to integrate assessment tools and techniques addressing practice with varied populations and settings.Chapters-written by leading practitioners with specialized knowledge-focus on specific populations and service delivery settings. The book features a variety of learning tools to foster critical thinking, including learning objectives and case examples highlighting important principles and applications. Sample reports and templates further reinforce understanding of specific applications. A robust instructor package offers PowerPoints, discussion questions, a test bank, and activities. Purchase includes access to the ebook for use on most mobile devices or computers. Key Features: Provides the only comprehensive view of assessment in rehabilitation and mental health using the ICF framework Integrates assessment tools and techniques for both rehabilitation and mental health in diverse settings Written by recognized leaders in the field of rehabilitation and mental health Includes learning objectives and case examples highlighting important principles and applications Presents sample report templates and completed reports to strengthen integration and presentation of test results Offers a robust instructor package with PowerPoints, discussion questions, test bank, and activities