Attention to embodiment and the religious significance of bodies is one of the most significant shifts in contemporary theology. In the midst of this, however, experiences of disability have received little attention. This book explores possibilities for theological engagement with disability, focusing on three primary alternatives: challenging existing theological models to engage with the disabled body, considering possibilities for a disability liberation theology, and exploring new theological options based on an understanding of the unsurprisingness of human limits.
The overarching perspective of this book is that limits are an unavoidable aspect of being human, a fact we often seem to forget or deny. Yet not only do all humans experience limits, most of us also experience limits that take the form of disability at some point in our lives; in this way, disability is more "normal" than non-disability. If we take such experiences seriously and refuse to reduce them to mere instances of suffering, we discover insights that are lost when we take a perfect or generic body as our starting point for theological reflections. While possible applications of this insight are vast, this work focuses on two areas of particular interest: theological anthropology and metaphors for God.
This project challenges theology to consider the undeniable diversity of human embodiment. It also enriches previous disability work by providing an alternative to the dominant medical and minority models, both of which fail to acknowledge the full diversity of disability experiences. Most notably, this project offers new images and possibilities for theological construction that attend appropriately and creatively to diversity in human embodiment.

This is an attempt to address the ethical issues raised by mental illness and its treatment by focusing on the question of autonomy. The mentally ill may be regarded as non-autonomous by virtue of irrationality, which may result in treatment models which may deny them a voice. As a counter to this, some have moved to the other extreme and argued that the mentally ill must be regarded as fully autonomous in all circumstances, and consequently that all their wishes regarding treatment must be respected. This book examines the ethical consequences of such simplistic approaches approaches towards autonomy and mental illness, and considers the ethical issues raised by specific forms of treatment. It is suggested in conclusion that improvement in the care and treatment of the mentally ill requires not only a fundamental change in social attitudes but also less impoverished conception of autonomy than some of those currently employed.

A Mismatch of Salience brings together a range of Damian Milton's writings that span more than a decade. The book explores the communication and understanding difficulties that can create barriers between people on the autism spectrum and neurotypical people. It celebrates diversity in communication styles and human experience by re framing the view that autistic people represent a `disordered other' not as an impairment, but a two-way mismatch of salience. It also looks at how our current knowledge has been created by non-autistic people on the `outside', looking in. A Mismatch of Salience attempts to redress this balance.

Oftentimes exhibitions tack on access once the artwork has already been executed and ready to be installed in the museum or gallery. But what if the artists were to ponder access as an integral and critical part of their artwork? Can access be creative and experimental? And furthermore, can the curator also fold access into their practice, while working collaboratively with artists, considering it as a theoretical and practical generative force that seeks to make an exhibition more engaging for a wider diversity of audiences? This volume includes essays by a growing number of artists, curators, and scholars who ponder these ideas of ad-hoc, experimental and underground approaches within exhibition-making and artistic practices. It considers how, through these nascent exhibition models and art practices, enhanced experiences of access in the museum can be a shared responsibility amongst museum workers, curators, and artists, in tandem with the public, so that access becomes a zone of intellectual and creative "accommodation," rather than strictly a discourse on policy. The book provides innovative case studies which provide a template for how access might be implemented by individuals, artists, curators, museum administrators and educators given the growing need to offer as many modalities of access as possible within cultural institutions. This book shows that anyone can be a curator of access and demonstrates how to approach access in a way that goes beyond protocol and policy. It will thus be of interest to students and scholars engaged in the study of museums, art history and visual culture, disability, culture, and communication.

What is disability? Why terminate a pregnancy when disabling traits are diagnosed in the foetus? Can disability be part of a person's identity? These are important questions in the current climate of increased pre-natal screening programmes designed to further reduce the numbers of children born with disabilities. This book looks at disablement from a philosophical perspective by examining these questions through a combination of critical review, discussion and narrative theory. Disability: definitions, value and identity provides practical and concise information for social care workers, counsellors, academics, students, genetics counsellors, and medical and healthcare ethicists. It will also be invaluable for disability pressure groups and policy makers.

Dementia in Close-Up is a clear and practical guide to dementia and the world of the dementia sufferer.
Bere Miesen assumes no medical or specialist knowledge and uses first hand accounts and real-life examples to examiners on patterns of behaviour and responses of sufferers and their carers. He focuses on the complex and varied relationships between the sufferer, their family and professional carers, and explores the conflict that can sometimes be engendered by dependency, fear and sustained closeness.
Going beyond the purely medical descriptions of dementia, Dementia in Close-Up strives to give families and health professionals the means to form caring and rewarding relationships and to help everyone involved.

Childhood disabilities, particularly cognitive disabilities, are on the rise yet social programs and services to help US families respond to disabilities are not. Many families turn to grandparents for assistance juggling work, family responsibilities, and specialized therapies. This book is based on in-depth interviews with grandparents who are providing at least some care to grandchildren with disabilities. The analyses will help to better understand (1) under what conditions grandparents provide care and support, (2) what types and intensities of care and support grandparents provide, and (3) the impact of that care and support on grandparents' social, emotional, physical, and financial wellbeing. In this fascinating and provocative book, Madonna Harrington Meyer and Ynesse Abdul-Malak take readers on a deep dive into the complex lives of grandparents who care for their disabled grandchildren. In Grandparenting Children with Disabilities, their interviews reveal the joy, meaning, and purpose grandparents find in caregiving, the challenges and frustrations they encounter, and the many ways they compromise their own health and well-being for the sake of their grandchildren. Drawing from theories of cumulative inequality and from their deep knowledge of the US policy context, the authors lay bare the systemic failures that leave families of children with disabilities without adequate support and that place the most vulnerable among them at grave physical, emotional, and financial risk... Jane McLeod, Provost Professor, Indiana University Grandparents in the U.S. already take on far more parenting responsibilities as compared to their peers in other countries. Grandparenting Children with Disabilities demonstrates that the intensity of these responsibilities is compounded for those whose grandchildren have disabilities given limited policy supports and a society still largely unaccommodating to those with disabilities. This book beautifully navigates the tension between the love these grandparents have for their grandchildren and the challenges they face caring for them. Pamela Herd, Professor, Georgetown University Grandparenting Children with Disabilities offers important insights about the lived experience of older adults who care for and care about their grandchildren...The authors skillfully integrate the stories they tell with consideration of macro social structural influences and life course perspectives... I recommend it highly! Eva Kahana, Distinguished University Professor, Case Western Reserve

Hotly contested, normality remains a powerful, complex category in contemporary law and culture. What is little realized are the ways in which disability underpins and shapes the operation of norms and the power dynamics of normalization. This pioneering collection explores the place of law in political, social, scientific and biomedical developments relating to disability and other categories of 'abnormality'. The contributors show how law produces cultural meanings, norms, representations, artefacts and expressions of disability, abnormality and normality, as well as how law responds to and is constituted by cultures of disability. The collection traverses a range of contemporary legal and political issues including human rights, mercy killing, reproductive technologies, hate crime, policing, immigration and disability housing. It also explores the impact and ongoing legacies of historical practices such as eugenics and deinstitutionalization. Of interest to a wide range of scholars working on normality and law, the book also creates an opening for critical scholars and activists engaged with other marginalized and denigrated categories, notably contesting institutional violence in the context of settler colonialism, neoliberalism and imperialism, to engage more richly and politically with disability. This book was originally published as a special issue of the Continuum journal.

Incorporating scholarship that addresses the social, economic, cultural, and historical facets of the experience of disability in South Asia, this book presents the reader with a comprehensive, cogent, and nuanced view of the constructions of disability in this region. In doing so, it focuses on the lived experiences of people with disabilities and their families, analyzing such disabling barriers as poverty, caste, and other inequities that limit their access to education, employment, equity, and empowerment. It addresses the interpretations of disability within different South Asian contexts including policy, family, educational systems, films, and literary narratives. Situated in an interdisciplinary perspective that spans areas such as cultural studies, law, disability studies in education, sociology, and historiography, South Asia and Disability Studies presents a rich and complex understanding of the disability experience in South Asia. The organization of topics parallels the discourse in areas within disability studies such as identity construction, language, historical constructions of disability, and cultural representations of disability.

Quality Activities in Center-Based Programs for Adults with Autism: Moving from Nonmeaningful to Meaningful describes what constitutes meaningful versus nonpurposeful activities for adults with autism and other severe disabilities in a classroom or center-based program. Then this step-by-step guide presents an evidence-based process for changing nonpurposeful activities, using behavior analytic research and application. The goal is to help ensure adults with autism and other severe disabilities are engaged in week-day activities that truly enhance their income-earning capacity, independence with life skills, day-to-day enjoyment, and overall dignity.

Active Social Work with Children with Disabilities provides a comprehensive social worker's guide to working with children with disabilities, exploring current issues from the perspective of both the social worker and the family. Many people are afraid of working in this field of social work and this book dispels the myths and fears about working with children with disabilities and build the social worker's confidence in an area that is often left behind within the social work world. The book will help you to: undertake a social work assessment with a child with a disability consider the holistic needs of the child and the family explore the impact of grief and loss upon the family build emotional intelligence and resilience within families. communicate with children with disabilities communication techniques. The new SEND legislation and issues around Safeguarding of Children with Disabilities and Transition to Adult Social Care for the young person are explored, and activities and scenarios help you to critically reflect and explore theory and practice further

At least 50 million people worldwide have epilepsy. Representing Epilepsy, the latest volume in LUP's acclaimed Representations series, seeks to understand the epileptic body as a literary or figurative device intelligible beyond a medical framework. Jeannette Stirling argues that neurological discourse from the late-nineteenth century through to the mid-twentieth century is as much forged by the cultural conditions and representational politics of the times as it is by the science of western medicine. Along the way she explores narratives of epilepsy depicting ideas of social disorder, tainted bloodlines, sexual deviance, spiritualism and criminality in works as diverse as David Copperfield and The X Files. This path-breaking book will be required reading for cultural disability studies scholars and for anyone seeking greater understanding of this common condition. 'Representing Epilepsy offers a clever exploration of the cultural history of this condition, based on an effective interdisciplinary approach. It will be of particular interest to scholars and students in the field of Medical Humanities, as well as to all those involved in the care of people with epilepsy, who wish to improve their understanding of the socio-cultural repercussions of the condition.' Maria Vaccarella, King's College London

Demands for excellence and efficiency have created an ableist culture in academia. What impact do these expectations have on disabled, chronically ill and neurodivergent colleagues? This important and eye-opening collection explores ableism in academia from the viewpoint of academics' personal and professional experiences and scholarship. Through the theoretical lenses of autobiography, autoethnography, embodiment, body work and emotional labour, contributors from the UK, Canada and the US present insightful, critical, analytical and rigorous explorations of being 'othered' in academia. Deeply embedded in personal experiences, this perceptive book provides examples for universities to develop inclusive practices, accessible working and learning conditions and a less ableist environment.

This work covers the history of those orders which combined religion and caring with military prowess. Among the orders covered: are the Hospitallers of St John; the Templars; the Teutonic order; and the Spanish. The book also discusses the perceptions and roles of the military orders.

This book examines the state of art in disability studies, focusing on the Indian context, as well as the broader South Asian situation. It presents interdisciplinary perspectives on the basic idea, evolution, practices and challenges of researching and teaching disability studies at various higher education institutions and in other civil society spaces. The chapters address a range of related themes, including activism, development policies, research, pedagogy, spatial and social access, caste and gender representations and rights-based discourses. Given the scope of its coverage, the book is of interest to scholars and students in area of humanities, education, law, sociology and social work, political science development and disability studies.

A sociological history of the fight for civil rights for people with intellectual disabilities. Allison Carey develops a relational practice approach to the issues of intellectual disability & civil rights, looking at how advocacy has progressed over the course of the past century.

In Undoing Suicidism, Alexandre Baril argues that suicidal people are oppressed by what he calls structural suicidism, a hidden oppression that, until now, has been unnamed and under-theorized. Each year, suicidism and its preventionist script and strategies reproduce violence and cause additional harm and death among suicidal people through forms of criminalization, incarceration, discrimination, stigmatization, and pathologization. This is particularly true for marginalized groups experiencing multiple oppressions, including queer, trans, disabled, or Mad people. Undoing Suicidism questions the belief that the best way to help suicidal people is through the logic of prevention. Alexandre Baril presents the thought-provoking argument that supporting assisted suicide for suicidal people could better prevent unnecessary deaths. Offering a new queercrip model of (assisted) suicide, he invites us to imagine what could happen if we started thinking about (assisted) suicide from an anti-suicidist and intersectional framework. Baril provides a radical reconceptualization of (assisted) suicide and invaluable reflections for academics, activists, practitioners, and policymakers.

How should disability justice be conceptualised, not by orthodox human rights or capabilities approaches, but by a legal philosophy that mirrors an African relational community ideal? This book develops the first comprehensive answer to this question through the contemporary literature on African philosophy, which is relied upon to construct a legal philosophy of disability justice comprising of ethical ideals of community, human relationships and obligations. From these ideals, an African legal philosophy of disability justice is offered as a criterion for critically evaluating existing laws, legal and political institutions, as well as providing an ethical basis for creating new ones to ensure that they are inclusive to people with disabilities. In taking an alternative perspective on the subject, the book outlines and emphasises the need for a new public culture of obligations owed to people with disabilities, highlighting both the prospects and difficulties of achieving the ideal of disability justice that continues to elude the lived experiences of millions of Africans today. Oche Onazi's An African Path to Disability Justice is the first book-length exploration of disability in the light of African ethics, as contrasted with the human rights and capabilities frameworks. Of particular interest are Onazi's thoughtful reflections on how various conceptions of community salient in African moral philosophy--including group-based, reciprocal and relational--bear on what we owe to the disabled. --Thaddeus Metz, Distinguished Professor, University of Johannesburg

This special issue brings together explorations of crip temporality: the ways in which bodily and mental disabilities shape the experience of time. These include needing to use time-consuming adaptive technologies like screen readers, working slowly during a pain flare-up, or only being able to look at a screen for short periods. Through accessibly written essays, art, and poems, contributors explore both the confines of crip temporality and the freedoms it provides. They offer strategies and narratives for navigating the academy as a disabled person; reclaim self-care as a tool for personal survival instead of productivity; and illustrate how crip time is mobilized in service of biopolitical projects. More than just a space of loss and frustration, they argue, crip time also offers liberatory potential: the contributors imagine how justice, connection, and pleasure might emerge from temporalities that center compassion rather than productivity. Contributors Moya Bailey, Amanda Cachia, Maria Elena Cepeda, Eli Clare, Finn Enke, Elizabeth Freeman, Matt Huynh, Alison Kafer, Mimi Khuc, Christine Sun Kim, Jina B. Kim, Leah Lakshmi Piepzna-Samarasinha, Margaret Price, Jasbir Puar, Jake Pyne, Ellen Samuels, Sami Schalk, Michael Snediker

This is a guide which offers advice to individuals, organizations and agencies on how to develop day care programmes for patients with Alzheimer's disease or a related dementia. At the same time, the book offers guidance to those who intend to adapt an established day care programme for the needs of Alzheimer sufferers. A range of programme aspects are covered from administration, financing, fund raising, public relations, client issues, program activities, problems facing participants' families, programme evaluation and supplementary resources.

Learn to interact with families in ways that promote family functioning when a family member is dying. Family-Based Palliative Care is an insightful book that aims to increase professionals'understanding of the family as client. Authoritative contributors who are experienced in working with the terminally ill present the most current theory, practice, and research related to family-based care of hospice patients. Each readable chapter includes a wealth of information that can be applied to health care settings in which holistic care is a priority. The first chapter presents a conceptual framework for caring for families of the terminally ill as well as clinical examples that are used to illustrate the application of the framework in practice. Experts describe four research studies--two qualitative studies that examine sources of stress for caregivers and identify the resources used by families to manage at home; a methodological study that explores the positive and negative aspects of family caregiving; and a case study that evaluates a hospice staff's efforts in providing family- based care.Because little research has been done with family caregivers of terminally ill hospice patients, Family-Based Palliative Care will be essential reading for nurses, social workers, hospice staff, and other professionals whose job it is to care for the dying and their families.

John Swinton has indelibly shaped the discipline of practical theology not only in the United Kingdom but globally, and has been especially influential in the areas of disability theology, dementia, healthcare, and chaplaincy. Swinton presses one question with a special intensity: What does it mean to be human? The chapters in this volume display why this question unifies his wide-ranging corpus of work and show how Swinton has answered it in the various domains he has explored. The chapters range as widely as his work, from "Swintonian" practical theological methodology, to specific themes like friendship, peace, and belonging. Several chapters offer concrete testimonies of how Swinton's work has influenced scholars and practitioners alike. Contributors identify the pivotal moves in Swinton's work and draw together into a single volume an account of how these themes have been developed in different material discussions. Disciples and Friends, as a survey of John's key methodological and theological stances, will become an indispensable resource for students and scholars of practical theology, disability theology, mental health, dementia, and cognate fields. The volume brings together renowned scholars who know not only John Swinton's work but also him as a person. This knowledge enables contributors to insightfully link Swinton's work to the life he has lived and to suggest promising avenues for further development of his signature ideas. In compiling for the first time an accessible survey of and introduction to one of the most important voices to emerge in disability theology for many decades, Disciples and Friends represents a seminal scholarly undertaking and a fitting tribute to Swinton's legacy.

Disability and Shopping:Customers, Markets and the State provides an examination of the diverse experiences and perspectives of disabled customers, industry and civil society. It discusses how the interaction between the three stakeholders should be shaped at aiming to decrease inequality and marginalisation. Shopping is a part of everyday modern life and yet businesses struggle to adequately meet the needs of 80 million disabled customers in the European Union single market. While there has been extensive research into how individuals engage in customer roles and experience, and how businesses and policies both shape and respond to these, little is known of the same dynamics and practices regarding people with impairments. This book addresses this need by revealing the perspectives, interactions and experiences of disabled customers and their interaction with policy and business. It will be required reading for all scholars and students of disability studies, sociology, marketing and customer relations.

In recent years, attending to diversity in the cultivation of embodied identity has been given additional impetus as a result of intersectionality theory. Despite this, a key gap remains in terms of knowledge about masculinity and disability. This book addresses this lacuna through ten empirical chapters organised through the inter-related themes of corporeality, pedagogy and the critique of otherness. Each of the chapters positions the subject of masculinity and disability as a site of cultural pedagogy by affirming different ways of knowing of masculinity beyond dominant ideologies that normalise a particular masculine body and relegate disabled masculinities to the position of abnormal 'Other'. Part One focuses on pedagogy. Through the materialities of 'medicalized colonialism', imprimaturs of 'relational genealogies', 'compounding differences' and an analytical exposition of some of the neo-colonial conditions of the Global South within spatially-considered places of the Global North, Chapter 1 examines the denial of human rights to the Indigenous Anishinaabe community of Shoal Lake 40 in Canada. Chapter 1 theorises masculine corporeality in terms that take seriously First Nations', national and transnational body politics seriously. Chapter 2 examines the ways that movement and affect serve as a form of pedagogy for boys with autism spectrum in schools. Part Two's focus on corporeality includes an examination of the nexus of disability and diagnosis in the context of transgender men's experiences of mental health, and a discussion of the ways that intersex individuals who identify as men and have experienced 'genital normalising surgery' actively negotiate pluralised masculinities. The focus on media in Part Three encompasses a study of the mis-interpellation of the disabled male subject in Australian male literature, research on the discursive strategies utilised in media representations of disabled veterans in Turkey, and an analysis of the political implications of depictions of masculinity, disability and sexualities in a variety television program. Part Four's theme of self-stylisation takes up the questions of men's reconstructions of masculinity in light of Lyme Disease, the potential pleasures of heterosexuality for young men with a hearing disability in the realm of Australian-Rules Football, and the diverse ways that disabled men negotiate patriarchal masculinity in intimate relationships.

This ground-breaking book provides fascinating insights into the fast-emerging body of research that explores the relationship between sport, theology and disability within a social justice framework. In the shadow of two major sport-faith events that fore-fronted the theology of disability sport, the Vatican's international conference-Sport at the Service of Humanity and the Inaugural Global Congress on Sports and Christianity York St John University, UK, at which Dr Brian Brock led a thematic strand on the topic-this book provides a foundation for further research and practice. This text is a timely and important synthesis of ideas that have emerged in two previously distinct areas of research: (i) 'disability sport' and (ii) the 'theology of disability'. Examples of subjects addressed in this text include: elite physical disability sport-Paralympics; intellectual disability sport-Special Olympics; equestrian sport; church, sport and disability, and; theologies of embodiment, competition and mercy. This book, written by leaders in their respective fields, begins a critical conversation on these topics, and many others, for both researchers and practitioners. The chapters originally published in the Journal of Disability and Religion and Quest.