A detailed exploration of parents' fight for a safe environment for their kids, interrogating how race, class, and gender shape health advocacy The success of food allergy activism in highlighting the dangers of foodborne allergens shows how illness communities can effectively advocate for the needs of their members. In Food Allergy Advocacy, Danya Glabau follows parents and activists as they fight for allergen-free environments, accurate labeling, the fair application of disability law, and access to life-saving medications for food-allergic children in the United States. At the same time, she shows how this activism also reproduces the culturally dominant politics of personhood and responsibility, based on an idealized version of the American family, centered around white, middle-class, and heteronormative motherhood. By holding up the threat of food allergens to the white nuclear family to galvanize political and scientific action, Glabau shows, the movement excludes many, including Black women and disabled adults, whose families and health have too often been marginalized from public health and social safety net programs. Further, its strategies are founded on the assumption that market-based solutions will address issues of social exclusion and equal access to healthcare. Sharing the personal experiences of a wide spectrum of people, including parents, support group leaders, physicians, entrepreneurs, and scientists, Food Allergy Advocacy raises important questions about who controls illness activism. Using critical, intersectional feminism to interrogate how race, class, and gender shape activist priorities and platforms, it shows the way to new, justice-focused models of advocacy.

This "Handbook" represents the first comprehensive collection of research on communication and people with disabilities. The editors have brought together original contributions focusing on the identity, social, and relationship adjustments faced by people with disabilities and those with whom they relate. Essays report on topics across the communication spectrum--interpersonal and relationship issues, people with disabilities in organizational settings, disability and culture, media and technologies, communication issues as they impact specific types of disabilities--and establish a future agenda for communication and disability research. Each chapter provides a state-of-the-art literature review, practical applications of the material, and keywords and discussion questions to facilitate classroom use.
In providing an outlet for current research on communication and disability issues, this unique collection contributes to the lives of people with and without disabilities, helping them to improve their own communication and relationships. Intended for readers in communication, psychology, sociology, rehabilitation, social work, special education, gerontology, and related disciplines, this handbook is certain to augment further theory and research, as well as offer insights for both personal and professional relationships.

Adopting a predominantly psychological approach, this book provides carers with up-to-date information and resources to provide appropriately individualised care to people with learning disabilities who self-injure. Understanding and Working with People with Learning Disabilities who Self-Injure synthesises traditional (behavioural) and newer (psychological) approaches to understanding self-injury, drawing on psychoanalytic and social theory to provide practical guidelines for more sustained and effective support. It suggests that motivations for self-injury may be similar for people with and without learning disabilities, and draws on case work examples to suggest person-centred techniques that encourage communication - particularly important with people who do not use verbal communication - and recovery. The book covers a range of specific needs, including people with autism who self-injure, and emphasises the views of people with learning disabilities themselves and their families about what has worked best, and why. At the end of each chapter, a variety of practical implications for the provision of support are given. This book is for those supporting people with learning disabilities who self-injure and will be a useful resource for social workers, psychologists, counsellors, learning support workers, nurses and social and health care students.

Disabled people and employment is a review of research and development initiatives intended to help disabled people get or stay in work, which takes the views of disabled people themselves as a yardstick by which to assess good practice. Drawing on broad-based consultation, it pinpoints gaps in existing research, and highlights the varying requirements of disabled people, employers and service providers as users of research. It also identifies a need for the wide variety of development initiatives which exist to be more effectively targeted, more systematically evaluated, and brought to the attention of a much wider audience. The report is divided into three main parts. The first part explains why the review was carried out and what it covers; the second part considers research to date and existing research and development initiatives; and the final part draws together the themes and evaluates the prospects for future research and development in the areas identified as a priority by disabled people themselves. This report is essential reading for employers, policy makers, service providers, and everyone concerned with getting more disabled people into work.

A much-needed look at the growth of emergency media and its impact on our lives In an emergency, we often look to media: to contact authorities, to get help, to monitor evolving situations, or to reach out to our loved ones. Sometimes we aren't even aware of an emergency until we are notified by one of the countless alerts, alarms, notifications, sirens, text messages, or phone calls that permeate everyday life. Yet most people have only a partial understanding of how such systems make sense of and act upon an "emergency." In Case of Emergency argues that emergency media are profoundly cultural artifacts that shape the very definition of "emergency" as an opposite of "normal." Looking broadly across a range of contemporary emergency-related devices, practices, and services, Elizabeth Ellcessor illuminates the cultural and political underpinnings and socially differential effects of emergency media. By interweaving in-depth interviews with emergency-operation and app-development experts, archival materials, and discursive and technological readings of hardware and infrastructures, Ellcessor demonstrates that emergency media are powerful components of American life that are rarely, if ever, neutral. The normalization of ideologies produced and reinforced by emergency media result in unequal access to emergency services and discriminatory assumptions about who or what is a threat and who deserves care and protection. As emergency media undergo massive growth and transformation in response to digitization and attendant entrepreneurial cultures, Ellcessor asks where access, equity, and accountability fit in all of this. The first book to develop a typology of emergency media, In Case of Emergency opens a much-needed conversation around the larger cultural meanings of "emergency," and what an ethical and care-based approach to emergency could entail.

Educator Patti Lather and psychologist Chris Smithies observed and chronicled support groups for women diagnosed with HIV. Whether black, Latina, poor, or middle class, the women in these groups share the common bond of living with HIV/AIDS, and they describe how it affects their lives in terms full of practical reality and moving poignancy, as they fight the disease, accept, reflect, live and die with and in it.

The first international, cross-disciplinary book to explore and understand the lives of parents with intellectual disabilities, their children, and the systems and services they encounter * Presents a unique, pan-disciplinary overview of this growing field of study * Offers a human rights approach to disability and family life * Informed by the newly adopted UN Convention on the Rights of Persons with Disabilities (2006) * Provides comprehensive research-based knowledge from leading figures in the field of intellectual disability

The book approaches the topic of disability, inclusion and inclusive education in a holistic way including both academic and psycho-social perspectives. It also focuses on the contemporary status of disability studies with a multidisciplinary dimension. The experiences and challenges of children with disabilities and the different dimensions of inclusive education have been situated appropriately by including at the outset, a chapter on 'Disability Studies: The Context'. Chapter on 'Sociology of Disability' accentuates the tone and perspective of the presentations of the authors and editor. The research findings presented in the book indicate grounded realities and suggestions for transactional strategies which are plausible in the Indian context. It has never been timely to publish a book that helps professionals who work with schools, special education teachers, and counsellors to analyze disabilities from a socio-psychological perspective keeping the protagonist at the centre. Case narrations situated in the Indian context enrich the presentations giving voice to the marginalized children/adults with disabilities. This work serves as a comprehensive reference for the most prevalent disabilities at school education level covering the conceptual understanding about each disability, their psycho-social perspectives, implications for classroom transactions, suggestions of transactional strategies along with a brief explanation of assistive technology that can be used in case of each disability.With Right to Education Act (2009) in place, a diverse range of readers, from special educators and other teachers in schools, prospective teachers pursuing their pre service teacher education programmes, teacher educators and researchers in the field of disabilities and inclusive education will all find this volume useful, as a reference material with long shelf life.

In her latest contribution to the growing field of emotion studies, Deidre Pribram makes a compelling argument for why culturalist approaches to the study of emotional "disorders" continue to be eschewed, even as the sociocultural and historical study of mental illness flourishes. The author ties this phenomenon to a tension between two fundamentally different approaches to emotion: an individualist approach, which regards emotions as the property of the individual, whether biologically or psychologically, and a culturalist approach, which regards emotions as collective, social processes with distinctive histories and meanings that work to produce particularized subjects. While she links a strong preference for the individualist construct in Western culture to the rise of the psychological and psychiatric disciplines at the turn of the twentieth century, Pribram also engages with a diverse set of case studies tied to psychological and aesthetic discourses on emotions. These range from Van Gogh's status as emotionally disordered to the public, emotional aesthetics of 19th century melodrama to the diagnostic categories of the DSMs and the fear of "globalizing" emotional disorders in the 21st century. This genuinely interdisciplinary approach makes for a text with potential application in a wide range of disciplines within cultural studies, including sociocultural and historical analysis of psychiatry and psychology, gender theory, subject and identity theory, popular culture studies, and history and theory of the arts.

In this new edition, the editors and contributors update and expand on the educational framework that was introduced in the first edition for rethinking disability in public health study and practice and for attaining the competencies that should accompany this knowledge. The second edition highlights key areas of research that have emerged since the first edition was published. This edition includes new and updated chapters that have particular relevance for public health practice: Disability, Intersectionality, and Inequity: Life in the Margins Disability and Health Programs: Emerging Partners Children with Special Healthcare Needs Disasters and Disability: Rhetoric and Reality Inter-relationship of Health Insurance and Employment for People with Disabilities Public Health, Work, and Disability Actions to Prepare a Competent Workforce Public Health Perspectives on Disability: Science, Social Justice, Ethics, and Beyond, 2nd Edition, is an essential resource for public health educators and practitioners as well as students in graduate schools of public health throughout the United States.

This vital addition to carceral, prison, and disability studies draws important new links between deinstitutionalization and decarceration Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the twentieth century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system. Liat Ben-Moshe provides groundbreaking case studies that show how abolition is not an unattainable goal but rather a reality, and how it plays out in different arenas of incarceration-antipsychiatry, the field of intellectual disabilities, and the fight against the prison-industrial complex. Ben-Moshe discusses a range of topics, including why deinstitutionalization is often wrongly blamed for the rise in incarceration; who resists decarceration and deinstitutionalization, and the coalitions opposing such resistance; and how understanding deinstitutionalization as a form of residential integration makes visible intersections with racial desegregation. By connecting deinstitutionalization with prison abolition, Decarcerating Disability also illuminates some of the limitations of disability rights and inclusion discourses, as well as tactics such as litigation, in securing freedom. Decarcerating Disability's rich analysis of lived experience, history, and culture helps to chart a way out of a failing system of incarceration.

Eugene T. Kingsley led an extraordinary life: he was once described as "one of the most dangerous men in Canada." In 1890, Kingsley was working as a railway brakeman in Montana when an accident left him a double amputee, and politically radicalized. Ravi Malhotra and Benjamin Isitt trace Kingsley's political journey from soapbox speaker in San Francisco to prominence in the Socialist Party of Canada. They examine Kingsley's endeavours for justice against the Northern Pacific Railway, and how his life intersected with immigration law and free-speech rights. Able to Lead highlights Kingsley's profound legacy for the twenty-first-century political left.

This volume describes art therapy interventions for particularly dysfunctional families and explains the connections between the process of creating art and the curative process in meeting these families' needs. The first chapter examines distressed family systems, and psychotherapy in relation to the uses of art therapy. Subsequent chapters present a crisis intervention model for family art therapy and demonstrate the applications of this model with single-parent families, families affcetd by alcoholism or sexual abuse, and families of political refugees and disaster victims. More than 70 samples of the art produced by these families are reproduced and analyzed.

Originally published in 1930, The Deaf Mute Howls flew in the face of the accepted practice of teaching deaf children to speak and read lips while prohibiting the use of sign language. The sharp observations in Albert Ballin's remarkable book detail his experiences (and those of others) at a late 19th-century residential school for deaf students and his frustrations as an adult seeking acceptance in the majority hearing society. The Deaf Mute Howls charts the ambiguous attitudes of deaf people toward themselves at this time. Ballin himself makes matter-of-fact use of terms now considered disparaging, such as "deaf-mute," and he frequently rues the "atrophying" of the parts of his brain necessary for language acquisition. At the same time, he rails against the loss of opportunity for deaf people, and he commandingly shifts the burden of blame to hearing people unwilling to learn the "Universal Sign Language," his solution to the communication problems of society. From his lively encounters with Alexander Graham Bell (whose desire to close residential schools he surprisingly supports) to his enthrallment with the film industry, Ballin's highly readable book offers an appealing look at the deaf world during his richly colored lifetime.

Building on David M. Engel and Frank W. Munger's work analyzing the narratives of people with physical and learning disabilities, this book examines the life stories of twelve physically disabled Canadian adults through the prism of the social model of disablement. Using a grounded theory approach and with extensive reporting of the thoughts of the participants in their own words, the book uses narratives to explore whether an advocacy identity helps or hinders dealings with systemic barriers for disabled people in education, employment, and transportation. The book underscores how both physical and attitudinal barriers by educators, employers and service providers complicate the lives of disabled people. The book places a particular focus on the importance of political economy and the changes to the labour market for understanding the marginalization and oppression of people with disabilities. By melding socio-legal approaches with insights from feminist, critical race, and queer legal theory, Ravi Malhotra and Morgan Rowe ask if we need to reconsider the social model of disablement, and proposes avenues for inclusive legal reform.

In the last 30 years, a distinctive intersection between disability studies - including disability rights advocacy, disability rights activism, and disability law - and disability arts, culture, and media studies has developed. The two fields have worked in tandem to offer critique of representations of disability in dominant cultural systems, institutions, discourses, and architecture, and develop provocative new representations of what it means to be disabled. Divided into 5 sections: Disability, Identity, and Representation Inclusion, Wellbeing, and Whole-of-life Experience Access, Artistry, and Audiences Practices, Politics and the Public Sphere Activism, Adaptation, and Alternative Futures this handbook brings disability arts, disability culture, and disability media studies - traditionally treated separately in publications in the field to date - together for the first time. It provides scholars, graduate students, upper level undergraduate students, and others interested in the disability rights agenda with a broad-based, practical and accessible introduction to key debates in the field of disability art, culture, and media studies. An internationally recognised selection of authors from around the world come together to articulate the theories, issues, interests, and practices that have come to define the field. Most critically, this book includes commentaries that forecast the pressing present and future concerns for the field as scholars, advocates, activists, and artists work to make a more inclusive society a reality.

Disability offers a new lens through which to view the effectiveness of access to justice, and the inclusiveness of the justice system as a whole. This book analyses the experience of people with disabilities through the entire justice system, from making a complaint, to investigation, and through the court/tribunal process. It also considers the participation of people with disabilities in a variety of roles in the justice system - as witness, defendant, complainant, plaintiff, lawyer, judge and juror. More broadly, it also critically examines the subtle barriers of access to justice which might exist in a given society - including barriers to grassroots disability advocacy, legal education and training, the right to vote and the right to stand for election which may apply to people with disabilities. The book is international and comparative in scope with a focus primarily on examples of legal practice and justice systems in common law countries. The work will be of interest to scholars working in the areas of human rights, equality and non-discrimination, disability rights activists and legal professionals who work with people with disabilities to achieve access to justice.

In this collection of primary sources, Eugene Smelyansky highlights instances of persecution and violence, as well as those relatively rare but significant episodes of toleration, that impacted a broad spectrum of people who existed at the margins of medieval society: heretics, Jews and Muslims, the poor, the displaced and disabled, women, and those deemed sexually deviant. The volume also presents a more geographically diverse Middle Ages by including sources from Central and Eastern Europe as well as the Mediterranean. Each document is preceded by a brief introduction and followed by questions for discussion, making The Intolerant Middle Ages an excellent entrance into the lives and struggles of medieval minorities.

This SpringerBrief provides readers with a comprehensive snapshot of contemporary research about autistics and their experiences and insights of sexual behaviours and interests. The authors use a scoping review approach to canvass the diverse literature on this topic. This approach shows many gaps in scholarly understanding about autistics and their experiences and insights of sexual interests and behaviours. Some of the gaps relate to sex education, gender dysphoria and gender reassignment surgery, pregnancy and childbirth, and domestic violence experiences of autistics. The book addresses these gaps and provides explanations and recommendations for further research.

Disavowing Disability examines the role that disability, both as a concept and an experience, played in seventeenth-century debates about salvation and religious practice. Exploring how the use and definition of the term 'disability' functioned to allocate agency and culpability, this study argues that the post-Restoration imperative to capacitate 'all men'-not just the 'elect'-entailed a conceptual circumscription of disability, one premised on a normative imputation of capability. The work of Richard Baxter, sometimes considered a harbinger of 'modernity' and one of the most influential divines of the Long Eighteenth Century, elucidates this multifarious process of enabling. In constructing an ideology of ability that imposed moral self-determination, Baxter encountered a germinal form of the 'problem' of disability in liberal theory. While a strategy of 'inclusionism' served to assimilate most manifestations of alterity, melancholy presented an intractability that frustrated the logic of rehabilitation in fatal ways. This title is also available as Open Access on Cambridge Core.

Dyslexia is a complex condition that affects not only learning but every part of life. Experience or fear of social stigma can lead people with dyslexia to camouflage the difficulties they face, to withdraw and to adopt negative coping strategies, particularly if they lack adequate support, identification and intervention. This can have lasting impact on their emotional health. Neil Alexander-Passe is an experienced researcher and a special needs teacher in secondary mainstream education. He also has dyslexia. Neil uses his personal and professional experience to shed light on the complexities surrounding dyslexia and examines psychological theories such as ego-defence mechanisms and learned helplessness that reveal how people deal with its emotional impact. He offers guidelines and advice, illustrated with real life examples, about how to help people with dyslexia avoid harmful coping strategies and learn to deal with stress, anxiety and low self-esteem in more effective and psychologically positive ways. This book will help educational and clinical psychologists, teachers, mental health specialists, counsellors and therapists understand the emotional complexities of dyslexia.

What does it mean to engage in Deaf Studies and who gets to define the field? What would a truly deaf-led Deaf Studies research program look like? What are the research practices of deaf scholars in Deaf Studies, and how do they relate to deaf research participants and communities? What innovations do deaf scholars deem necessary in the field of Deaf Studies? In Innovation in Deaf Studies: The Role of Deaf Scholars, volume editors Annelies Kusters, Maartje De Meulder, and Dai O'Brien and their contributing authors tackle these questions and more. Spurred by a gradual increase in the number of Deaf Studies scholars who are deaf, and by new theoretical trends in Deaf Studies, this book creates an important space for contributions from deaf researchers, to see what happens when they enter into the conversation. Innovation in Deaf Studies expertly foregrounds deaf ontologies (defined as "deaf ways of being") and how the experience of being deaf is central not only to deaf research participants' own ontologies, but also to the positionality and framework of the study as a whole. Further, this book demonstrates that the research and methodology built around those ontologies offer suggestions for new ways for the discipline to meet the challenges of the present, which includes productive and ongoing collaboration with hearing researchers. Providing fascinating perspective and insight, Kusters, De Meulder, O'Brien, and their contributors all focus on the underdeveloped strands within Deaf Studies, particularly on areas around deaf people's communities, ideologies, literature, religion, language practices, and political aspirations.

Almost fifteen per cent of the world's population today experiences some form of mental or physical disability and society tries to accommodate their needs. But what was the situation in the Roman world? Was there a concept of disability? How were the disabled treated? How did they manage in their daily lives? What answers did medical doctors, philosophers and patristic writers give for their problems? This, the first monograph on the subject in English, explores the medical and material contexts for disability in the ancient world, and discusses the chances of survival for those who were born with a handicap. It covers the various sorts of disability: mental problems, blindness, deafness and deaf-muteness, speech impairment and mobility impairment, and includes discussions of famous instances of disability from the ancient world, such as the madness of Emperor Caligula, the stuttering of Emperor Claudius and the blindness of Homer.