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Books > Social sciences > Sociology, social studies > Social issues > Disability: social aspects
Hotly contested, normality remains a powerful, complex category in contemporary law and culture. What is little realized are the ways in which disability underpins and shapes the operation of norms and the power dynamics of normalization. This pioneering collection explores the place of law in political, social, scientific and biomedical developments relating to disability and other categories of 'abnormality'. The contributors show how law produces cultural meanings, norms, representations, artefacts and expressions of disability, abnormality and normality, as well as how law responds to and is constituted by cultures of disability. The collection traverses a range of contemporary legal and political issues including human rights, mercy killing, reproductive technologies, hate crime, policing, immigration and disability housing. It also explores the impact and ongoing legacies of historical practices such as eugenics and deinstitutionalization. Of interest to a wide range of scholars working on normality and law, the book also creates an opening for critical scholars and activists engaged with other marginalized and denigrated categories, notably contesting institutional violence in the context of settler colonialism, neoliberalism and imperialism, to engage more richly and politically with disability. This book was originally published as a special issue of the Continuum journal.
Incorporating scholarship that addresses the social, economic, cultural, and historical facets of the experience of disability in South Asia, this book presents the reader with a comprehensive, cogent, and nuanced view of the constructions of disability in this region. In doing so, it focuses on the lived experiences of people with disabilities and their families, analyzing such disabling barriers as poverty, caste, and other inequities that limit their access to education, employment, equity, and empowerment. It addresses the interpretations of disability within different South Asian contexts including policy, family, educational systems, films, and literary narratives. Situated in an interdisciplinary perspective that spans areas such as cultural studies, law, disability studies in education, sociology, and historiography, South Asia and Disability Studies presents a rich and complex understanding of the disability experience in South Asia. The organization of topics parallels the discourse in areas within disability studies such as identity construction, language, historical constructions of disability, and cultural representations of disability.
Quality Activities in Center-Based Programs for Adults with Autism: Moving from Nonmeaningful to Meaningful describes what constitutes meaningful versus nonpurposeful activities for adults with autism and other severe disabilities in a classroom or center-based program. Then this step-by-step guide presents an evidence-based process for changing nonpurposeful activities, using behavior analytic research and application. The goal is to help ensure adults with autism and other severe disabilities are engaged in week-day activities that truly enhance their income-earning capacity, independence with life skills, day-to-day enjoyment, and overall dignity.
At least 50 million people worldwide have epilepsy. Representing Epilepsy, the latest volume in LUP's acclaimed Representations series, seeks to understand the epileptic body as a literary or figurative device intelligible beyond a medical framework. Jeannette Stirling argues that neurological discourse from the late-nineteenth century through to the mid-twentieth century is as much forged by the cultural conditions and representational politics of the times as it is by the science of western medicine. Along the way she explores narratives of epilepsy depicting ideas of social disorder, tainted bloodlines, sexual deviance, spiritualism and criminality in works as diverse as David Copperfield and The X Files. This path-breaking book will be required reading for cultural disability studies scholars and for anyone seeking greater understanding of this common condition. 'Representing Epilepsy offers a clever exploration of the cultural history of this condition, based on an effective interdisciplinary approach. It will be of particular interest to scholars and students in the field of Medical Humanities, as well as to all those involved in the care of people with epilepsy, who wish to improve their understanding of the socio-cultural repercussions of the condition.' Maria Vaccarella, King's College London
Demands for excellence and efficiency have created an ableist culture in academia. What impact do these expectations have on disabled, chronically ill and neurodivergent colleagues? This important and eye-opening collection explores ableism in academia from the viewpoint of academics' personal and professional experiences and scholarship. Through the theoretical lenses of autobiography, autoethnography, embodiment, body work and emotional labour, contributors from the UK, Canada and the US present insightful, critical, analytical and rigorous explorations of being 'othered' in academia. Deeply embedded in personal experiences, this perceptive book provides examples for universities to develop inclusive practices, accessible working and learning conditions and a less ableist environment.
This work covers the history of those orders which combined religion and caring with military prowess. Among the orders covered: are the Hospitallers of St John; the Templars; the Teutonic order; and the Spanish. The book also discusses the perceptions and roles of the military orders.
This book examines the state of art in disability studies, focusing on the Indian context, as well as the broader South Asian situation. It presents interdisciplinary perspectives on the basic idea, evolution, practices and challenges of researching and teaching disability studies at various higher education institutions and in other civil society spaces. The chapters address a range of related themes, including activism, development policies, research, pedagogy, spatial and social access, caste and gender representations and rights-based discourses. Given the scope of its coverage, the book is of interest to scholars and students in area of humanities, education, law, sociology and social work, political science development and disability studies.
A sociological history of the fight for civil rights for people with intellectual disabilities. Allison Carey develops a relational practice approach to the issues of intellectual disability & civil rights, looking at how advocacy has progressed over the course of the past century.
In Undoing Suicidism, Alexandre Baril argues that suicidal people are oppressed by what he calls structural suicidism, a hidden oppression that, until now, has been unnamed and under-theorized. Each year, suicidism and its preventionist script and strategies reproduce violence and cause additional harm and death among suicidal people through forms of criminalization, incarceration, discrimination, stigmatization, and pathologization. This is particularly true for marginalized groups experiencing multiple oppressions, including queer, trans, disabled, or Mad people. Undoing Suicidism questions the belief that the best way to help suicidal people is through the logic of prevention. Alexandre Baril presents the thought-provoking argument that supporting assisted suicide for suicidal people could better prevent unnecessary deaths. Offering a new queercrip model of (assisted) suicide, he invites us to imagine what could happen if we started thinking about (assisted) suicide from an anti-suicidist and intersectional framework. Baril provides a radical reconceptualization of (assisted) suicide and invaluable reflections for academics, activists, practitioners, and policymakers.
How should disability justice be conceptualised, not by orthodox human rights or capabilities approaches, but by a legal philosophy that mirrors an African relational community ideal? This book develops the first comprehensive answer to this question through the contemporary literature on African philosophy, which is relied upon to construct a legal philosophy of disability justice comprising of ethical ideals of community, human relationships and obligations. From these ideals, an African legal philosophy of disability justice is offered as a criterion for critically evaluating existing laws, legal and political institutions, as well as providing an ethical basis for creating new ones to ensure that they are inclusive to people with disabilities. In taking an alternative perspective on the subject, the book outlines and emphasises the need for a new public culture of obligations owed to people with disabilities, highlighting both the prospects and difficulties of achieving the ideal of disability justice that continues to elude the lived experiences of millions of Africans today. Oche Onazi's An African Path to Disability Justice is the first book-length exploration of disability in the light of African ethics, as contrasted with the human rights and capabilities frameworks. Of particular interest are Onazi's thoughtful reflections on how various conceptions of community salient in African moral philosophy--including group-based, reciprocal and relational--bear on what we owe to the disabled. --Thaddeus Metz, Distinguished Professor, University of Johannesburg
This special issue brings together explorations of crip temporality: the ways in which bodily and mental disabilities shape the experience of time. These include needing to use time-consuming adaptive technologies like screen readers, working slowly during a pain flare-up, or only being able to look at a screen for short periods. Through accessibly written essays, art, and poems, contributors explore both the confines of crip temporality and the freedoms it provides. They offer strategies and narratives for navigating the academy as a disabled person; reclaim self-care as a tool for personal survival instead of productivity; and illustrate how crip time is mobilized in service of biopolitical projects. More than just a space of loss and frustration, they argue, crip time also offers liberatory potential: the contributors imagine how justice, connection, and pleasure might emerge from temporalities that center compassion rather than productivity. Contributors Moya Bailey, Amanda Cachia, Maria Elena Cepeda, Eli Clare, Finn Enke, Elizabeth Freeman, Matt Huynh, Alison Kafer, Mimi Khuc, Christine Sun Kim, Jina B. Kim, Leah Lakshmi Piepzna-Samarasinha, Margaret Price, Jasbir Puar, Jake Pyne, Ellen Samuels, Sami Schalk, Michael Snediker
"Professor Davidson---an accomplished literary critic---offers a
focused and balanced analysis of poetry, film, and the arts honed
with his excellent knowledge of the latest advances in disability
studies. He is brilliant at reading texts in a sophisticated and
aesthetically pleasurable way, making "Concerto for the Left Hand"
one of the smartest books to date in disability studies." "Concerto for the Left Hand" is at the cutting edge of the expanding field of disability studies, offering a wide range of essays that investigate the impact of disability across various art forms---including literature, performance, photography, and film. Rather than simply focusing on the ways in which disabled persons are portrayed, Michael Davidson explores how the experience of disability shapes the work of artists and why disability serves as a vital lens through which to interpret modern culture. Covering an eclectic range of topics---from the phantom missing limb in film noir to the poetry of American Sign Language---this collection delivers a unique and engaging assessment of the interplay between disability and aesthetics. Written in a fluid, accessible style, "Concerto for the Left Hand" will appeal to both specialists and general audiences. With itsinterdisciplinary approach, this book should appeal not only to scholars of disability studies but to all those working in minority art, deaf studies, visual culture, and modernism. Michael Davidson is Professor of American Literature at the University of California, San Diego. His other books include "Guys Like Us: Citing Masculinity in Cold War Poetics" and "Ghostlier Demarcations: Modern Poetry and the Material World,"
This is a guide which offers advice to individuals, organizations and agencies on how to develop day care programmes for patients with Alzheimer's disease or a related dementia. At the same time, the book offers guidance to those who intend to adapt an established day care programme for the needs of Alzheimer sufferers. A range of programme aspects are covered from administration, financing, fund raising, public relations, client issues, program activities, problems facing participants' families, programme evaluation and supplementary resources.
Learn to interact with families in ways that promote family functioning when a family member is dying. Family-Based Palliative Care is an insightful book that aims to increase professionals'understanding of the family as client. Authoritative contributors who are experienced in working with the terminally ill present the most current theory, practice, and research related to family-based care of hospice patients. Each readable chapter includes a wealth of information that can be applied to health care settings in which holistic care is a priority. The first chapter presents a conceptual framework for caring for families of the terminally ill as well as clinical examples that are used to illustrate the application of the framework in practice. Experts describe four research studies--two qualitative studies that examine sources of stress for caregivers and identify the resources used by families to manage at home; a methodological study that explores the positive and negative aspects of family caregiving; and a case study that evaluates a hospice staff's efforts in providing family- based care.Because little research has been done with family caregivers of terminally ill hospice patients, Family-Based Palliative Care will be essential reading for nurses, social workers, hospice staff, and other professionals whose job it is to care for the dying and their families.
John Swinton has indelibly shaped the discipline of practical theology not only in the United Kingdom but globally, and has been especially influential in the areas of disability theology, dementia, healthcare, and chaplaincy. Swinton presses one question with a special intensity: What does it mean to be human? The chapters in this volume display why this question unifies his wide-ranging corpus of work and show how Swinton has answered it in the various domains he has explored. The chapters range as widely as his work, from "Swintonian" practical theological methodology, to specific themes like friendship, peace, and belonging. Several chapters offer concrete testimonies of how Swinton's work has influenced scholars and practitioners alike. Contributors identify the pivotal moves in Swinton's work and draw together into a single volume an account of how these themes have been developed in different material discussions. Disciples and Friends, as a survey of John's key methodological and theological stances, will become an indispensable resource for students and scholars of practical theology, disability theology, mental health, dementia, and cognate fields. The volume brings together renowned scholars who know not only John Swinton's work but also him as a person. This knowledge enables contributors to insightfully link Swinton's work to the life he has lived and to suggest promising avenues for further development of his signature ideas. In compiling for the first time an accessible survey of and introduction to one of the most important voices to emerge in disability theology for many decades, Disciples and Friends represents a seminal scholarly undertaking and a fitting tribute to Swinton's legacy.
Disability and Shopping:Customers, Markets and the State provides an examination of the diverse experiences and perspectives of disabled customers, industry and civil society. It discusses how the interaction between the three stakeholders should be shaped at aiming to decrease inequality and marginalisation. Shopping is a part of everyday modern life and yet businesses struggle to adequately meet the needs of 80 million disabled customers in the European Union single market. While there has been extensive research into how individuals engage in customer roles and experience, and how businesses and policies both shape and respond to these, little is known of the same dynamics and practices regarding people with impairments. This book addresses this need by revealing the perspectives, interactions and experiences of disabled customers and their interaction with policy and business. It will be required reading for all scholars and students of disability studies, sociology, marketing and customer relations.
In recent years, attending to diversity in the cultivation of embodied identity has been given additional impetus as a result of intersectionality theory. Despite this, a key gap remains in terms of knowledge about masculinity and disability. This book addresses this lacuna through ten empirical chapters organised through the inter-related themes of corporeality, pedagogy and the critique of otherness. Each of the chapters positions the subject of masculinity and disability as a site of cultural pedagogy by affirming different ways of knowing of masculinity beyond dominant ideologies that normalise a particular masculine body and relegate disabled masculinities to the position of abnormal 'Other'. Part One focuses on pedagogy. Through the materialities of 'medicalized colonialism', imprimaturs of 'relational genealogies', 'compounding differences' and an analytical exposition of some of the neo-colonial conditions of the Global South within spatially-considered places of the Global North, Chapter 1 examines the denial of human rights to the Indigenous Anishinaabe community of Shoal Lake 40 in Canada. Chapter 1 theorises masculine corporeality in terms that take seriously First Nations', national and transnational body politics seriously. Chapter 2 examines the ways that movement and affect serve as a form of pedagogy for boys with autism spectrum in schools. Part Two's focus on corporeality includes an examination of the nexus of disability and diagnosis in the context of transgender men's experiences of mental health, and a discussion of the ways that intersex individuals who identify as men and have experienced 'genital normalising surgery' actively negotiate pluralised masculinities. The focus on media in Part Three encompasses a study of the mis-interpellation of the disabled male subject in Australian male literature, research on the discursive strategies utilised in media representations of disabled veterans in Turkey, and an analysis of the political implications of depictions of masculinity, disability and sexualities in a variety television program. Part Four's theme of self-stylisation takes up the questions of men's reconstructions of masculinity in light of Lyme Disease, the potential pleasures of heterosexuality for young men with a hearing disability in the realm of Australian-Rules Football, and the diverse ways that disabled men negotiate patriarchal masculinity in intimate relationships.
This ground-breaking book provides fascinating insights into the fast-emerging body of research that explores the relationship between sport, theology and disability within a social justice framework. In the shadow of two major sport-faith events that fore-fronted the theology of disability sport, the Vatican's international conference-Sport at the Service of Humanity and the Inaugural Global Congress on Sports and Christianity York St John University, UK, at which Dr Brian Brock led a thematic strand on the topic-this book provides a foundation for further research and practice. This text is a timely and important synthesis of ideas that have emerged in two previously distinct areas of research: (i) 'disability sport' and (ii) the 'theology of disability'. Examples of subjects addressed in this text include: elite physical disability sport-Paralympics; intellectual disability sport-Special Olympics; equestrian sport; church, sport and disability, and; theologies of embodiment, competition and mercy. This book, written by leaders in their respective fields, begins a critical conversation on these topics, and many others, for both researchers and practitioners. The chapters originally published in the Journal of Disability and Religion and Quest.
While the loss of sight-whether in early modern Japan or now-may be understood as a disability, blind people in the Tokugawa period (1600-1868) could thrive because of disability. The blind of the era were prominent across a wide range of professions, and through a strong guild structure were able to exert contractual monopolies over certain trades. Blind in Early Modern Japan illustrates the breadth and depth of those occupations, the power and respect that accrued to the guild members, and the lasting legacy of the Tokugawa guilds into the current moment. The book illustrates why disability must be assessed within a particular society's social, political, and medical context, and also the importance of bringing medical history into conversation with cultural history. A Euro-American-centric disability studies perspective that focuses on disability and oppression, the author contends, risks overlooking the unique situation in a non-Western society like Japan in which disability was constructed to enhance blind people's power. He explores what it meant to be blind in Japan at that time, and what it says about current frameworks for understanding disability.
This is the first book to explore the interplay of disability, gender and violence over the life course from researcher, practitioner and survivor perspectives. It gives due weight to the accounts of disabled children and adults who have survived institutional or individual violence, evidencing barriers to recognition, disclosure and reporting. Written by disabled and non-disabled women from around the world, Disability, Gender and Violence over the Life Course addresses the dearth of voices and experiences of disabled women and girls in empirical research, policy and practice on issues of violence, victimisation, protection, support and prevention. Divided into three parts - Childhood, Adulthood and Older Life - this collection offers diverse perspectives on the intersectionality of disability, age, ethnicity, sexuality and violence that have hitherto been absent. This book will be an invaluable resource for students and practitioners of multiple fields of practice and academic studies, including health and social care, nursing, social work, childhood studies, gender studies, disability studies, safeguarding and child protection, equality and human rights, sociology and criminology.
Recycling the disabled: Army, medicine, and modernity in WWI Germany examines the 'medical organisation' of Imperial Germany for total war. Faced with mounting casualties and a growing labour shortage, German military, industrial, and governmental officials turned to medical experts for assistance in the total mobilisation of society. Through an investigation of developments in orthopaedic medicine, prosthetic technology, military medical organisation and the cultural history of disability, Heather Perry reveals how the pressures of modern industrial warfare not only transformed medical ideas and treatments for injured soldiers, but also transformed social and cultural expectations of the disabled body - expectations that long outlasted the war. This book is ideal for scholars and students interested in war, medicine, disability, science and technology, and modern Germany. -- .
Social Justice Journalism: A Cultural History of Social Movement Media from Abolition to #womensmarch argues that to better understand the evolution, impact, and future of digital social justice media we need to understand their connections to a venerable print culture of dissent. This cultural history seeks to deepen and contextualize knowledge about digital activist journalism by training the lens of social movement theory back on the nearly forgotten role of eight twentieth-century American social justice journals in effecting significant social change. The book deliberately conflates "social movement media" with newer and broader conceptions of "social justice journalism" to highlight changing definitions of journalism in the digital era. It uses framing theory, social movement theory, and theories about the power of facts and emotion in storytelling to show how social movement media practice journalism to mobilize collective action for their cause. After tracing the evolution and functions of each social justice movement's print culture, each chapter concludes with a comparison to its online counterparts to illuminate links with digital media. The book concludes that digital activist journalism, while in some ways unique, also shares continuities and commonalities with its print predecessors.
Young, Disabled and LGBT+ brings together the work of an international team interested in exploring the intersection of sexuality, gender identity, and disability in the lives of young people and aims to further develop this area as a distinct area of study. This volume features original research and writing into lives that are often misunderstood, marginalised and under-represented in research. It is framed with artwork, poetry and writing from young disabled LGBT+ people, and centralises the voices and lives of young disabled LGBT+ people throughout. Drawing from disciplines including: sociology, psychology, disability and youth studies, and with contributions from practitioners, it examines experiences and research from a number of perspectives, such as education, personal lives and activism. Featuring work from the UK, Canada, United States, India and Australia, it is a timely and topical book which will appeal to scholars particularly interested in sexuality, gender, disability and youth studies; professionals within health, education, social work and youth work who aim to understand and support young disabled LGBT+ people; and young people themselves.
Both health care practitioners and health planners are beginning to
recognize the importance of differences between lay and
professional concepts of health and illness. The editors of this
volume, having themselves worked in this field for many years, have
selected and brought together writings by distinguished scholars
from Britain, France, the United States, Germany and Poland. What
impresses most is the range of problems synthesized from a
genuinely international and interdisciplinary perspective. No
reader can fail to be fascinated by the often peculiar ways in
which different societies have tried to cope with the existential
questions of health and illness. |
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